Log in to post a reply
Mar 9, 2021 08:46AM
If I had to relive my past decisions, I would. I regret not doing everything to prevent metastatic breast cancer. I just didn't think that cureable DCIS was a big deal.
My biopsy in 2006 showed close margins on the chest wall. The rad onc recommended chest wall radiation even after a bilateral mastectomy. I had just finished the immediate reconstruction process with expanders in place. There was no way I was going to take them out so soon for radiation as recommended.
Then the recurrence happened in 2007, again close margins. My MO suspected there were IDC cells that spread via chest wall, but no clinical proof. All silicone implants were removed, 6 weeks of chest wall radiation. 5 years of Tamoxifen.
Then came 2016 metastatic breast cancer..widespread to liver.
I can't go back. Maybe I could have prevented this or maybe not.
Please do everything to prevent recurrence, then you can live with your decisions if the cancer returns.
2016 Mutations: FGFR1 amplification, ATM-inversion-Exon55
7/2006, DCIS, Left, 4cm, Stage 0, Grade 3, 0/4 nodes, ER+/PR+
7/2007, DCIS, Left, 2cm, Stage 0, Grade 3, ER+/PR+
10/11/2016, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (IHC)
1/6/2017 Ibrance (palbociclib)
1/6/2017 Femara (letrozole)
3/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2- (IHC)
6/2021, IDC, Stage IV, metastasized to liver
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Whole-breast: Chest wall
Mastectomy: Left, Right