Illinois ladies facing bc
Comments
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Joan you are not nursing home age… my husband is a little older than you ;-)0
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Lisa - Well I'm glad to hear you got the surgery behind you. I also had an extended stay after my mast. because I couldn't stop vomiting. Bleh... I was in such a fog from all the meds, I can't believe you are already using your Blackberry! LOL.. good for you. Also, my daughter was 14 when I was diagnosed, and in hindsight, I wish I'd talked to her more about it. I was so afraid of scaring her, that I think we kept too quiet. It made her not as open to talking about what she was going through as well. She's in college now, and I have seen her get all teary-eyed a few times when something came up regarding my cancer. It's very hard to know that she's still so scared for me, but at least now I do try and talk more directly with her and bring her fears into the light.
Wishing you all the best with your recovery.
Mandy - I'm so sorry you're having to go through all this. Recovering from a lung surgery and going through chemo? You are definitely fighting like a girl! Glad you found your way here, there is a lot of support to be had from these lovely ladies.
One of my coworkers is your age and lives in Lakemoor, and while she doesn't have breast cancer at this time, she did find out she is BrCa positive. So, her plan is to have a second child, then have a bilat. mast. and oopherectomy. She's determind to do all she can to prevent the beast from ever happening.
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Hello, Ladies~!! I know it's late... almost 2 am... I just lost my post and I try my best to remember what I said...
Zogo- welcome and sorry you found us.. I know waiting is the worst thing before the surgery, hang in there..
Mandy- You sound very vivid and fighting like a girl, I love that~! I was dx at age 36 and now I am 39.. I am Her2+ as well.. I am sorry to hear that you have so much going on, chemo with surgery... I was the youngest one in chemo room with dark long hair and I was the only one Asian girl... I did 4 months chemo, 8 weeks Rad and 7 months Herceptin due to Cardiac Toxicity and have LE.. I know it is not easy to going through this with the kids and I have 2 boys, 2&4 year old... Come here often and let us know how you are doing and we are here for you..
LisaMotherOfFour- I am glad your surgery went well and you are already using blackberry?? Right on~!!!

Susan- I am happy to hear that you LOVE Korean food~~ I used to cook Korean food when we're in Vegas and my in laws loved it... Especially my sister in law, she is crazy about Kim-chi (spicy Chinese cabbage) My dh's favorite food is Korean BBQ, Chapche (sweet potato noodles, veggies and beef), Kim-bob (seaweed, rice, veggies, meat- look like sushi but different) Now, I am hungry...

Too bad dinner bunch got postponded... I think a lof of people are busy getting their treatments and surgeries... I hope everyone is doing well and sleeping well too...
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Hi, I am new here too. I am happy to have found this forum. I was just diagnosed this past October. I had a lumpectomy on Oct 26 and a sentinel node biopsy. I am still recovering and have yet to see my onchologist-I couldn't get in until the 19th. I saw the radiologist though.She told me not to quote her on this, but the oncologist usually goes with 12 wks chemo and she will follow with 33 radiation tratments. I had two tumors and 1 node come up positive. So it has been a confusing time. I get info in bits and pieces. No one in my family has had any sort of cancer, so I have j have been learning as I go along, reading. Anyone I have around me that has had cancer has much different circumstances. It is nice to come across women that can relate.
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Hi! Rita, I am from India. I love to join with you in this thread. I got diagnosed with grade IIB breast cancer in March,2005. I did lumpectomy with dissection of nodes. After that I took 33 cycles of radiation including 3 boosters. I had delayed for administration of chemo for about 3 months after radiation because my skin got badly burned and I had problem. I started chemo only in July,2005 for 6 cycles. I was worried about the problems during the chemo but I managed somehow will my strong will power and positiveness. I never accept BC destroying one,s life so easily . So BC is not a problem you know, if you can face it. You listen to your doctor , belief what he or she plan as per your report, don,t hesitate. For me, I never bother for any outcome, I was ready and faced it. I don,t even feel bad you know. I have been with the BC forum in different threads, I feel good when I go through others posting. I never post my problems as you know our lives have been affected, our body and strength becomes weak so nothing to discuss elaborately. Only what we can do is that we just enjoy meeting in the forum with different topics behind BC. This is the only way to get full recovery if I am not wrong.
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Morning all.dark on deck but 50 degrees so not too bad. These past few days have been so nice that I can't believe the Christmas tree will soon be going up. Lots of people home yesterday and putting up decorations outside...looks strange to be in shorts, with Santa next door...
Mandy....so sorry you had to find us. Wow. chemo during lung ca surgery? Didn't know they could do that. And honey...you ARE a survivor! You became one the same day you were dx'd! I too am Her2+ and consider myself so lucky that I could get the Herceptin as it was only ok'd for early stage cancers in November 2006 and I started chemo in January. So far I am doing well and feeling great. You are so young to have to deal with all of this. Too young. But then, I guess we are all too young for cancer, no matter how old we are.
Lisa....in the hospital, following major surgery, with problems....and on your blackberry! Now there's an IL girl for you!
Hopefor tomorrow.....welcome to our world! Not much fun to have cancer, but we try as a group to make it easier if we can. Come here often....we've been where you are. And I see that you are in Carol Stream...I'm not far from you, just in South Elgin. Where are you going for treatment?
Iago....yeah I know you can keep your license for 8 years but as we age, I think you have to go every 4 for the vision, and then for the written...and then when I am REALLY old, I think the road test. I am seriously plotting on how I can "lose" the license and get a new picture...LOL. I looked at DH's from last year tho and he too looks orange and his was taken in December so no tan there either....must be the cameras.
Jackie...thank you for your service. But I still get a bit angry that you had to leave home to have your rads! I would think the VA could have arranged it differently. But....the important part was that you got the rads.
Joan...today is the last rads, right? Yay!!!!!!
My impression about scars and husbands....I really don't think most men care what we look like, or what is missing. They just want us! We are the ones who mind. I have a small scar, hardly noticable, and it bothers me. Not that it impacts my life, but it reminds me every day that I have cancer, or had it. I think the biggest problem we all have is that we finish all our treatments and then we expect our old life back. It ain't coming back! But the new normal, once you get used to it, isn't so bad. So wear a camisole, or a t shirt if you want. And remember that intimacy starts in your brain. You'll find your "mojo" again....it's still in you...just dig around for it! From watching all those Viagra commercials...maybe all we need to do is sit in a bathtub, next to our husband who is in his own bathtub...obviously this is how is all works.
Oh c'mon....you laughed. Aren't I right? those ads all have bathtubs in them....very strange.
Off to shower and then to the gym.......have a wonderful day all! Do something fun and remember to LIVE!!!!
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Mandy....Welcome !!sorry for why you are here but we all are!! Your fighting attitude will make the difference!!Here for you and take it one dayat a time as you are and you are not alone ever here!!!!
Adey..Keep goin and know the "fog" you are in. It is all goin to pass as you keep goin step by step!! thanks for your encouraging words and will be glad the recon was down as I waited awhile to do this.
laura..thanks for the tape!!
Go for a follow up Dr appt on my endocrine issues. Enjoy the last warm day!!!!
ALL the BEST and healthy wishes to those in TX,appts and tests etc.
KEEP FIGHTING!!!!
Donna
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Wendy - I don't get the Viagra bathtub connection either - especially in an open field with no running water - it must be an inside joke :-)
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Kim-chi! Korean BBQ! Can we do that for one of the IL girl meet ups! Yes I eat Kim-chi right out of the jar. My favorite Korean grocery (they made if fresh) closed a couple of years ago. It was right next to this great Korean BBQ place in the Albany Park neighborhood in Chicago called: Kang Nam0
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Book it Lago! Off to buy a pretty scarf at Kohls or Target as I can't wait until 10. Here's hoping I can stay awake. Opera is a bit snoozie. Have a great day all.
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Good morning Gals. I hope you are all fine. I am getting better everyday. I already know I need another surgery there is this huge mass under my arm. Doc says it happens often when they push your back fat and muscle through you to your front. It just kinda pops out on the side.
Southside girls please keep me in mind on the luch date.
Lots of Love
Buddy
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"I am optimistic and confident in all that I do. I affirm only the best for myself and others. I am the creator of my life and my world. I meet daily challenges gracefully and with complete confidence. I fill my mind with positive, nurturing, and healing thoughts."
Alice Potter0 -
I lost my post too! How rude! Anyway it was of little importance except that it was funny and about the viagra commercials when the couple was dancing in elegant gowns. Somehow viagra came up and my little nephew from Viet Nam tells me he knows what viagra is used for. A bit shocked, we just stared at him. And then he sas, "If you take Viagra, you know how to dance."
Welcome to Rajukamari and hopefortomorrow! Too much cancer in the world!
I discovered a Korean restaurant now in Northbrook and will look for those dishes. It does not offer Korean Barbecue. We are going in the city for a play on Saturday and may go to Kang Nam.
Wendy, wonderful idea on relationships. For those of us who are married and still in love, we know we would still love our DH with scars, insecurities and fears. That would be true, I guess, of anyone we love. I do understand that for awhile those three things can make us want to withdraw, but the love is still there and so perhaps all we need is a bit of time and reassurance.
Work half day today which truly is the ideal.
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I did laugh right out loud about the bath tubs. And you know what, it is wierd!
Mandy your attitude is wonderful. The journey has twists and turns and you will find everyone here so supportive and helpful.
I do think there is a difference if you have had a mastectomy versus a lumpectomy. But I agree they love us and just want us to be here.
I keep going back to my husbands comment it has been the best year and the worst year. Best because it has brought a much deeper love to an already good marriage. One of the hidden blessings in all of this I guess.
hopefortomorrow there are wonderful sites with so much information on breast cancer. See if your oncologist or breast surgeon has a resource for you. I got a great book on breast cancer from my breast surgeon free, she just hands them out to all of her patients.
The Living Well Center in Geneva has a great resource library as well. If you are not in that area there may be a resource center for cancer patients and their families your surgeon or oncologist can tell you about.
Have a blessed weekend everyone
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Welcome to all the new women joining the board.
I was at the dr today and found out that several woman who have finished chemo have infections. So I'm not the only one. Good news is that one of the drains was removed. Bad news was that I can't have the breast reduction I wanted before the end of the year because of the infection I had. Now I'll have to pay some money out of my pocket for that. And deductible and out of pocket max are going up next year.
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First of all.... welcome to all the new ladies. Mandy, Zogo, HopeforTomorrow... did I miss anyone? I am so glad that I found this wonderful group of Illinois ladies and I know you will be too. Unfortunately, our group seems to be growing.... yes, too much breast cancer in the world.
I finished my last radiation treatment today! Big YEAH! It has been a long 8 months since diagnosis in March, BMX in April, chemo during May-August and radiation the past six weeks. Someday I may actually sit down and count how many doctor appointments that was.... oh, well, maybe NOT! Like many of you have said, it is not fun, but it is doable. But, OMG, it takes so much patience. And now waiting to get some hair back so I won't be freezing my bald head all winter.
I guess now is when I ask, "what now?" I will be seeing my ONC on Nov 22nd and see what my next steps will be for me. I know that he wants me to start on Arimidex soon and I am not looking forward to that. I have not had any scans yet and wonder when that will be put on my calendar. I still have my port and will need to do a TE exchange sometime this spring. So, I surely don't feel like I am on any "survivor" list yet.
I was going to go to London this weekend with my DH, but his schedule got changed and the one day delay in my rad schedule kept me home. So, we are going out tomorrow to celebrate the end of treatment. Everyone have a wonderful, wonderful weekend. I am thinking of you all.
Joan
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Congratulations on finishing rads !!!!! Way to go....Hooray for you -- Fantastic --- another rad grad.
What now??? Don't ask.....You got the big stuff out of the way......
Just enjoy freedom for a while.
Hugs, Jackie
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Joan - Congratulations on completing your radiation treatments. I finished mine at the end of August and started Arimidex the next day. So happy not to have a daily appointment. Enjoy your freedom.
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Thanks ladies for the warm welcoming. I am happily married with three beautiful children. They are 14, 9, and 3. I guess you could say my breast cancer is the primary. My lung cancer and breast cancer are NOT one in the same they are two completely different types of cancer. The breast cancer was DX first.
Susan - I LOVE Dr. Dragon he is a wonderful man. I am soooo happy I choose him to be a part of my health care team. I really feel he treats me like he would his own wife or daughter. My kids love him too
Joan888- Crystal Lake is super close to me
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Lago- I give you two thumbs up for eat Kim chi right out of the jar... wow... I never been to Kang Nam.. I agree with you, I think we should have get together at the Korean restaurant..
Susan- Korean BBQ is you cook at your table and eat.. I don't know what kind of Korean food you tried in CA but most of American people likes Bulgogi (thin slice of beef and Veggies) and Chapchae... If you goggle Korean Food, you will see all the pictures..
Joan- You should do the happy dance~!!! Enjoy your trip because you dserve~!!
Buddy- I am very glad you are doing better... You've been through so much and I can't wait for you to do a happy dance... We need to set the date for lunch soon...
HopeForTomorrow- Welcome and come often we are all here for each other..
Rajkumari- Nice to meet you and you've been a survivor for few years, that's great~!!
WendyK- OMG, yes, I laughed... what's up with the Viagra commercial, it just so strange..
Carolyn- Sorry to hear that you still have a drain and you can't do the surgery.. hang in there..
Well, I had very strange feeling all day yesterday and I just didn't know what it was but I was keep thinking of my fil and felt like I need to call him but I didn't.. Then my sil called me this afternoon and telling me that fil is at the hospital... bummer... I knew I should call him when my guts telling me to yesterday but I waited so I can call him with my dh and kids today.. isn't that strange or what?? He passed out after breakfast so sil and mil called 911... He said he wasn't feeling good and asked to check his sugar level then it happened... According to sil, fil didn't drink enough water and got dehydrated.. he is on low calories diet since Auguest and he lost 30 pounds and he thought if he drink more water, he will gain back so his been drinking one bottle (20 ounce) a day.. They did few test and everything was clean and normal, thank god.. but he is gonna stay overnight at the hospital and they found out he has little bit of sinus infection and taking med for that too.. I hope he learned his lesson from this..
Hey, guess what, I ordered brand new shoes and they are on the way from CA.. can't wait to try them on... lol
Have a great weekend everyone~!!!
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Joan Congratulations. I know that being able to cross off another step in the treatment plan makes me feel I'm one step closer to getting my life back. Rads is a big one for many reasons including the fact it's suck a time suck! I get too do Arimidex too sometime when chemo is over.
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Elf-song The owner at Kang Nam is pretty impressed that I love Kim Chee too. Albany Park has lots of Korean restaurants. It's an interesting hood since it's a mixture of Korean, Middle Eastern (Persian I think) and Mexican. Funny thing is it used to be Jewish neighborhood. My husbands grandmother's old apartment is just down the street from Kang Nam. Also in the strip mall with Kang Nam is the best place to get baklava. You can even get sugarless baklava that tastes just as good (although still has plenty of honey in it).
Wendy the bathtubs are not Viagra its Cialis.Vigra had that commercial where all the guys meet in some cabin in the woods and start singing "Viva Viagra". They look like they are on the low down or something. Bizarre commercial. Don't ask me why I know this ;-)
Cialis: http://morandesign.blogspot.com/2009/05/what-were-they-thinking.html
Viva Viagra:
http://www.youtube.com/watch?v=umhEoIdKYm8
--------------------------------------I'm really sorry to welcome our newbies. Not that I don't want to know you but I don't wish this jouney on anyone. This is a great group. Odd but I still feel like a newbie myself.
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Today I get my wig trimmed. I still haven't worn it because the bangs are so long the cover half my face. That fake hair has a mind of it's own.
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To be a person of true greatness...
Live with honor.
Respect yourself.
Respect others.
Act honorably.Author unknown
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Good morning -- ah wet Saturday, but I think the rain is over. Long day at House of Hope yesterday. Did not get home until 9 p.m. I did though treat myself to something I usually wont't. Stopped at Hunan House for some Sweet & Sour Pork. I try not to do this more than a couple times a year......but there was no way I was going to come home and cook.
I think our great weather is about to deteriorate.....sounds like in the 30's at night is making a rapid approach. Drat and double drat.
Elf -- you are very intuitive. This is a gift all of us have, but can't always open up to since we get so many "messages" about the things we can't do......so this ability tends to fade out. Good for you.....I think your culture is a bit more open to these things. Hope your FIL is going to be fine now.
Ok, here's my twisted sense of perspective on "the commercial". I am always wondering if this is a bath before --- so you are nice and clean and fresh for your mate.......or is it the bath for after the festivities are done. Wish they would tell --- and I do wonder where the towels are???
Hugs, Jackie
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Morning! Yuck. 49 and drippy and gray (or is that grey?) on the old deck this am but no snow like in the Twin Cities...9-12 inches DH heard...seriously? Nope. Not ready for that. Don't care that the snowblower has been tuned up and is ready to go. Nope. Not ready.
Susan...I was soooo laughing about the Viagra comment. Now...you guys know I absolutely LOVE my husband but to say he has 2 left feet when it comes to dancing would be a compliment and he knows this. So, I read him your nephew's comment and we laughed and then I said....wait for it...maybe he should take some Viagra. Well...complete silence, realizing what I had just said to my husband of almost 33 years...and then the laughter came, gales of it. Thanks for starting off our Saturday so great! Take Viagra and Dance! (OK, yes, it is Cialis as Iago pointed out to me so well...actually I did know this but everyone gets the jokes about Viagra...even a small child)
Jackie....still want to know why TWO bathtubs and I love the newer one where she's washing dishes and he stops her and then all the water starts flowing. Heck...if DH came into the kitchen and stopped me from doing dishes...I would let him finish up and I would go sit on the couch with my feet up. Heck with the bath in the woods....dishes first!
Joan....aren't you glad its over? Arimidex is a pain, literally...but it's only for 5 years and if it can help, I think its worth it. I have a bit less than 1.5 years and I will be glad to be done...I think. Once again I think I will face the "what now" question. But as Scarlett said, "I will think about that tomorrow".
Elf...so sorry about your FIL, sounds like he will be just fine tho. DH and I rented "Sex in the City II" last night and I was so thinking about you...those shoes!!!!!! I really need to go to DSW and get some heels...those bronze sparkle heels she had on with the white dress in the beginning? Really need those. Now...the questions is...will you teach me how to walk in those things???? LOL
Laura...yeah...you need to send out the search light for Connie! Maybe Mich101 too...I miss them!
Carolyn....I am really sorry that your surgery got pushed back. BUT.....better safe than sorry...you wouldn't want to go thru this all over. How's work going? Hope you are getting enough rest on the weekends...
Buddy...glad too you are doing better but another surgery is planned? Listening to what you girls have gone thru with the Mx and recon makes me once again realize how easy I had it. I was a lucky girl for sure in cancerland. Hey....dead corn???? Send me a pic! (newbies...this was a joke from last fall/winter)
Mandy....your kids are so young. And did I get that right? Two different cancers? Did they find the bc while they were dx'ing and tx'ing your lung cancer? I see you live in Wauconda...DH and I discovered Lindy's Landing this year...we personally think the burgers there are the best and we LOVE their potato salad. Yum. It's a pretty fair drive for us but during the warm weather we don't mind as we sit outside and watch the lake/boats.
Onward/Adey/Navymom....sounds like you are all doing pretty well and are getting on with life.
Ginger....hope you are enjoyng your weekend!
Everyone else.....hope your Saturday goes well. I am off to meet DH at Panera's for a BAGEL, but only one cream cheese! Not falling for that again! Stay warm...and dry!
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Wendyk13 - Yes you are correct two separate cancers. Isn't that crazy. I'm still waiting for the " just kidding". 30 yrs old with breast cancer and lung cancer. WOOOOOH still gives me the chills every time I hear myself say it. They found the breast cancer first then of course you know they put you through every test there is. So when they did the CT of the chest to actually check my other breast they found the spot on my lung. I am very very lucky. Most lung cancers like I have go undetected. Most times when they do find it in the lungs its generally very late stage and often times to late. We love Lindy's. We go there a lot. In the summer we are there at least 3 times a week. The kids love to go play at the beach and I can sit and relax and enjoy a light lunch.
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Hi Ladies,
Haven't been here for awhile. My four year check up was a disaster. Perfect Mammogram followed by a bad check up and two biopies later...I'm back in cancerland. I know have six PILC tumors on and in my left breast. I will start AC on Wednesday and follow it up with more chemo making my trip 20 weeks of chemo. After that they will remove myl left breast along with all the skin. I will have skin grafting from my back, stomach, butt, etc. whereever they need to get enough skin. I see my plastic surgeon on Tuesday. Then after the surgery they will hit me with chemo or hormones. It all seems so unreal to go from a little Stage I, Oncto score of 9, no nodes, 1 cm small cancer to something that they can't even stage. The Tamoxifen and the Onco totally failed me. I am scared to death of chemo and all that is ahead of me. I trust my doctors but live in fear again for my life. I hope none of you ever get recurrences. My PET scan was clean except for a thyroid nodule which they are going to biopsy the day after my second chemo injection. God help me...sorry to be a downer but wanted to update you old timers from 2006.
Take care and live life to the fullest,
Nancy
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Mandy....well, I guess you are lucky then! Strange to say you are lucky with 2 cancers, but I think you were! That lung cancer could have gone undetected until it was too late. Now...it's out so that is good. How funny that you go to Lindy's all the time....I wonder if we might have been sitting right next to each other! We sit on the deck, by the bar.
I did find those sparkle shoes...they are Christian Louboutin (sp?) and they are $595. at Bergdorf's. Guess who will NOT be buying those! So pretty tho.....
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Wendyk13 - Its very possible we crossed paths and never knew it. We too sit out on the deck by the bar. I'm not sure exactly what shoes you are talking about but I'd get them. Life for me right now is NOT about being practical its about being HAPPY! That awesome vacation, the fancy piece of furniture, re modeling the bathroom etc. If ya can swing it DO IT!!!!
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Hi ladies, having been surviving for more than 5 and half years does not mean fully cure. I am too scared if my life is invaded by BC. I am now with Arimidex , I gain weight too much which worries me all the time. Too much consious about it as my tummy is not normal size. I can,t wear any fitting dress and wearing only loose upper clothes to hide my big tummy. I can,t do exercise also but I do step walking upto 4th floor of our apartment. I had recently broke my left small toe as I fell down because of imbalance. I can,t wear close shoe.After breast cancer our life is not normal , its always risk.
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Illinois Nancy, I am so sorry to hear what you are going through right now. It does not seem fair, but this disease never was. I do ( at least I think ) recall you. I started posting in late 2007 just after diagnosis and lumpectomy. I will be praying your current tx. plan gets you back to where you want to be. I'm sure many others here will be adding prayers as well. Please come often.
Hugs, Jackie
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