Topic: Canada IDC and me ( or what's left of my mental health)

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Mar 31, 2022 04:13PM

Posted on: Mar 31, 2022 04:13PM

gladis wrote:

Thank you So MUCH for being here. I come here for hours and read all of the most courageous posts -it's very helpful and may

be the only glue holding my sanity together.

My brain is like a giant bag of pop rocks. LOL

I've known about the Lump since...January,-it was palpable. :-( (RIGHT THERE)

It was Feb before I could get seen for a referral.

Then , March before I could get a needle biopsy .

The results came through on the 23'd of this month.

IDC, HR+, HER (-) and 1.5cm in my left breast and "Possible surgery" (back logged/Pandemic)

is Mid May Maybe.

Shocked

What day does your BC decide to 'take a walk'?

I live FAR (Ferry 1 hr each way plus a 40 mins drive) from Radiation Therapy (and the hospital)

I'm thinking -just take em both, now ...please.

Thank you for listening out there....you are ALL way braver than me.

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Mar 31, 2022 04:26PM moth wrote:

hi gladis, welcome but sorry you find yourself here. I'm near Vancouver so I'm guessing we're distant neighbors.

So what you need to know is that a prophylactic mastectomy doesnt lower the risk of a metastatic recurrence. A lumpectomy is a much easier day surgery with a substantially faster recovery and lower risk of complications so if it's being offered, you may want to take that into consideration. You should know too that if you have a mastectomy and during it they find cancerous tissue in your lymph nodes, you'd need radiation anyway.

Chemo shouldn't be off the table unless you have comorbidities that exclude it. Normally you'd have something called the Oncotype test done in your tumor sample to determine the benefit of chemo.

Surgeons have differing backlogs - depending on what surgeon you select, you might be able to get your surgery sooner.

Radiation can sometimes be done on a shorter, higher dose schedule & the cancer agency can also sometimes help with temporary accommodations near the treatment center.

Hang in there, it get easier once the treatment plan is decided on.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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Mar 31, 2022 07:37PM gladis wrote:

Thank you Moth (air hug!)

(I read your posts all the time)

This was the surgeon my family doctor recommended.I'm not sure how to change him.

I practically begged for a surgery date (May 9) and spent hours on the phone with Van Health

Honestly, I never want to ever go through this again, elongated waiting is tearing my heart and family to pieces.

I've heard of Oncotype , would I have had to ask for this before the needle biopsy was done? (Is it too late?)

I moved from Kerrisdale about a year ago and live on the SSC!

Hi Neighbour! :-D

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Mar 31, 2022 07:57PM moth wrote:

After the surgery you'll be referred to the BC Cancer Agency & meet with an oncologist and then they will decide about ordering the Oncotype test. If they order it, the sample has to go to the US for testing & that adds its own delay so be prepared for that. There's a lot of hurry up and wait ... but it's ok, in most cases breast cancer is urgent but it's not an emergency. There's time to get all the info & data & make evidence based decisions.

You can change surgeons anytime (well, until you're in the OR lol) but you'd need an new visit & then scheduling which would probably put you back in the 3+ weeks which would put you pretty close to where you are now. But for future reference - like if you need a hip done or a gallbladder or whatever - you can check all surgical wait times in BC, call the surgeon's office directly to confirm if they have surgical space avail (they need OR space in whatever facility they work out of) and then ask your GP to refer to them. https://swt.hlth.gov.bc.ca/swt/

ttfn

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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Mar 31, 2022 08:33PM wrenn wrote:

Hi Gladis. Welcome?

I am in Kitsilano. I remember thinking that things moved too quickly for me but then I was in denial. :-) I felt my lump mid June, surgery mid August and then chemo at the end of Nov. My tumour was 1.5cm too. I am fine 9 years later but everyone's experience and treatments are different.

I agree with Moth that you can choose your own surgeon. There might not be a lot of choice in your area (what does SSC mean?)but it might be good to know how many of the procedure they have done. At teaching hospitals the main surgeon sometimes just supervises.

There is a place called Callanish.org that has group meet ups via Zoom right now but even speaking to the Vancouver staff by phone can be really helpful for the emotional part. They saved me. You can keep it in mind for later when you are more settled or call if you are just struggling now.

This site used to be amazing. The members here are so generous with their knowledge and support. Moth especially has done tons of research. It is quiet now but hopefully it will improve and you can get more input eventually.

Keep coming back to check in if you feel the urge.

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Apr 1, 2022 01:32PM gladis wrote:

Thank you Moth, I have looked at wait times on the site, called the Victoria office and more (and after listening to Adrian Dix laugh)

I've been expecting a call from the surgeon this week, alas ...nothing.

BUT, I did find out that my primary

may not have sent the biopsy results :-

( until this morning when I asked.

Sigh,

and again THANK YOU!!!

Have a beautiful weekend~

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Apr 1, 2022 01:43PM gladis wrote:

Hi wrenn,

I remember when I read your post from way back when and CHECKED (by searching for you in the member names)

to make sure you were still okay. <3

(Side note:Pls know, I'm not a stalker just shy of posting personal stuff but desperately trying to connect to what's happening and these threads are the fabric of my life right now. I moved here pre -pandemic leaving family, kids, grands, and all when my husband got a terrific opp at UBC. We know NO one here. UGH!!)

Also, "Wrenn"/Renn is the name of my favorite character in my fave author Margaret Attwood's "Year of the Flood"

She says "I'm really lucky" when her life is saved by being in quarantine and isolated during the waterless flood/pandemic. (Cool)

SSC is the Sunshine Coast (Gibsons)

My pups and I adored Kits the year we stayed there and went to the beach with the other pups (good times)

I'll check out the link you mentioned, so thank you for that too.

This forum is very special-thanks for your concern and time~

really.


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Apr 1, 2022 02:04PM elderberry wrote:

Hi, Gladis: welcome to the club for which no one wants to be a member but we will all be team players and support each other. This place was my lifeboat when I fell overboard. I hope the site gets back to its original user friendly status.

I remember some BCO member(s) living on the Sunshine Coast. If you go to British Columbians (can't remember the whole thread name) you might find that person. Cancer is isolating enough without being far away from most everything. It is okay to be a lurker. I sill do that when I decide not to post anything for myself. It goes against my grain but I have discovered you really have to be the proverbial squeaky wheel and be an advocate for yourself.

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Apr 1, 2022 02:16PM wrenn wrote:

https://community.breastcancer.org/forum/55/topics/779734?page=310#top

There is the link to the BC thread.

I really hope this site gets it together soon since it will be even more helpful to you being away from the mainland and treatment stuff.

Just downloaded the latest Atwood yesterday. My daughter's middle name is Wrenn and I always regretted it not being her first.

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Apr 1, 2022 04:20PM gladis wrote:

Thank you Elderberry (the very tea in my hand) :-D

I'm listening , learning and lurking and ..

.thanks, I'm also still (trying) learning to self-advocate

(w/out pissing

people off by accident!!)

There are some 'vexing' bumps with the login to post a reply...

hugs for taking the effort. I appreciate the welcome to this harsh journey .


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Apr 1, 2022 04:23PM gladis wrote:

Ha, I didn't realize that there was an update after 2011 intro- I thought it was defunct.

Cool beans!

Ooh, I was going to name my daughter her middle name (Kashmir) and I'm pretty sure she is glad I didn't. ;-D

Wrenn, that's just ...beautiful. I wouldn't of thought of that, good on you Mom :-)

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