Topic: Pain and sensations months after lumpectomy

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Feb 24, 2022 09:44PM

Posted on: Feb 24, 2022 09:44PM

luvmy4sons wrote:

I had a lumpectomy of my 1 cm lump and 5 lymph nodes. There’s been some new pain and all kinds of sensations recently. It’s disconcerting. Could it be nerve endings healing? Anyone else had this

Radiation Therapy 8/30/2021 Whole breast: Left breast Dx IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2-
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Feb 24, 2022 10:33PM mountainmia wrote:

Yes, yes yes yes yes. Oh my goodness, yes. The pains and twitches and twinges come and go for a long time. It's really normal. When is your next follow-up appointment? Looks like you're just 6 months out from radiation. Check in with your breast surgeon or the RO, whoever you're meeting with next. But yes, the weird sensations do show up at weird times.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Feb 25, 2022 12:53AM alicebastable wrote:

Do check in with your doctor to be on the safe side, but those nerve regeneration areas from surgery can last for years. I've had several surgeries in different places over many years, and some days my body feels like a pinball machine with zaps and pings going off in every direction.

Ignore treatment info (below) which is a BCO glitch. Do not enter personal information on this site since they grossly mishandled a data breach. Surgery 7/11/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole breast: Breast, Lymph nodes
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Feb 25, 2022 08:38AM luvmy4sons wrote:

Thank you. Made an appo

Radiation Therapy 8/30/2021 Whole breast: Left breast Dx IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2-
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Feb 25, 2022 08:39AM luvmy4sons wrote:

Itodd as light touch to area cause nerve pain. Made an appointment. Thank you. It puts me at ease some.

Radiation Therapy 8/30/2021 Whole breast: Left breast Dx IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2-
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Apr 21, 2022 05:10PM luvmy4sons wrote:

I am still having lots of strange sensations. More disconcerting now that I am off the hormonal therapy

Radiation Therapy 8/30/2021 Whole breast: Left breast Dx IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2-
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Apr 21, 2022 08:10PM alleycat5 wrote:

Hi luv! I'm just weeks out - first lumpectomy March 22 and re-excision for clean margins and sentinel node biopsy on April 1. Surgeon said basically the nerve there gets really pissed off that he messed around too close to it, so it is going to act up for awhile. He said it should improve over time. I told my oncologist this week that the skin from my underarm to nearly my elbow feels like a really really bad sunburn to the touch. And my nipple is still really tender. She said unfortunately some of that may never go away. That likely for the rest of my life I'll get zingers and shooting pains there randomly. Hoping that tender skin eases up some. It does seem better over the last week or so, but like you, it just randomly zaps me.

Surgery 3/22/2022 Lumpectomy (Left) Surgery 4/1/2022 Lumpectomy (Left); Lymph node removal (Left): Sentinel Chemotherapy 5/2/2022 Taxol (paclitaxel) Targeted Therapy 5/2/2022 Herceptin (trastuzumab) Dx IDC/DCIS, Left, <1, Stage IA, Grade 1, ER+/PR+, HER2+, IHC Dx DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+, IHC Radiation Therapy 8/1/2022 Whole breast: Left breast Hormonal Therapy 8/1/2022 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 22, 2022 09:19AM sarahlaverty wrote:

im 3 years on now from DCIS lumpectomy and 6 weeks radiation….my breast has started to get weird pains over last few months im really scared the cancer has returned. Ive a mammogram and go back on 7th June for results but im beside myself with worry. Surely these pains arent normal 3 years later??

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May 22, 2022 11:17PM rain88 wrote:

I am 2y&7m out of lumpectomy, 4 w radx & 10 lymph nodes removed. I still have numbness in my under arm area and various, at times really strong, soreness and tenderness in the treated breast. My MO & RO said it was normal & that my breast and all that area might never get back to the way it felt before tx. Best of luck! ♥️

Dx 27/7/2019, Mucinous, 11 mm, Stage 1, Grade 1, 0/10 nodes, ER+/PR+, HER2-, Lumpectomy (right), Radiotherapy, Tamoxifen (15 months) Surgery 10/1/2019 Surgery 10/1/2019 Radiation Therapy 11/27/2019 Whole breast: Breast Radiation Therapy 11/27/2019 Whole breast, Radiation boost: Right breast Radiation Therapy 11/27/2019 Whole breast, Radiation boost: Right breast Hormonal Therapy 1/1/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy; Lumpectomy (Right) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast, Radiation boost: Right breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy (Right)
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May 23, 2022 12:14PM salamandra wrote:

Hi sarahlaverty,

I don't know about those pains in particular and it's good you're getting things checked out. But for what it's worth, I had to have a biopsy about 2 years after my surgery for what turned out to be new scar tissue. The doctor said that the breast can keep changing/healing/recovering for 5 years after surgery.

Also to my knowledge, it is very rare/unlikely for cancer to cause pain like you describe.

Dx at 39. 1.8cm. Oncotype 9. Dx 9/19/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2018 Lumpectomy; Lymph node removal Hormonal Therapy 11/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 12/3/2018 Whole breast: Breast Hormonal Therapy 12/19/2019 Fareston (toremifene)

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