Illinois ladies facing bc
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Hi Onward,
I live in Palos Heights and have heard of the Dr. I have heard good things, but a lot of the controlling LE when it is bad is to be diligent about the wrapping, which I am not. I recently went there for a support group that they do quarterly at Palos Hospital. I recently just got a custom glove and sleeve and also this other "apparatus" (for lack of a better word) to wear in place of the wrapping. I have done physical therapy a couple of times. My problem is that anything that helps the arm makes the hand worse.
I will bring these things to the party tomorrow and you can check them out.
Looking for to seeing everyone!
Lisa
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Well ladies.... bad news for tomorrow. I can't make it afterall. My daughter has a girl scout event and my DH has to work for someone that has fallen ill so I am on girl scout duty.....
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Boo. But enjoy the GS event with DD!
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Lemonsdrop I had the MRI on both breasts. MRIs can give false positives so don't panic. It's a good thing they are doing this. I had some LCIS (precancer) inthe other breast. Most of the time LCIS can't be seen in a mammo. LCIS is not invasive but I decided to do the double.
Madmom dislike your post0 -
Lago, I already had MRI on both breasts, but now they want another look, that is what is making me nervous! I am already wanting BMX, but thought it was just prophylactic on right, now worried that I have more cancer than I thought to deal with. Ugh. Just want to get rid of these breasts. Fast.
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Lago, I already had MRI on both breasts, but now they want another look, that is what is making me nervous! I am already wanting BMX, but thought it was just prophylactic on right, now worried that I have more cancer than I thought to deal with. Ugh. Just want to get rid of these breasts. Fast.
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Hi girls..well I just wanted to check in from the lovely hotel here and let you all know that I am going home late tonight so no fear your party director will be there!! Had to make a deal about leaving early but I am feeling so much better. Thank you all for your well wishes. I would not miss this for anything. Thank you to all my party elves who have helped when I was not able to. You are all so special to me!!
We will miss those who are unable to attend but will be there in spirit .
Back to bed....
Bj0 -
Oh, BJ, I hope you continue to feel better each day. Looking forward to seeing you again on Saturday
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madismommy... bad news
. We will miss you at the party. Hope that you will be able to make the next gathering.blackjack... great news
. It would not have been the same without you.lemondrop... NW likes to have their own MRI's so don't fret too much about that. Your experience there sounds just like mine.They are very efficient about getting your appts lined up... bing, bing, bing. I really appreciate that so much. I remember that Dr Hansen called the PS she was recommending for me very late in the afternoon and he stayed late that same night to meet with us and spent over an hour going through everything with us. I love that guy! We left there so relieved and even excited to get things going. Does that even make sense??
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BJ-glad to hear they're letting you out of the big house, hope your recup continues.
L'drop-your story sounds much like mine. Originally one spot, went for second opinion, including MRI, and found two more spots on the right and a malignant spot on the left. The myriad of tests, biopsies and appointments felt like it went on forever, but it was so worth it to get it all (hopefully) right off the bat. Try to be patient and keep your eye of the long-term goal of nabbing all that pesky cancer.
Adey/Lago-you gals crack me up
Sorry everyone can't make it tomorrow, but we'll have you in our thoughts!
Kelly~
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Okay, ladies! No one wants BJ to come to the party more than me....but I also want her to rest and regain her health.
With that in mind I am bringing my very old video camera so I can take soak in the scene in for any one unable to attend. I am thinking that some of you young ones may have a more modern camera. I would be happy to use the camera to "talk" and "listen" to Illinos Ladies so that those who are unable to attend, may feel a part of it all, while you socialize. I would also be happy to download the film and make copies for any one who wants a copy.
Perhaps this has already be planned. If so....never mind!
Susan
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Good morning! See you later. (c:
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Have fun everyone! Wish I could join in, but simply can't pull it off today. Will be thinking of you all.
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We'll miss you guys.
ADEY!!! see you later too
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Blackjack, you did it again....but even better than ever. The holiday party was wonderful. We are all so lucky to have each other. Now, dear woman, REST!
Thanks everyone. I loved seeing you again.
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Well the holiday party was again a big success !! Thank you to my party elves for all your help. I couldn't have done it without you all. Big hugs to you !!!!! Jackie..what can I say as I was sooo thrilled as we all were to finally meet our qoute lady in person. A big thank you to Rita for arranging this. It was so good to see you both looking amazingly healthy and beautiful as always. To all the girls who came I hope you had a wonderful fun filled chatty day. Jan, yes your $7,000 boobs were a big hit as always!!. Even Demtrie wanted to know all about them lol
To those who were unable to make it, you were their in spirit.
Well I am super tired now...so off to bed for me. Have a wonderful fun filled weekend.
Remember to be healthy..be happy and enjoy life.
BJ
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ALL I CAN SAY IS WOW! You girls are so much fun! And so funny...I could have hung out with you girls for another 3 hours! lol The party was absolutely fantastic. It was so much fun talking and laughing with you girls.I am so sad that everyone could not attend...you were missed.
bj - You truly are the HOSTESS w/the MOSTEST! Thank you so very much. Awesome job...and I am so glad you escaped from the hospital. PLEASE rest, rest, rest! And drink lots of JanClare's tea!
JACKIE - It was fabulous to meet you live and in person. You truly are an inspiration and a source of wisdom and whimsy. I will send you a photo of the group shot so you can fill in the space in the frame. It was nice to meet Illinois Man...LOL I am praying you make it home safely. You have lots of fur babies to welcome you.
JACKIE & RITA - Your journey was so appreciated and so special.
ADEY - The neck "thing"...I AM STILL LMBO!!! I wish we had that on video...LOL
ROBO - Your bald head is beautiful! You are so funny! And your attitude is great!
JAN - Your $7000 prosth demonstration...PRICELESS! Bwaaaaaaaaaah! Seeing the waiter run to close the door was hysterical!
Kelly & Corinne - The "newbies"...so nice to meet you. Glad you "found" us.
Linda - GLAD you stopped by...thanks for the healthy "treats"!
Can we do it again next weekend? LOL
I will post some photos tomorrow...
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A big thank you to BJ and her elves - what a great party and terrific group of women. Loved seeing all the gals I met before and meeting the new ones. You all look great !!!
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A super big thanks to BJ and her elves! What a wonderful day! I am so glad that I made it and that the weather cooperated! I loved seeing "the old ones" (is that what you called us, Susan???
and meeting the newer gals. Now get some much needed rest, BJ. You looked lovely but I'm sure you were exhausted by the time it was over!
Jan...I'm going to make a cup of that tea right now. I have heard about it and have never had the chance to try it. Thank you so much!
Also, thanks to the lovely lady who put the book light in the grab bag. I love it and I read every night. What a wonderful idea! Now who was that creative person? Thanks so much!
Good night everyone!
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What a party! So nice to see everyone healthy, meet the new gals and of course finally meet the Quote Lady in person. I'm with Laura… I could have spent many more hours with you all.
Missed Robo's bald head.
What's up with Adey's "neck" thang.
Those $7000 foobs had great looking nips/areolea didn't they!?
I also want to thank my "secret santa" for the great wax fragrance pottery. Will be picking up a display easal for it tomorrow.
Well off to pary #2 soon. For some reason I don't think I'll have as much fun.
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Hey General...good going!
At another party but just wanted to tell you all..life is great and dont ever forget it!
Rita/Jackie...thx for the long haul!
Amazing to look around the room and see so much life....because life is so worth whatever we need to to do to get there...and if you need help...hello!!!! We are here. .Always. Whenever we are needed.0 -
Thanks to all that coordinated this event. I am really glad I went and finally was able to meet many of you.
I'm with Laura--anyone ready to do it again next Sat?
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I am just so envious of you guys!!! Got out of class way too late to come but know you were in my thoughts more than what was going on where I was. : ( When servers are running out of the room, well, that's just MY kind of party!
TO THE ULTRA GIRL: I was in the store shopping when I ran into a friend of mine. We were talking about cancer and a beautiful women stopped by and said she was starting rads next week. I told her about us, so if you are reading this, get in touch with me. Just click on my name and it will bring you to an email option. I want to know about your Onc! Bless you for stopping and talking to us. : )
And Adey, hopefully since it is almost ten, you have begun packing. lol. I will be on my knees, praying for you. Count on it.
Love Onward
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Thanks to BJ and the elves for putting on an incredible party. I had such a wonderful time meeting so many incredible women and eating and laughing and sharing. I literally floated into my house I was so uplifted by all of you.
Bless you all. I look forward to seeing you again soon.
Kelly
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What a wonderful party and it was so nice to see the ladies that I've met in the past and to meet the others for the first time. Thank you to BJ and her party elves and for all the nice gifts. The room looked festive and everyone had a great time. Thank you for a great day!
I too missed Robo's bald head and Adey's neck thing
but I did see Jan's foobs!Please rest now BJ
and feel better soon.0 -
Sido, so sorry you are here. Have you looked into Johns Hopkins? They are having a trial on a vaccine. You may qualify. From the little i've heard it sounded promising. You never know what tomorrow will bring, none of us do, but a cure could be just around the corner. I know someone who has brain cancer and Northwestern developed a cure! The tumor is gone. Hang in there, we're pulling for you.
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Rita, were you on the 3 week or 2 week cmf protocol? I'm on 3 week but just read that the two week is 4% more effective. Sloan told me that they suspected it would be more effective but there was no proof but the susan Love book said there is proof. A person could go crazy with all of the conflicting info.
I went for the first infusion at Lutheran General on Tuesday. The nurse told me she would give me sterioids. I told her that the sloan dr said no steroids for me, i am pre diabetic and have terrible blood pressure problems. she pooh poohed that and gave it to me anyway! How does a nurse get to make such a decision? I went home and almost ran to the er. I felt as though I was having a heart attack. I never had heart pain before. My blood pressure went through the roof.
Now my husband is so angry he wants to go back to MSK. I have hunch that the MSK dr wanted me on cmf in part to avoid the steroids. When i told the dr here what happened he was shocked and said "no steroids for you!" I wish he'd said that sooner. Something really bad happened but I'm not sure what. Anyway I'm glad I survived! Very scary though. But then being scared is becoming the new normal for me.
Sorry i missed the party. With the infusion on Tuesday I was wiped out. Besides, my wbc is down. Glad it went well though.
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Rita, were you on the 3 week or 2 week cmf protocol? I'm on 3 week but just read that the two week is 4% more effective. Sloan told me that they suspected it would be more effective but there was no proof but the susan Love book said there is proof. A person could go crazy with all of the conflicting info.
I went for the first infusion at Lutheran General on Tuesday. The nurse told me she would give me sterioids. I told her that the sloan dr said no steroids for me, i am pre diabetic and have terrible blood pressure problems. she pooh poohed that and gave it to me anyway! How does a nurse get to make such a decision? I went home and almost ran to the er. I felt as though I was having a heart attack. I never had heart pain before. My blood pressure went through the roof.
Now my husband is so angry he wants to go back to MSK. I have hunch that the MSK dr wanted me on cmf in part to avoid the steroids. When i told the dr here what happened he was shocked and said "no steroids for you!" I wish he'd said that sooner. Something really bad happened but I'm not sure what. Anyway I'm glad I survived! Very scary though. But then being scared is becoming the new normal for me.
Sorry i missed the party. With the infusion on Tuesday I was wiped out. Besides, my wbc is down. Glad it went well though.
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Morning! It is a balmy 51 on my deck but still dark. 51? That's waaaay too warm so now I am worried about what is to come!
Yesterday was wonderful! That's about all I can say! So wonderful meeting the new girls. Seeing "old" ones! Lol!
BJ....you are terrific. Susan was right....ur dd's wedding will be something to witness!
After we left DH and I tried to go to the mall. Yikes! Busy! So we went over to Wildfire so he could grab something in the bar and it was standing room only. Went w on Golf to Chammps and nope! Packed! Went back near home and picked something up and called it a night. Boy Schaumburg is a busy town....
And don't forget....we have invited ourselves and our dh's up to Fox Lake next summer for a day on Mich101's boat....ALL OF US! Lol! Now that would be interesting...
BD party for us later and then a quiet evening...I will be all partied out! Happy Sunday!0 -
Appreciation is a wonderful thing; it makes what is excellent in others belong to us as well. -Francois-Marie Arouet de Voltaire (1694-1778)
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