Illinois ladies facing bc

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  • donnadio
    donnadio Posts: 674
    edited August 2010
    Connie.. Just saw your post sorry..!!!Sorry you are goin thru so much and hope it all works for you and answers come regarding what to do next. As far as multiples.. have you ever heardf of vitamins by standard process? Google this as i started some of their multiples and mineral's etc and stuff to balance my endcorine system. They are small and think very mild on stomach and also very cost effective. Plus ALL natural. Good luck on the Actonel.
  • Mich101
    Mich101 Posts: 489
    edited August 2010

    Hi Everyone!

    Connie- so far I don't have any se from the Fosomax. I have my onc. appt next Monday so I will talk to him. I had mentioned the Fosomax to my PCP and my onc before taking it, and with my numbers, they were in agreement with the gyne, so I'm taking it - not happy about it though. I also have my annual breast MRI the following week.

    Bustersmom-good to hear from you. (I am going to send you a pm.)

    Elf- You sound so sweet. Hang in there, and sorry you're going through such rough times.

    Hoping for those in tx that each day is better, and for everyone else - hugs to you!

  • mary1220
    mary1220 Posts: 16
    edited August 2010

    Hi Rita Jean, just dropped in to say hi.Glad your still doing good work here.

  • illinoislady
    illinoislady Posts: 46,506
    edited August 2010
    The best angle from which to approach a problem is the Try-angle.
    --  Source Unknown
  • illinoislady
    illinoislady Posts: 46,506
    edited August 2010

    Hi everyone. Glad things are going well or close to it for everyone.  I am so sorry to hear about Buster's leg though Juliet.  Maybe he needs some Fosamax too. Seriously -- do hope he heals up soon. 

    Marina --- hope all went ok last night with the new nanny.  I think it's hard to "fit" it for awhile.  Hopefully in a few weeks she will seem like she has been with you for years.  Sure hope so. 

    Life goes on here -- too hot to suit me ( the heat not so bad ) or rather too much humidity.  I'm hoping to bring Maggie's cats back to the apt. this afternoon.  Been in the apt. for two days, cleaning -- wall washing, scrubbing floor etc.  Did the windows last week and carpet.  Seems like it has been forever. 

    Hope you are all going to have a fantastic day.  A big hi and glad your back to Connie and Rene' as well.  Mich, I am still "dodging" the Fosamax issue, but don't know for how long.  Put if off until my next Oncology visit.  We will see.

    See you all later.

    Hugs, Jackie

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited August 2010

    I thought this was a good one:

    You might just be one person in the world, but to one person, you might be the world.

  • ritajean
    ritajean Posts: 4,042
    edited August 2010

    Laura...I LOVE THAT QUOTE!!!

    Hey Mary....I am going to search you at the Apple 'n Pork Fest this year.  I just HAVE to meet you!  I'll get in touch by PM as it gets closer and see if you're still going to be there and where you'll be located.  Hope you are enjoying your summer!

    Everyone have a good Monday!

    Rita

  • smerf
    smerf Posts: 476
    edited August 2010

    Hi Everyone,

    Elf, I'm so glad you're back. Missed you, but totally understand. Sometimes we need a break from it all. I'm so sorry about your house. For some reason I thought that had happened long ago, and not related to bc. Hoping you do get to be closer to family!

    I'm catching up, but just a little. This week is the wedding, and we have been all wrapped up in that lately. Hopefully next week averything will be normal again!

    Great quote, Laura.

    Juliet, so good to hear from you! Wondered what you were up to these days Sorry about Buster.. Jackie's right....lets give him some Fosamax for that poor leg.

     Wishing a good evening for you all, and few se's to all those in tx. I'm checking out until next week, when the festivities are over.

    Hugs

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited August 2010

    Glad you liked the "saying".

    smerf - Have a great time at the wedding! Cheers!

    elf, Donna and all of you south/west girls - Don't forget...this weekend is Veggie Fest in Naperville.

    Goodnight and sweet dreams to all...

  • makmak
    makmak Posts: 374
    edited August 2010

    So.. I have to say this:  I HATE this Fn disease!!!  Just found out that an acquaintance that has been my inspiration has had a recurrance, and now it's in HER liver.. UGH!!  So sad and upset..  Getting used to the new nanny.. will take a bit of time, but she is good with Gabriella... and that's most important.. still miss Maria..

    Tomorrow is my Dr appt.. will know what my plan is for next 3 mos.. just really hoping my port works and my counts are good enough for whatever the tx is determined..

    Rainy here but hopefully stopping.. We love to go outside for walks...Hope everyone has a good day!!

  • gingersfavorite1
    gingersfavorite1 Posts: 134
    edited August 2010

    I'm sorry for the news of your friend  :(

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited August 2010

    Marina - Sorry...it's just awful what's happening to so many of us. Everything's crossed that the sun shines and you can take a walk.

    -----------------------------------------------------------

    For those of you who love salads: 

    101 Simple Salads for the Season

    http://www.nytimes.com/2009/07/22/dining/22mlist.html?_r=2&scp=3&sq=101+recipes&st=cse

     

    -----------------------------------------------------------

    Hope you are all making the most of this day!

  • Adey
    Adey Posts: 2,413
    edited August 2010

    The MUGA scan was easy breezy.  But now I am starting to second guess my "okayness" with the chemo regimen (TAC).  Sometimes my brain feels like it will explode with information and too many choices.

  • zap
    zap Posts: 1,850
    edited August 2010

    Sorry Marina about your friend.  I met with my friend yesterday.  She has a recurrence of two tumors in her other breast so it is a mastectomy this time.  This time they are estrogen, whilst the original they were not.  This is all so baffling to me. So I guess a whole new kind of cancer for her.  I hope your (our) doctor presents a very doable regime for you.

    I had my breast cancer surgeon visit today with the followup  on the mri which I knew was okay.  She says to come now once a year unless something comes up.  Laura, how was the onc visit?\

    Edited to add on for Adey.  I do not know very much at all about the different chemo.  I just did what the doctor told me to do.  I had Cytoxan and Taxotere.  You mentioned you were double-guessing yourself on the chemo.  What do you mean? My doctor told me that the chemo was like "extra insurance" in that I may or may not benefit from it.  So I guess it was optional. I told him I wanted to be aggressive, so he said then let's do it. I think it is up to each person.  I was always aggressive and I have to admit,  rather compliant.  I started chemo within weeks of surgery because I just wanted to get the show on the road and the clinic could accommodate me.  Are you question whether to have chemo or the chemo choice itself?  I wish you well.  Yes, there is so much to think about.  That is probably why I just stopped thinking and allowed myself to be lead around to get treatments!Foot in mouth There are number of women who are so much more  knowledgeable about meds and chemo and I am sure they will pipe in soon.

  • ritajean
    ritajean Posts: 4,042
    edited August 2010

    Marina, I'm so sorry to hear about your friend.  We do need that cure!  Everytime I hear of a recurrence it eats away at my heart.  Hugs to both you and your friend.  I'm glad you like your new nanny.  Although you'll miss your other one, it's a plus that the new one is good with your little gal!

    Rita

  • donnadio
    donnadio Posts: 674
    edited August 2010

    Sigh...Marina... so sorry to hear this and makes all of us grateful for what we have as life is a true gift. Reoccurrence is not a fun word to hear and feel for her. A friend of ,mine  just lost her sister to a rare cancer that came out of no where. Girl ate healthy, excercised etc and not genetically linked.It is all over and hard to hear.'

    Have another IV tomm of amino acids and liver detox. Also picking up a supplement that is geared improving thyroid functioning.

    For all , be well and know we are fighters and keep it goin for those who need us.

    Donna

  • illinoislady
    illinoislady Posts: 46,506
    edited August 2010

    The best and safest thing is to keep a balance in your life, acknowledge the great powers around us and in us. If you can do that, and live that way, you are really a wise man.
                -- Euripides
  • illinoislady
    illinoislady Posts: 46,506
    edited August 2010
     "Worry never robs tomorrow of its sorrow, it only saps today of its
    joy." -Leo Buscaglia
  • lago
    lago Posts: 11,653
    edited August 2010

    I'm a newbie. My bilateral MX is scheduled for 8.31.2010. I'm in Chicago.

  • illinoislady
    illinoislady Posts: 46,506
    edited August 2010

    Welcome Lago, although we always say we are sorry to see you here, we are glad you found us.  A wonderful lady named Rita sort of started this thread and a majority of the ladies have been here ever since.  It's the place we call home.  Hope you will tell us a little about yourself -- and we will stand by you and give you as much help and comfort as we can.  A great many of the 'Chicago area' ladies try to get together for lunch once a month or so so please keep that in mind. 

    Well, I never expected temps and humidity like we are having.....over 100 degrees and between the heat index and humidity.....I'm dripping all day it seems.  I expected un-comfortable, toasted I did not.  Oh well !!!!  In about three months I'll be crying because it seems too cool.  Aaarrrgggg. 

    Work has slowed a little thank goodness.  My stint at the kennel ( only for a short 4 day vacation ) is done so that helps.  Still have the 11 cats in my computer room but really --- as they are confined to one room they are not much of a problem.  The only thing I notice is that I don't "check" entries here and email very often now.  I have Maggie's cats re installed in their apt. so things should get back on what passes for nearly normal now.  Good thing.

    Hope you are all going to have a good day.  Forecast seemed to indicate rain for Chicago -- probably needed.  We may get it later in the week.  Hopefully I'll check in later. 

    Hugs, Jackie

  • illinoislady
    illinoislady Posts: 46,506
    edited August 2010
    "Do not pray for tasks equal to your powers. Pray for powers equal to your tasks."

    Phillips Brooks

  • EnglishMajor
    EnglishMajor Posts: 122
    edited August 2010

    Hi Iago (from Othello)? Or Lago?

    Anyhow, sorry you are joining us but lots of good company and advice here. I am in the western burbs. I had a unilateral mx in May and am almost done with radiation. Hope all is going well with you. 

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited August 2010

    TEAM NO SURRENDER - Lives on!

    Saturday, September 25th

    ++++++++++++++++++++++++++++

    To register for our team, go to:

    http://chicagoland.info-komen.org/site/TR/RacefortheCure/HIL_ChicagolandAreaAffiliate/420967079?pg=team&fr_id=1843&team_id=138921

    ++++++++++++++++++++++++++++

    (Here's a few of the Illinois Girls from last year's walk.)

     

    (If you register by Friday - you receive a $5 discount!)

  • wendyk13
    wendyk13 Posts: 1,458
    edited August 2010

    afternoon...boy oh boy is it hot and sticky out!  No ocean breeze here and no pool!

    Welcome Iago (Lago?) to the club no one wanted to join.  We've all been newbies so let us know how we can help!  Tell us a little bit more about yourself...but only if you want to!  I was her2+ and did the year of herceptin and still hangin'around, 3.5 years later!

    Jackie....YOU NEED A VACAY!!!!!  but at least it sounds as if you are slowing down a bit.  How are the kitties now that they are back home?

    Marina...so, so sorry about your friend.  Another reminder to get out there and LIVE and have a great time doing it!  Never know what the plan is for tomorrow....

    Hope Smerf is enjoying her week of festivities and I hope the rest of you are doing as best as can be and also...I hope I have this right...

    HAPPY BIRTHDAY GINNY!!!!!!!!  Go a little crazy :)

    Gotta scoot......more later...

  • ritajean
    ritajean Posts: 4,042
    edited August 2010

    Welcome, Lago!  So glad you found us as the women on this thread are awesome and so supportive.  Please tell us a little more about yourself and come often.  We'll help all we can!

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited August 2010

    Lago - Welcome from me too! Sorry you are eligible to join us. I too had bx masts..."things" really do get better. As Rita said, there's some great girls here who will answer questions you may have and help you through it all.

    Jackie - How's the flea party? Is it under control?

    ++++++++++++++++++++++++++++++++++

    @ GINNY!

  • makmak
    makmak Posts: 374
    edited August 2010

    Welcome Lago from a somewhat recent newbie... Here is a quick update.. I was taken off chemo today!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!   Still in shock.. but the Dr doesn't think there will be further benefit and that the Herceptin "could" finish off the remaining spots.. Since I did full 6 cycleds of the TCH he feels that the chemo may no longer work anyways, or if it does, it's better to save that for IF and When I need it... Oh did I mention my boob is clean too!!!!!!!!!!!!!!!!!!  I am FREAKING out as I feel so unprotected.. but elated at the same time... The port is dead, and is coming out this Friday.. so I after I get de-ported, I am allowed to go and do stuff and enjoy the rest of the summer and then a Vacation with Gab and my DH!!  SO, hopefully port removal is not as awful as the placement was... and that my veins cooperate at least for next few months for the Herceptin..

    Marina

  • Carolyn422
    Carolyn422 Posts: 140
    edited August 2010

    Hi All,

    Marina, sounds like great news!

    Lago - welcome!

    Ginny - have a Happy Birthday!

    Well, I'm at the half way point in my treatment. Yeah! 

    Take care all!

    Carolyn Cool 

  • makmak
    makmak Posts: 374
    edited August 2010
    Someone just posted this in a different thread.. http://www.fayeslight.org/  This is a spa that provides FREE services to those in treatment.  They are in the South.. I mapquested it.. over an hr for me, but I know some are probably a lot closer.. Looks so cool...
  • gingersfavorite1
    gingersfavorite1 Posts: 134
    edited August 2010
    makmak     that is awesome!     Too bad they're 2 hrs. north of me  :(    But what a fantastic thing for them to do!