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Jan 19, 2022 09:37AM
I am going to put my thoughts down here since this thread seems to be the most active. You have started 6 threads in the last day all on the same topic, most with the same questions. To get the best answers for yourself, and to help out those of us who are responding, it's really best if you stick to one discussion thread. That way, people get the benefit of seeing previous answers and can add to, or even disagree with, those comments. I would suggest that you delete the other threads so that you can get a good discussion going in this one place and so that other's don't spend their time responding elsewhere, not realizing that you already have a discussion going here.
First off, I am so sorry that you've had this recurrence. Having it this soon after the surgery is unusual. That leads me to a question: Do you have the pathology report from the mastectomy? Were the surgical margins clear? Also, based on the imaging reports prior to your surgery, where was your tumor located? Was it towards the back of the breast? I'm wondering if this is just part of the original cancer that was not fully removed during the mastectomy. Alternately, this could be a completely separate cancer - some people do have two completely separate areas of cancer in their breasts. A recurrence usually means that a few undetectable cancer cells were left behind and then grew to develop into a cancerous mass. With your surgery having been less than 2 months ago, there would be no time for that to have happened. So I think this is more likely to be part of the original cancer that was not fully removed, or a totally separate cancer that was not originally detected.
To your questions in the other threads:
Staging: I'm wondering if my cancer is now a new stage and if anyone can comment on how a recurrence after a mastectomy changed their staging? I was diagnosed with invasive ductal carcinoma, stage 2b (age 56, 3.8 cm tumour, one positive lymph node, grade 3, er+,pr+, Hr2-,).
- It might or might not, so what happened to someone else who had a recurrence after a MX wouldn't necessarily apply in your case. Each case needs to be assessed individually. If this tumor is a separate cancer - it could even have a different hormone status - it would be staged separately. If it's part of the original cancer, normally only the largest tumor is counted in the staging, so the question would be whether this was part of the original tumor (which would indicate that you didn't have clear surgical margins) or whether this is a second tumor. In either case, the extent to which the tumor is involved with the chest muscle/chest wall is important because that could result in restaging. Chemotherapy or Surgery for Recurrence? Found a new lump woven in with muscle on the site of my mastectomy. My surgeon initially said he could just remove it if it was only in the muscle, but now suggests we shrink the tumour first and track it with a clip. Wondering if anyone has had any experience with a recurrence in this area and what your treatment was. I'm confused as to why I would not get the surgery first.
- With a 23 Oncotype but a large, grade 3 tumor, you were already asking whether chemo should be done. With this new tumor, and with it being right at the chest wall, I'd quess that there is no question now that chemo is required. So it's just a question of chemo first or chemo after surgery. If the tumor is right up against the muscle and in fact somewhat embedded into the muscle, I would think that it would be prudent to do chemo first to try to shrink the tumor. The surgery will be difficult and this could make it somewhat easier to remove all of the remaining cancer.
Have you talked to your Medical Oncologist? I think a discussion with the MO is absolutely in order before you do anything.