Illinois ladies facing bc
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Sorry about the multiple post LOL..It posted 3 times so I deleted 2 of them.
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What a long day... and not in good way.... It's long story so, I am not gonna get into detail.... If I didn't have bc, none of this would happened... have you ever felt that way?? I did today, big time.... from my dh... It broke my heart... I didn't ask for this... why life is so complicated?? It's hard enough already and stressed out and tired... I want to go some place I can hide, just get away from all of these mess...
thanks for listening....
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Morning all....from my oceanfront balcony in florida! Well...inside the door! The sun is on the balcony right now and its too hot! I will post a pic later...
Let's see....I am behind...
Julie...men sometimes are totally clueless! But....I did think the card was funny! Not appropriate for kids I guess or for bc patients...but funny and you do have a wonderfull sense of humor so I guess he thought it was ok...or he probably just didn't think...period. Have you tried the wine yet?
Elf....what's wrong???? You can tell us...maybe it would help to tak about it. But if not, just send you out a BIG HUGE hug...
Susan...onc wanted me to think about biphosphonates not because of any bone issues but rather to prevent future bone mets...you know, just in case I get them????? Well...I am still thinking on that one....and altho the research is VERY promising on that I am still gonna wait til my next DEXA in October and see what my bones are up to. Onc was fine if I never started them so I think I like my plan.
Rene...I see PT is in your future. Oh joy. But I am betting you will soon feel better! Glad your MD trip went well....looks very nice there!
Jackie....sounds like tendonitis maybe? Did you try the aleeve? Ck with your doc but you might need to take a therapeutic dose which is what I had to do for my thumb...I was taking 3 aleeve or 4 advil at a time, and more often. But this was on doc's orders so don't try this on your own. It worked but my pain kept coming back so I had the inj or cortisone and boy, was that wonderful! Within 24hrs I was 90% pain free, 48hrs...all gone.
Laura....how is your sister? Keeping good thoughts for you and a short note....dh's nephew's wife's BIL (only 37) had knee surgery and he developed the same problem as your sister and had a stroke as well and it was touch and go for almost 10 days and that was last holiday season. He is now back to work, living life HUGE and having a ball with his wife and two little kids. So...keep that in mind. Medicine is wonderful today and great things can happen. And do!!!!! Positive thoughts your way...and hugs to you and yours.
Char...why is it so hard? Got me.....but then no one ever said life was fair....and cancer is now a part of our lives and if anything is unfair and hard...it is a cancer diagnosis. I hate this disease. But it has become part of the fabric of my life the further away I move from dx so I guess it does indeed get easier. So....hold on and come hear and vent and yell. Been there, done that...got the t-shirt! You CAN do this and there is life after cancer tx...just baby steps right now...little baby steps...one day at a time!
OK...for those of you who do not care about my vacay...stop reading...
Trip yesterday went well...actually got in a 1/2 hour early and were sitting on the deck on the ocean, having lunch before 1pm. Then unpacked and did our usual Walmart run, then back to the deck for a glass of wine. We were so tired by then cuz we had gotten up at 2:30am so we took naps (gosh...are we old or what???). We felt so much better then...took showers and went out to our fav restaurant down here. It's the Lobster Shanty, right on the intercoastal waterway and had dinner at sunset. Beautiful. It is quite warm here of course and humid but there is a wicked breeze so we were pretty comfortable. Jackie...I don't think you would like it here at all!!!!
Time to go to the pool and get the shady chairs!
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Can only be quick today, so Wendy...what time do you have to go to bed to get up at 2:30AM! Might as well stay up, right? Have a great day, and eat some lobster for me.
Laura, still thinking about you and your family, and hoping to hear some better news soon. Wendy is right....many people recover, and we are sending out positive vibes and big hugs to you for the same.
Elf, you can vent here. Whatever it is, there is probably someone here who can relate. Many of our DH's were insensitive at times, including mine. Oh the stories I could tell...wait a minute, I did tell! And everyone here made me feel a lot better! Give us a try if you feel like it.
Hi Mazy, good to hear from you!
Renee, yup, may be some PT for you. Whatever it is, feel better soon, before the cruise! I'm going to live vicariously through you for awhile.
Gotta get to the wedding stuff, though DD is doing most of the work.
Enjoy this beautiful day!
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Good morning..
Laura, still waiting for some good news on your sister!!
Guess what!! Found a Nanny last night!! She seems great.. and I'm so relieved.. she will start on Aug 1st the same day Maria leaves to go home..
This one will also cook and clean.. 
Yeah.. insensitive DH's.. don't get me started... mine tries hard, but there are days.. I just remind myself that he didn't ask for this either..
Had the worst 'day after' yesterday.. May be time to change my anti-nausea pre-meds.. was sick all day.. better today finally...
Hope everyone has a good day despite the heat..
Marina
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A few quotes about men since they often are the absolute greatest or able to throw you deep into the pits -- all within the same hour.
Man is rated the highest animal, at least among all animals who returned the questionnaire. ~Robert Brault, http://www.robertbrault.com/
Ocean: A body of water occupying two-thirds of a world made for man - who has no gills. ~Ambrose Bierce
Man is harder than iron, stronger than stone and more fragile than a rose. ~Turkish Proverb
Man is the only kind of varmint sets his own trap, baits it, then steps in it. ~John Steinbeck, Sweet Thursday
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Wendy is having fun! The lobster sounds wonderful.
Speaking of vacations, I am planning one to see a friend in Los Angeles in November and those flights are so expensive. Does anyone have a favorite internet deals on trips? I am on Kayak but the flights are so expensive. I need a deal.
Smerf when is the wedding? It sounds like it is soon.
Susan
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FIRST - thanks for all the thoughts and concern. Friends of many different faiths remind me...it truly does make a difference.
Marina - Any news about your MIL? Hope you're feeling better today, post chemo...good news about the Nannie! Yay!
Mazy - Nice of you to share your info!
elf - My sweet elf! Life is truly a roller coaster ride...vent anytime! Hugs to you!
Wendrew - Yum...ENJOY!
EVERYONE - AGAIN...THANKS FOR YOUR THOUGHTS:
Sis's bronchoscopy showed 2 pulmonary embos and esinophilic pnemonia.? It's a viral form, so anti-biots are worthless, but she's getting steroids to treat it. She is still getting respiratory treatments several times a day and is still on oxygen. The good news is that the Coumadin is showing positive results. She had a brain CT, and "something" abnormal showed up. They are unsure as to what it is or if my sis simply did not lie "still" enough. Why didn't they just frickin' sedate her? (lol) Arghhhh...so she had another brain CT today. The waiting game continues. I'm visiting her tomorrow. If the CT looks good, she may be able to go home next week with a nebulizer.? The Coumadin is working - good news. Ahhhhhhhhhh...the waiting game continues.
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Yesterday I hid from it all...got my nails "done" - all 20 of them. And then spent a couple of hours at my friend's pool. It was a good escape. Taught an art class today...I'm pooped!
Have a great weekend.
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Sorry, did get news on my MIL.. thank god the test came back as they called it 'Unremarkable" which translated to clean.. Yay..
Laura- glad the coumadin is working.. something my family should buy stock in as my MIL and my cousin or on it for life.. but good stuff when needed...
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Morning! Can I move here? I love the sound of the ocean...I guess what I think is that these waves have remained unchanged for millions of years and will continue for the next million and my life, tho important to me, is such a teeny part of the universe. For some reason that comforts me..that there are bigger things out there at work than my troubles. Very peaceful, water is....
Smerf...sorry, didn't have your lobster but rock shrimp. I have never found it anywhere but in Florida and actually it is out of season (sort of) but I was able to get some and it was so good. I had to get up at 2:30 as the limo came at 4:30 for our 7am flight. I leave extra time in case I forget to do something.
Laura...so glad your sis is doing better. That wonder drug coumadin! Been around forever and still going strong! DH was on that for about 13 years and was finally able to get off of it when he finally found an a. fib drug that worked. Just takes a low-dose aspirin now. Keep us posted, ok? Sending good vibes for "she moved" dx!
Susan...I posted on fb about kayak, but I see you already know about that. OK...now this will be a strange one but it worked for me several times. Airlines sometimes have their best deals when no one is looking, and usually early Wed. am's. So...before you go to bed some Tuesday, drink a HUGE glass of water so it will wake you about 2-3am and then go and look for fares. I have done this 3 different times (the first by accident) and I have gotten great fares that way.
BJ....you feeling better? Hope so...
Marina. whew! Glad the nanny hunt is over and the timing works out great for you AND cleaning and cooking too? Great find!
Elf...hope you are OK! Still remember Juliechicago actually throwing a shoe at her husband and those of you who know Julie know that she is a sweet, sweet girl. But...they are men and that is a whole 'nother animal!
Mazy...forgot to thank you for the info! Still have some thnking to do but unfortunately I am swaying between 2 ideas. Yes, give it to me right now and No, never. No middle ground right now...
Back to Florida trip....
Had a great day yesterday...down at the pool reading and chatting for most of the morning (we sit in the shade of the building), then lunch on the deck (greek salad for me) and we just sat and talked and watched the waves. There was a wicked breeze out of the SE so we were very comfortable. Then upstairs for another nap (good gosh....hope we are just still a bit sleep-deprived...I NEVER nap!) then DH was so excited...out to see his Sis and BIL! I adore them anbd we had such a great time at dinner and then back to their house and talk, talk, talk for 3 hours! But...I guess we are all at that age...we ended up talking about our health and doctors and medicines. I guess we ARE old! One thing I did NOT like hearing about is DH's niece's 17 yo daughter with a lump in her breast which they did NOTHING about and are just WATCHING. For 3 months because BC DOES NOT OCCUR THAT YOUNG. And yes....I was horrified and I told my SIL and no doubt she will call her daughter today and when I see DH's niece I will certainly speak my mind. Not do an US? Not try and drain it? No mamm? NOTHING??? OK...not happening if I have anythng to say about it. I certainly remember the 10yo Hannah with bc so yes it does happen. Rare true...but it happens. Let's take a closer look, okay?
Right now off to shower...again...and then a walk on the beach...maybe some pooltime and then off to RonJon's in Cocoa Beach for some retail therapy and then maybe drive south to this place called Hiram's on the river for a late lunch and then????
Have a great Saturday everyone....hope everyone in tx has a good a day as possible. Just remember...se's do go away, eventually! A word I hated....
PS: HI GINNY !!!!!!!!
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Hi gals!
Elf, I'm so sorry that you had a rough day. The emotional roller-coaster isn't any fun at all. We are here to listen if and when you need to vent. Hugs to you!
Mazy...so glad to see a post from you. I think of you often and it's so good to know that things are going well for you now. YEA!
Wendy, I wish I was there with you! I love the beach and ocean, too. There's something about the sound of those waves that is soothing to me. I could sit in a lounge chair on the beach for hours and read a good book or just watch the people, water, and birds.
Laura, so glad you sis is doing better. That was quite a scare! I'll keep her in my thoughts and prayers.
It's been pretty uneventful around here since my grandson went home. I've gotten back into my golfing routine and hit the course regardless of the heat index. I'm certainly getting my daily quota of water now! :-)
Smerf...congrats on your daughter's engagement. This is such a magical and beautiful time in her life! You'll have so much fun preparing for the big day and sharing it with her!
Well Dave is golfing with the men today so I have a free day to get things done around here. I need to do a little planting before it gets too hot and then get to the store. I guess that means that I should get off this computer and get moving!
Catch you all later. Enjoy your weekend!
Rita
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Love cures people -- both the ones who give it and the ones who receive
it.
- Menninger, Karl A.0 -
Good morning,
Wendy, I enjoyed every meter of your entry. Your "wave" description was so right.Rita also feels it. We are so very,very tiny and somewhat insignificant when up against the waves that have been crashing the shorelines since the beginning of time --- but if you really want to get away ---- go where there is water. Just close your eyes and let yourself drift on those waves -- soon you will be in touch with your higher self ( and we all have a higher self ) and there you will find un-believable comfort and so much wisdom.
I am going to have to have a mental vacation this year which if ok with me. I have been busier than a one-armed paper hanger but that is ok. Nicer if we did not have the oppressive heat and humidity, but life really does go on. Hmmmm, elbow. I'm going to work on that -- just don't know when. Thought we'd be going up to Marion ( actually seemed like last week would work ) but it did not pan out. Then I would get some needed x-rays ( not of the elbow ) and could get some info on what to take that would help me keep my other meds in sync. Well, soon I hope this will happen. I did have another cholesterol numbers test. I'm assuming that it turned out ok as they never called back. Maybe I will call just to see where the numbers really are --- last time of course my bad numbers had gone good, but the wanted the good numbers to be higher if possible. That is what interests me now.
Well, my good friends -- work -- lots and lots of it goes on. We have had a severe outbreak of fleas at Maggie's. Been doing double duty with that. Have the apt. cats being boarded so I go see them everyday.....and spraying the heck out of the apt. with live fleas remaining. I'm going to try one other product -- after the yard man comes and redoes the yard. I'm starting to think....even with all the stuff I'm spraying/dusting in the apt. fleas seem to still be showing up and maybe they ( very small ones ) are actually arriving ( the apt. floor is patio that sits basically right on the ground ) from the yard. I can't believe after 6 attempts in the apt.....anything could still be alive --- so feel they are getting in from outside still.
Anyway --- need to get moving. I'll hopefully get to check in later on this evening. Thinking about all of you as always and wishing you well -- and lots of good times on vacation.
Hugs, Jackie
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Hi girls....one of our own needs some prayers....
BJ is in the hospital with elevated liver enzymes and pelvic congestion...she is not feeling well at all. Liver scan is the plan, maybe a lap/pelvis to see what is going on.
Michele/BJ....you are very important to us all....we are all wishing you good test results and hope that you are feeling better.
As for me....I took a walk down to the beach after your texts and had a talk with the powers that be. Walked back up and met DH for lunch...he asked was I less worried about you Michele and....out of my mouth popped...Oh yeah, it turned out it was nothing.
OK...don't know where that came from, but I am going with it!!!!!
and then dh asked if it ever ends for us and I said no is doesn't...he said aren't we lucky to have each other! And I agree...we are lucky to have found each other! Still bless Rita every day for not being able to sleep one night and reaching out and starting this thread....
Thinking about you BJ, and your chair is waiting for you! I didn't have the wine at lunch but I will raise a glass (or 2 or 3!) at dinner in your honor. Whatever it is....it is. And we are here. Always.
Hugs!
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Blackjack............you are in my thoughts and prayers. Just remember...Illinois Gals are Tough and we're all here for you if you need us.
Thanks for letting us know about BJ, Wendy. That's what this thread is for....companionship and support and trying to make things better when there is a need.
And speaking of needs...........Ginny, you are still in my prayers and thoughts every day. I am hoping beyond hope that each day is a llittle better for you, my friend.
I just watered all the plants and now there's this terrible rumbling in the sky. It appears a storm is on the way!
Jackie...slow down a little. Summer is going to be over and you're going to have been so busy that you missed it! You have more energy than all of us combined. Take some time for yourself!
Hugs to all you!
Rita
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I becanme so shaken by Wendy's post that I posted and then forgot (I guess) to submit.
My eyes are stinging with tears. Blackjack must be well.
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Add me to the shaken syndrome...BJ...you are in my thoughts and prayers.
I am wishing for the very best outcome...everything is crossed for you friend. Hugs, hugs, hugs and more hugs!
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Sending good vibes to BJ! Hope this blows over quickly! Please keep us posted!
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Sending good vibes to BJ! Hope this blows over quickly! Please keep us posted!
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Hi All,
BJ - hope thoughts and prayers are with you. Hope you are out of the hospital soon.
Elf - sending you a hug - { }. Hope whatever has gotten you down has now passed.
Laura - so glad to hear some good news about your sister and that you were able to get some time to relax.
Marina - glad you found a nanny.
Wendy - sounds like you are really enjoying your vacation.
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I am doing pretty well. I am trying to exercise - when the weather cooperates. Haven't been out the last couple of days to go for a walk - it's just been too hot. Today I went to Kohl's and walked around the store instead! Pulled out the big credit card and bought a few things. LOL. Otherwise I'm walking up and down the stairs in my condo for exercise until the heat returns to somewhat normal.
Went to lunch yesterday with my parents and had a nice time but with driving down to Woodridge and running a couple of errands beforehand I ended up being really tired and ended up crashing for awhile at their place for a little "cat nap".
I've been working on a Christmas cross stitch project that mom wanted me to make for them. I'm really enjoying working on it. It's very cute. It's a Christmas Sampler and it's got a snow man and snow woman, christmas tree, presents, wreath, Santa, etc. It's just really fun to work on and although it's counted cross stitch I find it very relaxing. While I'm working on the pattern, my little cat, Meow Meow, is lying on the couch next to me.
No chemo until 7/28/10. Yeah!
Take care and enjoy the sunny days!
Carolyn
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Can someone tell me what happened to BJ. She just posted a few days agao and didnt mention anything being wrong. What in the world happened?
Also zometa and things like that..Are they for building up your bones. or preventing bone cancer. I am confused.
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Can someone tell me what happened to BJ. She just posted a few days agao and didnt mention anything being wrong. What in the world happened?
Also zometa and things like that..Are they for building up your bones. or preventing bone cancer. I am confused.
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Adding all my thoughts and well-wishes to BJ. Thanks for letting us all know about what she's going through, Wendy.
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I don't post much, but wanted to add prayers for BJ.
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Blackjack-Healing thoughts and prayers go out to you. I hope you feel better soon.
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Blackjack-Healing thoughts and prayers go out to you. I hope you feel better soon.
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Thinking 'bout you bj! Hope all is getting better. HUGS!
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Hi Everyone,
I have a message from BJ, and first of all she wants to thank us all for our concern. She does want us all to know that she is improving, but has no internet connection right now. Hopefully she'll be back here soon, and speak for herself.
Some of you may know that she and I share some doctors, and that I am a few minutes away from the hospital, so we met sort of sharing our doctor stories. And what stories they are! Just know that our lunchbunch gal is doing better, and will soon be released, and setting up our next get together!
Smerf
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smerf - Thanks for the update! I trust that bj is in good hands...thank goodness! I have a bit of insomnia tonight and your update has helped...
BJ - My thoughts are with you...you will get over this hurdle! HUGS!
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smerf - Thanks for the update! I trust that bj is in good hands...thank goodness! I have a bit of insomnia tonight and your update has helped...
BJ - My thoughts are with you...you will get over this hurdle! HUGS!
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