For when the goal isn't a cure — it's living well, for as long as possible
For when the goal isn't a cure — it's living well, for as long as possible.
Get support from others while facing a new diagnosis of a distant recurrence of breast cancer or de novo metastatic disease (stage IV). You are NOT alone.
Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: <a href="https://breastcancer.vanillacommunities.com/en/categories/caring-for-someone-with-stage-iv-or-mets"><em>Caring for Someone with Stage IV or Mets</em></a>.
Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, <em><a href="https://community.breastcancer.org/en/categories/stage-iv-metastatic-breast-cancer-only">Stage IV/Metastatic Breast Cancer ONLY</a></em>, where topics are open only to those members.
Talk with others about improving your quality of life through symptom management during your breast cancer care for metastatic disease.
A unique forum to discuss compassionate care for the last phases of life.
Hi, I was diagnosed with metastatic breast cancer 41/2 years ago. Because of the advanced metastasis I was put on Letrozole, Palbociclib and Venetoclax. The drugs have kept me alive and continue to do so, but the Letrozole is really taking its toll on me. I'm 54 and feel like 80. I am barely able to walk and that is with a…
Hello - I actually joined this group awhile ago and never posted anything. I’m hoping to connect with like minded women living with MBC. I was first diagnosed in 2019, stage iiib; had the standard protocol, chemo, surgery, radiation.Cancer free for 18 months, recurrence in 2021, living with it. On several treatments…
As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the…
I am seeking experiences and suggestions regarding next-line treatment options for my wife with HR-positive, HER2-low metastatic breast cancer. She has recently progressed on ibrance with exemestane then Capivasertib (Truqap) plus Fulvestrant, with PET imaging showing progression mainly in the liver and lymph nodes.…
I had a radical mastectomy in 2000 w/chemo, radiation the whole 9 yards. It was in my chest wall. I did not have reconstruction. I had 2.5 years on arimodex and 2.5 on another aromatase inhibitor. In 2017 I was diagnosed with Mets to my left lung. I’ve been on Faslodex for 9 years. I’ve been lucky, tumors have shrunk and…
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
I will complete my first cycle of Xeloda today (2 weeks on; one week off). I have already noticed some signs of HFS on my feet. Sometimes they are red and feel hot. I've had some minor skin peeling, but not any blistering. The heels are the worst (the most sensitive) and it is uncomfortable to walk. I hope I get to see the…
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
Check out this article and let's discuss. I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle | Death and dying | The Guardian The author describes living with stage 4 cancer as being in “the long middle”, a space where there is not a cure,…
Well, I'm now a stage four NED girl, and would like to connect with other stage four people who are also in remission. Could this be a thread for supporting us all through the complex world of stage four remission, check ups and routine scans, anxiety, side effects, ongoing treatment, expectations from family and…
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MBC Partners Virtual Support Group