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Topic: African American Women & Triple Negative Status

Forum: Black Women with Breast Cancer —

Black Women with Breast Cancer who want to connect.

Posted on: Dec 2, 2007 05:19PM - edited Dec 2, 2007 05:19PM by TripleNeg

TripleNeg wrote:

Wow, I've been away from the boards for a while and had to create a new user account and was pleasantly surprised to find this link. I'm stage 4 with triple negative breast cancer. I don't know if anyone has started a discussion about that here or not. 

Just to introduce myself and how I ended up here. I had a breast reduction in 2005 and right before discharge, the doctor told me they found breast cancer in the tissue they removed. The Oncologist that I went to told me that I didn't need chemo only a mastectomy. So I belived him and 10 months later, I researched triple negative breast cancer and found out that I should have had chemo but it was too late. Insurance said no. I requested a CT scan and low and behold, there was the breast cancer in my lungs. I did high dose chemo in October of 2006 and went into remission for 10 months and it came back again. I did chemo in November 2007, resigned my job, signed up for disability and now I'm stable. I share all of this just so you would know a little about me and where I am now in this battle for my life.

I've had several friends who've recently passed away; 2 in one week and now 2 in hospice. It's not what I envisioned for my life at age 42 but, God is able to turn this around and keep me here for many years to come. Stephanie

p.s. Here'a link I wanted to share with you regarding Triple Negative Breast Cancer. Knowledge is power; spread the word!

http://www.wusa9.com/news/columnist/blogs/2007/10/breast-cancer-triple-negative-factor.html

"The girl who became emotionally distraught, and wavered at each new set of circumstances is now grown up, a woman who has learned to rely on God's sovereignty" Joni Eareckson Tada
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Posts 721 - 738 (738 total)

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Sep 3, 2018 02:44PM patoo wrote:

Hello all.

iLinda, praying that all went well for you. Let us know when you get some time meanwhile still lifting you up.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/12/2009 Arimidex (anastrozole) Radiation Therapy 4/2/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
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Sep 20, 2018 08:24PM lLinda wrote:

Hello patoo and hello to all. Just thought I would check in! On my last post, I needed a Venogram, that went well , however the port incision got an infection, had 2 rounds of antibiotics, it is still a little seeping, the surgeon, says it will heal, so still no port. I went for my Herceptin yesterday , 1st time in 2 months, I think I fretted about that. In that time my husband has been diagnosed with Lung cancer and "here we go , a new journey!"

I can't believe August! A whirlwind of appointments, he is on chemo and doing as well as can be expected. His attitude is good. Keep us in your prayers , "Thank you please!!!

Patoo, always Thanks for your prayers!

Be Blessed,

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
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Sep 21, 2018 08:22PM patoo wrote:

ILinda, so sorry your DH is now going through this challenge but our God will not be mocked. Let him know that he is in prayer and lifted up by our Lord, held in His care. Still holding you, even tighter now as you need your strength for both of you. Much love.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/12/2009 Arimidex (anastrozole) Radiation Therapy 4/2/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
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Sep 21, 2018 11:19PM lLinda wrote:

Patoo, Thank you Soo much for your prayers and kind support. I shared your post with my hubby, he said "Thank you"! May you be Blessed greatly.

Love back to you

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
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Nov 17, 2018 04:54PM lLinda wrote:

Wishing everyone a Blessed and Happy Thanksgiving!!

Sincerely

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
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Nov 18, 2018 08:29PM patoo wrote:

Thanks Llinda. Next post let us know how your DH is doing.

Happy Thanksgiving to everyone.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/12/2009 Arimidex (anastrozole) Radiation Therapy 4/2/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
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Dec 14, 2018 06:07PM - edited Dec 14, 2018 06:08PM by HopeBry

Hi I am new to this particular group. I am TN Grade 3 invasive, no lymph involvement. Found it myself in Oct breast cancer awareness month. I am currently getting AC-T chemo. "A" they call the "red devil" it's actually red. I am 41. BC does not run in my family. No Braca gene either. So the whole thing baffles me. It must be environmental. What they inject in our foods and ther products. It's terrible the things that are done to keep you sick because the money to me is in the treatment and not so much the cure. I just got my 2nd infusion, have been managing the nausea a little better. Choose not to take too much zofran, gives me headaches. Drinking more fluids and eating better. Counting down to my last to AC infusions, then I battle the Taxol for 12 weeks. Still unsure about lumpectomy vs mastectomy. I hear stories and I fear is reocurrance. i dont want to go through this again. I've known people who had lumpectomies and have been cancer free for over 17 years. Back then they didnt even know what type the had as opposed to now. So I don't know what to do.

Dx 10/25/2018, IDC, Left, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- Chemotherapy AC + T (Taxol)
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Dec 14, 2018 08:50PM lLinda wrote:

Hello Patoo and everyone. Thanks for asking about my hb, God has Blessed that he "responded to the treatments"! Dr. Said, If I hadn't seen that you had Cancer, I would not have known". It is a Blessed Christmas here! Thanks for the Prayers. He has his last Chemo next week. They will follow with CT scans in the future.

I got my new Smart Port on 11/16/18 and had chemo on 11/23/18 and 12/12/18. So far, no problem. It has been some long past days!

Merry Christmas, and Happy Holidays to you all and Wishing all a Blessed New Year!!!

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
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Dec 14, 2018 09:34PM lLinda wrote:

Dear HopeBry, we are sorry we have to meet like this. There has been great support on here. Just know all of your feelings are appropriate, and you will feel them all from time to time. I have posted a few posts in the past and hope you can pull them up . There is so much new technology out there since I was diagnosed, not to frighten you , but in those years I have been on 8 different chemos, yeppers, I had the "red devil" and Taxol too. There was not a Chemo for the cancer I had at that time, it came 2 yrs later. I am HER-2, back in a day it was "the worst", very aggressive. Today, Breast Cancer can be another Chronic Disease, while I still get Herceptin for my kind of cancer and have had to be on it many years, it is a maintenance med for me. Jesus and this med have let me be here 20 years 11/17/18. Keep doing what you're doing to take care of yourself and take life day by day. While I check in every now and then, I hope to be encouraging to you as the others have been in times. Take care till next time. What are your Dr.s advising you to do, lumpectomy or mastectomy?

Sincerely,

Llinda


LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
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Dec 26, 2018 07:24PM patoo wrote:

Hello and Merry Christmas to all. Yes, it is a Merry Christmas because we are still here and able to post so be encouraged that this journey will not always steal your joy.

iLinda glad you and DH are faring well and congrats on your 20 year cancerversary. I made 10 years in October. We serve an awesome God.

HopeBry, hang in there. The early days are the absolute worse but you will get through. As iLinda says, many advances have been made which gives us many choices. Your doctors and your own research (and asking questions here on BCo) will lead you to do whatever you feel is right for you. No two of us are alike so you have to "do you" with guidance only from others.

I also don't come on very often but encourage you to browse the threads that interest you. Stay away from any negative threads. You can do this.

Hugs coming your way.

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/12/2009 Arimidex (anastrozole) Radiation Therapy 4/2/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
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Jan 13, 2019 07:09PM lLinda wrote:

Happy New Year to all!! Yes we are Blessed to be here! Wanted to get that in, as the month is half over.

Patoo congrats on your 10 Year Cancerversary!!!! Yes we serve an Awesome God!!!

HopeBry, I hope all is going well for you. I echo Patoo, stay away from the negative threads. They will be there! Take good care of you.

Sincerely,

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
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Jan 25, 2019 05:50PM patoo wrote:

Hi all. Mammo today NED though was on pins and needles as they saw something more from last year but breast urtrasound showed just dense tissue. We never get past the fear but God is in control.

Hope all is going relatively well.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/12/2009 Arimidex (anastrozole) Radiation Therapy 4/2/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
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Feb 27, 2019 02:40AM Insideout2 wrote:

Hello,

I was diagnosed with TN cancer in12/2017. I will go in for my 2nd post treatment PET in March. My first was in 12/2018. I spent the last year fighting to live. I think this year will be about recovery and readjusting.

I feel more emotionally drained now, than before. I am glad to find this thread. Any tips on adjusting to life after treatment please share. I still get aches, like the ones felt when I received my shot to increase my wbc after a round of chemo.anyone else?

Insideout 2

Dx 12/2017, Left, Stage IIA, ER-/PR-, HER2- (FISH) Chemotherapy 1/30/2018 FAC Chemotherapy FAC
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Feb 27, 2019 09:02PM lLinda wrote:

Hello Everyone!

Patoo glad your Mammo was NED, To God Be The Glory!

To Insideout2, I like your positive thoughts, that this is year of recovery and readjusting, "Hold on to this" ! After your treatments, it is okay " to feel what you feel. I gave myself "Cancer days", I would allow the tears to come, I might just lay around and do nothing, it is about you! However, I did set a time on me, like 2-3 days, certainly do what you feel you need. I felt too long, and I may get depressed, and you have a right to feel like so on this journey. Take good care of yourself. Til next time.

Sincerely,

Llinda



LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
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Apr 26, 2019 08:22AM patoo wrote:

Hi everyone. Thanks iLinda.

Insideout2, what iLinda said! It's all about you now until you have reached that point where everyday is not about BC! Don't apologize to anyone for your down days because they are not fighting the fight for you. Be good to yourself at every opportunity.

Just had appointment today with new MO and, finally, can get off Arimidex - 10 years, DONE!

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/12/2009 Arimidex (anastrozole) Radiation Therapy 4/2/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
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Oct 11, 2019 01:18AM lLinda wrote:

Hello Everyone, It has been a while since I have posted. I have gone on an "uncharted territory of life",. I lost my husband of 54 years, June 1st, the lung cancer went to the brain. He had gone through the chemo and no ca was seen in scans in Feb. By April it had traveled, like ca can. He had chosen not to get Radiation to the brain at 75 yrs. old. We prayed, had to know it was God at the end of the time. Our family is sad and hearts ache. Please keep us in prayer. I just wanted to check in. Think about all on this thread. Just getting so I think I am a little more able to converse about this. Different life for real!! I was 14, he was 17, we had history, we went "steady for 4 yrs" prior to getting married, so 58 yrs. We have 3 children, 4 grandchildren and a great granddaughter, she will be 2yrs. old next month.

Do hope everyone is doing well as can be expected. Everyone hugs to you all. Be Blessed.

Llinda


LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
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Oct 20, 2019 11:57PM Insideout2 wrote:

Hello lLinda,

Praying for you and your family.

Insideout2

Dx 12/2017, Left, Stage IIA, ER-/PR-, HER2- (FISH) Chemotherapy 1/30/2018 FAC Chemotherapy FAC
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Oct 21, 2019 01:35AM lLinda wrote:

Hello Insideout2,

Thank you for your prayers for our family. It's been a little over 4 months, some days just rougher than other days. We are a praying family and we know that's how we will make it through. Bless you. I hope all is well as can be expected for you as you travel this "dip" as far as you health goes. Hang in there.

Sincerely,

Llinda


LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+

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