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Topic: Invasive Ductal Carcinoma with Lobular Features

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Aug 9, 2020 09:40PM

Sassafrassy wrote:

Has anyone else had this type of cancer? I've tried to search for information about it and it's such a rare type of cancer, they haven't even done many studies on it. I was diagnosed with Stage Two a year and 3 months ago. They treated it with chemo, double mastectomy, and radiation... in that order. In the meantime it was metastasizing, according to a scan done in November 2019, He put me on hormone blockers, due to being estrogen and progesterone fed. Needless to say, it had already reached my spine. Nothing was done, I didn't have another scan for 5 months. It was just followed up with a Pet Scan on Monday. Yesterday I went to get the results and informed me I have Stage 4 breast cancer and he could give me pills to keep me going for a few more years. Does this even sound right?

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Aug 22, 2020 09:34PM quinnie wrote:

Sassafrassy: I am bumping this thread,. Sorry no one has responded. I do not have lobular features but hope someone will respond to you. THinking of you and hope you are OK.

Dx 11/30/2007, DCIS, Right, 1cm, Stage 0, Grade 2, 0/0 nodes, ER-/PR- Dx 2/26/2020, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Radiation Therapy 5/13/2020 Whole-breast: Breast Hormonal Therapy 5/24/2020 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Aug 22, 2020 11:25PM - edited Aug 22, 2020 11:25PM by everythingwillbefine

from this paper it seems IDC-L has some similarities as ILC..

Dx 7/7/2020, LCIS, Right Dx 7/14/2020, DCIS, Left, Stage 0, Grade 2, ER+/PR+ Surgery 7/31/2020 Lumpectomy: Right Surgery 7/31/2020 Mastectomy: Left Dx 8/6/2020, LCIS, Right Dx 8/6/2020, DCIS, Left, 6cm+, Stage 0, Grade 2, 0/1 nodes, ER+/PR+ Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 23, 2020 01:27AM OnTarget wrote:

What your docs are saying doesn't sound right to me.

My friend was diagnosed with MBC and they aggressively treated it, immediately.

She is currently NED (!!), and they will be closely monitoring and ready to treat if anything pops up.

I can't imagine waiting on things or not having some plan. You may need a second opinion.

Diagnosed at 42, Oncotype score 16, ITC in one node- considered node negative. Lost right implant to infection March 2020. Waiting to start reconstruction all over again. Dx 4/8/2019, ILC, Left, 3cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 4/23/2019, ILC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/14/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/13/2019 Zoladex (goserelin) Chemotherapy 8/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/5/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 23, 2020 02:23AM NorCalS wrote:

I have TNBC and it is ductal with lobular features. It’s apparently harder to detect on mammograms and ultrasound. MO treated it no differently than ductal carcinoma. MO said it is harder to detect, but the treatment as far as MO was concerned was no different than IDC

Dx: 06/2019, left breast, ER/PR-, Her2-. Treatment: 06/2019 - 11/2019 AC/T. Surgery: Lumpectomy with axillary dissection in 12/2019. Radiation: 01/2020-03/2020. Xeloda - 03/2020-09/2020
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Aug 23, 2020 05:16PM Georgia1 wrote:

Just chiming in to agree with NorCalS. Sometimes ILC and IDC are both present, sometimes it's called mixed, and sometimes it's called IDC with ILC features. But the treatment plan will be based on other factors like size and ER/PR and HER. I do wish you the best and hope you are able to get a second opinion. But yes, many women with Stage IV go on to live for many years and that's a reassuring fact.

Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 20, 2020 06:16PM Sassafrassy wrote:

Sorry I haven't returned in a while. I've been so overwhelmed with stage 4, which I do plan on posting in. Let me explain the reason why I am posting in Mixed. I'm only interested in treatments plans. I am ER/PR pos and e-cadherin is in there but didn't see any 'ratings' on the e-cadherin. I'm beginning to seriously question why they treated me the way they did. I went through chemotherapy first, double mastecomy, then radiation. The first scan I did showed no mets but when they did a scan in July, mets showed up during my chemo treatment. Nothing was said or done at that time. My oncologist followed through with stage II and then placed me on hormone therapy in December, which has proven to be ineffective as the lesions kept worsening. I ended up with an PE, at which time, the hospital suggested a biopsy. That came back negative, but there were two types of lesions and the other type was totally ignored. I'm thinking the biopsy was done in August of 2019. All this time passed and absolutely nothing was done while the scans clearly show metastasis. So I am just wondering what went wrong and if they handled my case properly. Someone I was talking to totally questioned chemo first.... and in May from that scan the doctor clearly stated chemo does not work well with my type of cancer and he was right. it did absolutely nothing, so while they were wasting my time on chemotherapy metastasis happened. The oncologist was still going to leave me on the hormone therapy that clearly hadn't worked since December and just throw chemo pills on top of it, I-Brance, which made no sense to me whatsoever. I did get a second opinion and she put me on something totally different. Left to the first oncologists choices, I'd probably be dead in two years. I chose to post here first just to see how other people's oncologists handled treatment.

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