May 26, 2012 11:04PM bevg49 wrote:
Hi there, Vb... nice to meet you but wish it were under different circumstances... I have a similar story but not quite the same. I never felt a mass nor did the doctors. I went for a mammography and they said come back, we need more pics, blah blah blah, more pics turned into a sonogram which turned into a core needle biopsy. Doctor called and said it was 0 stage, dcis "the best you could hope for" ... So, I was sent to a surgeon and made plans for a lumpectomy. In the meantime, she sent me for an MRI which showed another spot which led to a second biopsy which came back as supposedly another 0 stage dcis. Neither of these could be felt. Anyhow, she took lumpecctomy off the table as one was at 12 o'clock and the other at around 8 o'clock, too far apart for the result to be good, so I was scheduled for a mastectomy (thursday June 7)..... Anyhow...... she called me a few days later to tell me the second "dcis" actually is not. It was looked at by a doc at the hospital and he found that it's actually invasive although she says it's small, 2.5 mm. So now, it's a mastectomy and SNB and being scared as hell that it's spread. The craziest thing about all thisis my sister went for a mammo after I got diagnosed and lo and behold, she has a spot on one breast which was biopsied and is DCIS. She is having a lumpectomy 7 days before my surgery. Since my mom died of BC, we went for the BRCCA test. It was negative thank God. I have a 16 year old granddaughter so that was the biggest relief.
As far as whether you made the right decision, they say survival rate is exactly the same weather lumpectomy or mastectomy. I just don't quite understand how they did a lumpectomy on so many spots and my doc wouldn't do it on 2. I am so glad you're now cancer free and let's hope it stays that way!!
In my case, since one phone call was to let me know I had a cancer, then a second phone call was to tell me I had a second cancer, then a third call was to tell me one of the tumors was actually invasive, I've come up with a solution.... I just refuse to answer my phone any more lolol.... Just kidding of course :)