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Oct 28, 2020 07:39PM
Man, BC at 22 years old? That's tough, I'm sorry you're going through this. I would get a second opinion from an NCI center if at all possible. Maybe even a third opinion from another NCI center. I haven't looked at the data from the Oncotype trials, but I do know that women your age with breast cancer are rare, and so I would assume there were very few of them in the oncotype trials. So I'm not sure I'd rely on an oncotype score at your age to be predictive of anything. This probably doesn't make you feel any better.
I think at your age though, most oncologists are going to recommend aggressive treatment, and I would question any oncologist who said NOT to do chemo.
I also want to reiterate something else people have been saying on this thread: chemo was not that bad. Honestly, for me it was not that big of a deal. My hair fell out and even that wasn't so bad. I bought a bunch of caps and beanies and they looked pretty cute on me. I only got nauseous once, after the first round I knew what to expect and could preempt any nasty side effects with the drugs my MO prescribed. I worked, I worked out, I went hiking and occasionally threw on a wig and went shopping. It's not like you see in the movies.
I understand your concern about fertility though. My MO was going to suppress my ovaries during chemo to try to preserve their function until I told him I didn't care about my fertility. So there are things they can do and at your age your fertility will probably come back, but definitely ask your MO about it. My second opinion MO suggested doing a round of egg retrieval but again I wasn't interested, but that is also an option.
Good luck with your decision.
3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH)
3/28/2018 Herceptin (trastuzumab)
3/28/2018 Perjeta (pertuzumab)
3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
10/22/2018 Whole-breast: Lymph nodes, Chest wall
12/21/2018 Arimidex (anastrozole), Zoladex (goserelin)