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Oct 16, 2018 08:48AM
Fukcancer--this may be easier to read concerning the new finding on intermediate Oncotype scores.
I TOTALLY understand where you are coming from. I was a 28, just calcifications so Stage 1 but Grade 3. Told I'd only do rads + tamoxifen until the Oncotype score came back. I got a 2nd opinion and at the time 2 years ago, I was in the gray area between 18 and 30. I wish this research came out before I went through chemo, but I'm still not sure what I'd have done. One side says, hit it with everything you have while the other says is the benefits worth the risks for such a small percentage drop?
Fast forward 2 years. I STILL cannot taste. Only had 4 rounds of TC. Huge quality of of life issue. I was also thrown into menopause in my mid 40s so had to deal with the side effects of hot flashes, low libido, vaginal dryness, vaginal atrophy which some of this has resolved but sex will not be the same!! Loss of the smaller nerves (unfortunately that included my clitoris). All this for "insurance" that it'll decrease my chances of recurrence. They don't tell you chemo can't kill stem cells. I think all of us can attest to some sort of chemo PTSD. The physical changes as well--some girls gain a ton, I lost quite a few and was on the low end to begin with. The hair loss was traumatic even though I cold capped.
That said, I got through it. I dealt with each side effect head on. I switched to a whole food, plant based diet as well as supplements and feel amazing. I learned a thousand lessons on that journey which were invaluable. Yes, it SUCKED!!! But I have 3 kids and I did what I thought was best at that time. I cold capped which helped a lot but throughout the year still lost 75% of my hair but I'm a year ahead in growth of the other girls who didn't use one. So if you choose to do it, there is "the other side" but know it's a LONG journey. They said to can take up to 2 years to heal and I feel that is true. Emotionally and physically. I still question whether I did the right thing but the changes I made--from revamping all my cosmetics to pardon free, to changing out to glass storage containers from plastic, drinking filtered water, green tea daily as well as some other chlorophyll rich additives like spirulina and barley wheat grass in my smoothies, exercising 4-5 days/week, taking care of ME by getting enough sleep, cutting down on alcohol, even tried yoga, cutting down on sugar and processed foods. It really changed my life. I'm not sure I would have been so determined if I didn't have the motivation of wanting my energy back so much. Because it REALLY takes away your energy and depletes your immune system. So something good DID come out of it. I'm putting my health above everything because at the end of the day, that's all you got.
Unfortunately no one can ,make this decision but you. Please research, research, research. I just got done watching some of the Truth about Cancer documentary. Maybe that can help you make a decision. Episodes 1 & 2 are worth watching.
Any doctor will go by protocol to prevent a lawsuit.
9/15/2016, IDC, Left, 5mm, Stage IA, Grade 3, ER+/PR+, HER2-
9/15/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2-
10/5/2016 Lumpectomy: Left
11/15/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel)