We are 184,672 members in 80 forums discussing 139,787 topics.

Help with Abbreviations

All TopicsForum: IDC (Invasive Ductal Carcinoma) → Topic: Mastectomy done!

Topic: Mastectomy done!

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Feb 15, 2017 10:29PM

Jbird0614 wrote:

Hey sisters,

I was wandering around the Internet because I feel like I've had these drains forever and I thought it was unusual. But I found some conversations on here that made me feel better about having these dang things still producing like crazy. So I've joined.

From being just diagnosed or fresh outta surgery, this site seems to be very helpful.

I had a bilateral mastecomy with nipple sparing and placement of expanders on the 25th of Jan. Great results so far (well relatively speaking because they look weird!) anyone else do nipple sparing? Or want to just complain about these stupid drains? I'm always game for that! Am I doing too much? I don't know what's wrong with me, but after three weeks I'm still pumping out some fluid! I feel like a dang garden hose.

I'm all over the place! I'm just happy to have some place to go with people that understand. This has been quite a journey I will say. I thought I was a strong person, until I had surgery. Chemo was a breeze when compared to surgery. But I'm healing beautifully and very happy with my choices.

PS, I hated it when people told me "it'll get better". But, from one warrior to another ... it does get better.

Love - J

Log in to post a reply

Page 1 of 1 (8 results)

Posts 1 - 8 (8 total)

Log in to post a reply

Feb 15, 2017 10:31PM Moderators wrote:

Welcome, Jbird! Thank you for sharing your experiences and perspective with us. We hope you find this community to be a source of support when you need it. Best of luck with your continued healing!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Feb 15, 2017 11:50PM MinusTwo wrote:

Jbird - welcome even though we're sorry you had to join. You might find the best fit at a February Surgery thread right now. Are you going to have rads? When you get a chance, do go fill in your information at My Profile so others will be able to respond in kind.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Feb 16, 2017 12:05AM Freya wrote:

Hi and welcome Jbird. Happy for you that your surgery has gone well. The drains will soon be a distant memory, although it seems like forever at the time.

Dx 2009, ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone/liver, Grade 3, 14/22 nodes, ER+/PR+, HER2-
Log in to post a reply

Feb 21, 2017 02:44AM Reina_de_los_changos wrote:

Drains! UGH! I hated them! They seemed to take forever to come out and I was constantly complaining about them. I had surgery first, then chemo. I actually think the chemo has been harder. I guess it's different for everyone. Good luck! :

Dx 8/16/2016, IDC, Left, 2cm, Stage IIB, Grade 3, 1/16 nodes, ER-/PR-, HER2- Surgery 9/9/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 10/13/2016 AC + T (Taxol)
Log in to post a reply

Mar 4, 2017 11:08PM - edited Mar 4, 2017 11:09PM by Bravenurse13

Hello all!

Had my double mastectomy last Friday 2/24/17.  My left was prophylactic simple mastectomy, and right was modified radical, with expanders in both.

I am trying to wean off my pain meds, presently.  I am so dependent on my poor husband. It is getting better each day.  I have 2 drains presently and are 

both draining at 45ml on each side.  Cannot take out until they are down to less than 30 ml for over two consecutive days.  I had a good pathology report, 

No cancer cells present.  The 8 weeks of chemo worked!  Not to mention the Herceptin and Arimdex.

This has not been an easy journey, but after this reconstruction phase and radiation I will feel closer to the end.  

Log in to post a reply

Mar 4, 2017 11:47PM mustlovepoodles wrote:

Jbird, I had chemo, then BMX and I thought chemo was a breeze as compared to the BMX. It wasn't the actual surgery that was so bad (it wasn't all that painful), but my recovery was fraught with complications. It took a total of 16 weeks to heal the massive area of tissue necrosis and the 6" seroma. Don't even get me started on the damn drains!

Oncotype 23. Positive for PALB2 & Chek2 gene mutations. My breasts are trying to kill me! Dx 7/20/2015, DCIS/IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 8/20/2015 Lumpectomy Surgery 9/3/2015 Lumpectomy: Right Chemotherapy 10/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 2/4/2016 Prophylactic mastectomy: Left, Right Surgery 10/19/2016 Hormonal Therapy Femara (letrozole) Surgery
Log in to post a reply

Mar 5, 2017 10:22PM MinusTwo wrote:

BraveNurse - congrats on the good path report. Healing will come, it just takes time. Try not to push it too much.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Mar 6, 2017 10:51PM Bravenurse13 wrote:

Thanks MT,

I have turned into a couch potato so far!  It is getting better by the day though... 

Page 1 of 1 (8 results)