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Topic: why do I have this at my age?

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Mar 27, 2018 02:01PM - edited May 12, 2018 01:38PM by MTNCLMBR


This Post was deleted by MTNCLMBR.
Dx 2/2/2018, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/1/2018 Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Mar 27, 2018 02:14PM - edited Mar 27, 2018 02:14PM by Nel

There is no rhyme or reason why any of us get cancer.  You can do all the right things and still wham. It is nothing you did or didn't do, it just is.  If we knew why any of us get cancer, there would be a cure

I try to remember when I am thinking "why me" the question is really "why not me"    None of us are immune.We all just do the best we can each day

Be well


You can't stop the waves, but you can learn to surf Dx 9/27/2011, IBC, Stage IIIB, ER-/PR-, HER2+ Dx 8/6/2013, IBC, Stage IV, ER-/PR-, HER2+
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Mar 27, 2018 03:22PM - edited Mar 27, 2018 03:23PM by mustlovepoodles

Nel, you said it best--why not me? Cancer is a crap shot. When I found out I had cancer, my sister helped me draw a medical family tree. Holy smokes! 19 cases of cancer in my 1st and 2nd generation family. I had no idea. Some of those people had unhealthy habits, but many of them didn't and they got cancer anyway.

MTNCLMBR, I'm sorry this has happened to you. Especially at such a young age. It's not fair. None of this is fair.

Oncotype 23. Positive for PALB2 & Chek2 gene mutations. My breasts are trying to kill me! Dx 7/20/2015, DCIS/IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 8/19/2015 Lumpectomy Surgery 9/2/2015 Lumpectomy: Right Chemotherapy 10/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 2/3/2016 Prophylactic mastectomy: Left, Right Surgery 10/18/2016 Hormonal Therapy Femara (letrozole) Surgery
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Mar 27, 2018 04:06PM Rrobin0200 wrote:

cancer knows no boundaries. It doesn't discriminate. I was 37 at diagnosis. Your story seems like my story. I eat well, exercise like a fanatic, no smoking, occasional red wine. But, here we are. No looking back now. Now it's time to kick a$$ and rejoice in the future that we'll have.

Recurrances are also a crap shoot. There's no rhyme or reason to who will and who won't recur. The best you can do is stay vigilant... do your BSE monthly, listen to your docs and continue with a healthy lifestyle.

Dx 3/6/2017, DCIS, Left, 1cm, Stage 0, Grade 3, 0/4 nodes, ER-/PR- Surgery 3/31/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 29, 2018 07:24AM Kimm992 wrote:

I was 35 at diagnosis. Healthy lifestyle (no smoking, no drinking at all, ate well, exercised, etc.). I also had no family history of any type of cancer.

There's probably some explanation for it that science has been unable to explain yet...maybe 20 years from now we will have a better understanding of these things!

Dx 10/14/2015, IDC, Right, 1cm, Grade 3, 0/3 nodes, ER-/PR-, HER2+ Chemotherapy 11/3/2015 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Chemotherapy 1/7/2016 Taxotere (docetaxel) Targeted Therapy 1/7/2016 Herceptin (trastuzumab) Surgery 3/24/2016 Mastectomy: Right Radiation Therapy 5/1/2016 Lymph nodes, Chest wall
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Mar 29, 2018 08:00AM Egads007 wrote:

IMO my oncologist said it best when I asked her why. She gently replied "you have breasts, they sometimes get cancer, this is not your doing"

"I base all my fashion choices on what doesn't itch" (Gilda Radner) Chemotherapy 3/19/2013 Doxil (doxorubicin), Taxol (paclitaxel) Surgery 8/22/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 10/31/2013 Whole-breast: Breast, Lymph nodes Dx IDC, 4cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 29, 2018 10:47AM Cuetang wrote:

Yeah, totally sucks getting it at this age. I'm constantly shocked at the number of doctors that say don't do xyz or this treatment because we are "too young". I was diagnosed at 33, and they still did an oncotype on my tumor, which ended up to be a low score of 8. I ended up with hormonal treatments instead. Did you do a genetic test? I would recommend one beyond the basic BRCA tests. This whole cancer thing really *@$*$ with the mind, but as more time passes, other than the "scares" from time to time (mine were scar tissue), you slowly start remember about other things in life. I knew I was feeling better when I started getting road rage again when cars cut me off =). Hugs!!

Diagnosed at age 33. Dx 1/11/2013, IDC, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Dx 3/8/2013, DCIS, <1cm, Grade 2, ER+/PR+, HER2- Surgery 3/8/2013 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 6/24/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Hormonal Therapy Femara (letrozole)
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Mar 29, 2018 11:10AM stephilosphy00 wrote:

I was only 29 when diagnosed, hehe, I did 16 rounds of chemo, mastectomy, 33 rounds of radiation, 6 rounds of oral chemo.... I will have diep reconstruction next week! You can do it!

Dx at 29. Original mass 2.5 cm. Biopsy MRI and PET/CT confirmed 1 node involved. Ki-67 score 7.5%. ER100% PR100%. Genetic testing negative. Restaged to stage IIA post surgery. Chose to do 6 cycles of Xeloda to prevent recurrence!! Dx 11/9/2016, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Chemotherapy 11/18/2016 AC + T (Taxol) Surgery 5/10/2017 Lymph node removal: Sentinel; Mastectomy: Left Hormonal Therapy 5/21/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/11/2017 Aromasin (exemestane) Radiation Therapy 7/12/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 4/3/2018 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Zoladex (goserelin)
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Mar 29, 2018 11:48AM bluepearl wrote:

I suspect the pollution around us has a fair amount to do with it....something that is out of our control. Look how many cities have rotten water now?

Dx 1/6/2011, IDC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/11/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 2/2013, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/9/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Hormonal Therapy 3/17/2013
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Mar 29, 2018 03:20PM DATNY wrote:

One thing is now fairly certain, cancer is due to a lack of appropriate response from the immune system. One if my main suspects is the fact that I was treated for every little infection as a youngster...if not given antibiotics at least got the Tylenol and alike. Fever was a no-no, and killed the moment it raised above normal. But now we start to understand the relationship between fever and a highly efficient immune system. Throughout the time humans had to fight infections without any help. So what if our immune system have evolved to need infections to fine tune?

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Mar 30, 2018 12:06AM gb2115 wrote:

There are a lot of us on here that were diagnosed young, so you are not alone. I think what's frustrating is that if environmental things caused the cancer it would be nearly impossible to figure it out. Which makes it hard to prevent a second time. For me, I get through it by taking my tamoxifen everyday and taking it one day at a time rather than try to live life perfectly. That didn't work so well for me before, I still got cancer.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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Mar 30, 2018 08:23AM star2017 wrote:

I was 37 and pregnant with an 8cm tumor

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 30, 2018 08:38AM moth wrote:

It's rare but the odds are not zero. Cancer is a cruel & random monster sometimes.

And while we cannot prevent it totally, there are studies on what lowers risk of recurrence. Exercise is the number 1 lifestyle intervention reducing risk of recurrence by ~ 40%


May the odds be ever in your favour

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Mar 30, 2018 01:34PM Nas wrote:

same here, 38 years old and no family history... Recently I’ve kind of stopped asking myself the question “why me” I accepted itas it is and trying to move on, still have some difficult moments but a lot better compring first month.....

Dx 12/5/2017, IDC, Right, 1cm, Stage IIA, Grade 1, 1/8 nodes, ER+/PR+, HER2- Surgery 12/13/2017 Mastectomy: Left, Right Radiation Therapy 2/6/2018 Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 6, 2018 02:56AM Valentina7 wrote:

I was diagnosed in November and only 33. I took birth control pills 11 years, 4 years of Nuvaring...I think this could be the reason. I had the gene test and waiting now for the results. My tumor was tiny and everything is really strange...they said at this age cancer grows fast...mine no. Why? No idea..i really wish I knew more...but after diagnosis I changed many things: More exercise, healthier food, reducing stress and buying natural make up, deodorant, hygiene products..

I became vegetarian...and no milk/soja at all...no alcohol, no sugar, no gluten

i also heard about frankincense oil..i am thinking about using it.

i guess now i try to concentrate not on passt but on what i can do now to avoid a recurrence 😐...but my doctor also said if i have any gene..i will then know: I didn't do anything wrong.

Dx 11/27/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Surgery 12/21/2017 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/23/2018 3DCRT: Breast
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Apr 6, 2018 03:18AM Paco wrote:

MTNCLMBR had the same thoughts myself. I had three kids before the age of 30, breast fed all three for nearly a year each. Don't smoke, rarely drink, eat a plant-based diet with occasional organic poultry, exercise religiously and am under ideal weight. I'm 48 and I feel so guilty that now my daughters have a family history of breast cancer hanging over their heads.

Dx @ 48 Dx 12/28/2017, DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 2/13/2018 Lumpectomy: Right Radiation Therapy 3/27/2018 Whole-breast: Breast Hormonal Therapy 4/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 6, 2018 03:36AM bluepearl wrote:

Cancer mostly evolved to by-pass detection from our immune systems whether they are strong or weak. New techniques to destroy cancer involves making it detectable to the immune system, such as the new cancer vaccine that holds immense promise. Our environments have changed over decades; when I was young, I knew no one with breast cancer in their 20's. There was one high school student who died of leukaemia, another from a brain tumour and another from a blood clot. That was it. As a baby boomer we were exposed to strontium 90 from nuclear testing and they used to spray DDT all over the place while we standing on the sidewalk. Today, especially in the USA, water is pretty dodgy as to its quality. Even the hormones run off into water ways....factory farms as well as human female birth control pills. And the giant plastic sea in the middle of the ocean gives a true hint of how we have polluted everything. We are getting sick.

Dx 1/6/2011, IDC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/11/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 2/2013, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/9/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Hormonal Therapy 3/17/2013
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Apr 13, 2018 03:45AM - edited Apr 13, 2018 03:47AM by hsacc

I was recently diagnosed with invasive breast cancer stage 1 1.9 CM. I had a double mastectomy in March. I'm triple negative so I cannot take hormone therapy. I'm struggling with the decision to start chemo. I have seen two onocologost. It is the whole “unknown." That I'm having a hard time coming to terms with. My oncologist told me I could do nothing and it could come back or I could do chemo and it could reoccur. He also told me my odds of survival in 10 years are 78% without chemo and 82% with. That's only a 4% differenence! Any thoughts

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Apr 13, 2018 04:09AM - edited Apr 13, 2018 04:09AM by wallycat

My gyn in WI was dx with breast cancer at 31 (had 2 young babies to raise). She is now 65 or so and volunteering around the world and in WI, donating her time.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Apr 13, 2018 04:32AM jenndenino578 wrote:

No one really seems to know why some women will get a reproductive cancer at a young age. My sister never took bc pills, gave birth to a baby at age 34 and was diagnosed with uterine leiomyosarcoma at age 37 in 1999. She lived over a 1,000 miles from me in another state and I had a young child myself at that time so I could not offer as much support as I would have liked to have. For this I feel guilty. Fortunately her husband was retired and he spent an enormous amount of time and resources flying her to various specialists in NYC and in Boston. (he was 13 years her senior and was financially secure). Her type of cancer has a very poor prognosis unless found extremely early. She traveled to the best sarcoma cancer centers on the east coast eventually but due to a misdiagnosis by her original ob/gyn it was found far far too late. (The ob/gyn had diagnosed her with fibroids, but the mass in her uterus grew at an extremely fast rate, her ob/gyn did not send her for any imaging tests when she diagnosed the large 'fibroid' which was pushing the cervix out of the line of vision of the speculum at her annual checkup and about 8 months later her uterus was very enlarged, think of a woman with a 5 month pregnancy). My sister did not even tell me what was going on at the time, I think she was in denial. I think she also said it was in one of her breasts as a metastases, but I am not really sure. She was too traumatized during her treatments to really speak much about it. The internet was not like it is now back then. I have asked my doctors over the years whether this is an hereditary cancer and have never really gotten an answer. I'm not sure they know the answer. It's a very unpredictable disease in some cases. In other cases they know what causes it, such as cervical cancer is usually caused by HPV most of the time. There may be some virus involved, I don't know the answer. Maybe someday they will have more answers. Anyway with the most state of the art treatment my sister passed away 3 years after her diagnosis unfortunately but that type of cancer is nearly always fatal. I have been wondering ever since whether I'm carrying a gene for it or something. My regular ob/gyn did not know the answer. I am seeing a breast specialist next week I am sure they are going to want to know my entire family history. I did have one first cousin who had bc in her 20's, she is still alive and well and now over age 60. (we are not in contact, she is a private person). Another first cousin (paternal side) passed away from colon cancer about four years ago, she was in her late 40's. My mother has never had bc and both paternal and maternal grandmothers died from alzheimers and a heart condition in their very late 80s. I doubt either grandmother ever had a mammogram, they were both born in the late 1800's. My mother has no sisters and my father's two sisters (my paternal aunts) never had bc as far as I know. Only one is still alive, she is about 85 years old. The other one died in her 80s of kidney cancer I believe. I haven't heard whether either of my paternal aunts ever had any bc issues. If the one who is alive has I was never told. My father died of a sudden heart attack 36 years ago in his early 50's. After that we had little contact with his family except now we are in contact through FB.

It's scary as heck, most of the time I try not to think about these things as these thoughts will just consume your every waking moment.

Surgery Lumpectomy: Left
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Apr 15, 2018 07:51AM buttercup1 wrote:

Hi Mtnclmbr,

I feel for you! Just diagnosed a couple weeks ago at 34. IDC HER2+, grade 3. They have found three spots in my left, and I possibly have a spot in my right. No family history here either. I'm vegetarian, normal to slim weight, no smoking, very rare drinker (same as you-occasional wine). I also found mine as a lump. I randomly did a self exam (which I normally don't do that often) and found the lump in the left. The doctors think its stage IIB, no nodes, but they say its still too early to be sure.

Since diagnosis, I have had a lot of people tell me they knew someone who was diagnosed at a young age. I've tried to rationalize it: plastics? BPA? Hormones in meat or dairy? Pesticides on our crops? Air pollution? Chemical companies' pollution in our water? I don't know. Its not fair, and cancer happens far too often.

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Apr 15, 2018 12:17PM Mamasha wrote:

I feel like you why did I get it at a young age though I’m 10 years older than you but I assume ladies 10 or 20 years older than us feel the same way. Nobody escapes the risks unfortunately. Totally unfair at any ag

Dx 12/2016, IDC, Right, <1cm, 0/3 nodes, ER+/PR+, HER2- Surgery 1/4/2017 Lumpectomy: Right Radiation Therapy 2/6/2017

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