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Sep 26, 2020 10:27PM
I was diagnosed in 2015 with Stage 1 IDC in the right breast.....1 cm, ER+/PR+/Her2-, node negative, Grade 2. Had lumpectomy, followed by radiation and Tamoxifen.
In February of this year, I was diagnosed with IDC in the left breast.....8mm, ER-/PR-/Her2+, node negative, Grade 3. (So a complete opposite of the first diagnosis.) I did 12 rounds of Taxol with Herceptin and am currently on Herceptin only until February 2021. Just had a bilateral mastectomy with immediate DIEP flap reconstruction on August 20th.
I didn't cold cap.....way too rich for my blood, but my infusion welcomed it if I had wanted it done. I shaved my head prior to Taxol beginning, but didn't actually lose the stubble I had left until the 10th or 11th infusion. My eyebrows and lashes stayed the entire time and didn't fall out until 1 month AFTER Taxol ended. Literally all fell out overnight. I went to bed with brows and lashes, woke up the next day without them. Then, almost one month to the day, the grew back in within 2 days. Completely. Even my MO was amazed, said she had never seen that type of regrowth, lol! (And no, I was not taking any supplements or anything.) Just so strange!
My side effects on Taxol were thankfully not too bad. Bearable and I was able to continue working full-time. They have so many drugs to help tolerate any side effects that may occur, so try not to stress too much about that. Because neuropathy is such a common side effect of Taxol, I iced my hands and feet during the infusions. I used gallon sized Ziploc bags full of ice on my feet. One bag under each foot and one bag on top. I froze 4 water bottles for my hands. Held one in each hand until the ice started to melt and then switched the bottles out. My infusion center supplied the ice, which was great. I just brought the bags and the frozen water bottles from home. It worked perfectly! Taxol ended for me in June and I never got neuropathy and still don't have it today, so the icing was totally worth it!
All of this is totally doable! Scary, overwhelming, and all consuming......but doable! I came often to read threads and/or ask questions which helped tremendously!
Diagnosed at 41. Diagnosed 2nd time at 45.
11/5/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel
1/12/2016 Whole-breast: Breast
2/17/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
2/13/2020, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (IHC)
2/24/2020 Lumpectomy: Left; Lymph node removal: Sentinel
3/19/2020 Taxol (paclitaxel)
3/19/2020 Herceptin (trastuzumab)
8/20/2020 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap