Illinois ladies facing bc
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Joan so sorry about your fall!!!
Anyone have any ideas....... Friend on Herceptin and just started Tamoxifen. Depression back rearing it's ugly head and very decreased appetite. I am hoping to help her with the appetite thing if you know any tricks.
Hope everyone is having a blessed day
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Just popping in out of my lurk status to say that as of yesterday, I'm done with chemo! I'll be doing the happy dance this weekend once I'm able to get out of bed!
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KristinFro time to do some dancing in the street0
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K-Fro Woot! Lago how about Shake your tail feather from Blues Bros?
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WooHoo KristinFro!!!!
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but I only post one dance per completion. Maybe next time. 0 -
Thanks, ladies. And lago, that 'next time' will have to be for someone else, not me!
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Boo! My links don't usually work but here goes..............
Neener, neener! (If it works)
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KristiFro.... congrats on finishing chemo! Did you think it would never end? Hoping that your SE's are manageable this week and then onward! Speaking of Onward.... where the heck is she?
Samedaynurse.... I was like Rene with the DEXA scores plummeting after a year on AI's. Certainly has me worried. My hip score was -2.4 and osteoporosis is -2.5. Yikes! Almost there. My ONC is considering treatment with biophosphonates, possibly the newer drug, Prolia which is an injection every six months. I have been doing some research and I talked to my dentist about all this a couple weeks ago. These drugs have that nasty possibility of presenting jaw necrosis. My dentist says that he sees the most problems with the drugs that are given through infusions rather than twice yearly injections. I am closely monitoring my Vit D levels which my ONC checks on my 4-month follow-ups. I also take high dosages of Calcium and Vit D3 tabs. So, yes, in the process of fixing one problem, you just keep creating new ones.
Hope everyone is enjoying the beautfiul day. I love summertime. The boot that my ortho sent me home with yesterday is going to mess up my tan lines. One white leg, one slightly tanned leg.
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Congrats to finishing chemo, I remember how good that felt last year! Hope you are doing something fun to celebrate.
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Hello ladies - I am freaking out again today. I am sitting in my internal doctor office, I feel like I need a higher dose of Lexapro, I am on 10mg, right now. I feel like every pain or twinge is a met. I know this is a normal fear to have, and I have had a chest CT about 6 weeks ago which came out clean.
I am looking at my skin and I feel like I look pale, I am Greek I am never pale! I have also had a bloated feeling and strange pain that comes and goes on my sides. I saw my onc last week and she says I am doing great! Why do I not feel like I am doing great? She also did the regular blood work up for kidney and liver along with CBC, which she does once ever 3 weeks, right before my TCH. I have not received a call from her about the blood work, if there was something wrong I am sure that would've called me.
Does anybody else have this sense of dread? Just asking cause I am also afraid I am loosing my mind!0 -
Roula before surgery I met with a PS that was ready to put me in a straight jacket. I was a bit freaked out. Thought the tumor was attached to my chest wall yadda yadda yadda. Yes we all had our freak out moments (more than one) but it does get better. When you're in treatment that's all you think about. All the what ifs. It's all so new and the bad stuff seems to pop out more than the good stuff. Chemo makes you feel strange even if you don't get bad SE. Surgery makes you feel crappy too. I know my legs would blow up no matter what they did to me. Tummy bloat too.
I think the only reason why I never looked pale is I wear a powder bronzer AND blush
I was always one of the, if not the healthiest looking person in the treatment room thanks to Lancome and Bobby Brown.Hang it there. No reason to worry until the give you a reason to worry.
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Kristin congrats!
Looking for new breast surgeon. Two names were given to me. Dr. Mary Ahn and Dr. Thomas Tomasik. Has anyone dealt with either of these physicians?
Robo, thanks, yes she is on antidepressants and they have even changed her dose. Whatever she is on they just increased it about 6 days ago. I told her that it may take awhile for it to kick in. She worked so hard this last Spring to get to a better place emotionally it breaks my heart to hear how down she is again. She is in New York state.
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I found a wonderful Breast Surgeon at University of Chicago, Dr. Song. I wish I would have know about him when I first did reconstruction. It takes awhile to get into see him, but he does wonderful work.
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Yay Kristin!!! So glad to know a celebration is on the horizon! I hope you are up for it soon. My onc was kind enough to pump me full of fluids today, just in time for the "crash". He has me scheduled for more IV fluids Thursday morning too. I'm not necessarily looking forward to BMX but ready to put the chemo fatigue behind me! One day at a time.
CC
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Roula, Yes we all freak out about different things. Mine is mostly related to these tissue expanders. I was sure they were giving me another blood clot. I had my clotting time tested yesterday and my coumadin seems to have stopped working?? Then I read in another forum about people's breast exploding and implants popping through and I was sure my radiated skin was getting too thin. Strangely, I never worry about mets. I have had cancer for 20 years and I just stopped worrying about it. They watch me and I'll know if and when it recurs or spreads - I figure there's nothing I can do but try to live a healthy life. I did freak out when I found the lump in my breast but was then strangely calm when they confirmed it was cancer. Surgery scares me more than cancer and I can't wait to have it all behind me.
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KristinFro-Yippee!!!
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KristinFro--I am doing the happy dance for you--congrats! #3 for me Thursday, #4 and final one on 6/28--God willing!
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Roula....Lago said it all really well. No one relaxes when you get a diagnosis like this and are going through all the stages of finding help, setting up schedules and doing testing. All of this is new and like most things that are new you feel SUPER apprehension over most anything. You will get past it all -- but and find a place where you can co-exist with what you have to do.
I'm sure as well that you would have heard from your Dr. if your tests revealed anything she did not expect to see.
Kristen.....way to go. It is a fantastic milestone to get done.
kg --- can't wait for your congrats either. Hope this time passes fast for you.
Hi to Deborah, and Adey....the link worked just fine here.
C-squared....hi as well.
Need to get washed up for bed......see ya all in the a.m.
Hugs, Jackie
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I did it!
'nite
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Good evening ladies. It has been a very interesting day to say the least.
Lago, Debora and Jackie- thank you again for listening to me and helping me thru some difficult moments. That is not to say that I won't have any more of them. Thank you again.
So back to my interesting day. The pains I was feeling, wasn't mets. It was my period. I haven't had my period since my first TCH, which was 7 weeks ago. Tonight I had "breakthrough bleeding", I was told that I probably would not have another period at least until I was done with chemo. But I believe because my chemo had to be postponed last week my body took it as an "all clear". Or at least that's what I think, I will call my MO in the morning to confirm, that the pain was probably cramping. I hope that is what it is :-)
My internal med dr also increased my Lexapro today. Yay! One way or another I will get thru this.
Have a wonderful evening.0 -
Our opportunity is always to make the choice for Joy.
To see the world with new eyes - open eyes - loving eyes.
To choose compassion and understanding -
for ourselves, our family, our friends,
our community, for the whole world.
- Jonathan Lockwood Huie0 -
Roula- You can do it!
Lady- I'm counting.........
Morning all.
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Lynn27- Good luck tomorrow! Sounds like you are in good hands and we will all be sending positive vibes your way!
CC
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ooooops! that's good luck Friday.., I don't know what day it is - lolololol!!!
CC
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Hi Ladies, I post infrequently, but check in routinely to see how everyone is doing. My Mom is doing well, she is done with her A/C since Jan and is trying hard to find that new normal after treatment. She is relishing each day though and enjoying sweet time with her grandkids. I have one more fill appt and then will have my exchange surgery sometime in August. Here's a picture of my sisters who did the Avon Walk in Chicago this past weekend for all of us...
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Lynn27- Prayers and healing vibes will be coming at you during your surgery on Friday.
Calico1- Hi and yay for sisters! I did the Avon walk twice way back when it was still a 3 day and Komen hadn't taken it over yet and they had to change it to two. Before either my mom or me had been diagnosed. Serendipity-do-dah!
Grammar, smammer, sorry teachers!
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Hopefulhealing, Dr. Mary Ahn was my breast surgeon for my uni-mastectomy. She is WONDERFUL. The entire office at Advanced Breast Care is great. They were highly recommended to me from a physical therapist at CDH who works with LE patients. I had an awful experience with the gen. surgeon that did my biopsy at CDH that my GYN had referred me to. After that, Dr. Ahn was like an angel from heaven! She's very gentle, calm and kind. She really looks you in the eye and makes eye contact while speaking and answering your questions.
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Hugs to Calico
Jackie
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What a wonderful recommendation.
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