Illinois ladies facing bc

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  • joan888
    joan888 Posts: 711
    edited April 2012

    Zap, I got the email also. Knew what it was right away so just deleted it. My DH's email got hacked a few weeks ago soon after he used a public hotel wi-fi. Then he tells me that he had NEVER changed the password on any of his accounts. Yikes!



    I took a huge nap when I got home. I was sleeping so hard that I felt like I was in another universe when I woke up. Decided to just stuff these drains under a cami for now but am using a couple lanyards to hang them from. Westie.. You did both sides at same time? How many drains did you end up with? I am still debating whether to sleep in bed or in a recliner. Better come to a decision soon as I am about to nod off again.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2012
    Be Content with what you have;
    rejoice in the way things are.
    When you realize there is nothing lacking,
    the whole world belongs to you. ~~~~~  Lao Tzu
  • westieluv
    westieluv Posts: 245
    edited April 2012

    Lago ~ My Westie is a spoiled rotten girl.  She'll be 12 in September.  She has slowed down considerably in the last 2 years, but these dogs have energy and love the outdoors.  She's an inside dog, but I live in the country on 9 acres of woodland, so she has plenty of area to run, dig and come back a dark, ugly dog.  I trained her early on to hop in the shower with me.  It's easier to give her a bath that way and get her back to her brilliant white color.  I just love this dog.  If I can figure out how to post a picture on the forum, I'll post one of me with her.

    Joan ~ I came home with 6 drains total.  Three on each side.  It took about 3 weeks for me to get them all out.  Since trekking up to the city is such a journey for me, I removed the last ones on my own.  Wasn't hard and I was ready for them to go once their jobs were done and the output was very low.  It was a relief.  Really, the drains are the worst part.  Hang in there!

  • westieluv
    westieluv Posts: 245
    edited April 2012

    Off to work in the flower beds today.  I have about 9 mums to transplant from my perennial garden bed.  More seeds to plant in the perennial garden and I have tons of potted plants to fill with annuals.  I just love spring and working in my yard.

  • spunkyboobster
    spunkyboobster Posts: 563
    edited April 2012

    Hope everyone's having a wonderful Saturday. I attended a great plant-based cooking class this morning-complete with samples, yum! Not sure what weird weather's on the way, but going to get the dog walked before it hits.

  • zap
    zap Posts: 1,850
    edited April 2012

    Joan, I would not have known to change my passwords unless I was told to do so.  My SIL  is into tech Internet security at Morningstar and he says we should change our passwords every 3 months and not use names or ages as they sort through it until they get a hit.  Every three months will be hard for me to do.  Glad you are feeling better.

    Spunky ,you do lots of fun things.  Are you working now?  The cooking class sounds like fun.

    Take care my dears!

    Edited to add that Robo, I can see you being a model.  You remind me of Savanah Guffrey, the news lady on NBC (I think it is NBC).  She is gorgeous!

    Susan

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2012
    "Problems are to the mind what exercise is to the muscles;
    they toughen and make strong."
    Norman Vincent Peale
  • lisak7290
    lisak7290 Posts: 103
    edited April 2012

    Well my left  foob is leaking but my PS says its not going to harm me...I go in May 3 for the exchange.

    I was hoping for another fill but he says that my skin is streched enought already..

  • lago
    lago Posts: 11,653
    edited April 2012
    Lisak I doubt one less expansion will make a difference. I bet you look great once you have the exchange… in 2.5 weeks!
  • lisak7290
    lisak7290 Posts: 103
    edited April 2012

    TRue..Just think my last chemo is April 24th I have the exchange May 3 and go back to work on May 7th...

    I'll be done with all the Cancer stuff before I turn the BIG 40!~!! 

  • zap
    zap Posts: 1,850
    edited April 2012

    That is positive attitude, Lisa. We love "all over" thoughts.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2012

    ****Go Lisa****

    Hugs, Jackie

  • LisaMomOfFour
    LisaMomOfFour Posts: 226
    edited April 2012

    One more surgery over and down with....  had a revision yesterday to left breast, to match the right breast.  I actually preferred how the left one looked, as did the PS, but the right one had radiation so we won't touch that one, we fixed up the left one.  

    And soccer season started, so ridiculously busy I got off the table Friday afternoon, drove kids around to various performances and practices until 10pm Friday night, did the same thing all day yesterday, including a Wolves game until late into the night, then this morning, more soccer.  Came home to find my teenagers STILL ASLEEP,  they need to be at play rehearsal in twenty minutes, still can't get my fifteen year old daughter out of bed, so my husband just went upstairs with his trumpet, and he is serenading her awake (along with the 11 year old trombone player....).  

    Very entertaining weekend indeed... is this what my PS meant by "taking it easy" for the weekend?  

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2012

    Bet he has no idea how "easy" you are on yourself........I sure look up to you. 

    Hugs, Jackie

  • smerf
    smerf Posts: 476
    edited April 2012

    LisaMomofFour, I'm exhausted just reading about your weekend! Hope you get a chance to rest when kids go to school tomorrow. I well remember those days of sleeping teens, and endless driving to events. I applaud your abilities to juggle everything, and not sure i could have done it.  Though Moms do seem blessed with superhuman strength!

    I think the trumpet is a great idea, and maybe someone should play it for our doctors so they can wake up to our real lives!

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2012
    "You must give some time to your fellow men. Even if it's a little thing, do something for others - something for which you get no pay but the privilege of doing it."
    Albert Schweitzer
  • illinoislady
    illinoislady Posts: 46,506
    edited April 2012

    Think the rain is gone....and the storms as well.  Hope we stay a bit more even now.  No matter how many times you see it, it is hard to look at the pictures of the mid-west.   Also hope and pray none of you have friends or relatives that might have been involved. 

    Worked in my house the whole week-end and feel good about what I accomplished.  It's never quite enough, but that is ok.  Nice to continue to have projects to keep me busy.

    Hope you all came through any rough weather well.

    Hugs, Jackie

  • lago
    lago Posts: 11,653
    edited April 2012

    Wow quite windy today. Decided not to power walk through the park. Didn't want to get hit by some "tree kill". Went to the gym for the first time since I went through chemo. Elliptical was a bit more challenging but I'm faster on the treadmill.

    But my car was blowing all over the place. Be careful out there.

  • hawk
    hawk Posts: 255
    edited April 2012

    Wow - only windy but the temp really dropped from when I got to work to lunch.

    LisaK - love your attitude!!!!  Yay for almost being done!

  • zap
    zap Posts: 1,850
    edited April 2012

    Lago, the winds were so eerie.  All my little seedlings look so weak.

    A friend of mine suggested a pro-biotic (capsules) that she said are miracle workers for IBS.  I looked them up and $159/bottle of 90 pills.  That exspense is enough to aggravate my IBS.  I have the yogurt stuff you get from the dairy section of Jewel?  Any other suggestions.  I am trying the Lexapro again.  I am splitting pills in half to deal with the side effects.  I feel I am a crazed pharamcist. I think it is interesting how many of us have IBS.

    Hope all are well.

    Susan

  • KristinFro
    KristinFro Posts: 96
    edited April 2012

    Had my last Taxol treatment today! I'm moving on to DD AC on Monday, which is freaking me out, but I'm done with Taxol! Yay!

  • lago
    lago Posts: 11,653
    edited April 2012

    Zap I don't know if we have the same issues even though we have IBS. I do find mixing in the NutraFlora powder the probiotic yogurt works really well for me. It does come in pill form but I prefer the powder. I only use 1/2 teaspoon but I may up it to 1 per day.

    Kristin  you're 1/2 way there! Just remember that most that post will discuss how bad things are going. Those folks that didn't have such a hard time don't post about that. I didn't have AC but I know if I created a thread on bc.org "I have no nausea on chemo" it could have made a lot of women feel badly. It's one thing to mention it in a thread but to start a thread like that seems in bad taste.

    But posting "I'm puking my brains out please help." is something that one would  and should post. My point is many do fine but you  just don't read about it as much.

  • KristinFro
    KristinFro Posts: 96
    edited April 2012

    lago: I had a long talk with my nurse today about that very thing today. I realize that what I read on a forum is the good and bad ends of the spectrum, not the 90% of people in the middle. I'm just going to take a deep breath and see what AC brings me. All I know is that I have to do everything possible to take care of this!

  • LisaMomOfFour
    LisaMomOfFour Posts: 226
    edited April 2012

    Kristin -- I found Taxol to be harder than AC.  I had deep bone aches on Taxol, sidelined me for a couple of days every cycle.  AC, well I felt kind of "off", definitely fatigued, but had no nausea at all, and didn't miss anything, went to work every day, attended every basketball game, concert, etc for my kids.   Hopefully you'll find it similarly tolerable.  I did the reverse order, did taxol after AC, and taxol hit me like a ton of bricks!  

  • doxie
    doxie Posts: 700
    edited April 2012

    Jackie,  I had a lot of family in the path of the storms that went through OK and KS on Sat.  Thankfully they are all ok.  GrandmaV on this forum barely missed getting hit by a tornado in Wichita.  But that is what it's like to live in Tornado Alley.   

     Ok, I have something a bit weird going on.  It's along the line of the above conversation. I really can't complain about this.  Before chemo I had lovely graying long straight hair.  Was my trademark look.  I was flaunting the gray.  Now it's barely an inch at it's shortest on top and much whiter, starting to curl, a very unfamiliar texture.  I went w/o hats and scarves as soon as it was 1/2" long prompted by the 80 degree weather we had in March.  Anyway people love this strange hair.  I get constant compliments from strangers who have no idea I've had chemo and friends and colleagues.  What do I do, keep it 1" long until it gets past the brillo stage?  How long does it take for the curl to grow out?  Really pathetic to complain about this.  

  • C-squared
    C-squared Posts: 338
    edited April 2012

    KristinFro~ I unfortunately just lost a response that I was typing to you.  The short story is.., I'm right there with you..., I'm starting AC this Thursday (after having completed 7 Taxol) and I am frightened!  I also strongly agree with you and lago that we are sometimes exposed to the extremes here on the boards.  I am acutely aware of this in light that I am also in the stage of gathering information about reconstruction.  I have met with both PS and GS but am so hesitant to make a decision based on some of the information that I have read on these forums.  I wish us all peace in our decisions to do what is right for us and the strength to get there!  AC sista!!!

  • doxie
    doxie Posts: 700
    edited April 2012

    What worries me about these forums are those who are so terrified by the worst case scenarios they read that they forego needed treatment.  It's also eye opening on how diverse are the  recommendations from their drs.  Of course we can't know all the details, but I'd run far away from many of them.  Not everyone is so lucky to have the options we have living in a large urban area.

    Hang in there Kristin and C-squared.  Let your chemos nurses know your worries.  I found mine to be particularly caring and helpful.   

  • lago
    lago Posts: 11,653
    edited April 2012

    Doxie I too had beautiful straight silky hair before chemo that I wore in a pageboy. After chemo there was more gray and the texture was different. More wave and frizz, less shine. I kept it short since I didn't want to deal with fighting it. About 1 year PFC my old texture and shine is almost 100% back. I'm still keeping it short though because it's so easy and seems I can pull it off.

    I also see the same things Doxie. Not everyone gets good care/excellent doctors like we all seem to be getting on this thread! It's so nice to have choices of so many good ones.

  • Adey
    Adey Posts: 2,413
    edited April 2012

    Good morning.  Hope you all have a fantastic day.  Hugs.

  • invisible2
    invisible2 Posts: 70
    edited April 2012

    Hey Good Morning everyone!  Today is my next core biopsy.  The last one hurt a bunch so I am hoping this one will be less painful. 

    The results of this biopsy could mean the difference between lumpectomy and mastectomy.  The small nodule was found on MRI and is in the same quadrant as the lump biopsied back in February.  If this nodule is malignant the BS feels it's too far away from the other area to get a good cosmetic result. The MRI also found another area of concern but the BS feels it's close enough to the tumor already biopsied.

    I used to think I would opt for a mastectomy no matter what.  When faced with the reality I find it's not as black & white as I thought it would be. 

    I will get the results of my BRCA test tomorrow.  I really doubt I will test positive....but as we all know: fear can warp intellect & logic...especially at 3:00 AM. 

    All this time (DX on 2/27) I keep thinking that each step will be my last and I will finally have a plan.  I need a plan.  I feel rudderless without one.  That said, each of you has helped me navigate without that rudder.  The long dark alley has small lights held by each of you.  Without those lights I would have felt completely alone.