Topic: 22 Year DCIS Survivor-Just diagnosed with IDC

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: May 13, 2022 05:59PM

Posted on: May 13, 2022 05:59PM

bluegirl27 wrote:

Well, here I go for round 2 after being a DCIS survivor for 22 years. Found out I have Invasive Ductal Carcinoma Grade 2, ER 3+, Pr 3+, HER 2 neg, Ki67 is 20%, P63 negative, Ecad positive in the same breast I had DCIS. My mom was dxd at 72 with Stage 4 and passed a year and a half later.

Already got a call from surgeon and go next week

Surgery 6/2/2000 Lumpectomy Radiation Therapy Whole breast: Breast, Chest wall
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May 14, 2022 12:49AM katg wrote:

bluegirl27- I am so sorry your cancer has returned. Also, sad about your Mom. That really must have been tough. Thank God you have an appointment with the surgeon. I hope you also have an MO. A team there will help you and I hope we can be there for you too. Treatments have vastly improved. I truly wish you the best. Be good to you.

Chemotherapy 8/14/2021 AC + T (Taxol) Hormonal Therapy 1/1/2022 Femara (letrozole) Surgery 2/9/2022 Cryotherapy (Left); Lumpectomy (Left); Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy (Left): Modified Radical, Nipple Sparing, Partial, Radical, Simple, Skin Sparing; Prophylactic mastectomy (Left); Reconstruction (Left): Aesthetic Flat Closure, Fat grafting, Nipple reconstruction, Nipple tattoo, Removal (Left), Tissue Expander Dx IDC, Left, 5cm, Stage IIB, Grade 2, ER+/PR-, HER2+, ISH, IHC
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May 14, 2022 12:50AM wc3 wrote:

bluegirl27:

I'm so sorry you are going through this. It must feel very jarring to develop IDC after so long. Please know that we are here for you and that things usually get easier once treatment is started.

Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2- Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
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May 14, 2022 06:02AM rah2464 wrote:

Bluegirl sorry to hear you got another seat on the bus. I am also sorry to hear about the loss of your mother, I know that makes this doubly hard. I appreciate you coming on here and sharing your story because I think we all need to understand that we need to continue watching ourselves as our risk will always be there. Hope surgery and recovery goes well.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 6/26/2018 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 14, 2022 12:16PM bluegirl27 wrote:

Thank you all. I think I must just be in survival mode as I'm handling it fairly well for now. I knew it looked bad on ultrasound so I wasn't surprised. But, just so curious about next steps and if I will need chemo or not. Please share anything you think I need to know.

Surgery 6/2/2000 Lumpectomy Radiation Therapy Whole breast: Breast, Chest wall

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