Illinois ladies facing bc
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Great news, Beata! Sending positive thoughts for a quick and full recovery. Rest.
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Such great news Beata!!!! Take care of yourself and let others take care of you too!!!
DeborahC- hang in there with the expanders- I was lucky enough I didn't have any pain with mine and had an easy exchange. You will be amazed at how good it feels to get the "coconuts" off your chest!!(My doctors words!!)
Hang in there!!!!Kelly
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Do not lose your inner peace for anything whatsoever, even if your whole world seems upset.
- Saint Francis de Sales
At the center of your being you have the answer; you know who you are and you know what you want.
- Lao Tzu0 -
What a pretty day.....cooled off a little. Still concerned about our not getting any rain as we look like it is late in the yr. Well, maybe one of these days. Going to have to hook up the long hoses though today to get to some of the plants that will surely wilt down very soon.
TGIF but I'm working tomorrow half a day.......well, that is ok. I'll still have plenty of time left to accomplish things. Hope you all have a great Friday.
Hugs, Jackie
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Beata~ You're strength will indoubtedly get you through this! Glad to hear that the BMX went well and that you are home (where the heart is) and hopefully resting peacefully. I'm right behind you in a couple of weeks (7/5). Be sure and pass along any advice you may have for me!
Hello to all the ladies on this beautiful Friday. I just returned home from a follow up CT and initial PET scan. I am keeping my fingers crossed that results will be "clean". I have my pre-op physical with PCP on Monday and pre-op consult (follow up) with general surgeon. The day is drawing nearer and I am becoming anxious. Thank goodness for Lorazepam!

Has anyone had issues with skin peeling on hands & feet? If so, how did you treat it? I have a feeling it just may have to run it's course. Yuk!

UNdoubtedly..., I CAN spell - LOLOLOL
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So happy to have discovered this board! I only wish I would have found it sooner. I am in the home stretch (finally) with my last "big" chemo coming up July 6th. I am soo ready for this to be over. After July 20th I switch to herceptin every 3 wks and will start radiation in August. Sigh.. The journey seems so long but this seems like a wonderful supportive board. I wish you all the best in your journeys and look forward to hearing from you!
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A big warm welcome to you Diane. I am so glad you stumbled onto us. There are so many great friends here who are not only all around great hand-holders, but also fantastic at helping you gather any information you may want and answer most of your questions too.
Glad to hear you last chemo is soon to be over. It is something you are so glad can help you in your fight but is a blessing to "give" up too. Radiation is ( for the majority I think anyway ) pretty boring. You go daily for a few weeks.....and it usually takes longer to get dressed, ready and positioned on the table, then it does to get the "rays".
Everyone in Chicago and surrounding burbs tries to get together and have lunches and I think on occasion a dinner meal. So keep that in mind. Also Laura GTO keeps a list of you name, screen name, phone, address etc. and if you give her your info she will make sure you get notifications of all the get-togethers though it is also posted here as well. Just something to think about......your under no obligation, but a lot of us are on the list.
I'm on late tonight......and don't know but it may be quieter now....so keep checking.
I'm going to work early tomorrow.....so won't be here again or have a quote until tomorrow afternoon sometime. See you all then.
Hugs, Jackie
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Diane welcome! Speaking for everyone else, there is a depth of knowledge and understanding here that is amazing. It is so great to question and vent to folks who are not only supportive, but they KNOW what you're talking about - they've been there.
I'm officially drainless and can begin arm exercises. Holy cow, am I stiff! I'm limited to picking up 10 pounds, which is pretty limiting (come one, doc, a laundry basket is more than 10 pounds), but I have my arms back. Twinges in my breasts as the nerves come back on line. The swelling is much better, which is a lot more comfortable. I'm waiting for the last of the steri-strips to come off to get an idea of how bad the scarring is. The PS pulled off all the old ones and replaced them and so I have to wait a bit longer to really see what is under there.
Is the weather perfect enough for you?
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CT & PET came back clean!!! My oncologist was kind enough to call last night (instead of making me wait until Monday). Now can I do a happy dance?
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C-Squared: Yeah! Good for you! Try to enjoy your weekend now! What a nice MO you have!
Lynn: Congrats on being drainless. Yes, this weather is great. My DH is at a dirt race near Milwaukee and it looks to be a near-perfect day!
Diane: Welcome! There's is another forum you might be interested in joining as well. I think it's call the summer rads group. It was just started this week for those with upcoming radiation dates. My last tx is this Thursday, June 28, so I am hoping to start rads (to get them OVER with) end of July. This is a great group of knowledgeable, caring women.
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Hello everyone. I am trying to catch up. I have limited computer access during the week so I have trouble keeping up. Glad the hot weather passed and we have this lovely weather now. I wanted to add a couple of comments on some threads I saw.
First, congrats C-Squared. Wow I know that makes for a good weekend for you, and thank god for caring doctors that go out of their way to reduce your worry. I saw several pages back that you would like to walk at Independence Grove. I can do that with you if you would like. It looks like you may be having your surgery soon, so PM me if and when you are ready. I would have to walk evenings - 4:30 or after and weekends of course.
Westieluv, no there is nothing wrong with you and I don't think it has to do with the meds. I had the same feeling a few years ago before my BC and before tammi. My son had an emergency trip to the hospital, 10 days in the hospital and surgery and when i came back to work I felt it was not worth it. While his doctors and nurses were saving lives I was doing nothing meaningful. Then after BC, I initially felt like the same person when I went back to work, but after a few weeks I had the same emptiness. The way I cope is working on projects with other groups in my company that do make a difference. I work with our foundation and am part of a group that helps people with disabilities. In between I still have to do my mundane, meaningless work, but I notice I'm really happy when I'm doing the other stuff.
Lynn, they told me not to do laundry for four weeks. That was one of the specific things they mentioned. Let someone else do it. And whatever scars you have will look much better several months from now.
Food and diet: Coffee - not too long ago they indicated that coffee is good for ER- cancer. Even though I'm ER+ I decided to continue drinking it. Broccoli, celery, parsley are supposed to be good. I wish I liked celery better but I do love broccoli. In the end, I think eat lots of fruits and vegetables and try to be a normal weight. Other than that, there doesn't seem to be a strong correlation on diet. Concentrate on exercise. That really does show good results to prevent cancer recurrance.
Oh and the other thing I wanted to mention is there is a study on IL Lady's chocolate cure and they confirmed that it may be able to be used instead of statins. Of course as they always say -more research is needed but if my cholesterol goes up (do have strong family history) I am going to try that first. Right now I'm avoiding chocolate and sweets because they are interfering with my weight, so I'm afraid to eat the chocolate.
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Dianefight welcome from another triple positive stage IIB gal with lefty disease. We got the same cocktail too. Geeze you are way too young. I too didn't want to play in the sandbox anymore after tx5 but I did all 6. Also check out the triple positive thread. Lots of great info and nice women there too. Many are talking about rads right now.
Yay Lynn is DRANO! Lynn 10lbs is a lot of weight given all that surgery and removal of even a few nodes. Give it time. I do strength training with 10lbs (in one hand not two) even with my LE arm. You'll get there.
C-squared of course it came back clean. I knew it would. Just had that gut feeling. Now go and celebrate.
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BTW I have volunteered at the ACS. I'm on one of the Strides Against Breast Cancer committees (event in Chicago in, of course, October). The steering committee I joined is focusing survivors and caregivers. (At that meeting I was the only breast cancer survivor and I don't think there were any breast caregivers. Everyone was young except me. I mean in their 20's.) ACS's main objective is education. If anyone has any ideas of what you or your support system (caregivers) would like to see at an even let me know. I'm sure anything that is successful in Chicago will be shared will be shared nationally. I had some good input as a survivor but as we know we are all so different. Feel free to PM me.
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You know, Lago, I don't know if this is exacly what you are looking for. Are you talking about an event like a conference? I think the thing that surprised me is how long the emotional effects of BC last, or for me, how delayed they were. Of course I was worried and depressed the first month or so, then the next few months were not so bad. But I'm having more problems finding a new normal, being happy with my old life, or making a new life that is satisfying. And I think my caregiver, hubby, is wearing out too. It seems there's a lot of support when you are diagnosed. I don't know if there is as much a year later.
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Diane welcome to the club. All I can say is the women of these boards, especially this one, are a wealth of knowledge, and big hearts! They have helped me a lot over the past couple of months and I owe them a dept that cannot be repaid.
C-squared congratulations on the scans, so very happy for you! I hope you have a great weekend planned to celebrate!0 -
Twohobbies I do believe events like this (There is the walking event in Chicago in October) not only raises money for the cause but brings people together. One of the things I suggested is people in the survivor/caregiver area need to meet others and not just the group they came with. I find you'll get the most support from "the people who have been through it or are going through it." This when you can talk about these very issues. So we're figuring out how to make that happen… and I have a feeling it will. They were very excited about that idea.
But you are right. Once treatment is done it's off you go. Get back to your life. Some folks have no problem but lets face is we're different… most of us have some degree "now what?". While I might seem strong supportive I have to be honest. Being on this site, meeting others and of course this group has made a huge difference.
Is there anyway you and hubby might be able to make the event in October?
BTW is there anyone interested in starting an Illinios Ladies team in Chicago for this event?
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Lago: I would love to come up, but October begins my two months from hell with my job (busy season--Medicare open enrollment). It's the only time I CAN't come. Darn!
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I'm in!
Although I can barely walk right now. Decided to ignore my wonky hip and do C25K week 6 workout 2 yesterday. Bad move. Hard to put any pressure on that leg and I leave for Vegas tomorrow! Poo. Asked MIL for her cane, ha!
You are all in my thought and prayers daily, through all your triumphs and trials. Hugs.
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"Something I learned early is to not worry about what I can't
control... But what I can control is my attitude, my effort,
and my focus every single day."
-- Tim Tebow0 -
Diane-welcome. Hope you stop in often.
Lynn-hope you're feeling well. No drains-yippee!
C-squared-Good news! enjoy the weekend-so nice of the doc to call and not make you wait until Monday-kudos to him
I was at the Hyatt downtown yesterday for work and there was a PS convention-the board listed the agenda and each item was about breast cancer reconstruction. One topic was "direct to implant, no te's"-I honestly contemplated going in and asking if they'd like to see mine-then I came to my senses and realized they might not share as much as we do
The good thing is the PS community is thinking about us and with any luck making strides in making this a less traumatic ordeal.0 -
Beata,
So glad all went well with your surgery. Hang in there throught the recovery and know that prayers are surrounding you!
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Finished Chemo round 2, potassium was low, but all the rest of blood work was fine. I also had the port installed in the morning so they were able to utilize that which was nice too. I have 15 months of chemo and 15 months of blood draws, so the port made sense to me. The area is still tender, but it's only been 2 days, so I am hoping to heal well from that surgery and continue to move toward Cancer Free words next year! Thanks for all your support and discussions, even if I don't jump into the conversation, they greatly help me through this experience.
Warding off nausea and fatigue to get to my week of rest between!
2 AC down 2 AC to go! Shaved my head with my family and looking good!!
After AC I begin 12 weeks, every week of Taxol/Herceptin - anyone else done that? How are side effects and recovery time when you only have a week? Hoping blood counts can remain normal with less recovery time.
Thanks for everything!
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Graceembraced I did the Taxotere/Carboplatin/Herceptin every 3 weeks. From what I hear doing it weekly is not as abusive on you but still cumulative. Every person really does react differently. I for some reason had no nausea… never took a pill. Then on the other hand I got the rare nail lifting, and really badly on every single finger and toe. Lost some.
My avatar picture is me 2 weeks after my 4th tx. After that it got a bit more challenging, or maybe I just had enough at that point. I did have heartburn and the big C. Some nueropathy in my left heel. I would ask your onc if you can take Acetyl-L-Carnitine to prevent it. I took it once it started and I swear that's why it never got past my left heel. I did have some pins & needles after tx2 but then started the Acetyl-L-CArnitine and never had an issue. Check out this info (last section talks about it) and maybe this too: linky
Forgot to mention my 1st 3 tx I was working out 70 minutes in the gym the following day. Do what you can but I highly recommend walking. I slowed down after tx4 and became very stiff. I think exercise helps keep it from getting to bad.
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Anyone on this board going to the 4th Annual Ta Ta Sisterhood in Las Vegas this September? I have Frosty1 and room for 2 more if anyone wants to room with us. Frosty1 is a Seattle gal, but we won't hold that against her.
If you are interested, PM me soon as Tracey is trying to match other BC org gals with us to fill our room. A good time will be had by ALL!
LOL!
Beth
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Graceembraced: Wishing you minimul S/E's this weekend.
Lago: You continue to amaze me. You are a wonder woman!
Spunky: YOu crack me up!
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Adey......hope the Universe is kind and helps you heal super fast.
Grace embraced....glad you are checking in a little. As for fatigue......if your body says sleep......I'd listen, but now the nausea.....take the pills before you actually feel it. It's easier to be ahead then behind. I didn't know this and at my age --- didn't even remember what nausea felt like ( it's wonderful to be 102 ) I started late and even when doing another chemo ( nausea wasn't even a se....had bad nausea/vomiting anyway. I hope I finally learned.....just in case but my motto is: been there, done that , didn't like it, not going to need to again.
See you all in the morning....I'm running on empty about now and going to relax. Did a bunch of things after work and now it's time to park myself in my recliner and forget the world exists for awhile.
Hugs, Jackie
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Yay Lynn! drainless! I feel like you and are are following closely in surgery & recovery. My surgeon told me 5 lbs. Yea - he really said that!
Beata - so glad everything went well! Healing {{{hugs}}}
Lago - your knowledge and generosity continue to amaze me!
Diane - welcome! I'm glad you found us.
C-Squared - I am so happy you got good scan news! Congrats!
Deborah - I can so relate to up your comment about the TE's. I have had absolutely no expansion and still feel like I am wearing a vice. I am dreading expansion if I feel this tight with no expansion.
Back to work this week. I'm afraid I might have overdone it just a bit. I am lucky to be able to work from home but my type "A" personality took hold for a bit. I was exhausted and hurt in so many different places. I got a tough love talk from my DH on Thursday night. He reminded me that I can't work at the same pace right now. I took it much easier on Friday. I have to learn to pace myself.
I hope everyone has a wonderful weekend. As always, I find so much advice and comfort in all your posts. I never feel alone in my journey.0 -
Invisible: I got the same tough talk by my MO last time. I swore to her I wasn't working as hard as I normally do (yes, I took a nap the other day at 7 am before I went to work), and I can work from home too. I know exactly what you mean. I have to talk myself into listening to my body.... It "ain't" what it used to be! LOL
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I had surgery late on a Tuesday (I think I was finished at around 8pm maybe later). Came home on Thursday. Saturday I asked the nurse on the phone if it was OK to go the an arts festival on the south side. At least I realised I'd only last about an hour so I didn't go. 2 weeks later I was on a bus to my old job for some freelance work. Bit to early to rid the bus at rush hour… good thing I did manage to get a seat quickly. Nodes removed on both sides I couldn't hold on that well.
When you feel good you want to do stuff but your body will tire quickly. Listen to that.
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Good evening everyone! Thank you all soo much for your wonderfully warm welcome! I already like it here! I so appreciate each and every one of you and the support and info. I did have a good break through today though that I wanted to share. In my "BBC" life ( before breast cancer) I was very active. I was a new runner, running 5ks and rode my bike regularly. Needless to say, thru treatment, I haven't done much of that.
I've slowly started walking and recently added some jogging. I am gradually increasing my time. I have wanted to get back to my running and biking trail. But, I've been so anxious about it knowing I wouldn't be able to wear my wig (which is long and hot). I admire you ladies who are confident enough to go with bald heads or just scarves. I am not at that point! Until today, the farthest I have ventured wearing only my scarf was my yard.
But I am happy to report that I got the nerve, put on a wrap and baseball cap and took a beautiful bike ride this evening! It felt great. Next step is running on that same trail.
I think it helps me knowing there are so many people out there like all of you in this group beng brave every day and facing hurdles and challenges. I still miss my hair terribly and I dont think I will ever get "used" to my bald head..but I can keep challenging myself to be braver every day.
Thank you all again and have a good night!!0
