Illinois ladies facing bc
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Good for you Joan! Nice to hear another one of us made it. How will you celebrate?
BTW where in IL?
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WELCOME Joan!! You are not alone and hope that you wil find the support and good safe place to land as you need it!!! I did dread it all too.. the chemo part.. but it was doable and you take it one step at a time and you do it. It has been a year for me and cannot beleive how fast time came in getting to here!YOU will BE ok.
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Hi ladies -
Got my MRI results today - all is normal. Yippee! Thanks for all the thoughts.
One more week of summer for my kids. I'm sad that summer is almost over. I really hate cold weather.
Ginger - I like the stories of your kids. My 13 year old son was just asking me questions this weekend about my scars (I had my suit on and he saw the port scar). Usually it seems like a taboo subject around the kids but it is getting easier to talk about.
Hugs!
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Michelle, so happy the mri is good! It is like get a bonus check (a big one) in the mail. Maybe better!
Welcome Joan! So glad you are on the LAST chemo.
I watched the first of the series and did not like it. The character just seemed unnatural to me.
Alkaline? It sounds like something in a car battery. I know not a thing about this. Tell me.
Do any of you ladies who live around me ever go to the Cancer Wellness Center in Northbrook (it is two minutes away from me)? They offer yoga, tai chi,meditation, etc at no cost. Now that I am on a fixed income
I am watching my money and so the free part works well for me. Just a little apprehensive about getting into something I know nothing about. Anyone have any experiences with it?Edited to add (Connie, we were on at the same time) Congrats to Connie too!
Susan
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Neither genius, fame, nor love show the greatness of the soul. Only kindness can do that.
-- Jean Babtiste Henri Lacordaire0 -
Hi all --- lets hear it for Joan with only one to go. Wish you had found us sooner but now that you have -- welcome - welcome.
Connie and Michele -- what great news about your test results. Connie -- don't know why, but it was always harder for me to "share" the cancer burden with my family. I really can't imagine having to find ways to talk to a teenager about something so foreboding and threatening. Glad it is getting easier.
Hi to Ginger and Lago --- also all the others I have not mentioned --.
I went to Marion today for my oncology check-up. Yay all way round. First off --- the Dr. there was fine with staying OFF --- Yep I did say OFF Fosamax or anything like it until I have had at least one more bone density test in about a year to see if there are any changes. This one I just had was the first one so --- how long was I osteopenic before this test, and how does anyone know that I won't have osteopenia for years before it DOES anything, if it ever does. I'm fine with taking something -- if I have a problem and you can show me that I truly need to address it medically with pharmaceuticals. I just could not feel that this was the time with only one test under my belt. So for now --- my calcium and D-3 are still my best friends. All my other numbers were fine. They are still waiting for the cancer marker numbers but I'm sure that will be just fine as well. In addition, I have lost a couple more pounds and so feel like I've moved from one plateau and working on getting to another -- better one.
As I look back I find it remarkable to in some ways feel better I think then I did pre-cancer. Of course, the dichotomy is that you generally feel so well right as you are being diagnosed. You look up but you can't make out the license of the truck that just hit you --- but seriously....I think the new cells I got are far better than the ones I had.
Hope you all had a great day.
Hugs, Jackie
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Welcome Joan!
Connie-Yay for you! How's your osteo. med. working out for you? So far no se's for me with the Fosomax.
Ginger-Love your stories. I have twin 19 yr old sons.Sometimes they can just melt your hearts and make you feel so good, other times, well, arghhhh!
They have now gone back to college and I miss them already.0 -
thank you all for your encouraging words! My boy and I have been on our own for nearly four years now (minus 6 mo. he lived w/dad) which is a story in itself ..... Jeremiah moved back in with me, two weeks before my diagnosis. I was so grateful that God orchestrated it that way! There is almost a quiet / unspoken closeness between moms and boys I think. My girl (21) and I talk about everything. She was the first one I called after receiving my cancer call .....but I don't think boys (or men for that matter) know how to respond. Perhaps made even more awkward that it's a breast issue {shrug}. When I told my son and his girlfriend, the girlfriend cried. I tried not to look at her, knowing I would too. Basically I tightened my lip, looked at Jeremiah and said ". . . but I'll be alright" to which he quietly responded with a nod and "I know."
Whew - that was one tough night! And since then it's been cool to see the process of acceptance. Like I said, he didn't think he'd go anywhere w/me (bald). But I have to believe he was just working through his feelings. None of us know how we'll respond to any of this. My reactions (or lack there of) aid in his process; or I'd like to believe they do anyway. By not being hurt by such comments, by laughing when he calls me baldy, etc..... I assume he feels more security. One friend has said by seeing that I'm ok with it, he can be ok with it.
Well, as long as I'm feeling all sappy and everything - LOL - I might as well share my treasured photo. The photographer who did this, did both of my kids senior portraits and then I worked for them for awhile, doing lighting and set work. Anyway, after my diagnosis, my daughter called to request a session. She explained that she was moving to Kansas City (six hours from home) her brother is going to college and mom's looks are obviously going to be changing . . . . Before she could finish her sentence they said come on in, we'll take care of you. We took several outfits but they suggested we wear pink. I absolutely love this image!
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Hi All,
Ginger, what a beautiful photo! You and your family look beautilful and vibrant.
Welcome Joan! Glad you found us and that your almost finished with chemo!.
I am off to my 4th chemo tomorrow. Over the halfway point. Yeah.
Take care!
Carolyn
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Wow.. what an amazing photo!!! I know what you mean about talking to your kids.. though these days I do it all the time.. my situation is quite different, as I can't promise my kids that I'll be all right.. but I tell them I'm doing well and they are very encouraging and supportive with each good test result..
Had my consultation with the Nutritionist from the Block Center. Apparently all my tests were very good and she said I should be proud.. My 'tumor burden' indicators have all come way down and my vitamin levels are all good.. INCLUDING D!! more than doubled.. still keeping up the same dose but I'm happy enough.. So she added a few more supplements and told me to keep it up..
Took my daughter to school for her schedule and went for BLACK rice sushi with my son.. Haven't had Tuna in over a year and a half.. so that was a treat!! Then made some Kale chips.. my new found night time indulgance..
Susan, that Wellness center looks interesting.. I may have to schedule my Herceptin around one of their classes once I'm up to it!!
Thoroughly enjoying this weather!!
Marina
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Connie & Mich - Great news! So happy and relieved! Hugs!
Stephanie - You are truly blessed! Gorgeous photo/family! Hang in there...you have lots of love surrounding you.
mak - Great job with your labs! Your determination and persistance is paying off.
Carolyn - Congrats on the half-way point! Best wishes to you tomorrow. So far so good.
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Got my nails done today...ALL 20 OF THEM! lol It's one of the few "treats" I haven't cut back on. I hate spending the time idol - while getting them done, but it's such a good feeling afterward.
I have to do a mini-vent. My bad LE arm is puffing up again. It's so *&^%$#@ frustrating. Every possible second I am keeping it elevated. Have been trying to avoid going back into compression wrapping. Arghhhhhhhhhhhhhhhh! Will give it a couple more days. Am wearing the sleeve and gauntlet and my SMERF wrap while I sleep. I'm flying next week and I'm petrified all he** will break loose with it. Oh well...enough of venting.
Hope you're all having a nice evening...sweet dreams!
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YEA Joan... One more to go!!!Remevber that feeling and it only gets better after that!!!!
Ginger... Beautiful pic!!!!WOW!!!!Great family and that is what will carrry you thru this jounrey and obviously is!!!
connie....congrad;s on the test!!!Have to be sooo releived!!!
Laura... Laughing at pedi and mani done,, me too.. with all i am paying on dog costs.. i cannot give up this cost as it is way too time consuming to try and do and i could not do it as well. Cannot wait to go back to work as money for these extra things is needed!!!!!
Carolyon... Hallf way there is GREAT!!! It is doable for you and know that each treatment completed is such an accomplishment!!!Keep it goin as you are doin a great job!
Hope today my dog comes home from the vet hospital..lacy is so ready. I have to get her tested though for Cushings disease and it is causing so much of her i distress on her endocrine system. Oh ineed to go back teaching as money is goin out to fast!!!But you love your furkids and do not want to see her suffer.
Talk soon, have a good day and ALL be well!!
Donna
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I'm off to the east coast to visit my parents for a few days. Just thought I'd check in.
BTW where did everyone go for wigs. I'm thinking that I should check this out before my surgery. Not sure I will be styling my hair for a while and by the time I feel up to it I bet I'll be doing chemo. My hair dresser sent suggested a place in (Chicago) uptown on Broadway north of Montrose. He also suggested on Clark St. also around Montrose/Lawrence. I do have a car so I am not limited to Chicago.
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Start with the cancer society, they offer a free wig with a professional fitter for any cancer patient. Mine is pretty awesome.
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Ginger, awesome photo. I have two sons, 18 and 20. They will be taking off for college together on Thursday. It has been an interesting journey so far. Both have been amazing caregivers, both actually took care of my drains. My hubby was my wound care specialist. Everyone is different. But each one of the guys are beautiful. onward
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Hi all,
I'm not sure if I've posted to this thread before or not but I am an Illinois lady with bc. I had my surgery Aug. 9, a partial mastectomy that went very well. My awesome Dr. is Denise Mammolito in Peoria, IL. I am 59, happily married and have 2 adult children (a married son and a partnered, gay daughter) and 3 grandchildren. We live on our farm and my husband works at our local State University. A lot of people have issues with gays but my issue is with breast cancer. My daughter is brilliant and accomplished and I'm so proud of her. She lives in Maine with her partner and their 2 adopted children, my beloved James and Anna.
My incision under my arm where she took the 2 sentinel nodes has hurt more then the incision on the breast. The one under the arm is hard along it and close around it. That scares me but I see her Tuesday for a post-op and hopefully it's just scar tissue or something. The nodes tested negative and my margins were nice and wide.
At my post op, they will make my appointment with the Oncologist. Because I am Triple Negative, my Dr. tells me I will have to have chemo and radiation both. I've not had any testing for Oncotype or BRCA 1 or 2 so don't know if the Oncologist will call for those or not.
I hope to get involved with my local Breast Cancer Support Group when they kick off their season on Sept. 20 with a picnic at a local church. They meet monthly then. I am a committed Christan woman who loves the Lord and all the blessings He has given me.
There are so many pages here in the Illinois thread, I'm not sure if I will ever catch up (I have posted to the "Just Diagnosed" and "Calling All TN's") but in the mean time, hugs to all you Illinois women here and God Bless every one of you with long life and no recurrences.
Juanita
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Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict.
-- William Ellery Channing0 -
Welcome Juanita -- glad you found us. We sometimes are a bit of a rowdy bunch, but always good at hand holding and understanding. You sound like you know where you are going in life really well. I have no issue with gay people either and feel glad that two people can find each other and live the life they desire -- rather than our trying to force them into a mold that does not fit for them. Sort of like our having to always wear colors that look bad or shoes a half a size too small. We all have a rightful place in this world.
Ginger -- I will mimic the pleasant words of the rest -- what a beautiful picture -- a treasure and a tribute to you and your children. What a wonderful idea coming from your daughter. How many would have looked at life and wanted such a beautiful memory made.
Laura -- too funny -- was thinking not when all else fails go shopping --- but go have your toes done. I am feeling very good today --- good=positive. I work hard ( when I fail I seem to do so miserably ) at always trying to stay positive and upbeat as it is always easier to solve problems or find answers.
Hoping for nicer weather -- not so humid as that is what gets to me more than anything else. I worry about getting dehydrated but probably never would.
As well, hope you all have a great day.
Hugs, Jackie
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Hello Juanita.
Sorry you had to join us. Sounds like you have a lovely family. I'm originally from the east coast. Maine is pretty lesbian friendly… a very good place for your daughter and partner to be. Hopefully they will legalize marriage. As you can tell I have no issue with people being gay. Why would anyone have issue with adults loving and caring for each other and their families?
I am still waiting for my surgery (Aug 31) but this group of IL women are awesome. Great support. Also check out the :
August 2101 Mastectomy thread
http://community.breastcancer.org/forum/91/topic/755568?page=7#idx_185I too will most likely be getting chemo and radiation. You might find these threads helpful too:
Tips for getting through chemotherapy
http://community.breastcancer.org/forum/69/topic/478386?page=4#idx_91More Tips (and a Shopping List) for Getting Through Chemo
http://community.breastcancer.org/forum/69/topic/706846?page=5#idx_121Finally there are some threads regarding triple negative diagnosis. You might find those interesting as well. I am just the opposite but I have read that triple negatives tend to respond to chemo.
and you might want to check into the BRCA testing. I did it because I have a sister, brother, 3 neices and 1 nephew but I am also ashkenazi jewish which has a slight increase in testing positive. I have no history of breast or ovarian cancer in my family. I did test negative. They may not feel you need to be tested. If it wasn't for the ashkenazi jewish thing I doubt they would have tested me.
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Good morning girls!
Welcome Juanita - Lots of support here...best wishes with your recovery.
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One of my Rocktober sisters is in town...lunch is on this days agenda! HEY...the sun just came out. Good morning sun! lol
Have a great day - especially to those who aren't feeling 100% - YET!
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Good morning, ladies. Gosh, you are all so supportive. I do wish I had found you sooner. Now, I have to control my new addiction to this board or I will not get anything else done.
Actually, my family is celebrating my upcoming last chemo treatment on August 31st by having a little immediate family get together the weekend before to celebrate our 40th wedding anniversary, my husband's 60th birthday, our daughter and husband's 13th wedding anniversary and the recent engagement of our son to his fiance. Not to exclude our 6 year old grandaughter, we will celebrate her starting first grade! The gang will all be here for a long weekend. Sure hope that I am up to all the activity. Still sort of trying to get my energy back after the last treatment.
Thanks for the encouragement ladies. I really need it right now.
Joan
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Ginger... love your photo. Really, really awesome.
Carolyn, good luck with your 4th treatment today! I will be thinking of you.
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Joan....sometimes I think the last can almost be the hardest. You are so anxious to have it over and done. Of course, the last one also seems to take the longest to go away -- that ole' cumulative effect. Soon though, you are able to really feel that al you are really dealing with is the recent memory --- not actual se's. Hope your energy level bounces right up where it needs to be so you can enjoy all the wonderful celebrations.
I'm the quote lady by the way --- so I am here everyday. How is that for addiction !!! I love it.
Hugs, Jackie
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Jackie,
Yes, I truly expect the last chemo treatment to be a little rough. I felt so fortunate to have experienced minimal SES from the first two but have definitely experienced more profound SES with each one. Oh well, at least I am forewarned and know what to expect. Feel so fortunate to have a devoted husband who will see me through it! Bring it on!
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Welcome to all the new women and do not worry about getting the "regulars" straight as I
cannot get all of you new women straight yet! Keep coming so I do!
We have many new women here and that means we really do need the cure!
This is my four year anniversary month. Yesterday I cleaned my closet and peaked at the wig I haven't looked at since I stopped wearing it and I suddenly felt like crying but I have no idea if they were tears of sadness, relief, gratefulness, or what. The wig was actually very attractive but I think it summed up the whole thing for me. I am so not a wig person, so it was odd donning one for nearly a year. People like Ginger look pretty bald. I WAS NOT A PRETTY BALD!
Have a good day and Jackie, thanks for the quotes. They mean so much to me. Of course some mean more than others, but you manage to intuitively know what some of us need to read!
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Welcome to all you new gals!
Joan, it won't be long and you will be doing the "no mo' chemo" dance! Yea! I might have missed this in one of your posts, but do you have to radiation now, too?
Ginger....great picture of you and your family. What attractive kids! The pink just seems to pull it all together, doesn't it? I am so glad that you found us. You are a wonderful addition to this thread.
Juanita, I don't think we are too far apart. I live in Bloomington and went to Peoria for my second surgery. I didn't have Dr. Mammolito (I had her female counterpart instead) but I have had friends who went to your surgeon and I have heard all kinds of good things about her. I think that the hard tissue around the incision is normal for this stage in the healing process. I had that, too. Welcome. Come back often!
Susan........gosh..............4 years this month! Wow! Celebrate in style!
Laura, I'm off to check my PM's. Thanks so much for all the info that you've found me. I'll get back with you about it when I have time to absorb it all.
Everyone have a good day! Thinking of you Carolyn and hoping that your day is going well, too!
Celerate those good MRI results, Connie!!! Yea!!!!
Rita
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Welome Joan and Jaunita, Always know you can come here and vent. I think one true blessing that came from my BC is it reinforced my thoughts on not judging others. We are all alike with one common interest staying healthy, living and loving.
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A note to all the new girls: Our motto here is - ILLINOIS GIRLS ARE TOUGH!
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Joan - Wow...you have a lot to celebrate! Good for you. Best wishes with your last treatment. Yes...forewarned IS forearmed!
Rita - You are SO welcome! I'm glad the info may help with your research. Knowledge is power!
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But I'm not a native I'm a Northeasterner.
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Buddy, what a lovely comment on how BC taught you something about being non-judgmental. I appreciate that you wrote that.
Ladies, I just saw Eat, Pray and Loveand I loved it. I posted this on Facebook as well. I am on a visual high from this film (food never looked so good as it did in Italy, a wedding in India is brilliant colorful, and Bali...well Bali looks like heaven). I want to travel,
I did not like the book (book club book) but the film is quite good. Just wanted to tell you!
Susan
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