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All TopicsForum: IDC (Invasive Ductal Carcinoma) → Topic: Just diagnosed with IDC

Topic: Just diagnosed with IDC

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Aug 6, 2017 11:06AM

Tri-lady7 wrote:

Hi Everyone- I already had a post under not diagnosed but worried however now that I know it is IDC I thought I would post here. I heard from the radiologist after my biopsy that it is IDC. I don't have the report yet but he said it was hormone positive moderately differentiated. My concern now is that the mass measures just over 3 cm which seems big and I am worried about node involvement. I see abreast surgeon tomorrow so I will have more information. Is it possible to have a mass this size with no node involvement? I know I won't know until surgery but I am a mess! Thank you for listening.

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Aug 6, 2017 11:20AM Dodes wrote:

i don't have the answer to your question, but i was just dx'd with idc in july. i know the "mess". i'm so sorry. mine is also hormone positive, and that's good news, as i understand it, as there are more choices for treatment.

all i can tell you is - breathe. once you have more info, you'll be able to make a plan, and for me, that seemed to be the only thing that calmed me. they told me the day after my biopsy, and then made me wait for 3 weeks to see the BS.

this post has been incredibly helpful to me, gave me something to concentrate on, and something positive to focus on. being pro active fave me the feeling of being in control of something when it felt like my life suddenly became out of control.

https://community.breastcancer.org/forum/5/topics/748296?page=3#idx_61

we're here. we know.

Dx 7/13/2017, IDC, Left, Stage IA, Grade 1, ER+/PR+, HER2-
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Aug 6, 2017 12:16PM Tri-lady7 wrote:

Thank you so much for your support Dodes. It means so much during this tough unknown period. I am trying to keep positive and have faith that I will get through this!

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Aug 6, 2017 05:08PM Dodes wrote:

come back and tell us what happens at the BS tomorrow, please. i'll be keeping you in my thoughts.

Dx 7/13/2017, IDC, Left, Stage IA, Grade 1, ER+/PR+, HER2-
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Aug 6, 2017 05:39PM ElaineTherese wrote:

Hi Tri-lady!

I'm sorry that you tested positive for IDC. Yes, it is possible to have a 3 cm+ tumor and not have nodal involvement. "Moderately differentiated" is better than "poorly differentiated" (which is used to describe cancer that is replicating quickly). You might be able to find out more about your cancer if your breast surgeon orders an MRI. Many insurance companies are not that enthusiastic about paying for MRIs for patients with early stage breast cancer, however.

I'm sorry to hear that you feel like a mess; if you're finding it difficult to perform ordinary tasks, you could always ask your doctor for some anti-anxiety med. ((Hugs))

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Aug 6, 2017 07:55PM beach2beach wrote:

Hi,

I was just recently diagnosed myself. A scary, sitting in limbo time it is until there's a plan. I'm still in that stage too. I'm up to getting surgery step and then the wait for final pathology etc.

I've read many posts on here and have seen some diagnosis listed as large lumps but no nodes. I really know how hard it is to be in this spot. Wish none of us ever had to be.

Please let us know how your appointment goes. It's hard to stop and breathe let alone relax at all, but even if for a minute you can shut off your thoughts , it helps a bit.

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Aug 6, 2017 07:58PM Tri-lady7 wrote:

Hi ElaineThere- thank you so much for the information. I am going to ask the doctor tomorrow about the MRI. I think your right about the anti-anxiety meds as well. I am able to do a lot during the day but just can't stop my mind from thinking about it. Hopefully, meds will ease that a little. Thank you for your support and I will check in tomorrow!

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Aug 9, 2017 07:05PM Msjackiefan wrote:

Hi, there...I know what you are going thru-dread and feeling alone are two of the worst emotions I experienced. But time will take care of them. For now, just take deep breaths and don't even try to think, until you get some instructive info from your medical expert. You'll go thru many emotions-just go thru them. Tell others what you need in terms of support. Make sure also you feel good about your doctor, as if you do, they can be enormous moral support as well as medical support. I still recall today some very positive things said to me by breast surgeon and nurse assigned to my case in imaging. Also, depends on specifics of tumor to know your full prognosis. You may need a sentinel node biopsy it, sounds like, for lymph node detection;and I'm guessing they'll want to remove the growth one way or another. It is at that time that they will get a very thorough picture with the path report and help you decide on what kind of treatment after surgery, to ensure full recovery. This will have several steps, so try to take them one at a time. Look at each step as the only goal at that time. As you go thru it, info may change. Know that you have support here all the way.

Dx 4/9/2013, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-
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Aug 9, 2017 07:27PM - edited Aug 9, 2017 07:29PM by Shellsatthebeach

I don't believe tumor size matters. I know I have node involvement because you can easily feel my lymph nodes being enlarged on examination. Also, had a C-scan which concluded I probably have extensive node involvement. Since your doctor did not feel anything on examination, you probably don't have to worry too much. Even in worse case scenerio, you probably have minimal involvement.

Dx 3/2017, IDC, Left, 3cm, Stage IIIB, Grade 2, ER+, HER2-
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Aug 9, 2017 08:34PM Fiddler wrote:

Hi,

So sorry to hear about your diagnosis. The hardest part is always at the beginning, before you have all the answers you so desperately need.

I want to reassure you because I also had a 3 cm lump plus a small DCIS right next to it; mine was also grade 3 and HER2 positive which means aggressive. Well I did NOT have lymph node involvement. I still find it a little surprising but I think my cancer grew really fast and so maybe just stayed localized.

I hope you got some good answers from the breast surgeon and it is someone you trust; that's really important.

Alana Dx 6/24/2016, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2+ Surgery 8/8/2016 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 9/26/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 10/17/2016 Herceptin (trastuzumab) Radiation Therapy 12/27/2016 Whole-breast: Breast
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Aug 9, 2017 08:50PM Tri-lady7 wrote:

Hi Msjackiefan and Shellsatthe- thank you so much for your support! I saw the breast surgeon this week and feel much better. Still a lot up in the air but at least I am moving in the process. He seems confident we caught it early stage. I am getting a MRI next week and I also met with a plastic surgeon today. If I need to get a mastectomy then I need to get that going as well. Then I meet with the genetics testing group on Friday. So much to do but I am doing whatever I need to do to get through this. It's amazing where the mind takes you - that's the worst part. Thank you for listening it means so much!

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Aug 12, 2017 10:47AM Tri-lady7 wrote:

Hi Fiddler- thank you so much for your post. It is very reassuring to hear size doesn't tell everything. I have my MRI next week so should get more answers. Fortunately I have my team in place and things are moving. I hope to have surgery by end of August. I'm keeping positive and busy!

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Aug 12, 2017 07:46PM Marvavg wrote:

I too was diagnosed triple positive in August 2015. My tumor was 3cm. Nothing in lymph nodes. I had chemo and then bilateral mastecomy with reconstruction. My cells were poorly differentiated. Don't totally understand that. But seems I'm ok now.

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Aug 14, 2017 05:49PM Tri-lady7 wrote:

I was wondering if anyone had this happen. When I had the ultrasound the mass measured 3.3 cm. But when I got the pathology report after core needle biopsy it said 1.8 cm max. My BS said we won't really know until surgery but he thinks the 1.8 cm is more accurate. Does this sound right? Thanks to anyone who might know!

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Aug 14, 2017 07:49PM - edited Aug 14, 2017 07:54PM by 53nancy

Hello everyone. I also was posting in Not Diagnosed, But Worried and someone there suggested I come to this forum. First, I have been reading your posts and are hoping that everything goes well for you from here on. Today I received my Pathology Report for my July 14th Biopsy, and the diagnosis is Grade 3 Invasive Ductal Carcinoma as well as High-Grade Comedo Type Ductal Carcinoma in Situ. I have been Googling and, if I understand what I've read correctly, the Invasive means that the Carcinoma has spread into the breast, but the second diagnosis means that some is still contained. The report also appears to indicate a single tumor of 1.1 cm x 1.3 cm x 1.3 cm. HER Receptor Status says Negative for Her2/neu protein over-expression, so it seems to me that I will not be eligible for treatment with hormone therapy. I see the surgeon on Wednesday, so hopefully he will give me a clearer understanding of the report. I am a little anxious to find out what Stage of Cancer this puts me in. Also, I wonder if anyone here has been using Essential Oils while they are waiting? I wish you all the best in your experience and will have you in my thoughts and prayers.

Dx 8/2017, IDC, Right, 1cm, Grade 3, HER2- (IHC)
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Aug 14, 2017 08:45PM - edited Aug 14, 2017 08:52PM by Legomaster225

Trui Lady. I had three different measurements from 2.3 to 4.5. Mammo, US and MRI all read different. Pathology report after surgery showed the tumor bed was 3.5. I had one biopsy positive node pre chemo and 4 sentinel nodes were negative including the one that was positive before.

53nancy the only essential oils I have used is lavender in my diffuser to help calm the house. Were you trying to only use hormone therapy and no chemo radiation or surgery?? Did you get estrogen and progesterone %? Her-2 is one measurement but Hormone receptors are another key number you will need. The numbers will help decide your treatment plan. Lymph node involvement is also needed for staging. I'm sure your doctor will guide you at your appointment on Wednesday.

Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+ Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Surgery 6/22/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Radiation Therapy
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Aug 14, 2017 09:14PM 53nancy wrote:

Legomaster225, thank you for your comments. I don't think I will be eligible for hormone therapy, so am likely looking at radiation and hoping that treatment won't go as far as chemo, as the tumor is small. I started using Essential Oils (Frankincense and Ledum) on my breasts the day - almost four months ago - I was told that my Mammogram one on April 22) was abnormal. In early May, I had a needle biopsy and in mid-July I had an excisional biopsy, and that is the one that produced the results I got today. There were no lymph nodes involved so I am not sure if that will mean further surgery or not. At this point, I don't even know yet what Stage I am considered to be. I see the surgeon this Wednesday, and hope I will know then what will happen next. My doctor says it will probably be radiation. I was found to be HER2 negative, so I don't think oral meds will be an option. Meanwhile, I do plan to continue using Essential Oils. I don't think they can do any harm while I am waiting, and maybe they can do a little good.

Dx 8/2017, IDC, Right, 1cm, Grade 3, HER2- (IHC)
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Aug 14, 2017 10:09PM - edited Aug 14, 2017 10:14PM by Fiddler

Tri-lady, The only true measurement you will get for the tumour will be after surgery. I had three different measurements, first the ultrasound was around 1.8, then the MRI 2.2, and finally the surgery was 3.1! Quite a difference (I had to wait six weeks for surgery so personally, I think the tumour grew during that time). Before surgery, they told me the MRI was more accurate than the ultrasound.

53 Nancy, HER2 negative is different than the result for hormones. You will find out the reading for your ER and PR (estrogen and progesterone)--these are the hormone results and would be treated by oral anti-hormonal therapy. HER2 is a protein and if you are positive for it you are treated by IV infusion of a drug called Herceptin. So they are really quite different things. The majority of women are ER/PR positive and HER2 negative and are treated with the anti-hormone drugs. Hope this explanation makes sense! Also, it sounds like you may have what I had--I had a large tumour of invasive ductal carcinoma and then a small Ductal Carcinoma In Situ (contained in the duct) right next to it. They really considered it as being like one tumour.

Alana Dx 6/24/2016, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2+ Surgery 8/8/2016 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 9/26/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 10/17/2016 Herceptin (trastuzumab) Radiation Therapy 12/27/2016 Whole-breast: Breast
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Aug 14, 2017 10:15PM vrtameshrew48 wrote:

I had a mass that was 6.5 cm and there was NO involvement.

Chemotherapy 11/17/2014 Surgery 7/20/2015 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast
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Aug 15, 2017 03:44AM Tri-lady7 wrote:

Thank you everyone for the information! I have my MRI on Wednesday so should know more. Hopefully I will be able to then schedule the surgery. Good luck 53Nancy with your appt with the surgeon. I hope things move quickly for both of us. The waiting is excruciating. This has been my timeline: I had my ultrasound on 7/19 then core needle biopsy on 7/31, DX on 8/3, met with BS on 8/7, plastic surgeon on 8/9, genetics testing 8/11, MRI scheduled for 8/16, follow up meeting with genetics testing 8/18,back to meet the BS on 8/24. I hope then the surgery!!

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Aug 15, 2017 05:12PM 53nancy wrote:

Tri-lady7, all the best for tomorrow. I hope it goes well and that you have some answers which will help you.

Dx 8/2017, IDC, Right, 1cm, Grade 3, HER2- (IHC)
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Aug 15, 2017 07:25PM Suzanne50 wrote:

I had a 8 mm tumor with node involvement. My BS said tumor size does not have anything to do with node involvement. Good luck tomorrow! The waiting is the worst part. Hope everything goes smoothly! Thinking of you!

Dx 5/27/2015, IDC, Right, <1cm, Stage IIA, Grade 1, 3/12 nodes, ER+/PR+, HER2- Surgery 6/18/2015 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 7/1/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 8/3/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/4/2015 Hormonal Therapy 1/1/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 16, 2017 07:35PM 53nancy wrote:

Today I saw the surgeon and, 4 1/2 weeks after excisional biopsy, he still doesn't have all the results back, including estrogen and progesterone. He says the next step is a sentinel lymph node biopsy, even though the cancer was completely contained and they got it all. The tumor was under an inch in size and the mass had clear margins. So I am looking at 3-4 weeks' wait. Then radiation. And possibly chemo, if there is cancer in the nodes. Looks like it's going to be a long haul.

Tri-lady7, I hope you got good results today. Have been fthinking about you.

Dx 8/2017, IDC, Right, 1cm, Grade 3, HER2- (IHC)
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Aug 16, 2017 08:04PM Tri-lady7 wrote:

Hi 53Nancy- I can't believe you still don't have the results yet another 3-4 weeks seems like a long time. My MRI came back as the tumor is 3 cm like the ultrasound showed plus two very small satellite tumors not far away. Then on the left side a very small suspicious area. My BS said I could get a MRI biopsy on the left side to see what it is or do a double mastectomy since he doesn't recommend lumpectomy on the right side with those satellite tumors. I had already decided to do the double mastectomy so I was ok with this. Also, they saw one suspicious node. So not exactly what I expected but my BS still feels like it is early stage. What a long day but i can get through this! Good luck to you 53Nancy. I hope they get more information soon for you to move on to the next step. Hugs to you.

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Aug 16, 2017 11:53PM - edited 23 hours ago by 53nancy

Tri-lady7, I'm sorry the choice has to be double mastectomy. Am wishing you all the best in your journey and hope you won't be kept waiting too long. Hugs.

Dx 8/2017, IDC, Right, 1cm, Grade 3, HER2- (IHC)

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