Illinois ladies facing bc
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GIRLS: Reminder...always ask your Drs if they have samples. Many times they do, but they forget to offer them.
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Char - Best wishes with the Arimidex.
Adey - Welcome...we will help you through your journey. It would help to know more about your diagnosis...stage, grade, etc. Hang in there...our motto is: ILLINOIS GIRLS ARE TOUGH!
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Happy Thursday evening all....
Adey....welcome to the group that no one wanted to join! Tell us a bit more about yourself, if you want!
Laura...I got those FB messages about Nicki weeks ago...are these the old ones? She was training back in late May.. Infection was back around early June.....
My onc told me about generic arimidex at my appt 7/6 and he told me to go for it! So I did...it must be OK as I still have all the same se's!
Bathrooms done, lawn done (after i had to make a run to Menards for air filter and spark plug), beds weeded, dinner cooked. Is it vacay time yet?
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Thanks Char and Wendy for your info on the generic Arimidex. I don't know why that made me a bit uneasy. If it was any other generic I probably wouldn't have thought twice about taking it.
Welcome to our thread, Adey. This is a good place to be while going through your treatments. Please do tell us a little more about yourself, as both Laura and Wendy have already suggested. I didn't have TAC so I can't help you there but I'm sure somebody will plop on and talk about it. We're always here to listen and offer support!
I'm off to finish laundry!
Everyone have a great night!
Rita
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It's little after midnight...
You ladies are absolutely right, when it comes to let it out or need to someone to talk to.. this is the place... I felt good after I let it out what happened and one less thing on my chest, so here is BIG THANK YOU to you ladies from bottom of my heart, what was I thinking trying to hold it in...
I had appt. with ps and set the surgery date for the nipple reconstruction and breast lift for the good side.. and it is set for the same date I got dx with bc... I didn't realize until I opened my book to write it down... what a coincidence...
Adey- welcome to our thread~!! These ladies are wonderful..
Before I go, I do have questions.... I stopped taking multivitamin few month ago, since then I felt more tired and fatigue.. It felt almost going through chemo again and I had to lay down and it gets worse when weather gets cloudy and rain... Is it just me or I need to find good multi vitamin and start taking again... What is good multivitamin or any vitamin I should take??
The other question is about the hair... is coming out like crazy.. every where I turned, I see my hair all over the floor.. even my kids noticed and said, here is mommy's hair.. Do I need to worry about this?? It driving me nuts...
I hope everyone is having sweet dreams and hopefully tomorrow is better than yesterday~!~!!!
Talk to you later~!~!
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Morning.....been awake since 3, just couldn't sleep. It's gonna be a loooooong day! Skipping the gym as I think I pulled something in my good arm, trying to start the mower yesterday. Why is it that I think I have to make up 2 weeks of work in 2 days???? Oh well....
Elf....I don't take a multi-vitamin but there are so many out there. Someone will come along with a suggestion. Hair loss could indeed be vitamin deficiency related...also could be due to stress which you have certainly had your share of lately.
Laughing....DH just yelled from upstairs that the curtain rod fell down...gee, wonder who pulled on it that hard! Have a wonderful Friday....DH goes back to work on Monday...I'm not sure whether I will miss him or be standing in the driveway doing a happy dance LOL
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Morning.....been awake since 3, just couldn't sleep. It's gonna be a loooooong day! Skipping the gym as I think I pulled something in my good arm, trying to start the mower yesterday. Why is it that I think I have to make up 2 weeks of work in 2 days???? Oh well....
Elf....I don't take a multi-vitamin but there are so many out there. Someone will come along with a suggestion. Hair loss could indeed be vitamin deficiency related...also could be due to stress which you have certainly had your share of lately.
Laughing....DH just yelled from upstairs that the curtain rod fell down...gee, wonder who pulled on it that hard! Have a wonderful Friday....DH goes back to work on Monday...I'm not sure whether I will miss him or be standing in the driveway doing a happy dance LOL
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Morning.....been awake since 3, just couldn't sleep. It's gonna be a loooooong day! Skipping the gym as I think I pulled something in my good arm, trying to start the mower yesterday. Why is it that I think I have to make up 2 weeks of work in 2 days???? Oh well....
Elf....I don't take a multi-vitamin but there are so many out there. Someone will come along with a suggestion. Hair loss could indeed be vitamin deficiency related...also could be due to stress which you have certainly had your share of lately.
Laughing....DH just yelled from upstairs that the curtain rod fell down...gee, wonder who pulled on it that hard! Have a wonderful Friday....DH goes back to work on Monday...I'm not sure whether I will miss him or be standing in the driveway doing a happy dance LOL
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Hey, Wendy, I've had alot of those "wake up and stay awake" nights. I usually get through the next day just fine but then watch out. It catches up with me on day two, regardless of how much sleep I get that next night.
Elf....so glad to see your post. I do take a multi-vitamin each day. I think that they are all pretty much the same. At first I took Century Silver for Older Women and then went to Wal-Mart's brand and can't see any difference in the way I feel so I've continued to opt for the cheaper one.
I need to get moving this morning. I have plenty to do before I golf this afternoon so I'm out of here for now! Everyone have a great Friday.
Rita
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Elf, a good friend of mine is a "health freak" as I lovingly call her (LOL) as I have been a "highly processed, artificially colored and flavored" eater all my life. Thankfully the year before my diagnosis I'd begun to eat better, more fruits and veggies, less junk. I still eat plenty of my favorite sweets but junk no longer consumes the majority of my diet.
Anyway, this friend has been through cancer w/her brother and found some nutritional supplements helped him along the way. When I called & asked her to be my advocate, she suggested I start taking a Pro-Biotic right away. As well as a Whole Food multi-vitamin and IP-6 w/Inositol. I have followed her directions and shared with my oncologist of course.
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I everbody. Yippee to all with good news and hugs to those in treatment.
Elfsong-give your PCP a call about your hairloss. Your body is trying to tell you something.
Adey-Welcome to our thread. I did 6 rounds of TAC (finished on Dec. 1, 2009) I would be happy to help you in any way I can.
TGIF!
Navy
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Good morning everyone.. Off to the Block center for my 3 month update.. I sure hope it's not just a commercialized "come to our center for treatment" but that they really help me with the tough decisions I am facing on whether to continue chemo and whether to remove or replace my port.. as well as whether to do MX.. Woo Hoo I finally get to start thinking about that too..
Elfsong - I really like the Costco Multi- they are USP certified.. and my Dad who worked in Pharmaceuticals his whole life (he worked on Abraxane!!) says that in such an unregulated industry this is at leas SOME for of quality assurance... I too had experienced hair loss a few years before.. and it was due to stress.. but I agree, ask your Dr.. your body is telling you something.. though SOME hairloss is normal and more in the summer apparently...
Have a great Friday everyone...
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Welcome Adey. I am looking forward to know more about you and to get to know you..
I don't take a daily vitamin but after reading all the posts, I think will.
We are heading up to a lake house of a friend of my husbands from college. Paul was in his wedding and they invited all the people in their wedding party. Okay, that wedding was 37 years ago! We have seen them since but really not for the last 25 years. I am going along with this because my husband was a good friend in college, but I am a bit nervous. Dinner is one thing but a whole weekend? The rest of the couples know each other well. This is about a four-hour drive to a Wisconsin destination. Wish me luck.
Eff, you sound lighter. I think people go through periods when they shed hair (like animals) but it would be smart to ask a doctor about it.
Wendy, I too have those nights when I feel like I do not sleep. Maybe you are sensitive to the time change from Florida. I hate not being able to sleep.
Well time to pack. I bet I will end up having so much fun. All I can think of is that my hair was black and lovely (now white) and I was soooooooo much thinner then and I am so old now
! Maybe they are too!
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"Just living is not enough," said the butterfly, "one must have sunshine, freedom and a little flower." ~Hans Christian Anderson
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Good morning everyone,
Glad you are feeling better Elf. The load that seems so light at first packs a lot of weight on when we aren't looking and are busy thinking if we only have a little patience all will come right again.
I take vitamins and like Rita --- after reading bottles, I end up with the Wal-Mart generic. I don't think the vitamin industry is greatly regulated --- as long as they don't go way over what the FDA says --- but again these numbers have to fit everyone --- so basically they are somewhat generic too. I probably would not go without some kind of addition as far as vitamins because our diet is not varied enough and the farming methods have had drastic changes along with how poultry and cattle are fed -- you have to do something to try and make up some of it. Sigh !!!!
Add a warm welcome from me as well Adey. Hope you come often. Gets a little rowdy around here sometimes.
Off to do some work -- drat. I'll be checking later. Hi to all of you -- How's it going Smerf??? Enjoy your day.
Hugs. Jackie
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Welcome Adey!Sorry for the reason why you are here, but this is the place to come to for genuine caring and support on all levels!!! This is a safe place to heal too! However, it does get roudyin here as I usually like to cause it. I had been the Laundry Fairy... but had to quit as they got way too demanding in here!!!!lol
ELF..anything that is more organic and unprocessed builds your body and immune system. I take a ton of different things that is recommended based on what is goin on for me. You could use a good B complex vitamin, D and antixoidants as a regular. Keep listening to your body as you are goin thru alot and when you need to rest REST!!! There is alot to tiredness and fatigue and also a good moving intestinal area is vital to release all the toxins and such. I detox my liver alot and has opened up alot for me in less fatigue. Keep eating as raw as possible as you can!!!
Wendy....the curtain rod falling down and you DH story is hysterical!!
Zap... Did u have tests done recently btw??? Or have i totally lost it?Enjoy your trip and you are lovely as ever! I have a 35th HS reunion in a few months and it is ALL a change to see everyone after all that time... we are right where we are suppose to be!
Jackie... Love your daily quips and feedings for the soul!!!!
Mak...praying that you find the clarity and wisdom in all that u are facing i.. ALL will be the best choice once it is made and you feel comfortable with it all!!
ALL for now.. be well. OH.. i had my Dr;s appt and had a IV of amino acids and detox for my liver as i am still struggling to release toxins from my bodyl. I also had my chiro put me on several vits from Standard Process for my hormones and adrenal glands to balance better. It has made a difference. Haivn the right Drs DOES make a difference and am so grateful for that!
Healthy Wishes,
Donna
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Here's more. Back later. MUGA and port consultation today. Thanks Navymom, I look forward to your advice.
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Morning all....very rainy and gloomy out there but my grass is happy. It's gonna clear up later they say and tomorrow will be nice.
Adey....I had to do Herceptin which is hard on the heart so the plan was to start with an echo, then muga, then another echo...about 3-4 months apart for the year of tx. It ended up being 3 echos...something about not being able to get the isotopes needed for the test unless it was an essential test, which mine wasn't so can't comment on the muga. Now...I was the lucky girl who had virtually NO trouble with either chemo or rads, nothing, nada. But while most had no trouble with the port, I thought it was very painful to have put in (under gen. anesth. as an OP), it took week or 2 to feel better, was always uncomfortable. It came out after a year under local, 11 minutes flat! And it hurt for about a week. Still pulls even now, 2.5 years later. BUT....that was very unusual. So...don't be too concerned about the port placement. I fought against it even knowing I would have Herceptin for a year...but boy oh boy! I am so glad I did it...my veins are perfect! So...I don't want to scare you, just wanted to tell you my experience. Looking back on it, it wasn't that bad. Like I said...most gals have NO trouble at all. And chemo can actually destroy veins. You will do fine...if it aches a bit in the beginning, ask for something. I went home with the port and pain pills that were pink (ultram????)....I took one and went upstairs and watched the bedroom fan going around, laughing my butt off....GREAT pills!
Donna...funny thing about husbands, they never admit they did something. Yes,dear...the curtain rod just pulled itself out of the wall with a chunk of drywall. I have very intelligent curtain rods. Just like the power button on the bedroom TV broke itself or the garage door opened itself or the light downstairs turned itself on in the middle of the night or the chocolate syrup jumped off the shelf and squirted itself on the floor and then tried to clean it up but left half of itself on the floor....I could go on....
Birthday party today so need to get going. I had to send my regrets to Chelsea...but family comes first! lol
PS: Hi Ginny!
PPS: BJ, any answers? How are you feeling?
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"Hope begins in the dark, the stubborn hope that if you just show up and try to do the right thing, the dawn will come. You wait and watch and work: you don't give up."
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Adey -- hope things went well with you yesterday. Hi to everyone else. Rained through the night but it made it nice and cool and almost humidity free this morning. I doubt it will last long, but that is ok. I have things to do and don't wish to be slowed down so will handle whatever comes.
Take heart Wendy and all of you with dh's that do what Wendy described above. Only really intelligent people are able to pull these shenigans off. I think they are so shocked and amazed themselves that it occurred that they are able to "truthfully" say they have no idea how it happened --- god bless them, they really don't. Maybe I took the cake on this.......my first husband was like that and he is now on wife #5. Four of us apparently just couldn't deal with it. Hats off to all of you who do. I held out for ten years though. #2 for me can fix almost anything which is a real bonus, but a few attributes that #1 had did sneak in --- oh well -- I've finally adjusted, or have I ????
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Good morning! Sure is gloomy out...we had MAJOR storms last night.
Hope the sun is adorning your neck of the woods...if so...please send it my way.
I'm off to find myself, too! lol
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Good Afternoon, ladies~!!!
We got lot of rain overnight and woke me up few times... and now it just cloudy.. maybe I will go for a walk with the kids this afternoon.. for a change, I am sure kids will love it...
Thanks for all the good advices on vitamins and I also need to boost my immune system too.. I need to get one for sure.. this fatigue is too much for me to handle and sometimes I can't even make cup of coffee for myself because I got no energy... I can hardly feed the kids sometimes... My stress level was way high, I am sure and still little bit tense... We haven't heard from dh's last interview and it's over week so, we are thinking he didn't get it... no surprise... since economy has been bad, company won't relocate anyone... It was great when we they moved us from CA to here, full moving service was fantastic.. Without that we won'e be able to move back... gee... wish we can win the lottery and retired early....
oh well, keep on dreaming I guess... won't hurt, right??I was trying to post with my smart phone yesterday and it was insane~~~ I don't know how people does it.. I spent half hour and ended up with 5 sentences and I couldn't do it anymore.. oh well, it just me.. maybe I need more practice.. lol
Well, there is local coffee shop within 3blocks from our apt. and I am thinking, go there with the kids and get a latte and smoothies for the kids... that sounds good..
Have a great weekend everyone~!~!~!!!!
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Challenges are what makes life interesting; overcoming them is what makes life meaningful. - Joshua J. Marine
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Hey everyone - long time no see.... just wanted to jump on and say "HI". I think about you guys often, even if it doesn't seem like it. I hope everyone is doing well - and I see a lot of newbies here as well (which isn't a GOOD thing, because it means just so many more wonderful women are being dx'd with this damn disease & it makes me so sad
I started a new job a month ago - much better company, much better boss, much better everything. Poor Buster fell & broke his leg very badly so I'm being a doggy nurse right now too. Rads did a number on my recon, so I'll be dealing with that soon (more surgery.. blah) but as we know - IL GALS ARE TOUGH!!! Anyway - thought I'd just let u know what's going on over here & that I'm still and kicking alive over here in Schaumburg
It's been such a nice hot sunny summer (most of the time) and I've really been enjoying it, and I hope all of you have been too.... even when we feel like crap, the warmth & sunshine is such good medicine, isn't it?
Miss you guys & take care... P. Juliet
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Hi Grils! Hope you're enjoying this balmy Sunday weather. Actually, I love it...the hotter - the better!
Tomorrow is my 6 month Onc visit. It's weird...I have had a pit in my stomach all day just thinking about walking into his office. Honestly, I just may have to cancel my appt. I hope my anxiety isn't a premonition. I have never been this stressed about an Onc appt. I love my Onc...I guess I just don't ever want to see that place again.
P-Juliet - Glad you popped in. And glad everything is going well - nothing worse than having a job you hate. POOR LITTLE BUSTER! Awww...I hope he heals soon.
Speaking of pooches...my little guy has to have his teeth cleaned. The tartar is HORRIBLE! I can't figure out why...he eats lots of dry food - rarely moist. He will have to be sedated and YES...it ain't CHEAP. Arghhhhhhhhhhh...lol
Hope you're all feeling well - or as well as can be expected.
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Crying all day since I woke up.. Nanny is leaving in an hr.. it's like loosing a member of our family.. I know the new one will be good.. but will she love us and the baby as much as this one has.. very tough day.. but keeps me from thinking about being sick I guess.. The new one comes at 5 so I have to pull myself together.. let my swollen eyes unswell and put on some makeup so I don't scare her away right off the bat..
Otherwise, still struggling with my port decisions.. though I will know more by Wed as it will all depend on what my treatment plan is for the next 3 mos.. and whether this one cooperates this Wed.. wish me luck!! that and my blood counts of course...
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Marina - I'm so sorry...change is difficult, but we have the built in beauty of dealing with it and finding the "better" in it. Good luck with tonights meet up with the new nanny. Everything happens for a reason "so they say"... hang in there. And thanks again for your "squares"...check out the afghan site here...I posted a pic of your GREAT pink ribbon square! Cheer up! Be well!
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Hi Ladies, As far as vitamins - I have been taking One-a-Day for Women for many years now and my oncologist said that is fine. I went to a nutritionist recently (who is also a medical doctor) at the Center for Integrated Medicine at Northwestern. She feels strongly that the the One-a-Day is not effective and recommended Supportive Care II (Nutritional Support for Oncology Patients) from Thorne Research. Also wants me to get my Vitamin-D level to 60. It is currently 31 and the oncologist claims that this is good. The endocronoligist wants it to be at least 40. Too many doctors and too many opinions. What is everyone here doing with Vitamin D?
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Hi ladies! Making my usual catch-up post. I've been traveling a bit, some for fun, and some not.
First, I was in San Diego for a huge fan convention thing - saw lots of awesome movie and TV panels and clips. The people-watching was a riot too. Costumes ranging from awesome, to hysterical, to omg, what were they thinking! LOL. I highly recommend outlets to everyone, no matter what makes you happy and takes you away from your stress - just do it. Also, my cousin lives in SD, so I was able to spend some time her and have a nice "local" tour of that wonderful city.
While in SD I got a call from a very old and dear friend that her father had passed away. So I flew home Sun. night, worked Mon. and the DH and I drove to Indy Mon. night for funeral services Tues. am. Her father and mine were in the military together, which is how we first met back in grade school. It's somewhat rare for military brats like us to have lifelong friends, simply because we tend to move so often. But we always stayed close and she actually came up here to stay with me during my last chemo, when I had made my DH go on his long-planned hiking trip. So there was never a question of me attending her dad's funeral. It was a wonderful and moving service - FULL military honors. They had the gun salute by the VFW guys, and the local military representatives did the full folding of the flag while reciting what every fold meant. All the while, they had someone playing Taps - which makes me lose it every time. Her dad earned 3 purple hearts during his time in the service - a true American soldier and a great loss. But, as I told my friend, he would have been SO PROUD of the service and the wonderful tributes.
When I was talking to her mom, I couldn't help but cry and think about how lucky she'd been to have had such a long lifetime with him. I remember a time when the tumor in my femur was found and everyone (including my docs) thought it was mets. The first thing I said to my DH, when I was losing it, was that I was so sorry that we wouldn't have that lifetime together. Ack... what an awful time that was. Thankfully, the bone biopsy ended up showing that the tumor was not mets, but some other annoying thing that I have to keep track of.
Now I'm working out my plans to get my daughter back here from Ocean City, MD, where she's been working all summer. I'm going to fly out and we'll drive back together, after taking some time to tour Washington DC for a day. She's never been there, so I'm excited to show her all the amazing memorials. I REALLY wanted to tour the White House, but unfortunately you need at least a 30 day notice for that. Probably for security reasons, I'm sure, so I totally understand. There are so many other great things to see there as well.
DH and DS are leaving for this year's hiking trip soon, this time to Sequoia Nat'l Forest. He assures me there are no Grizzlies there, but STILL, I worry every time they go. That recent story from Yellowstone (where they've gone many times) doesn't help any!
Laura - Congrats on joining the 5 year club. You're only about a month behind me. We should get pins or something. Maybe tiaras?
Susan - I'm sorry to hear about your friend. I'm sure she's grateful for your support, especially since you can really understand the emotional impact of what's happening to her.
Ginger - Welcome to the forum. As others have already said, you'll find all the support you need from the wonderful ladies here. I remember taking a family trip to Sanibel once and having such a relaxing time. My kids still remember it as one of their favorite family vacations.
Wendy - Your vacation sounded fun, and eventful.
Bathroom falls can be so scary. Glad no one as seriously injured. Vacations, like summers, go way too fast. Elf Song - I can only imagine the stress you live under with going through all this as well as having young children still. I give all you ladies with young ones a lot of credit. When I was dx'd, my son was in college and my daughter was in h.s. Not that teenagers aren't their own unique handful of stress </understatement>, but I think having mulitple young ones is still more work. Glad you can come here and unload some of your frustrations.
Multivitamins - I don't take them. They always upset my stomach. I do take a few other supplements - calcium,D3, baby aspirin, fish oil. I know my hair is thinning and I'm sure it's from the early menopause and the Femara. I used to have such thick hair too. Ah well. I saw an infomercial for some Joan Rivers endorsed product that's basically powder you put in your part to make your thinning hair less obvious. LOL! I am SO tempted to order it.
Marina - Congrats on the great news! Every bit of good news is such a joy for us all
Bj - Glad you're home and out of that germy hospital. The housekeeping staff is probably missing you already.
Btw, I have my DH promising me that we will get the painting started after his hiking trip. We'll see how that goes. If I wasn't saving up for our fall cruise, I'd just pay someone to do it while he was gone! Okay, I've been a lazy lump all weekend. I'm going to make myself go work out today. Still waiting for this to get FUN, btw!
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Hi girls! I am still here! I have had a very busy summer and kind of took a break from this forum. I am lots of pages behind, so I hope everyone is doing ok.
I am doing well. I returned from Florida yesterday. DD and I went on a girl's vacation to Disney because the boys are in DC/Virginia at the Boy Scout National Jamboree. We had a great time but it was very hot. Not complaining though as I would rather have the heat than the cold winter!
I have been searching for some answers to a health issue over the past few weeks and hopefully I have figured it out. In mid-June, I started having some heart palpitations. I had this once a couple years ago and it went away after a few weeks. I also had some back in March when I had first started the Actonel. When it started again in June, I stopped the Actonel right away but the palpitations never went away. Dr. sent me for echo and holter monitor and I got good news that my heart is just fine. Whew! But, the palpitations continued. After lots of googling, I was convinced that it really was the Actonel that played a number on my esophagus which could trigger palpitations since it is right behind my heart.. Dr. agreed that this could be it. He put me on Zantac and Pepcid for the next 30 days and the palps went away almost immediately. I have had some sporadic ones, but not several every day as before. My ob/gyn had put me on the Actonel and my primary doc told me he wouldn't have done that. He wants to see if he can manage the osteopenia with calcium and Vit D first. I go see the onc at the end of month so I will see what he says about the situation. No way am I going back on Actonel. How are you doing on the Fosomax, Michele?
BJ - not sure why you were in the hospital but I hope you are doing ok. Get back on that boat!
Elf - I did go back and read your story. So sorry that you have had to endure all that stress.
Multivitamins - I stopped taking mine several weeks ago as it really started bothering my stomach. I would like to take one but I'm not sure if there is a mild one.
3 weeks until the kiddos go back to school. It has been a quick summer.
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Laura...Sorry about the appt stressing you.. but I bet if you cancel it, you will feel worse!! It is such a roller coaster ride with these appts and never will they be easy, I don't care how long it has been for us!!!Get it over with! Hugs and good vibes being sent !!!!Also.. after your baby has his teeth cleaned.. get a tooth paste .. all natural.. called PetzLife.. it is sold in any natural pet store and does wonders on the tarter and controlling it.
Elf... You energy and fatigue in the AM is a bit severe. How about your thryoid .. and or blood work of sorts to see where your iron level may be etc? Stress can put such havoc on our bodies and would not want you to get sick on top of it all.
Julie... Poor Buster... hope he is healing.. poor baby. My one Golden Liberty turns 13 this week and we are having a birthday party for her. She does not get along with many dogs.., so it will be a quiet one...lolol.. Got the bday hats today and hamburger meat for the cake!!!
marina.. Things always change the next day and start over.. feel good things coming as it always happens when we feel down or not sure what decision needs to be made.. in your case, it will come to you by WED.. your answer will come and you will peace about it too.
Wendy..The DH stories.. hilarious!! I personally now label ALL the containers, plates etc in the fridge for i am sick of ..HON.. what is this or where it that.. if it is not in front . it is a constant battle!!!
Char... I was doin 5k of VitD3 and now doin 2k.. will be tested this month to see where my levels are etc.
Have a good night !
Donna
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