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Topic: Pretty New - Port Question

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Oct 9, 2019 02:47AM

Bejeweled wrote:

Hi everyone,

I am pretty new to this process, having been diagnosed at the end of August. I spent most of September having additional testing (MRI, genetics, lymph node biopsy, etc.). At this point, I have a plan for surgery, chemo, and radiation. My surgery will be a lumpectomy to remove my 4 left breast masses with oncoplastic reduction at the same time and is scheduled for 10/28.

In the meantime my breast surgeon placed a port yesterday. It's still pretty sore and kind of stings a little. I am having trouble getting comfortable trying to sleep. My question for those who have been through this is whether or not that will go away after I heal? Also, I have this vague sense that I am going to somehow dislodge it or something? Did anyone else feel that way?

Thanks for your advice- it helps to know others have been there!

Dx 8/27/2019, IDC, Left, Grade 2, ER+/PR-, HER2+ (FISH)
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Oct 9, 2019 02:55AM April0315 wrote:

yes, I worried it would dislodge. Every time the did a successful blood draw I breathed a sigh of relief!

After a week I slept comfortably. Mine is still in, and it annoys me if something rubs on it (like a seatbelt or bra strap) but it’s not painful. I get mine out next month and I can’t wait. It was really helpful to have it for chemo and blood draws.

Dx 2/28/2019, IDC/IDC: Papillary, Right, Stage IB, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 4/11/2019 Lumpectomy: Left, Right Dx 4/18/2019, ILC, Left, 2cm, Stage IB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Chemotherapy 5/12/2019 AC + T (Taxol) Surgery 11/15/2019 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right)
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Oct 9, 2019 03:03AM OCDAmy wrote:

It hurts for a few days and then gets much better. I hardly knew it was there. Good luck!

Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Surgery 11/14/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting, Silicone implant Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Oct 9, 2019 03:22AM Cowgirl13 wrote:

It will get better. I felt like I had been kicked by a horse, it was so painful for 4 or 5 days. It will get better.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/15/2009 Chemotherapy 8/2/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/22/2010 Arimidex (anastrozole)
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Oct 9, 2019 10:02AM godisone wrote:

Just wait for a week or two and you should start feeling much better. I used to plan things I would do and places i would visit as soon as i am able to have a full night sleep. You will be there soon. If no improvement occurs even after 15-30 days then do consult your doctor.

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Oct 9, 2019 12:25PM Spookiesmom wrote:

I’ve had my port 7 years, no problems.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Oct 9, 2019 01:32PM DogMomRunner wrote:

I’ve had my port for 5 months. Mine is right along the bra strap so my sister has made me pads with Velcro so it doesn’t rub. Mine is still bothersome to me for numerous reason but mainly because I have to carry my handbag on that shoulder.

You get used to it though

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/6/2019 Herceptin (trastuzumab) Chemotherapy 6/6/2019 Taxol (paclitaxel) Radiation Therapy 9/22/2019 Whole-breast: Breast
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Oct 10, 2019 03:50AM MexicoHeather wrote:

My awareness of the port was constant and it bothered me at night. I slept with some small pillows and tried to stay on my back. I had it taken out almost immediately after the chemo. Even the scar bothers me.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/9/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/9/2017 Prophylactic ovary removal Surgery 12/5/2018 Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 11, 2019 01:13AM Bejeweled wrote:

Thank you all so much for your responses!

Dx 8/27/2019, IDC, Left, Grade 2, ER+/PR-, HER2+ (FISH)

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