Illinois ladies facing bc

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  • lago
    lago Posts: 11,653
    edited April 2011

    Thank you Determined3. I love the little pictures. They are so forgiving. I look about 30 in that photo.

    That's my wig after my 4th treatment. It was similar to my hairvstyle before chemo. These photos are of me from about 2 week ago with 13 weeks post chemo. link

    Should be posting my 2 week update on the hair thread.

  • determined3
    determined3 Posts: 41
    edited April 2011

    lago. your smile is pretty. good for you. okay 13 weeks post chemo. i am so waiting to get there:) good for you--you look good, healthy and happy. 

    in the mean time, i am battling nausea. any suggestions...other than the meds i have. i had a small cup of ginger ale and some ginger tea. i can't stand those, but i am trying. i want to drink more to flush this stuff out of my system, but each time i drink i feel like i will barf......(sorry, but that is how i feel)

    how the hell can i drink water if i can't drink?

    thanks

  • lago
    lago Posts: 11,653
    edited April 2011

    I never had nausea but I'm sure the other gals can help you. Haven't they given you any medication for this?

  • makmak
    makmak Posts: 374
    edited April 2011

    Hi derermined3. Lago already answered the insurance question. I had a ppo so I had to call and get an out of network waver ahead of time and they only paid 300 so I had to pay a bit out of pocket but not much..



    I had nausea right away but the meds made me feel even worse. What worked for me was whey protein drinks first thing each morning. I got big tubs of it at walmart. They come in vanilla and chocolate flavors..

  • zap
    zap Posts: 1,850
    edited April 2011

    My thought is that anyone who has depressive thoughts and feelings should seek medical aid.  People with breast cancer and people without it can be depressed.  My understanding is that depression is not simply psychological, but has a physical basis to it and meds and perhaps counseling can work to correct the imbalance. Maybe the cancer pushed the body and the mind too hard:  resulting in depression, among other issues.  If you cannot take yourself to the doctor to to deal with this, ask someone you trust to take you.  Heck, I'll take you, if you want.  Depression is nothing to fool around with.

  • LisaMomOfFour
    LisaMomOfFour Posts: 226
    edited April 2011

    Hi determined and determind3.  On the wig, lago answered it the same way I will.... had a PPO, had my onc write a prescription for a cranial prosthesis, and fortunately was lucky in that it was covered.  These salons are used to working with cancer patients, shaved my head in a private room, tried the wigs on in a private room, extra seat in there so Jan accompanied me to my first visit, my husband came the next time. 

    As far as nausea I was lucky... had quite a lot of premeds (steroids and something that begins with an "L", I wish I could remember the name but I can't.  Then decadron and zofran for the 2-3 days after treatment, had compazine on hand in case I still had nausea but was lucky and didn't.  For me that protocol worked well.  I just finished chemo three weeks ago.... still rocking the Uncle Fester look, and am so anxious to have hair again!  I was at my daughter's soccer game tonight, and the wind was whipping the hair on my wig around.  I asked one of my friends how I was doing, was the netting showing thru, etc, and she said it looked fine.   Nonetheless, it's when I'm outdoors that I really hate having this wig on.  

    Hang in there, you'll be through the other side before you know it.

    Lisa

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2011

    Nausea....there are several different drugs and what you have just may not be working well.  I would suggest you get a hold of your Oncologist/nurse/team and see if they can give you something else to try.  I would also ( no one told me this ) start taking the nausea meds long before you even suspect nausea.  You may have to try other drinks.....water is best but if it does not set well with you, something else may be in order.  I think several of the ladies drank lemonade and then you can get Popsicles or Luigi's frozen icee's.  They are in the ice cream dept of your store.  This too shall pass and you will know when it does, but I know it is really off-putting.  I did not have much luck with some of the old remedies like crackers....others it worked like a charm. 

    zap, I think that is great advice.  Body, mind and spirit.....all need comforts and care and to be brought back into unision.  I'm sorry several of you ladies are having to undergo these feelings.  I think sometimes there is just too much fear and a huge loss of control.  My prayers and thoughts will ve with you ladies. 

    Quite a day here....Chico is improving but must stay yet awhile at the Vet Clinic.  We visited today......hope it was inspiring to him. 

    Lovely wedding on tv this morning.

    See you all tomorrow.

    Hugs, Jackie

  • determined3
    determined3 Posts: 41
    edited April 2011

    hi all. thanks for repsonding. it looks like am SOL b/c i have hmo. regarding nausea, i have done what i was told to a T. i was not taking chances w/ this, and yet, i had a very unpleasant min or 5 in the restroom.

    not a happy camper. thanks for listening. 

  • joan888
    joan888 Posts: 711
    edited April 2011

    Geesh... here I am in Naples, Fl for a wedding this weekend.  This humidity is really doing  a number on my hair which has become a mass of curls.Surprised  DH thinks its cute, but uggh! The wedding is on the beach so I brought a big brimmed hat to hide under!

    determined3... so sorry that you are having the nausea with your chemo. I had some moderate nausea, but found that the meds they gave me to avoid it, were not helping much so just decided to live it.  It always passed in a few days and I think it will for you also.  The old "ginger" trick never worked for me either.  What tasted best was anything sweet so I drank the flavored sports drinks like Propel and also found out that those Edy's frozen fruit pops were excellent. Still hooked on those.

    IllinoisNancy.... so sorry that you are dealing with depression.  I was shocked to find myself dealing with that also while starting on chemo.  Found myself falling into crying jags on and off and I think my DH got pretty worried about me.  I did alot of research and discovered that the steroids and some of the chemo drugs had listed side effects of "mood swings".  Ahhhh!  After the second chemo, it began to make sense so I talked to my ONC's PA.  She was wonderful and said that it was not unusual at all for patients to go through this.  She made sure that I got a prescription for Celexa.  That worked wonders and I was soon back to my old self... well, minus a couple things, blah, blah, blah.  Anyway, I hope that you get some help... I really know what you mean.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2011
    The Nine Aspects of Life The adventure of life is to learn.
    The purpose of life is to grow.
    The nature of life is to change.
    The challenge of life is to overcome.
    The essence of life is to care.
    The opportunity of life is to serve.
    The secret of life is to dare.
    The spice of life is to befriend.
    The beauty of life is to give.
  • illinoislady
    illinoislady Posts: 46,506
    edited April 2011

    Good morning....I think we may have more rain coming....ugg, but the past couple of days there was enough sun and warmth to start drying us up and getting a lot of that water back into the creeks and flowing to the rivers around here.....hope we don't overdo this time. 

     Joan...how neat....a hubby would think curls "cute".  Hope you can go and have a great time even if you must wear a hat. 

    Hope everyone has a great Saturday.  See ya later.

    Hugs, Jackie

  • lago
    lago Posts: 11,653
    edited April 2011
    determined3 if the meds they gave you are not working  you need to tell your onc. There other drugs. My SIL (MD that works for a pharmaceutical company) told me before I started that there are many drugs for nausea. They recommend the less expensive first but if they don't work demand something different. But of course I never did get it… nor does it appear I got any of the more common SE that they have drugs for Tongue out I'm so special. 
  • conniehar
    conniehar Posts: 585
    edited May 2011

    I am a big water drinker but thought it tasted horrible during chemo.  I liked lemonade, popsicles and lemon ice.  Good luck!

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2011
    Our lives teach us who we are.
                -- Salman Rushdie
  • zap
    zap Posts: 1,850
    edited May 2011

    It is sunny and warm here in Holland, Michigan.  I sure hope it is the same across the lake! Susan

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2011

    Good morning from sunny southern Illinois.  Glad you are enjoying Holland, Zap.  I had a friend who lived in Holland for several years. 

    Going to pick up Chico from the Vets clinic after Church today.  He made his turn-around yesterday afternoon she said.  Just eating ravenously and perky and playful again.  I'm so thrilled.  Anyway...hopefully, nothing like this will crop up again.  Sure glad our little guy will be back. 

    Hi to all and I am wishing you have a wonderful sunny, Sunday and enjoy the day.

    Hugs, Jackie

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited May 2011

    Jackie - Great news about Chico!

    Zap - Have fun! I bet the bulbs are a glorious sight. It's a bit chilly here...hopefully it will warm up as the day goes on.

    ---------------------------------------------

    dh has our car jacked up and on ramps and is underneath it replacing the radiator. Hmmmmmmmmm...should I release the jack...I'd be one heck of a wealthy widow! LOL Naaaaaaaaah...I'd miss him too much! LOL Laughing

  • lago
    lago Posts: 11,653
    edited May 2011
    Laura if you did that we'd be watching you on Snapped and Lockup.
  • LisaMomOfFour
    LisaMomOfFour Posts: 226
    edited May 2011

    So happy that the weather is nice this weekend!  Five soccer games down, one to go.  Followed by a string quartet performance at a fundraiser.  Yesterday the soccer game was soooo windy I was afraid I would lose the wig!  And no one on the team even knows that I have breast cancer, and I prefer to keep it that way.... so off to buy a cap today to hope the extra layer keeps the wig in place! 

    Hope everyone is enjoying this lovely weather, so refreshing to see the sun again.  

    I have my simulation tomorrow morning, and will start radiation the following week,   I am ready to get moving, so I can get this step behind me.  

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited May 2011

    Lisa - Hot glue works real well on windy days! JUST KIDDING! Hang in there...you're a real trooper! Best wishes to you as you venture through radiation. After all that you've been through...it will most likely be a breeze. AQUAPHOR (Walmart/Walgreens) worked wonders for me. HUGS!

    LAGO - TOO FUNNY! I watch those programs all the time. LOL Check out my posts about dh's handy work on FB... ; )

    +++++++++++++++++++++

    AND...welcome to the new girls...you've come to the right place. We'll help you through your journey.

  • BustersMom
    BustersMom Posts: 260
    edited May 2011

    Hi Everyone - some of you probably remember me from 'way back' - I haven't posted here in many months.   So hello to all of my old pals here, and hello to anyone I haven't 'met' before.

    I'm here seeking info/advice.   My poor dear mother now has BC. 

    I'm trying to find a good (and very caring!) surgeon for her.  She lives in the Skokie area. 

    Her PCP referred her to a surgeon and mom & I aren't very happy with him...  I've battled BC twice & therefore we have a good amount of knowledge & are a bit picky ;)

    I know that Smurf is from that general area;  if she - or anyone - can recommend a BC surgeon in the Skokie area or NW side of Chicago, I would be most grateful.

    Please PM me if you can....... 

    Thanks so very much - Julie (aka Princess Juliet, lol)  

  • determined3
    determined3 Posts: 41
    edited May 2011

    bustersmom,

    have you heard of dr yao or dr velasco evanston/skokie area?

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2011

    Oh Julie, I am so sorry to hear this about your Mom but thank goodness she has you in her corner.  I have also heard it often seems easier on the slightly more mature/older woman.  Hope this is so....I couldn't tell myself and I was older. 

    I'll be thinking of you and your Mom and sending hugs and healing thoughts and high hopes for picking a good team. 

    Hugs, Jackie 

  • blackjack
    blackjack Posts: 771
    edited May 2011

    Happy Sunday to all....I was up at the lake this weekend and it was sunny but cold. No boat ride but lots of waves out there. Susan hope you are having fun in Holland. Finding lots of treasures I am sure. If you are still looking for a beach house check out Lake Delevan...more affordable than Lake Geneva. My gf is a Realtor up here...if interested let me know. Happy shopping.

    Princess Juliet... welcome back! hope all is well with you. I am sorry to her about your mom. Life is not fare. Sent you a pm.

    Jackie.. glad to see that your baby is feeling better. We feel so sad when are pets are sick. glad to see that you are having some needed sunshine.

    Welcome to Determined and Determined3. Hope you are both doing well in your txs.

    Laura..too funny about your dh handy work!!!

    Connie...boating season is here yeah!!!!!! only 29 more days of school but who is counting. lol

    Lago...I love your new hair color. It looks good on you. But then you are so stylish any way. Always looking good.

    Joan...have fun in sunny Florida. Maybe a little sun and sand for us gals up north. lol

    Lisa....you are one busy girl. Chemo over and now rads. Soon it will be a distant memory for you. Hang in there. Enjoy the kids.

    Makmak....prom, the perfect dress... ohhh I do miss that. I even went to buy 7 prs of shoes that would match the dress. My dd couldn't go shoe shopping because of gymnastics so I brought the shoe store to her. lol Found the perfect shoe then trucked back to the store to return the other 6 pairs of shoes. Take lots of pics for us to see.

    Rita... saw some golfers out yesterday playing as it was sunny up north. How about you. have you been out yet.

    Well to all the others I missed I hope you all are enjoying your weekend. I am off to run now as it is not to windy outside. Have a great evening everyone.

    Remember to be healthy...be happy...enjoy life.!!!

    BJ

  • zap
    zap Posts: 1,850
    edited May 2011

    Yes, we did have fun.  I have moved into pedestal cake stands.  I am sure you have seen them in boutique bakeries.  I was able to get two I like; one for each daughter and two vintage hat boxes (each cake plate fits in the the hat box).  Now I am putting together a small book for each daughter with sewed on  buttons  and some vintage ribbon.  Inside the book I have my mother's favorite cake and cookie recipes.  That would be their grandma.  I am not a baker, so this is my way of compensating for my lack thereof.

     Connie, we stopped off at PawPaw lake and we loved it.  We went by two rows of what I think would be condos.  It was late so we could not see inside them but there were some for sale and I got the phone numbers.  Some were what I would call  terra cotta in color and the others were A-frame.  And BJ, thanks for the tip on Delavan.   Paul and I very frankly  need to rent a week to get a feel for it all and then maybe we could  make a decision. I think this summer may be our summer to look about.

    Buster'smom, I will pm you on my surgeon in Evanston.  I love her. I am sorry.

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited May 2011

    Zap - What a thoughtful idea! I love the recipe book idea.

    P-Juliet - OH NO! Wow...my heart goes out to you two. You know we'll help you through this. Thoughts are with you. Yao was one of my surgeons @ Loyola (Mast @ time of dx). She did a good job. Although...upon reflection, I prefer the privacy and personal attention at smaller local hospitals. JMO...best wishes.

  • ritajean
    ritajean Posts: 4,042
    edited May 2011

    I have never been fond of ginger so the ginger tea and ginger products didn't help me at all with the nausea.  I found relief with lemon drops.....the old fashioned kind.  You can purchase them at Walgreen's in our area as they are hard to find at our discount stores.  I still keep a bag of them handy.

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2011

    For this morning's news of the death of Bin Laden

    [P]atriotism... is not short, frenzied outbursts of emotion, but the tranquil and steady dedication of a lifetime.  ~Adlai Stevenson

    For all those who lost their lives on 9/11 and for all their families, and friends, and for all the hardships.  Amen

  • makmak
    makmak Posts: 374
    edited May 2011

    Good morning...

    Well.. unfortunately I spoke to the Dr just now.. and the lymph node is in fact growing.. It's doubled in the last 6 months.. My Onc is concerned but has seen it turn around and shrink because it's just inflamatory.. may still be a reaction to the vaccine.. OR could be the disease waking up.. if that's the case it'll have to be biopsied in 3 months..   Now I'm freaking and wondering if I should have had the MX and had the nodes removed.. but then again.. I couldn't get the vaccine.. Always something...

    Dropped the baby off an hour ago.. and walked into an empty house for the first time.. feels so weird.. Off to Seattle in a few hours..

  • lago
    lago Posts: 11,653
    edited May 2011

    MakMak that stinks but never second guess your decision. Even if you did have the MX there is still no guarantee that would make a difference. Right now you really don't know what this is. Our immune systems are so challenged by all this therapy… the node might be just doing it's job and fighting off something, again. Like you said it could just be pissed off at the vaccine.

    ♥ ♥ ♥ hugs ♥ ♥ ♥