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Postcards from the Ledge
Hi all I’ve heard from a lot of women that there were times they had to be talked off the ledge during their cancer “journey “. I have found it to be more like a mud run - messy, exhausting and glad to see the finish line! My most obvious ledge day was this: I called my surgeons office on a Sunday night, when I knew they…
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Post mastectomy pain, numb below scar, one month later
I had my mastectomy 4 weeks ago (left side) along with axillary dissection. It is still very painful, especially the underarm area and I assume is mostly due to the dissection, especially as this is the 2nd time around for me (local recurrence, 2.5 yrs ago a lumpectomy and nodes removed). I still can't lift my left arm…
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Surgery Delayed/Possible SAVI instead of Wires
Went in yesterday afternoon for my Pre-Op with my surgeon to 'finalize' everything for my surgery scheduled for Monday, 29 August. I was prepared, had my list of questions, my mind set, etc. I have my little baby tumor, and I also have another spot (biopsied 3 weeks ago) that was ALH. The surgeon explained how (since both…
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Expander pain 3wks post-surgery
Hi all, wondering if there are others who have been through this-- I had a mastectomy (left side) and expander placed under the pec three weeks ago. The ps said there were two tears to the pec during surgery, one of which he repaired. I'm still in a lot of pain and am not looking forward to the first expansion, which…
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Issues with a top-ranked NCI hospital, Huge Anxiety/Frustration
I had my first surgery consult and MO consult this week, and after waiting 2 weeks when the new patient coordinator at the top-ranked NCI I transferred care to, set those up, I find out my imaging is NOT at the NCI. The coordinator claimed to have sent the request form for all imaging, but the imaging center I went to…
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New cancer in other breast: Lumpectomy or mastectomy?
Hi, I was diagnosed with Triple Negative Breast Cancer (3 cms) in 2009. Treated with lumpechtomy + radiation + chemo. No recurrence. I have been having annual checkups with the occasional need to have further testing due to some suspicious finding or other. A new cancer was discovered in the other breast 2 weeks ago. It is…
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Weekly "In Treatment" Zoom meetup!
Hi Everyone, We have created a weekly virtual support group for all who are planning or going through active treatment. If you've just been diagnosed, planning surgery, chemo or radiation, all are welcome to our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM EST and…
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5 year post sugery,,8/2017 anyone?
Hi, Just saying hello to fellow August 2017 post surgery friends. There were a number of us, and I hope this finds all of you well. I'm still on Tamoxifen and not yet to menopausal status. Have had to have a d/c since then due to an endometrial polyp, thickened lining, not sure from tamoxifen or just bad luck. Keeping on…
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Post-Surgery Follow-Ups
I had a lumpectomy in August 2021, followed by chemo, and declined radiation. What I'm wondering is if my follow-up care is typical of others. I have never seen my surgeon in person since the morning of my surgery. I have had 2 telephone "visits" with her, but nothing in person and no in person visits scheduled. I had a…