Topic: Newly diagnosed ER/PR -seeking buddies

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: May 4, 2022 05:03PM - edited May 4, 2022 05:04PM by wolfgang

Posted on: May 4, 2022 05:03PM - edited May 4, 2022 05:04PM by wolfgang

wolfgang wrote:

Hello I posted last week in waiting for results. Results are in and I have stage IA IDC ER- PR- HER2 pending FISH. My Ki67 was 93%. Aggressive but caught very early. More tests this week before the official treatment plan. Any comments thoughts welcome. Feels a bit lonely in the world though I know that’s not true.

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May 4, 2022 07:48PM moth wrote:

sorry you find yourself here, that really sucks. I think we all hope for benign results right up to the end.... Unfortunately the breast cancer club is large so you will meet lots of us, even if just virtually.

Hope you find out your her2 results soon as that will drive the treatment plan. The beginning really sucks but once you get a plan in place and actually start treatment, it gets better.

Hang in there đŸ¤—

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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May 5, 2022 01:15AM indahood wrote:

MOTH!!! I'm so glad to find you here. AND 5 hours ago. LOVE to you!


INdaHood

Laurie

Dx 10/30/2017, IDC, Right, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER+/PR-, HER2- Surgery 12/1/2017 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 2/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3DCRT Surgery Mastectomy; Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
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May 5, 2022 07:09AM moderators wrote:

Wolfgang, we're so sorry about your recent diagnosis, but glad to hear they caught it early. As you can already see, the members of this wonderful community are always here to help with information and support, you're not alone with this!

Good luck with further tests and treatment. Please keep us posted on how everything is going, we're thinking of you!

The Mods

To send a PM to the Mods: community.breastcancer.org/my/...
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May 5, 2022 09:03AM - edited May 5, 2022 09:38AM by beesy_the_other_one

Wolfgang--

Sorry you had to join us, but you have found people who understand what you're going through. Hormone negative, HER2+ cancers make up only 4% of breast cancer subtypes, so you won't find as many of us here. Here's a link to a thread where you will find others like you, assuming your FISH comes back positive: ER-/PR-/Her2+ Roll Call. Happy to help if you have questions.

Edited to add that my signature line is incorrect due to the website design.

1997: Phyllodes, R breast. 2018: IDC, L breast. TCHP, BMX, Radiation, Nerlynx. Dx 8/20/2018, IDC, Left, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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May 5, 2022 06:59PM wolfgang wrote:

thank you all. checking out that board @beesy

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