Aug 30, 2021 04:34AM
I was diagnosed with IDC - ER/PR+, HER2-, low K1-67 score (3%), tumor on the right side. Grade 2, on 7/29. Size of the tumor is still in question. Estimated at @6mm. I am scheduled for a lumpectomy on 9/14 and have my pre-op visit today.
Is it normal to second guess your decision? I am most worried about recurrence. It seems that a lot of the people I know who have had a recurrence initially had a lumpectomy and then ended up having to have a mastectomy anyway, and the people I know who have had a mastectomy 20 years ago did fine and have never had a recurrence.
I know statistics say otherwise, that there's about a 2% difference. How many of you on here who have had either a lumpectomy or mastectomy have had a recurrence? What kind of treatment did you have - radiation (what type), chemo, endocrine therapy (Tamoxifen or AI)? Did you have Oncotype done?
At this point I care more about my health (and a recurrence) that what I look like, although if I had a mastectomy I would get reconstruction. I initially thought having a lumpectomy would be less hard on my body (shorter, less involved surgery, less to go wrong, shorter recovery period), but is that wrong since lumpectomy requires radiation which comes with its own collateral damage - heart disease, lung disease, possibly angiosarcoma, weakening of the ribs? I work for myself from home and have a pretty light schedule so recovery time is not really an issue.
I will speak to my BCS of course about this, I just wanted some real world experience and thoughts from people with my kind of cancer who have been through this.
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