Illinois ladies facing bc
Comments
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Madismommy719 I tell the doctor I think best fits. For instance when I got shingles I contacted my primary care. I could have contacted my onc though. Since I was still on Herceptin I did let her know.
When I got LE I first contacted my onc because I was on chemo. Her solutions was to exercise and wasn't in favor of me wearing the sleeve. When it got worse I contacted my PS (he was doing the follow up after my BMX not my BS). He sent me to the correct people and I got it handled.
Char2010 I just saw my new ob/gyn in June. First time I went to a guy. I don't remember if I sent you his contact info. He is great. Spent a lot of time with me. Good age too. Not too young and not old enough that I'll have to worry about him retiring any time soon.
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So, I wonder which doctor I should contact as I officially become 100% certifiably crazy??? Cuz I think it's coming..... LOL!!!!
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Madismommy719 - You call your friends and the girls on this site :-)
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Great answer.
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Sounds like everyone is experiencing headaches and arm aches...We have been doing alot of work here at home and my arm is killing me and headaches just enough to aggravate....I really think I just got overheated. We stripped off old indoor outdoor carpet off front steps and I stained it with a stone colored concrete stain but boy did I get overheated.....
Susan...wow that is alot of mulch....
Welcome to all the new girls..
Jackie I love the quote also...
Best to all facing issues.
Have a great evening ladies!
Nana Marsha
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This thread is GREAT, but if anyone ever feels they are going out of control, then contact a doctor and get yourself some help. If you feel you are spiraling down, tell a person who loves you and tell them you need attention. I was just contacted by a friend just diagnosed with liver cancer (not related to BC) and she called a psychiatrist as she cannot stop crying and is terrified. When asked if she felt she could "harm herself" she said no. She got an appointment at the end of the month!!!!! I told her to call back and say she is hurting so much within, that she needs an earlier appointment sooner and that if she didn't call, I would with her consent. CANCER IS SCARY, especially in the beginning. If you are uncertain as to how to proceed when feeling afraid, tell someone who loves you how you are feeling or PM one of us you trust. So many of us are years out of diagnosis and older, so that scariness is becoming a memory. Susan
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I agree with Zap. Friends and support groups are great but there may come a time when anyone of us needs professional help. I know I have moments when I wonder what I should do next. I read a really good article last year that I refereto every so often - it basically said that while we go through active treatment we are so occupied and surrounded by people that take care of us, that we manage - but once you are done with active treatment, it is almost worse from an emotional standpoint. Everyone expects you to get back to "normal" and you are left to confront your fears/worries on your own.
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Happy Sunday to all.....I hope everyone at a wonderful fun filled weekend. I spent my weekend boating on Lake Michigan. Went to the boat show at Bernum harbor . Talk about floating yachts...too big for me but beautiful to look at. lol Downtown was soo crazy this weekend. I had a wonderful fun filled weekend and stayed at a beautiful hotel but now I am glad to be back in the burbs. lol.
Speaking of feelings I do agree that if you are feeling out of control then professional help is warranted. Counseling provides us with the ability to voice our fears, cry,scream and rant if we want without being judged. If you are feeling that your are going over to the dark side, please call your md for help. We are here to help support all that post here, but please involve your md.
Welcome to all the new girls here. Come often to chat with us. We are at all different stages of tx some are still in tx and some are a few years out.
Lago...thought of you when I was downtown. Heard lots of police and fire trucks even up on the 20th floor. lol I was at Millennium pk when we had to evacuate because of a possible bomb. Never saw so many blue shirts in one place. lol
Laura...where were you downtown this weekend, the art fair, River walk??
Wendy... ahhhh the water was amazing and relaxing. got some get pics of Navy Pier / sky line from the water. Fire works at night ....sparkles in the sky....very colorful.
Rita...did your gs go home yet and you may need a vacation too. lol hope you made lots of good memories together.
Jackie....glad to see that Maggie is in a safe place now. Maybe you can rest too. Question how do you know if your dog has a tick. Labs have lots of fur and my poor baby is scratching all the time. I may need to bring him for a ck. I loved your quote today and thank you for your words of wisdom every day.
To everyone I missed I hope you are all doing well. Remember to be healthy..be happy and enjoy life. As for me it is jammie / tea time. Then off to the couch to veg.
Have a great evening.....
BJ
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Well.. DH left on business trip at 3.. Baby started crying at 3:30 unconsolably 'til 7.. threw up and went to bed with a fever.. Luckily my oldest is with me.. and I was so looking forward to relaxing and taking her to the movies tomorrow and Gab to daycare... SIGH...
Speaking of emotions.. having a bit of a hard time myself.. no sooner did I get the good news on the MRI do I start worrying about my scan.. My DH got very upset with me last night about it which didn't help..
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makmak - We live in this never ending, vicious cycle of scans, good news (hopefully), and scans again. Hard for anyone else (even those that love us) to understand.
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Hug to you Makmak! Sorry you are having a rough time. It certainly is hard for those that have not gone through this to understand.
BJ - I had a great weekend on our lake. The weather couldn't have been better for boating!
Back on dry land for work this week.
Hi to everyone!
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BJ I was at the Gold Coast fair myself today. Walked all the way from Watertower and back too.Walked through the fair and Millennium Park. My feet still get very sore ever since chemo. Can't wait till that stops. I'm assuming next spring.
Madismommy719 Seriously if you are having trouble feel free to talk with the BS, PS or Onc (who ever is caring for you at the time) and tell them. They will refer you to someone and/or give you something for axiety. Even my PS & Onc gave me a script for anxiety before surgery and chemo. I filled one and never used it but I'm strange. I didn't need most of the meds they gave me for SE. The SE I did get they didn't have meds for. But you know we are all here for you except Adey. She's on vacation right now.
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Momma2four....We have the same oncologist and I agree with your opinion of him! Small world,eh?
makmak...Your fears are so normal. Worry just seems to accompany this disease and only those of us who have shared this journey understand this anxiety. Hang in there. I'm the world's worst worrier! Hugs!
Connie and BJ....so glad you had a great time on the lake. We took my grandson out on the pontoon today to fish and only caught one fish and had just a few bites. I take him to the other side of Indianapolis tomorrow to meet his Mom. That's about a 3 1/2 hour drive. It's been a great week but I'm tired....a very good tired!
Well, I'm off to find my book. I don't think it will take long to fall asleep tonight.
Everyone have a great Monday!
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OMG, lots going on here. I checked in ad found that I'm 3 pages behind. It's been so busy around our house with our "kids" here with families the past couple weeks. So, they all left yesterday and my DH and I sat down feeling exhausted but ran off to a friend's party last night. And today... DH flew off on a trip and I have 4 days with a much quieter house before he returns. Ahhhhhh. But I do miss everybody terribly.
Wendyk13... loved the "fort" story. I guess my fort was in my bed with a box of kleenex and the prayer blanket that was given to me by my church ladies. Once I calmed down and quit crying, I would just stuff the earplugs in and listen to some guided imagery CD's that helped to put me relax.
Zap... I am so impressed with your mulching job. We get our yard remulched every two years, but have turned that job over to the professionals the past several years. DH always whines about how much that costs, but loves it when he sees the results.
Momma2Four... congrats on your 10 years out! That is tremendous, and hope that your reconstruction "redo" is going better. I had my exchange surgery almost 4 weeks ago and feel fortunate to have had no problems so far, although I know I am not out of the woods yet.
Lisa... I would love to eat like your son...the "Kitchen Sink". My son can eat like that too. I hope that you at least had a sundae to share in the celebration.
Madismommy... take it easy on your self. I had that same problem with my arm going numb in the night. I was concerned that I was going to end up with carpal tunnel surgery again. My PT even suggested using my old wrist splint. That did the trick for me and I continued to use it for a couple weeks, then it was no longer a problem. Not sure what was going on, but I no longer have that problem.
MaryjRn... you must be getting anxious to get your path report this week. Makmak... so sorry that Gabs is not feeling well again. Hope that she is feeling better in the morning.
I had planned to be in bed a long time ago, but just had to come here and catch up with all of you first... and now its getting late, well, at least for me. I will be up early to get in my morning cycling before it heats up again. I have a six month follow-up with my RadONC on Tuesday. Not sure what to expect anymore with that appointment. I was told that I would be coming back there every six months for another year. ????
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"Zap... I am so impressed with your mulching job. We get our yard remulched every two years,"
Joan. what do you mean every two years? We thought mulch was for life. My thighs hurt so much. DH and I thought this would be a quaint thing, a couples' thing a bonding experience we would forever treasure. We would sweat together and do the work much like our anscestors did and create a wonderful playground area for out grandkids. I HATE MULCH.
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Zap....you are way too funny.....but I must say....you give the most wonderful, down to earth advice. You just cut to the chase and laid it all out.
Saying hi to everyone.....I'm whipped for the day, but worked a little, searched for some stuff, made a meal, then visited a friend I hadn't seen for a while. They just got a new black toy poodle. Midnight is all of a pound. Such a tiny delight .
Bj.....you just have to look the dog over well. A lot of scratching could have dislodged any tick......cats often get rid of theirs.......but I would look your fellow over real well. I think Revolution takes care of ticks, fleas, heart worm, and ear mites. Cost a little more....but does a lot for your friend.
See you all in the a.m.
Hugs, Jackie
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Hi everyone!!! I think I'm recovering from my "funk" a little bit....oh, and Lago, Xanax is my friend already....the day after my "suspicious biopsy" my PCP had me come in to see her and she hugged me and said "do you need anything at all?" and I replied "Xanax STAT!" Except I haven't taken it really since surgery because of my vicodin.....but, I'm only taking about 1/2 a vicodin for any BMX discomforts so I'm thinking it's time to revisit my Xanax friend. I'm not ashamed!!! :0)
Tonight my DH told me he wants to do chemo a with me because "my pain is his pain" I looked at him like he was nuts, called his bluff and told him he wouldn't make it through the needle.... He means well but really? Than he said he'd shave his head bald too...and I reminded him he wears his head bald in the summer months a lot anyway.....he did manage to make me laugh.
I'm very jealous of everyone on vacations and/or lake houses and boating.... But I hope everyone had wonderful times!!!!
MakMak.....I hope your daughter feels better tomorrow....nothing worse than sick kiddos!!!! And I'll be thinking very positive thoughts on a CLEAR scan for you!!!!
I have a rejuvenating foot massage tomorrow with the cancer wellness center so I think after I might pop my head into one of their onsite counselors and schedule a 1/2 hr for myself before I start chemo in august. Although i think what I really want/need is a head to toe inside/outside exam, scan, whatever tests to reassure me every little pain or twitch isn't more cancer. I don't trust my body at all anymore..... Tonight I swear I feel an enlarged lymph node in my neck???? And my poking and picking at it was probably causing the enlarging and slight ache.... XANAX!!! Lol
I think once I get chemo going I'll feel like I'm doing something to get it out of me.....instead of just sitting around convincing myself of what else I have..... I bought myself some Sleepy Time tea and am sipping on it now....and none of my appendages are tingling....YAY!!
Zap it's interesting you mention telling someone who loves me, etc because I knew I had my lump for a few months and didn't tell anyone....and than finally I started to have a bad feeling about it so I brought it to my husbands attention and I was calling my PCP the next morning because hubby kept bugging me until I called.....i knew I wouldn't call on my own without someone pushing me to...I'm a chicken!!! So I informed him and he saw to it I went in.....and than it all went to crap. LOL0 -
Sleepy time herbal tea might be a new friend of mine now too.....I'll give my final review hopefully in the morning, when I wake up!!! Whatever is in it is making me calm and smooth....and ready for sleep!!!
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Morning! Just a quick drive-by...75 and oh so humid on the deck with strong storms on the way. I relish the rain, not the strong winds!
Madismommy....Char was sooo right! Post Traumatic Stress!!!! It's when we aren't DOING ANYTHING about our cancer that we can go "nuts". My time came after chemo/Herceptin and I was told that just to go out and live and be happy. On looking back those doc's were the ones who needed some help...you know, after I smacked them a few times! Glad the tea worked for you! It works for me except for the three trips to get rid of it all night!! Lol!
You boaters are soooo lucky! I am jealous!
Zap...oh Susan..laughing...I get my mulch redone every year! It's wood and disintegrates! But maybe you put down rubber mulch??? You can tho buy mulch dye, Joan, to refresh the color if you only do it every two years. It sure is expensive to do but I watch these guys struggling to get up our hill and know I can't do that anymore.
Time to go...just watching my strange neighbors, at it again. They used to just walk around the yard and spin around to sprinkle with the hose. So ....they finally bought a sprinkler head. Great. Except they walk around with it and of course keep getting soaked. Strange people....but entertaining
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YAY, my tea did work pretty good, I slept nonstop from about 11:30 until almost 5:00, it doesn't sound like much but it is!!!! I've been getting about 4 hours total each night, extremely interupted so I'll take 5 nonstop!!! Except I am super groggy at the moment, LOL!
Wendy, apparently your neighbors don't watch the news too much or they wouldn't be trying to sprinkle their lawn right now at all, it looks like there's some decent rain coming.....unless maybe they are doing it for your entertainment benefit? My neighbor behind me, we call her the "dog lady"..... Sometimes I wonder about her quite often. And the fact that she leaves her poor dog (that barks non stop) outside in her yard.....and I walked over to her house in driving rain once to ask her to take her barking dog inside and she slammed the door in my face. Rude.
If I can step out of this "fog" I'm going to attempt a couple hours at work today.....and than I have my pre-op stuff at Delnor at 11:30.... I was hoping to wait to leave my house AFTER the hail passes by, my car is safely inside my garage....and it has been for almost a month and NOW it's going to hail?
Ooooh, I hear thunder!! :0). Everybody have a great day!!!0 -
"Even though we've changed and we're all finding our own place in the world, we all know that when the tears fall or the smile spreads across our face, we'll come to each other because no matter where this crazy world takes us, nothing will ever change so much to the point where we're not all still friends."
Ralph Waldo Emerson0 -
Good morning everyone. We are getting ready for very hot and humid. !02 and humid. It is not going to be fun.
Mad....glad you are feeling a bit better. It is the pits waiting for your txs. to start and feeling like you have a wildfire inside and no firemen. I have heard ( and certainly believe it ) that we have had our tumors/cancer quite a long while before they are discovered. That statement never made me feel much different/better about the whole thing. I think rather it was my Dr. She has the sort of ambiance that just puts you at ease in a natural sort of way and her empathy for the whole situation was very palpable. If not for her I may have bankrupted the world supply of Zanax but did not need anything. You should feel a lot more in charge once you begin your txs.
I think your fellow is trying hard to be supportive even if he is not quite sure.....he is probably really scared. You gotta' love em' for that.
Mad....Wendy's neighbors are vampires and then it gets worse. They give a new meaning to " it takes all kinds ".
Hope our weather people were wrong.....but drat, probably now. I'll be checking in later on.....with a glass of iced tea in hand. I have a Mr. Coffee Ice Tea Maker that becomes my friend in summertime.
See ya all a bit later.
Hugs, Jackie
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Oh, man, got a call from my DD's neighbor that a tree came down and the power is off. So we are off to see the damage. They meanwhile are in Cape Cod on vacation.
I am glad Mad you are feeling better. Your DH sounds so kind and loving. Our loved ones can feel so helpless. Pretty soon you will be doing something and not just waiting, wondering and worrying!
Jackie, loved the messages. You just seem to know who out there needs a good one!
Susan
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Hi friends! Pretend I'm saying all the right things to all the right people cuz I was pages behind!
We were "on the lake" 6/30 - 7/5 mmmmmmmmm..... home 7/6 and then off to Portland, OR/Vancouver, WA (family reunion) until last night. I still haven't seen an LE Dr and have flown a few times with no sleeve. Hope I continue to be stupidly lucky! Friday we're off to Elizabeth (near Galena) for the weekend.
Warm thoughts to all. (c:
BTW... zap, I think, recommended a book Dancing in Limbo - making sense of life after cancer it was helpful in the I'm not bonkers area. (c: Oh, also, Snow Flower and the Secret Fan sooooooo interesting and Hunger Games a page turner, both will be movies soon.
Ciao!
LAGO!
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★ ☆ ★ Adey ★ ☆ ★
the sleeve thing on flights is still much debated for "at risk" LE people especially on shorter flights (2 hours)… although WA/OR not exactly a short flight but it's not like going to China. You may very well be fine. Just make sure you get up and walk a bit to get things circulating. Not everyone gets LE. Some people are just prone and other go through all kinds of treatment and never get it. Our onc doesn't like sleeves at least for early stage. She's all about exercise. I do both but I need the sleeve. I would have been in big trouble without it htis summer.
When is your exchange? Sept right.
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Yep... I dug that about Melody! It was a 4 ish hour flight and I feel fine. My exchange is set for 9/01. Although I'm thinking about looking into the your own fat instead of implants thing... probably wishful thinking... chime in anyone! I don't like the thought of having to replace the implants. So, I'll be making some calls to FL and LA. Weeeeeee...
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Adey some people have their implants for 20+ years. The implant companies will only guarantee them for 10 but that doesn't mean they need to be removed in 10. Exchange surgery is nothing like the BMX. You have your exchange put on your clothes by yourself (at least Joan & I did) and leave with a responsible adult. If I didn't have fat grafting done I would really felt very little pain. The gang beat in made me a bit sore for a few days. Oh and I don't get a long with generral anesthesia but I don't think most people are like me. Hopefully that will get better in the future.
I'm hoping by the time I need an exchange they'll have something even better that will last even longer. I wish true (anatomical) gummy bear were available in this country. I think I would have gone that route.
Yes I did read a lot about Dr. Khouri in FL. Followed that thread for a while back in the summer/fall last year. The Brava iron bra/corset thing seem like too much of a commitment for me though.
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Responsible adult...... crap! I was going to have my husband with me! (c:0
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I was thinking the same but my husband "looks" resposible so they didn't know.
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Adey.... Lago is right. I fly quite often between here and Seattle and have made the trip at least a few times with no sleeve and a few times without. Didn't make any difference. Not sure that thing does anything for me. Exercise and jumpiing on my rebounding helps the most. And the exchange surgery.... really a piece of cake. I did it twice already (PS wanted to go bigger after the first one
) and both times were just a minor inconvience compared to BMX. I have no problem with general anethesia though so I guess that helps. Shoot, they just put me in a recliner in the recovery room til the meds wore off, and sent me home with a gray haired DH that "looks" responsible too, but they didn't make him pass any test like the airline makes him take the "old man" check ride every six months! If they only knew that he NEVER makes a nonstop trip to the airport.... always comes back for whatever it was that he forgot. I have learned never to lock the door behind him until he's been back.Had to skip my morning bike ride with the storm that blew in. We mostly had very high winds and a little rain. The wind really thinned out a couple big old trees in the yard so I have plenty of sticks and branches to pick up when the weather cools off. Lots of neighborhoods lost power, but ours just flickered a few times. Now the humidity is TERRIBLE. Stay cool everyone...
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