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Topic: Single life after a mastectomy

Forum: Singles With Breast Cancer —

Singles with breast cancer who want to connect.

Posted on: Apr 29, 2011 11:32PM

txkari wrote:

Hello --

I'm a 47 year old single, who was diagnosed with DCIS grade 3 in early March. The affected area is quite large ... 15 cm in one direction. I have had two partial mastectomies and they still don't have clear margins, so I will be getting a full mastectomy on the left side in a few weeks.

I guess I took the Dr's assurances that I would be OK, a little too much to heart. I was ready for a little surgery and radiation. I wasn't ready to be told I needed a full mastectomy. The reality of it hit me a couple of nights ago.

I haven't met with the plastic surgeon yet, so I'm not sure what my reconstruction plan is yet. My questions are ... how did you prepare yourself to see your body after the surgery? I'm rather large breasted (DD) so the difference is going to be pretty dramatic. Have you found that men can look past the changes in your body? Do they understand? I just want to know if I need to resign myself to being alone. Is there love after a mastectomy/reconstruction?

Thanks

Dx 3/4/2011, DCIS, 6cm+, Stage 0, Grade 3, 0/0 nodes
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Jun 2, 2018 08:36AM - edited Jun 2, 2018 05:27PM by Jazzygirl

Toughcookie- congrats on being done with chemo. Give yourself some time to rest and heal up. I have a fellow BCO sister I know from another thread doing Zometa and it sounds very do-able compared to many things we go through with this stuff. Thanks for checking in and letting us know you are doing.

My backyard is an explosion of blooms right now. Front yard is holding it's own too! The gardens give me a bit of sanity in an otherwise insane world!

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/15/2012 Lumpectomy: Left, Right Surgery 11/15/2012 Lymph node removal: Left, Sentinel Surgery 11/15/2012 Lymph node removal: Right, Sentinel Radiation Therapy 1/7/2013 Breast Radiation Therapy 2/25/2013 Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole), Aromasin (exemestane)
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Jun 2, 2018 04:11PM ToughCookie101 wrote:

Jazzygirl - Glad to know the other BCO sister is handling Zometa well. It is interesting that it is now being used for early stage breast cancer too. I can’t keep ending up febrile neutropenic and throwing up water after every chemo. My MO says it is dangerous.

I live in Canada, So no flowers like that. That and I can’t keep plants alive, hah.

Diagnosed at 33 after finding my lump myself. Had to stop chemo after round 3 due to repeatedly ending up febrile neutropenic and developing neuropathy. Now on to ABCSG12 treatment (hormone therapy and Zometa). Dx 11/15/2017, IDC, Left, 2cm, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 2/1/2018 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 4/4/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery 9/1/2018 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement
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Jun 2, 2018 05:29PM Jazzygirl wrote:

Our sister Enerva here is also from Canada. She has flowers on a deck I believe. My front yard burned last summer with the heat (I have rocks, otherwise known xeriscape) but the plants got fried. I relandscaped with more desert friendly things and a neighbor told me last night things are looking good. June is the hottest month here, so here we go.

Today I bought some poppies!

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/15/2012 Lumpectomy: Left, Right Surgery 11/15/2012 Lymph node removal: Left, Sentinel Surgery 11/15/2012 Lymph node removal: Right, Sentinel Radiation Therapy 1/7/2013 Breast Radiation Therapy 2/25/2013 Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole), Aromasin (exemestane)
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Jun 3, 2018 09:49AM NotBrokenJustBent wrote:

ToughCookie, I developed mild neuropathy after my first treatment but my old fart MO assured me it would be temporary. I asked about icing and was told it is a myth and to stay off the internet. Needless to say my neuropathy progressed with every treatment and today it has significantly affected my QOL. That bald headed freak with his medical degree from the 1930s caused me much harm and I won't even go into the dangers I was exposed to once I began the blockers. Thankfully with an insurance change I was forced to find a new MO and she immediately changed my meds. Sounds like you have a proactive doctor and be thankful for that. You are getting thru this on onward to the other side. Take good care of yourself. Are you working these days?

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Jun 5, 2018 09:01PM Jazzygirl wrote:

How is everybody doing this week ?

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/15/2012 Lumpectomy: Left, Right Surgery 11/15/2012 Lymph node removal: Left, Sentinel Surgery 11/15/2012 Lymph node removal: Right, Sentinel Radiation Therapy 1/7/2013 Breast Radiation Therapy 2/25/2013 Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole), Aromasin (exemestane)
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Jun 10, 2018 02:53PM Enerva wrote:

hi sorry I haven't been here lately

Yes I am well now

I am now at the public laundry doing some laundry after weeks of none lol

It sucks cuz it is such a beautiful day out and I am stuck doing laundry but 4 more days I will move to the cottage and all will be worth it

The rest I did will pay off lol

Hoping you all have a wonderful weekend

Surgery 3/25/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/24/2013 Reconstruction (left); Reconstruction (right) Surgery 8/27/2014 Reconstruction (left); Reconstruction (right) Dx 12/13/2017, LCIS, 6cm+, Grade 1, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 12/21/2017 Zoladex (goserelin)
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Jun 28, 2018 12:55AM ToughCookie101 wrote:

NotBroken - Sorry for the late reply. I haven't been on here for a while as there is a lot going on! I am sorry to hear about the neuropathy, that is frightening. Has anything helped to improve it at all? My hospital ices for Taxotere standardly; they however say it is more to protect the nails, but I have heard it can help with neuropathy as well, so it can't hurt (besides the pain of frost bite for a couple of hours).

I got so nervous about not having the 4th chemo that I asked my MO if I could continue, and he said yes, however cautioned me and has reduced my dose and delayed my last round by another week (so it is this Friday). My neuropathy has gotten better so far, so I am hopeful. I couldn't take the wondering what if regarding the last round, so after I cancelled it, I stressed out about it so much, it is now back on. Fingers crossed it goes ok with the reduced dose. My MO is great, and I am very thankful. He isn't just treating the cancer, but he looks at my treatment as a whole long life balancing the cancer treatment, QOL, and my own life plans. He truly looks at the big picture and I am very thankful to have him as an MO. I am not currently working, I have been on disability since my mastectomy Feb. 1st, but I can't wait to get back to work in a few weeks.

Diagnosed at 33 after finding my lump myself. Had to stop chemo after round 3 due to repeatedly ending up febrile neutropenic and developing neuropathy. Now on to ABCSG12 treatment (hormone therapy and Zometa). Dx 11/15/2017, IDC, Left, 2cm, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 2/1/2018 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 4/4/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery 9/1/2018 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement
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Jun 28, 2018 09:09AM Jazzygirl wrote:

Toughcookie- glad to hear your MO is working with you on being able to finish treatment. I did not do chemo, but was helping a friend a couple years ago when she went through a different kind of cancer treatment and the chemo tanked her blood work. She was going to stop but encouraged her to work with her MO (whom I knew from another place and time) and with a bit of a delay, she finished her last treatment. A good MO understands the importance of being able to continue to have quality of life during and after this as best as we are able. I am glad you are getting good care!

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/15/2012 Lumpectomy: Left, Right Surgery 11/15/2012 Lymph node removal: Left, Sentinel Surgery 11/15/2012 Lymph node removal: Right, Sentinel Radiation Therapy 1/7/2013 Breast Radiation Therapy 2/25/2013 Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole), Aromasin (exemestane)
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Jun 28, 2018 03:49PM Jazzygirl wrote:

Just a quick note to say my annual mammo and ultrasound went just fine today. Always grateful for good check ups!

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/15/2012 Lumpectomy: Left, Right Surgery 11/15/2012 Lymph node removal: Left, Sentinel Surgery 11/15/2012 Lymph node removal: Right, Sentinel Radiation Therapy 1/7/2013 Breast Radiation Therapy 2/25/2013 Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole), Aromasin (exemestane)
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Jul 4, 2018 11:03AM Jazzygirl wrote:

Happy July 4th to all the single ladies who live in the US

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/15/2012 Lumpectomy: Left, Right Surgery 11/15/2012 Lymph node removal: Left, Sentinel Surgery 11/15/2012 Lymph node removal: Right, Sentinel Radiation Therapy 1/7/2013 Breast Radiation Therapy 2/25/2013 Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole), Aromasin (exemestane)
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Jul 4, 2018 08:16PM ToughCookie101 wrote:

I'm done chemo! I'm glad I finished. Part of me wishes I had the full dose, but my MO wouldn't have let me continue at the full dose. He even cautioned me about doing round 3. I did what I could, and I am so thankful he worked with me to find a balance that didn't kill me, tried to not leave me with lasting damage, yet let me finish all rounds. As I've been told, the MO's job is to kill the cancer not the patient. :) This round still knocked me off my feet, and I am slowly recovering. Upwards and onwards!

Diagnosed at 33 after finding my lump myself. Had to stop chemo after round 3 due to repeatedly ending up febrile neutropenic and developing neuropathy. Now on to ABCSG12 treatment (hormone therapy and Zometa). Dx 11/15/2017, IDC, Left, 2cm, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 2/1/2018 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 4/4/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery 9/1/2018 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement
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Jul 4, 2018 09:38PM Jazzygirl wrote:

ToughCookie- congrats on being done with chemo. Do you have any other treatment to complete or is this it? Feeling better after all this takes WAY LONGER than you may expect so be patient with yourself. You will have more good days than bad with time. The docs are really good about knowing how much you can tolerate and it sounds like yours was on top of it.

Hoping you are feeling a bit better every day going forward!

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/15/2012 Lumpectomy: Left, Right Surgery 11/15/2012 Lymph node removal: Left, Sentinel Surgery 11/15/2012 Lymph node removal: Right, Sentinel Radiation Therapy 1/7/2013 Breast Radiation Therapy 2/25/2013 Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole), Aromasin (exemestane)
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Jul 11, 2018 05:31PM ToughCookie101 wrote:

Thanks Jazzy! My MO is great! I have 5-10 years of Tamoxifen, Zoladex (injection every three months) and Zometa (infusion every six months for three years) as my MO like some the results of the ABCSG12 which combine all these in premenopausal hormone positive breast cancer patient said.

Diagnosed at 33 after finding my lump myself. Had to stop chemo after round 3 due to repeatedly ending up febrile neutropenic and developing neuropathy. Now on to ABCSG12 treatment (hormone therapy and Zometa). Dx 11/15/2017, IDC, Left, 2cm, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 2/1/2018 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 4/4/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery 9/1/2018 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement
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Jul 11, 2018 05:43PM ToughCookie101 wrote:

I have a couple more surgeries too, including a prophylactic mastect

Diagnosed at 33 after finding my lump myself. Had to stop chemo after round 3 due to repeatedly ending up febrile neutropenic and developing neuropathy. Now on to ABCSG12 treatment (hormone therapy and Zometa). Dx 11/15/2017, IDC, Left, 2cm, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 2/1/2018 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 4/4/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery 9/1/2018 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement
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Jul 11, 2018 08:40PM Jazzygirl wrote:

Tough Cookie- you keep going strong sister. When is your next surgery or maybe not planned yet?

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/15/2012 Lumpectomy: Left, Right Surgery 11/15/2012 Lymph node removal: Left, Sentinel Surgery 11/15/2012 Lymph node removal: Right, Sentinel Radiation Therapy 1/7/2013 Breast Radiation Therapy 2/25/2013 Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole), Aromasin (exemestane)

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