Illinois ladies facing bc

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  • illinoislady
    illinoislady Posts: 46,506
    edited July 2011

    Illinois Native....I volunteer and am on the board of our local Humane Society -- House of Hope - no-kill shelter.  In Centralia.  We are bursting at the seams there.  Some man this afternoon brought a little rat terrier and when we told him we were full and could not take the dog......he left.  He also left the dog on our front stoop. 

    Fortunately.....the gal that was working with me today decided to take that little guy home so he will end up with a nice home. 

    Mad....sometimes you do feel crappy about this very touchy subject.  My sister-in-law was sure the left side of my bra would have to be stuffed with something ( I had lumpectomy ) but you can barely tell......somehow I thought she was taking a strange perverse pleasure out of my possible disfigurement.  Anyway......I never did feel very comfortable talking about it to people until I was  nearly done with all treatments and had a semblance of good health back.  Unless you are talking to someone who has been on the same path, it is hard to connect and have a "reasonable" give and take.  Most people just would not have the sensitivity.  Mad....it is all of those things you mentioned and give yourself total permission to have whatever feeling you have. 

    Calico...glad you popped back in.  It all goes a little better when the decisions are made and you know what your going to do.  Hope your Mom soon has her plans in place.  It is hard to imagine that you are both doing this so close together.  I hope things will go well.....for both of you.  Hope you stay in touch. 

    Momma2four.....I so feel for you.  I'm sure its difficult to have come so far and to be challenged in this way.  It is true that it is not cancer ( thank heavens ), but it is a re-run so to speak of what you had to do to get back to having a "normal" body that seems to no longer want to stay normal.  Almost like when we all got diagnosed  --- sort of out of the blue -- wham.  Just not what anyone expected.  I do hope  ( Sept. seems so far off right now ) that things will go well for you.  We are always here to  help you get through whatever you are going through so do come back and chat. 

    Lago....too funny about needing to ask for help with your choices.  Makes for a good story now. 

    I'll see you all in the morning...I'm all in for tonight.

    Hugs, Jackie

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited July 2011

    Wendrew - LOL - Don't have to strip down for the foot doctor either! lol  

    lago - I only had lymph nodes removed from my left arm. When I had the prophyl on the right...I insisted that NO lymph nodes be removed. Do you have a nighttime, quilted sleeve? I do and I think it does help. You crack me up! Too funny about the pads with wings...have fun...throw them out of your window (or balcony) and watch the reactions! lol  

    Jackie - I LOVE, LOVE, LOVE the William Ward poem! Now I'm laughing...about what you posted about a lot of things wanting to eat you in Africa. TOO FUNNY!  

    Calico - Geesh...it's terrible and ironic that you are both dealing with this beast. Best wishes to both of you. I'm glad you found us.  

    IllinoisNative - You're almost a RAD GRAD...good for you!  

    Maddismommy - No doubt...this journey is truly a roller coaster of emotions. It really does get better. Each day you are one step closer to dealing with all that comes with our diagnosis. Hang in there.  

    Momma2four - Wow...4! OMGoodness! So nice to hear you're 10 years out. But I'm sorry you're dealing with reconstruction issues. I hope it all works out for you.  

    bj - Tomorrow's going to be a scorcher...hope you'll be boatin' it up!

    ----------------------------------

    Hugs and hellos to EVERYONE... Have a great weekend! Time for a bath, green tea (chilled) and my cool and cumfy jammies!

  • Madismommy719
    Madismommy719 Posts: 377
    edited July 2011

    Thanks everyone for making me feel better about myself for the emotions I'm experiencing right now, when I show fear or anger or sadness to anyone in my *real life* all I get is a lecture about "how I have to be "positive" 24/7 and I can't ever have a negative thought or I'm going to affect my fight.... When I'm sorry, sometimes all I really want and need to do is cry....



    I do want to tell everyone here how much I appreciate this forum and everyone on it, it's only been a few weeks but I already find such comfort here.... And it gives me so much hope and strength seeing so many of you living PAST what I'm going through right now....you remind me there is still life outside this disease and someday I'm going to get back to living it......



    Thank you ladies.....

  • lago
    lago Posts: 11,653
    edited July 2011

    Madismommy79 I have read several places that "a positive attitude" has no effect on treatment. I'm not saying that it isn't nice to have a positive attitude but don't worry it isn't making your condition worse. Yeah I got that too when I was trying to be realistic about the situation. I did feel so much better psychologically after surgery (my 1st treatment in the journey). I stopped crying. I'm not the crying type but I did. You're allowed.

    Yes these Illinios women were my savior too. So important to talk to others who "get it".

    Well I'm off to watch my husband play baseball this morning. Hope I don't mess up my LE arm. May have to check into a night sleave. Tongue out Happy Saturday

  • wendyk13
    wendyk13 Posts: 1,458
    edited July 2011

    Morning! 59 on the deck and clear...hear it's gonna be a hot one!

    Calico....still hard to believe that the two of you are going thru this at the same time. Now that the plans are in place and you can move ahead most of us felt it suddenly got easier. Just keep taking baby steps.

    Lago/Laura...take care of those arms today! AND...Lago...if you start throwing pads out the window to see if they fly PLEASE TAKE MOVIES!!! LOL!!!

    Momma2four...well, wow! What a trial this had been for you! While it is truly wonderful that cancer is not present, you have been dealing with so much. Hopefully they can get a handle on everything and find a permanent fix for this. Keep us posted, ok?

    Madismommy...what Zap was referring to is my "fort". My Dad was to put it mildly, a very difficult and hard man but my Mom was the complete opposite. When Dad was not in a good mood, she would throw a blanket over the kitchen table and we would play fort and hide there. We would hug for hours and she would tell me wondeful stories and we would have lovely tea parties and great little snacks. I always felt loved and safe there. So....fast forward to 2006 and being dx'd and then finding out about chemo and being Her2+. I was so overwhelmed and I felt so alone. One day after my DH left for school I simply crawled under the kitchen table and sobbed for hours, waiting for my dead Mommy to come. After I managed to crawl back out I went to the computer....and found this site, which Rita had just started. I like to think it saved my sanity. I was NOT alone...and I never would be alone on this journey....ever. Don't worry about what people say or don't say...cuz you see...they don't get it and never will! But we do! We are here when you need us....anytime !   My "fort" is always open,,,,crawl on in anytime!

    Rita....see? Once again...I wonder if you have any idea how many lives you changed when you reached out one night because you were scared!!??!! Thank you so much....

    Waving at you WendyTY!

    PS:  My eye is healed....don't need to come back for a year!  Vacay here I come! 

  • Madismommy719
    Madismommy719 Posts: 377
    edited July 2011

    Wendy, thanks for sharing that with me!!! Although, you just made me cry again!! LOL...except it was a warm heartfelt cry and not the one I cried myself to sleep with. I'm going to believe your mom did come and help you up that day and lead you to your PC....cuz that's what Mommies do....and now you're here!!


    Lago, my husband is a baseball junky too....he played through college and still would be but a knee injury sidelined him a couple years ago.....now we just try to go see the Cubs and SOX as much as possible instead.....we're Cubs fans!! :)



    Yes, THANK YOU Rita for starting this!!!



    Does anyone know of a wig place that does real hair wigs with your own hair?? Someone told me to look into it since mine is so long.... I'm wanting to cut my hair pretty short here soon so if it's an option to use my own hair for one than I need to figure it out.....and the cancer wellness center told me to go somewhere in Willowbrook for wigs, scarves, etc.....I'm not sure I'll be able to figure out scarf tying????



    Happy Saturday everybody!!!

  • mahometmom62
    mahometmom62 Posts: 63
    edited July 2011

    Momma2four. You give me hope - I am very close to you We play travel ball We are in blommington all the time we live in Mahomet. We will be there this Tuesday for ball. Your 10 years out that is so amazing! I had 1 node involved I am going thru reconstruction now I only had a right mastectomy. I am up to 400 cc. I hate it. - I always hurt when I wake up in morning. I have a friend who had two infections. Back to back and spent a lot of time in hospital. My shoulder is so out of whack since surgeries. I worry a lot. Your 10yr anivesary is awesome!!!

  • zap
    zap Posts: 1,850
    edited July 2011

    Every time I hear the "Fort Story" I tear up with good tears.  I jusy love the story. 

    Have a great day.  DH and I are fixing up the playground area for grandkids.  They are in Boston visiting SIL's family, so we want to surprise them.

  • illinoislady
    illinoislady Posts: 46,506
    edited July 2011

    Rock bottom is good solid ground, and a dead end street is just a place to turn around. Buddy Buie and J.R. Cobb

  • Rene23
    Rene23 Posts: 290
    edited July 2011

    Wendy - I  love your Fort story.  It's true, we all need our Forts.  Mine was in our bathroom, on the floor, next to the tub.  I'd  close the door and just sob and sob, until I was done.  Those times DID become fewer and fewer, but boy, were they needed at the time - especially in those first few months. 

    Madismommy - Try calling jeromekrause in Skokie.  They do make customized and hand-sewn wigs.  When I had mine done, I met the Russian wig-maker working there.  She hand-sewed in some highlights to my real hair wig to match the highlights that I had at the time.   I don't know if they work with hair that's given to them, but it's worth a call if that's what you want to do. 

    My mother is staying with me a few days while my boys go tromping around Glacier Nat'l Park.  I think we're going to hit up the Oakbrook art fair - that is, if I can talk her into walking around in the sun.  My mother has beautiful, nearly-wrinkle-free skin because she's always avoided the sun like the plague (it's a Japanese thing).   But I am not going to miss out on some sunshine this weekend!  Wrinkles be damned!  She can put on a hat. Tongue out

  • illinoislady
    illinoislady Posts: 46,506
    edited July 2011

    Count me in as I'm here too with my box of Kleen-x.  But....yes, its the great kind of tears that give you the strength from not being alone.....feeling accepted, and knowing that the path you chose will work for you.  Wendy......we still all love your fort and are thrilled it is still there for us......along with you. 

    mahomet, how great that you ran into Momma2four here.  Hope things start turning around for you.

    Had to get Maggie and take her to the Manor ( fancy nursing home here ) early this morning and need to get going to go get my work done and visit with her on the way home. 

    I'll be checking in with all of you later.

    Hugs, Jackie

  • lago
    lago Posts: 11,653
    edited July 2011

    My first time with the fort story too. Love it.

  • MaryjRN
    MaryjRN Posts: 43
    edited July 2011

    Hmmm..I am going to have to figure out where I'm going to 'pitch' my fort.  It seems to be all over my house right now!Laughing

    I had my lumpectomy/SNB yesterday.  Full path report will be in Tuesday or Wednesday.  Taking it easy today with the help of Vicodin.

    Everyone here seems so friendly.  I feel that I have indeed, found a new home.  I'm still trying to grasp all the abbreviations y'all use! LOL

    I am supposed to be back at work on  7/13 and I am sure  I should be able to handle it.  I am a nurse at a free clinic in Joliet.  I am 54, have 5 kids, and my husband is a farmer.  My 3rd child, daughter, is getting married in October and her shower is 7/17.  My oldest daughter is married and lives in Massachusetts and my son is married and lives in Chicago.  No grandbabies yet, but I hear that it's just great!

    I'll check in later...

  • lago
    lago Posts: 11,653
    edited July 2011

    Hi mary. Hope you're taking it easy.

  • wendyk13
    wendyk13 Posts: 1,458
    edited July 2011

    Out for the evening but...



    MaryRN...no need to pitch a fort....our "fort" is here, 24/7! We HATE meeting new girls but all are welcome...just wish you never needed to look for us!

  • Madismommy719
    Madismommy719 Posts: 377
    edited July 2011

    Hi MaryRN....I agree, wish you didn't have to find us but glad you did, welcome!!!



    Anyone have any clues as to why I can't shake a headache I swear I've had for a week???? Sometimes it feels like my sinuses, and it's always the same 2 spots on my forehead.....UGH. Can I even get any type of tests on my head while I have these TE's in my chest?

  • zap
    zap Posts: 1,850
    edited July 2011

    OMH, 40 bags of wood chips in the swingset area.  I am going to ache tomorrow.  It was 90 degrees.  These grandparents are NUTS!. Perhaps I will lose half a pound for this effort. PLEASE!

     Mary, it was great to hear from you.  I was back at work one week after  the second lumpectomy (bad margins on the first) and it was the best thing I did as it got my mind off ME and IT. I taught through chemo and radiation.  Work worked for me, yet  I fully  understand that my strategy of coping is not for all.   I am facing 5 years as a survivor in August.  That feels very good.

    Yes, the fort story is good.  Wendy's mom is very much alive.  Thanks for sharing, Wendy the Weather Woman ( I do not like Wendy the Older for you).

     Hey, Betty Ford lived until mid 90s and she had BC.  We have long life before us, girls! Make some plans.

    I am still trying to get all the new people straight.  If I ever goof, forgive me.

    Susan

  • makmak
    makmak Posts: 374
    edited July 2011

    Maddismommy7,

    I have been battling headaches for the last MONTH now!! I have had them in 2 spots as well.. one in back and one on top of my head.. I had a clear MRI on Wed..  at that point, when I asked my Onc what it could be he just shrugged.. It could really be stress or the weather changes causing blood pressure to rise and fall..

    Hi to all the new ladies here.. Welcome.. Zap, I'm with you, it may take a while to respond to the right person...

    We had a great day today.. went out to eat and Gab was fascinated!! (remember we DON"T go out with her.. this is the first time since March).. She ate a ton and then took a long walk.. there was an antique car show in the parking lot and music.. So nice to get out finally now that my mood has lifted for now!!!

  • lago
    lago Posts: 11,653
    edited July 2011
    Madismommy719 Heat and humidity can give me headaches especially if I sleep in a room too warm. You might just be dehydrated too. Be sure to be hydrated. I assume you have mentioned this to your onc
  • ritajean
    ritajean Posts: 4,042
    edited July 2011

    Welcome momma2four.  I am from Bloomington, too.  It sounds like you have had quite a traumatic experience with your reconstruction problems.  YIKES!  I think you have every right to whine and complain. I'm a complete baby about things like that.  Still, I congratulate you on 10 cancer-free years.  That's really super!  Did you have your treatments in the immediate area?  I went out to the cancer center in Normal for mine.  I was diagnosed 5 years ago this coming November.

    Please keep us updated on your healing process and the upcoming steps in this most recent journey. 

    Come back often and tell us more about yourself.

  • illinoislady
    illinoislady Posts: 46,506
    edited July 2011

    Hi MaryRN....welcome to you and welcome to Wendy's fort.  We all wish you didn't need to be here but the welcome mat is always out.  It is a good place to hang out, get ideas or have questions answered, have melt-downs if they come  and feel comfort knowing that we are all taking this particular boat-ride together.  There is strength and unity in numbers.

    Long day but I'm ready to relax.  Had to go out this evening and buy Maggie a fan for her room.  I'm fortunate in that the Manor is on my home......so most days Maggie will be sure to have at least one visitor. 

    Knock on wood.....I've not been one to ever much get headaches --- very rare for me.....but I went through a spell with sinus one time when I was having them rather constantly if I didn't take my sinus meds.  I'm sure back then it was one of those that you have to sign for now, but I kept a constant supply going for about a yr. and a half I think. I bet I would raise some eyebrows if I were "using" as consistently now as I did then. 

    Have a restful evening everyone.  See you in the morning.

    Hugs, Jackie

    P.S.  I meant to say something as well about having a positive attitude.....and by itself really won't do much.  I think the value comes in because I believe when your spirits or attitude is UP, your a lot more apt to keep your ears and eyes open for things or new meds, that will enhance your ability to get well. You will perhaps ask more questions and have a higher willingness to search for answers on your own.  You might even find yourself somewhere like BCO.Org. 

  • Madismommy719
    Madismommy719 Posts: 377
    edited July 2011

    MakMak, great to hear your spirits are so lifted again....Sounds like you had a great day/evening tonight!!! Hopefully my headaches are something stupid, I would like to think with all the different diagnostic tests I've had since April that something going on in my brain would have popped up??? But anything seems possible to me these days....



    Lago, I have not talked to my onc yet about my headaches, but I also havent seen or talked to her in awhile as I've been waiting on this next surgery out here in the burbs first.... I'm going to mention it on Monday when I go for pre- op stuff though.....I wonder if it's a little bit of everything? It's behind my nose like a sinus headache and than maybe the rest is stress, not sleeping, my discomfort with my foobs, a culmination of it all.... BOO!!!



    Susan, FORTY bags??? I seriously would not be able to do that on my best day, at least not without a whole lot of whining at my husband!!!! I bet it looks great!



    Rita, my stepson leaves for ISU next month, maybe you can be my "secret spy" on him to make sure he's behaving!!! LOL. Who am I kidding though, that's where I went to school too....great times and NO behaving!!!! i only hope I'll be able to make the trek down there (it's about 2 hrs. from me) to move him in, I have a feeling my chemo will start a few days to a week before than....



    I'm off to try to sleep....I had a long day today, first day since BMX surgery that I was completely on my own with my daughter....and I'm exhausted. Not sure how I possibly think I'm going to be able to work a few hours on Monday?



    Nite everyone.....at least I'm not crying myself to sleep tonight??? :0)

  • wendyk13
    wendyk13 Posts: 1,458
    edited July 2011

    Morning! 72 on the deck already, very humid and hazy and actually a little foggy! Gonna be hot today and much hotter tomorrow...slight chances of rain next few days. I would really welcome some rain...grass is going brown and crunchy even tho I have been watering.



    Woke up this am myself with a killer headache at 4 but I know it's the weather. I am lucky that a couple of aspirin do the trick most of the time.....rain must be moving in!!!!



    Susan....40 bags??? Seriously???? Wow. Funny story about mulch tho....I have mulch beds around the house and up on the hill. I had a quote from my landscaper for refreshing the mulch and I said no way...I will do it myself. After carrying 15 bags up that hill and then calculating that I would need another 75 bags at least...I gave up. Landscapers are a good thing.



    Hope you all have a great Sunday! A quiet day for us...do need to make a Target run but that's it....stay cool!

  • illinoislady
    illinoislady Posts: 46,506
    edited July 2011

    A Chance To Start
    How often we wish for another chance to make a fresh begining.
    A chance to blot out our mistakes and change failure into winning.

    It does not take a special time to make a brand new start.
    It only takes the deep desire to try with all our heart.

    To live a little better, to always be forgiving.
    To add a little sunshine in a world for which we're living.

    Never give up in despair nor think you are through.
    For there's always a tomorrow, A chance to start a new.

  • illinoislady
    illinoislady Posts: 46,506
    edited July 2011

    Wendy....wait for me.  I want to go to Target too.  Oh how I wish we had a Target store a little closer around here, but have to go about 50 miles.....so you have to want,need, plan to go.  We do now have a Kohl's and I also really like that one.....but I'd like to have a Target as well.  Want, want, want.  I have not been happy with Centralia's idea of stores since K-Mart left town.  The Kohl's by the way is in Mt. Vernon.....20 miles away....at least that does not take a "plan".  You can just go

    Excuse me, but you probably all noticed, I left a word out a post or so back.  Meant to say that the Manor was on my way home.  I think faster than I can type -- nice to know in a way.  Most of the time I'm stumbling for answers....maybe I should try typing everything out. 

    Going to be hot and humid here.  Hot is ok with me if we just didn't have to have that drippy trying to walk through a hot, wet, sponge humidity.  Sigh!!!!

    Hope you all have a great Sunday....I'll be back later.

    Hugs, Jackie 

  • LisaMomOfFour
    LisaMomOfFour Posts: 226
    edited July 2011

    Count me in on the group of us who have been suffering headaches lately.  I never have headaches in general, but they do seem to be sinus related, I've been experiencing a low level of constant congestion.  One of the twins has been suffering with allergies this summer... never been a problem in the past, but she is now seeing an allergist, so I'm ascribing my headaches to this really rotten allergy season.  Plus, rads really wore me out.  I always feel groggy when I sleep for too many hours, and I am power sleeping like mad.  Fell asleep last night at 10pm and didn't get out of bed this morning until 8:20.  Vacation next week cannot come soon enough!

    Well yesterday my son turned thirteen, can't believe I have two teenagers now!  We had a busy day to celebrate... went to the Gold Coast Art Fair, let him purchase a small piece of art for himself, then back to the 'burbs to swing by Music and Arts, and get him his long coveted electric guitar (fortunately he likes jazz guitar, and not heavy metal so his playing is actually pleasant for me, he is currently working on mastering Brubeck's Take Five.....).   Then he also wanted to "eat as much ice cream as he could at one sitting" we went to Colonial Cafe and he tried his hand at  Kitchen Sink... basically a double banana split.  Oh, to eat like a kid again.....  he is a thin kid, even with all this......  

  • zap
    zap Posts: 1,850
    edited July 2011
    Embarassed Clarification.  DH and I did 40 bags of mulch.  He hauled and I cut and poured (like half of them).  I meant that WE did 40 bags and he did most of them and frankly, if we knew that area needed so many bags, we might not have  begun in the first place. This is the perfect example on why we should all know formulas for finding the area of a rectangle and having a grip on cubic feet.  But it does look goodSmile!
  • Madismommy719
    Madismommy719 Posts: 377
    edited July 2011

    Now that I know we all seem to be suffering from headaches I feel better about it!!! I'm still going to bring it up to my doctor. Do any of you question which doctor you should report things to? I feel like I have so many right now....so I end up questioning who needs to know! LOL



    So, I had a horrible night last night, just when I thought I was feeling better.....I woke up around 1:30 with major tingling/numbness in my left arm (cancer and SNB arm). Plus, instead of trying an ambien to sleep I took 2 Tylenol simply sleeps thinking it would help my headache....but woke up to my head spinning in circles and my arm going crazy.....WTH is that from? It feels better today but still kind of numb? I ended up putting a bed tray I used after my BMX across my body and putting my arm up on a pillow for the night..... Will I ever feel/sleep normal again?

    I'm glad I'm right handed b/c I feel like my left arm is paralyzed sometimes....



    I'm a HOT mess!!!! LOL....



    Hope everyone has a more productive day than mine is chalking up to be....my husband was supposed to go to the SOX game with a bunch of guys from his work but cancelled b/c he's worried about leaving me alone all day with our daughter. I feel bad but I'm glad he stayed home....



  • Char2010
    Char2010 Posts: 362
    edited July 2011

    Madisonmommy719 - I had a lumpectomy and SNB March 2010 and slept with my arm elevated on a pillow for a long, long time - arm would tingle and rib cage ache for a long time - at least ten months. Now feeling almost "normal". I also never know which doctor to call with what. I don't like my ob/gyn and will not go back (looking for a new one). I see my onc every three months so I have been bringing all my concerns to her so far.



    IllinoisLady - Really like your inspirational message today. Thank you.

  • Momma2four
    Momma2four Posts: 133
    edited July 2011

    Mahometmom...I have relatives in Mahomet!  Where are playing on Tuesday?  We live close  to the pony fields. I remember feeling "full" with my tissue expander...not very comfortable.  Yes there is always hope!!!  I know several girls that are even further out them me:)  Stay positive!!!

    Rita...I went to the Community Cancer Center and my Doc is Migas...he is a god in my eyes:) 

    This open wound packing is horrible!!!  I pray none of you ladies have to do it.  i never even imagined that taking out my implant would be so difficult.  Can't wait till all this is over!