Illinois ladies facing bc
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HPOA is hypertrophic pulmonary osteoarthropathy, I think. Is that right, Buddy? I don't know much about it, though and have not known anyone who has it. I believe it's rather rare.
Wanted to say hi to everyone, and catch up. Family issues taking too much time lately, and major one is my aunt. She had total hip replacement surgery which went very well, but she woke up with severe memory loss. She's 91, so maybe not surprising, but it was sudden. She has lived with her daughter for the last 21 years, but doesn't remember that. Yikes! My cousin is struggling with the whole thing, and I've been trying to be there for her. She has my aunt in a nursing home, and it's been pretty emotional for both of us. On the upside, she can run down the halls without her previous severe hip pain! She tells me I'd better keep up, or she'll pass me. Pretty funny, actually when you see it. She is my mom's last surviving sibling, and the one my mom was closest to, so I am kind of attached to her too. Getting old is NOT for sissies, she is one tough cookie!
Lago, so sorry about the shingles. My DH had it once, and it was very painful. The vaccine has not been approved for use on cancer/chemo patients, so my onc does not want me to have it. My internist does want to give it to me, but I always defer to my onc. Plus the literature that comes with it says not for use with cancer patients. Considering it is only 50% to 60% effective I'm going to wait for approval. They say that if you still get shingles, it should be a milder case if you have had the vaccine.
Joan, I love that about the angels. Makes the rain more tolerable somehow. The reality is that I have cute duckies swimming around in my yard, where normally there is no swimmin' hole.
Onward, no more hair in the purse? We do make our mark on the staff at Maggianos, don't we? Kater pulled off her wig, and JanClare passed her prosthetic around the table, and a few other possibly startling things we've done come to mind.
I'm going back to read more pages and catch up with you all. I think of each of you all the time, and always with a heart full of caring for you.
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Hi all
Sorry I don't participate much here, but I pretty much stick to one thread. I just wanted to invite any of you in the Chicago area to a seminar I am having next week in Glen Ellyn. Nutrition counselor Jim Marlow will be speaking at Honey Cafe. I heard Jim give a wonderful speech last fall called " Beating Cancer with Nutrition". He will be expounding on this topic and explain why nutrition is the key to prevention and how ones metabolism determines what type of foods are healthiest for each of us. The seminar is free with dinner (we have to pay for the venue), which is $15.00. Dinner is from 5-7 on Tues, May 3rd, and Jim will speak afterwards. My chiro will also being doing free chair massages. It would be great to meet some of you. PM me if you want a flyer.
Hope to see you there!
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Thanks for the info Linda!
Hope you're all having a nice day...wish the SUN would come out!
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Just had to share! This is my great niece, AriAnna on Easter - what a doll!
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Laura- Cute little pumpkin!
Linda- Poo, I'll be out of town that day, please keep 'em coming.
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Wow, Laura! She is beautiful, and your own little sunshine.
Still reading pages, and playing catch up. You guys are prolific posters! And terrific too.
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Yes your right it is Hypertrophic pulminary osteoarthropy. I have secondary. I was told it is common. I think thats funny because I have never know anyone to have it.
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Hi there.... Been quiet as usual before my Scan.. And an awful day by the phone waiting for results.. until 5:15!!! Anyways.. still NED.. kind of.. the Onc said the radiologist thinks my lymph node that was last time described as fatty tissue is larger than on the last scan.. my Onc reviewed it and disagreed and said everything is great and he has no concern.. SO.. I'm going with that.. he also said he'll review with the Radiologist but either way will just follow up in 3 months.. the Ultrasound saw it and said it's benign in Sept.. I just have a fat node..

Lago sorry about shingles.. I am not immune to chicken pox and can't get the vaccine so I really worry about that one..
Got to run as usual these days.. boy was I spoiled by having a Nanny before..
Seattle again on Monday..
Laura, your niece is a Doll.. this is a great though hectic age!!
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Makmak, my onc is your onc and he calls it like it is.....and so you are NED. So one thingy got fattier.....so be it......fat is ugly but not as ugly as cancer. Seattle is looking like a better place all the time!
Laura, the baby is adorable!
so off to Holland, Michigan tomorrow for three nights. We were headed to Holland when our beloved Bill died and we knew we would have a terrible time so we cancelled. DH took some days off and we are antiquing in Michigan with Holland being where we return to sleep. There is a tiny part of us that is looking for a beach home and so we may look here and there. Lake Geneva (BJ, in case you are reading) is a bit over our budget, so New Buffalo or beyond may be better for us.When I say a "beach home" I mean a lovely little shack decorated in shabby chic.
The skies are so weird. I think it was Mandy who described them so well on Facebook. She said the skies looked bi-polar. One minute dark and awful and the next sunny.
Hang in their you southern Illinois ladies. These storms are very frightening. Jackie, I hope the dog is feeling better. You should have been a vet.
Susan
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Evening friends.....our sweet little Chico is doing a couple days and nights at the Vet Clinic. Turns out he has a duct....the one between gall bladder and liver that handles the bile is inflamed and blocked. The first Vet did not diagnose this.....and both Denny and I were un-happy with give him an antibiotic and pain meds. I'd like to know what I'm giving them for ( though he refused everything but water.....then would throw it up later ). So we called our favorite Dr. Douglas and she got us in this afternoon. She was upset that his temp. did not even get taken....and it was elevated. We only went to the other Vet as he was quite a bit closer.....and in case something was broken....we didn't want Chico to have a 20 mile ride to the Vets. So, he is on IV meds and Britt ( that's Dr. Douglas ) said that he will turn around fast when the drugs take hold. She said if you can imagine....a doubled up fist pushed into your chest and held there....that is what Chico was feeling and why he would not eat --- poor guy. I know when he feels better he'll forgive me for leaving him there.
It's pouring again. We just took a ride out to Crooked Creek....you'd never be able to tell where it is, if you didn't cross the bridge. It is so far out of it's banks, and much farther and it will come up over the road. I really don't like that, but maybe tomorrow will be sunny......though water in that volume keeps running and collecting for awhile.
Anyway hoping for a great sunny day for everyone.....it's time.
Hugs, Jackie
p.s. HI Smerf....good to see you back.
Laura....seems like yesterday that we saw AriAnna's "first" picture. How did this happen???
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Jackie...so sorry your little chico is having problems...hope he recovers soon. I am tired of rain here in Greenville also...Need some sunshine! Take care everyone!
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joan888 - Thank you! I've just started walking with my arms perpendicular to my body instead of hanging down and I've noticed a huge difference in the swelling in my fingers. Heat is a huge trigger for my LE ... so not looking forward to the heat and humidity.
Tornado sirens went off for about an hour. What an adventure! Took my cats over to the neighbor's basement ... hurt some tonight from carrying them over ... but it's better now. Saw a tornado in the sky, barely touched down ... absolutely nothing like what has hit AL & GA. My heart and prayers go out to them.
Here's to at least full day of sun and NO RAIN!
LauraGTO what a cute grandbaby!
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Morning! Hey....it's not raining!!!!! Yet....
Buddy....I admit I had never heard of hpoa either! What's next for you as far as tx for this?
Mak.....did you ever think we would be so happy, hearing we have extra fat somewhere???? Doing the happy dance...
Lago/Joan....sorry you both deal with LE. But you 2 have been on top of it so I think it shouldn't be too much of an issue, just an on-going concern. Which is as it should be for all of us.
Re: shingles vaccine....my pcp said " you had chemo....absolutely NOT". But ask ur onc. Asked the onc and he said NO. But ask again when I turn 60....but it will still probably be NO.
Susan....have a great weekend!
Jackie....watch the skies! But don't forget to watch the creek!
Laura....AriAnna is sooooo cute! And BIG!
Time to get moving....as I see more rain is coming. Of course it is....0 -
Jackie - We had a Chico (cocker) when I was growing up. Hope your Chico feels better soon.
Hello to everyone. Tie to go to work.
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Good Morning Ladies,
I finished my rads a week ago. My skin looks like goose skin that was left in the oven too long. Perhaps because I didnt have reconstruction and due to the amount and size of the radiation area, I hurt.
Went to see my Onc on Monday, he gave me a month off of everything to heal. Then I get to go back and begin with either aridimex or fermera. Also received the sad news that my Onc, who I love, will be moving to racine in July. I just dont want to have to go and research Onc's again.
Because I am a stage III, I know I need to have someone close by. My Onc said that from this point on, all my tests will be symptomatic. If I have head aches, they will do a brain scan, if I have pain in my arm, a bone scan and so forth. Does anyone in Illinois have stage III and does this sound right?
Onward
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Onward I'm not stage III but almost was (just 1 lymph node away). Stage IIIA is still considered early stage. From what I hear it sounds about right. You might post on the stage III forum.
Again quick drive by. Waving hello. Still have the creeping crud (shingles) that has at least doubled if not tripled in size since Monday. I think though, hopefully, it has stopped spreading. Anyone here who has had this, can you tell me if this is the worst of it. I'm hoping that I don't get increased pain. I hear about this pain so bad you need narcotics. I'm not there and hoping I don't get there. This stuff now covers a large area on my body.
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Hi Ladies -
I haven't been on in awhile so had a bit of reading to do.
Happy belated birthday Marina! And GREAT news on the scans.
Lago - sorry about the shingles. I was told that I got this also. I had a rash on one side of my chest (it wasn't huge) and a lot of pain in my arm. They gave me the meds and it all cleared up pretty quickly so I guess that is what it was. It was about 4-5 months after I was out of chemo so sounds similar. My DH claims he never had chicken pox but he didn't get anything from me.
Buddy - I googled HPOA because I didn't know what it was. It took a bit for me to find it because the first things that popped up were "Hot Piece of A**" I'm going with that! Ha.
Susan - our lake home is in MI. We are about 30 minutes past New Buffalo in a town called Coloma - it's a nice little town. We are on Paw Paw Lake so there isn't really much beach. We are in a condo complex and we do have a beach but most homes along the lake do not have much beach space. New Buffalo is nice and I just learned of a friend of mine has a place there. South Haven is another cool spot but that is about 20 minutes past us. We really like having the vacation home. Even if we just go there and do nothing - it is a nice and relaxing.
Onward - I am stage III and that is how my onc is dealing with me. Sometimes I think they should be doing more, but it sounds like that if the normal protocol.
Other than that - just really sick of this weather! Looking forward to my trip to FL in July! Hopefully it will be warm before July!
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Good morning to a very sunshiny morning. Wow !!! Do my spirits need this. A rain squall could happen tonight but I have hours of fantastic sun to languish in right now.
Char...how neat. Another Chico. Our little guy ( a 23 lb. Puggle ) came from Vernon Hills, just past O'Hare airport in Chicago area which is basically how he got his name. Chico and The Man was filmed in Chicago ( Freddie Prinze ) so....we have a little Puerta Rican Puggle named Chico.
Nana....hope Greenville is sunny today....I'll gladly donate some from here.
We are full of creeks around her as well as two lakes....Centralia Lake is a bit smaller than Raccoon Lake which is the one where I live. Centralia lake is a recreational type lake while Raccoon Lake was built as a drinking water supply lake.....so no jet skis, or fast boats etc. Five miles an hr. if you want to take your fishing boat out on the lake. They do have boat races here every yr. now ( one week-end a yr. ) but mainly as they need the lake size to actually compete. Otherwise nothing would mar the silence and peacefulness.
Hope to heaven their is a big yellow object waiting outside for all of you today. It's time to get reacquainted with sunglasses.
See you all later.
Hugs, Jackie
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Thanks, Connie! We will look for Coloma. Of course we are off to a late start as Paul had a last minute work issue. I suppose the Sunday night drive back into Illinois is as slow as from Wisconsin. It is fun to look. We just had friends who bought in New Buffalo.
Onward, my breast cancer surgeon moved to new York State to care for her ailing father and I was upset. I now see the women who took over her spot and she is fantastic! Change is indeed scary but it can work out just fine. If you decide you do not want the change, Racine is not that far away. I am stage II and my onc from the very beginning "released" me and told me to come back if I had symptoms. I found that terrifying as most woman here were going every 3 months, 6 months and then annualy. I have not see him for over three years, I did go to a nurse practioner who outlined who I see for what and she said I see the oncologist for headache, bone ache and trouble breathing and thank heavens I have had non of the above. Edited to add that I have back problems, but I have come to know that this come and go issue is clearly disk and not cancer-related.
Let's hope for sunny skies.
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Yes, I vote for the sun today, tomorrow, and for the weekend. One minute the sun is shining brightly here and the next minute it hides under a cloud and it's gloomy.
Susan, enjoy your days away.
Connie and smerf..........always good to hear from both of you!
More later..............
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Sunny here today and gorgeous!!!! Haven't seen the sun in over a week!
Enjoy it! Love it ... 'get reacquainted with the sunglasses."
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lago - Sorry about the shingles. I don't know much about them... glad you're not in a lot of pain, although sorry that it is spreading. Hopefully it's done spreading and you'll get better from this point on.
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Onward... I am IIIa... the fourth lymph node put me there. So barely, and Lago is right, they do still consider that an early diagnosis. I finished chemo at end of August and my ONC has me on a 3-month follow-up schedule now that I got rid of my port during my exchange surgery. I insisted on PET/CT scans prior to going for my exchange. ONC was reluctant as he said those can send you on a wild goose chase, but I just wanted some peace of mind. Just rather being chase a wild goose than a dead goose. I am not sure what tests I will be doing on my regular 3-month check-ups yet, but have an appt with him in a couple weeks.
It took about 2-3 weeks for my skin to heal up nicely after finishing rads. Just lots of lotion and drink lots of water.... like you haven't heard that a hundred times already!
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Joan & Onward I see my onc and BS every 6 months the 1st year alternating so it comes out to every 3 months this first year. After that I know I see my BS once a year. I assume the same for the onc but I'm not sure how long that will go on for. I did have scans before surgery. My BS said there was time and if I did have mets then they would do chemo first. I don't know if they do things differently for HER2+ status. Before surgery my BS pretty much thought I would be a Stage IIIA.0
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I have a question. My BS was not a good choice I found out after multiple complications and her horrible attitude and things she said to me. I have not been back since probably March/April 2010. Should I be seeing one still? I see my Onc every three months. What would the BS do for me?
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Determined: They all schedule differently. I see my BS twice a year (once with a mammo) and once with the mri). As posted before, I never see the onc unless I have symptoms. At my last visit (I am four years out) the BS said I could come annually, but to stay with the six month mammo and mri. She reassured me that she would call if either came back with a problem. The practice of seeing patients (when and how often) is so varied.
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thanks zap I had a bmx so maybe that is why I don't need to do any further with a BS unless I have an issue. My onc does not feel I need to do a mamo I know some do even with bmx.
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I hd BMX a year ago and I'm on six month follow-up. Next appt is in July and not sure what she will be doing then. When I was there in january, she did a real good node check, checked around the TE's and encouraged me to get moving on the exchange surgery and then gave me another script for LE PT. After my July appt, I am not sure how often I will be back to the BS. So between the ONC, RONC and PS, BS, GYNE, PT and PCP (and oh, yes the eye doctor) , gee..... it seems I am on the table every 3-6 months. It's all painless at this point, so I don't mind all the attention.
I had a new experience at the GYNE last week. She found a polyp on my cervix so sent it off to path and it came back B9. She said they are faily common and rarely come back anything other than B9. Gosh, a year ago, who would have thought that I would have so many docs??
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Determined I had a BMX and was told I would be seeing my BS for life. We don't get MRIs or Mammos so they need to do a physical exam. I don't know if just having your gyn do it is enough. I think this is a good question to ask you gyn or onc.0
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Last week, my GYNE just did a rather cursory breast exam... well, no breasts! She just quickly checked my underarm node area, but said she would trust that my BS and ONC will be keeping a closer eye on things. So I will just see her for the pelvic once a year... don't trust my PCP with area.
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