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Topic: Lumpectomy

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Jan 29, 2018 12:40AM

Kati218 wrote:

Are there long term survivors who chose lumpectomy or will it come back as metastatic?

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Feb 2, 2018 06:26PM LisaCincy wrote:

There are probably millions of long term survivors who chose lumpectomy + radiation. There is a slightly higher risk of having a local (in the breast) recurrence v. mastectomy, but there is virtually no difference in long-term survival between the two. You must assume that with either choice, you have a surgeon who will remove all the cancer cells. If they cannot get clean margins with a lumpectomy, they will go back in and take more tissue out until they do. And then they will radiate the breast, lowering the risk of recurrence significantly.

"Fear is not an option. Never be a victim." -Diane von Furstenberg's Mom, a Holocaust survivor. **Note: Stage is 1A (old method) or 1B (new 2018 method) Dx 9/25/2017, IDC, Right, 1cm, Stage IB, Grade 3, 0/4 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 10/2/2017 AC + T (Taxol) Surgery 2/27/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Feb 12, 2018 08:30AM - edited Feb 12, 2018 08:59AM by Hopesings

The shock that I have breast cancer is yet hitting me in waves, as there is no breast cancer in my family, nor any other cancer. I was diagnosed with IDC 19 days ago. My first appointment was a week after my diagnosis with my surgeon who told me that a lumpectomy will be done, along with removal of 3-5 nodes. There will be testing done during the surgery on the tumor, margins, and nodes, so all can be known before the surgery is over. I won't know what stage I am until the surgery is done, but the Dr. feels that it looks good with all the tests results from the biopsy and the size of the tumor to predict a hopeful outcome and future. The need for the MRI will also determine the extent of the surgery should other tumors be found hiding in my dense breast tissue, so can change my treatment plan based on that outcome. Surgery cannot be scheduled until after a MRI with contrast is done. I have been waiting for nearly two weeks for my MRI due to the fact that it has to be done in a hospital, and because of my prior allergic reaction to the contrast used. I will have to be medicated with benedryl and prednisone before the MRI. With all this waiting and worrying, my sleep is not good. I wake up two to three times a night, and usually up before 4 am, so in bed less than 6 hours. I feel sick all over. I look at myself in the mirror and wonder what I will look like after surgery. I try and focus on other things...how can I stop thinking about it....I write, but exhaustion takes over...would like to know if one ever feels normal again?

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Feb 12, 2018 11:37AM gb2115 wrote:

Hi Hopesings---welcome to BCO and so sorry that you've had to join us here. It's normal to be worried and tired, and to experience sleeplessness. I couldn't sleep either, after diagnosis. I watched movies throughout the night and dozed. Eventually it caught up and I started sleeping, but I can't remember how long it took. It's also hard to stop thinking about it...give yourself the time and grace to process going through a very difficult diagnosis. You're going to think about it, and that's ok. To answer your question about feeling normal again, yes and no. It's a new normal. I don't know if things ever really go back to how they were pre-cancer (I know it hasn't for me, a year plus later--but maybe some women go right back), but it ends up being ok, like a new normal. In any event, you'll get past the shock and despair, I promise.

So when is your MRI?

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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Feb 13, 2018 08:16AM Hopesings wrote:

Thanks, for responding, gb2115. I appreciate your words...and understand "a new normal". It's a lot like going through changes in life...many we didn't ask for, but somehow found ourselves going through them. The MRI will happen soon, just waiting for the call to set the date.

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Feb 13, 2018 12:51PM BellWAMissy wrote:

Hope- I was diagnosed back in October. It seemed life then became a "hurry up and wait" with the tests and procedures. One thing that really gave me peace was that the surgeon said it takes 84 days for a tumor to move from that beginning of one stage into the next. It didn't change the fact that there is cancer, but that there is a little breathing room. They knew the rough size of the tumor based on the ultrasound biopsy. Hoping this also brings you some peace.

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Feb 13, 2018 01:02PM moth wrote:

Kati - the reason surgeons perform lumpectomy + rads in some cases is because we have evidence based clinical guidelines that show that this has the same rate of overall survival. Which cancers will recur as metastatic is something that as far as I can tell nobody quite knows yet. Some of the genomic tests like Oncotype do give us some insight into risks of recurrence for some cancers.

Hopesings - time & again I've read on this board that this is the worst time: when you know you have it but don't know exactly what you have, what the treatments will be and how you'll tackle it. Once you have more info and a plan, dates, appointments, pathology results etc, everything feels better. If you input your biopsy pathology results into your profile you will be able to access articles specific to your tentative diagnosis (final will be based on the lumpectomy pathology) and you'll start getting a sense of what your treatments might look like. Read the threads with people with similar diagnoses and treatments and all of this will start to see less scary and more doable. Now would also probably be a good time to start trying things like mindfulness based meditation to help you relax and try to calm your mind. It gets better! (oh, and the vast majority of women diagnosed have no family history; most reports indicate only 5-10% of women diagnosed have a family history.)

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Feb 14, 2018 11:21AM Hopesings wrote:

Still trying to understand how to navigate on this forum, and just found your responses. Thank you for the info, BellWAMissy and moth.

I went to my oncologist yesterday. Waiting for 45 minutes, I tried to read a magazine, look at paintings on the wall...anything to zone out of my new reality. I was greeted by a friendly nurse who took me back to take my vitals. The Dr. came in...WOW, what a positive, uplifting, and hopeful experience. She was professional, but looked me in the eyes as she sat in front of me going over the treatment plan. She took notes as she talked and gave them to me. All I had to do is listen and ask questions. I haven't had such a nice experience with a Dr. in many years. It felt so good to feel like someone really cared about my health and explained my treatment in such understandable detail. My husband and I left with dance in our steps again...

Still waiting for MRI appointment. Struggling with a cough for a couple days...hope that doesn't delay stuff.

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