Jan 19, 2008 05:17PM - edited Jan 19, 2008 05:35PM by Hindsfeet
Crazydaisy, I was dx with comedo dcis with n grade 3 tumor
size 2.5 c....
After being dx with cancer I began searching the world wide web for answers. I tried to look at both sides, the pro's and the con's to the best treatment.
In the end you must be the one who decides what is best for you.
You are the one who is going to have to live with the results.
If your mass is multifoci or in more than one place your surgeon will recommend a massectomy. If it's dcis instu like I had you may chose to get a lumpectomy with a sentinel node removal.
Most high grade cancer or large tumors, surgeons insist on removing not only the tumor, and clear margins, but also the sentinel nodes.
If I was to do it again, I would have begged my surgeon to do the lumpectomy first, and only if the cancer was invasive to take out the sentiel nodes. Although I think she would have removed the sentinel nodes anyway, she is a very aggressive surgeon. After surgery I was glad to wake up with my breast.
I am so grateful my axilery nodes weren't taken out. The removal of the nodes is the most painful part of the surgery. My surgery was a month ago and the sentinel scar still burns. I also had seroma, fluid from the sental node.
The removal of the nodes puts you at risk for Lymphema..not sure of the spelling. Lymphema is a permanent ailment you do not want to get. Read up on it. Everyone with node removal needs to be aware of it. And once nodes are removed you can never have blood drawn from that arm or blood pressure. These will forever remind you that you had cancer.
Personally I think it is good to understand and know what the side affects are before going under the knife.
When I first learned I had breast cancer I thought just cut it off. After looking myself in the mirror I felt a sadness, a lost and knew if at all possible I wanted to keep my breast.
Women who lose their breast, and sometimes its necessary to save your life go through grief...it's a loss.
If I were young, I would choose a masectomy with reconstruction. Radiation has side affects and can cause other cancer in 10 to 20 years. I would avoid radiation at all cost. Although I might have consider partial radiation or mammosite.
I spoke with a radiocologist/oncologist who said without treatment there was 90% I would not have a reocurrence, because my margin was wide and clean. With treatment I would have 98% not to have a reocurrence.
There are doctors and people who say if you don't get treatent you have 40% chance of reocurrence.
Most people don't like to gamble. For me it was a gamble either way, if I went for treatment I'm gambling my life won't be changed by the side affects. If I don't, I gamble on getting cancer again, which can happen to those who are treated as well.
Think of it, everyday we take risk..Driving is a risk.
Cancer doesn't grow over night. It takes years before cancer is detected. If you choose, like me to keep a watchful eye, your survival rate is about as high as those who get treatment.
There are a lot of opinions and many will disagree with me, which is their right. Not everyone has side affects from the treatments. I chose not to get further treatments hoping that I will be one of those who are lucky not to have a reocurrece.
If it does happen I' hope there is a new medicine which will erase or stop cancer without side affects.
If the cancer I had was invasive I would have attack the cancer full force.
You will find a lot of beautiful people here who have big hearts.
I thought since I' didn't have treatment I could kick this and go on, but have found there are feelings you must work through. The thought that I can be vulnerable to such a disease is disarming.
There was a time bomb in me and for people like us it was found in time. Get a lot of prayer behind you, and be at peace. This is a great time to reflect, rest and heal. God bless
Remember life does exist after breast cancer.