Illinois ladies facing bc

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  • kjiberty
    kjiberty Posts: 687
    edited June 2012

    I hear ya, Roula.  Plus, I have a horrible reaction to the taxotere (they had to put me on oxygen as soon as they infusion started).  Not to mention they had to poke me 7 times this past round just to get a vein.  Again, I am looking forward to it being over, but not looking forward to it.  Counting the days........

  • doxie
    doxie Posts: 700
    edited June 2012

    Corinne, Ruthbru and Adey - I should be able to make it.  

    Camillegal - I remember you posting here, I think.  But like Ruthbru, I've run into you elsewhere.  I thought I was on the wrong Forum when Ruthbru posted here!

  • joan888
    joan888 Posts: 711
    edited June 2012

    Woooow! I am hopelessly behind in reading along with this chatty group. Welcome to Diane and Terry and any other new gals that i may have missed. I guess you already know what a great group this is.



    I am really feeling well recovered from my lat flap surgery and back to doing pretty much anything that my darn back will allow. My spine surgery is still scheduled for July 13th and I am doing my best to stay healthy until then. I had my final Pre-op visit with my spine surgeon last week. I appreciate his brutal honesty about the procedure and recovery process, but the whole process has me more worried than my BMX. I think I am just more informed this time and have had more time to think about it. Ignorance is bliss, right?



    I would love to be able to join the get together on July 20th, but you will have to take pics and share. Westie, I was seriously thinking of going to the Vegas gathering this year but, maybe next year.



    This cooler weather has been wonderful and I have been able to get in lots of biking. Have to keep this old body in shape before getting sidelined again. My week is filled with lots of PT and a trip back down to NW on Friday for my Pre-op physical and back brace fitting. Hope everyone has a good week moving along this journey. Onward, I am up for lunch at Magiono's anytime before July 13th.

  • camillegal
    camillegal Posts: 15,710
    edited June 2012

    I'm sorry u'guys are having such a hard time with chemo--it's rougher on some than others--but rough. I hope it goes better for u.

  • ruthbru
    ruthbru Posts: 49,065
    edited June 2012
    Awesome, Char2010 and Doxie! We will have fun! Cool
  • mdg
    mdg Posts: 1,468
    edited June 2012

    Ruthbru:  I will be out of town...it sounds so fun!  Definately post photos!!!

    For those of you going through chemo now....I know it's hard.  You will be in a better place when it's done.  Take it one treatment at a time....Hugs!

  • kcshreve
    kcshreve Posts: 349
    edited June 2012

    Does anyone use a LE therapist near the Loop?  I'm needing one.

  • camillegal
    camillegal Posts: 15,710
    edited June 2012

    KC although I'm no far from the Loop I never go there, what hospital were u in?

  • lago
    lago Posts: 11,653
    edited June 2012

    kcshreve I had a great one on michicagan ave near Northwestern but she moved to Ireland for her husband's job.

  • CorinneM1
    CorinneM1 Posts: 317
    edited June 2012

    I have been absent from the boards...but I am back baby!  :)  Hoping more can attend the dinner, drinks, dancing etc that evening.  PM me if you think you can go as I am keeping count for the dinner reservation at Greek Islands.

    Miss you all! 

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2012

    I have become my own version of an optimist. If I can't make it through one door, I'll go through another door - or I'll make a door. Something terrific will come no matter how dark the present.
    - Rabindranath Tagore

    I slept and dreamt that life was joy. I awoke and saw that life was service. I acted and behold, service was joy.
    - Rabindranath Tagore

  • joan888
    joan888 Posts: 711
    edited June 2012

    Kcshreve... There is an excellent LANA certified PT by NW. If I lived in the city, I'd be there in a minute. She is supposed to be excellent to work with. I will send you a PM with her contact info. Fortunately, I have found a new great LANA PT closer to home.... Still 45 minutes away, but well worth the drive. I start a series of several appointments with her today. Thank God for A/C in the car. Not sure how we (old enough to remember) grew up without it.

  • C-squared
    C-squared Posts: 338
    edited June 2012
    Hi all~ Does anyone know of an organization that would allow donations of left-over medications:  Zofran and Dexamethasone?  I know there are strict rules about this but thought I'd check before I chuck 'em..., can't say I'll miss them!  Laughing
  • lago
    lago Posts: 11,653
    edited June 2012

    C-squared I do believe it's against the law to give drugs prescribed to you to someone else. OMG I have so many I need to dump. Thinking maybe the pharmacy will dispose of them for me. I didn't take any drugs other than the antibiotics. Got pain killers too.

  • joan888
    joan888 Posts: 711
    edited June 2012

    I have lots of leftover drugs too. Most of them are over two years old now and not sure what their shelf life is. I think someone mentioned that your ONC may be able to pass them on to other patients who do not have good insurance coverage. Not sure that would be legal either, but I know the environmentalists don't want them in the land fills. Some communities recently held a "turn in" event for drugs like Chicago does for guns. Maybe that's where they got the idea!

  • ritajean
    ritajean Posts: 4,042
    edited June 2012

    Hi ladies,

    As always I'm rushng here and there on these sun-shiney days and loving every minute of it.  I made it a point to stop in today and welcome Renee53 and Terry.  We are nearly neighbors!  I am in Bloomington  and Renee is in Springfield.  I assume Terry must be close to Springfield since she asked about that area.  Welcome, welcome.  Come and visit us often and tell us some more about yourselves.

    Renee....one thing that I've added to my diet is green tea.   I drink a cup or two everyday.  It has great anti-oxidants in it and we all need those.  Like you, I'm trying to do more fruits and veggies and eliminate sugar from my diet.  That's my real downfall and I have to really work hard at that.  Yes, I do worry about it coming back but as time goes on, I do better between my check-ups and then get the real anxiety attacks the week before.  I've never been able to eliminate that anxiety before the onc visit .......no matter how hard I try.

    BJ.....great job on the Marathon.  I admire your stamina and drive.  I'm struggling with the walking routine, but I'm getting out there in the mornings before it gets too hot and going my 3 miles now.  It would be so much nicer if I had someone to walk with.  That would make me more accountable on days that I'd really prefer to "skip" and would make the walk go faster.  Anyway, you go, gal!  Your pictures on FB looked wonderful!

    Well, I'm off to play in the Tuesday Evening Golf League!  I hope everyone had a good day.

    Rita

  • doxie
    doxie Posts: 700
    edited June 2012
    If you live in Chicago, the Chicago Police Department takes drugs.Foot in mouth  When I went to report my catalytic converter thefts, there was a drop off box in my station.  You just toss them into a large metal box.  Certainly best for out of date drugs.  Maybe your pharmacist knows what to do with current drugs.    
  • illinoislady
    illinoislady Posts: 46,506
    edited June 2012

    Rita -- it's fate ( which I actually don't truly believe ) as I was giggling a little with your descriptions of feeling you'd have stronger inclination to do what you should if you could find someone to partner up with and I ran across this.....probably five minutes later now.  Enjoy:

    The only way to keep your health is to eat what you don't want, drink what you don't like, and do what you'd rather not. -Mark Twain

  • camillegal
    camillegal Posts: 15,710
    edited June 2012

    OH is that true.

  • spunkyboobster
    spunkyboobster Posts: 563
    edited June 2012

    Corinne-So nice to "see" you!

    Joan-glad to hear you're doing well and back on the bike. 

    Mid/down state ladies-I was in Springfield today.  Next time we'll have to plan lunch or something-I'd love to see you gals.

  • kjiberty
    kjiberty Posts: 687
    edited June 2012

    Spunky or anyone one else;  Anywhere in central Illinois--I would love to meet you all!  One more round of chemo on Thursday then headed off to rads.  

  • ritajean
    ritajean Posts: 4,042
    edited June 2012

    Yes, Spunky and anyone else................don't ever come to our area without contacting one of us.  We'd love to see any or all of you!

    Thanks for the quote, Jackie.  That does say it all, doesn't it?

  • kjiberty
    kjiberty Posts: 687
    edited June 2012

    Ritajean:  Right on!!!

  • Graceembraced
    Graceembraced Posts: 86
    edited June 2012

    Congratulations Csquared! Clean test are a blessing!!! Prayer of praises coming at you!

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2012
    I have just three things to teach: simplicity, patience, compassion.
    These three are your greatest treasures.
    - Lao Tzu
  • Graceembraced
    Graceembraced Posts: 86
    edited June 2012

    Good morning ladies,

    I had AC #2 last Thursday and halfed my dexamethosone and still crashed on Tuesday after chemo. Think it's the steroids, but at least I know to expect it.

    I had the port put in last Thursday too, so the infusion went smoothly.



    I laughed though, since I'm being precautionary and iced my toenails and fingernails during infusion. I think the nurses and I know my sister were laughing at me, but thought what the heck, if it saves my nails!



    I woke up Wednesday morning and the first thought the Lord put in my heade was, maybe you'll be the 1% that doesn't loose your hair...and you chose to cut off your 15" without trusting me. Yikes! I got nervous until my ONC said its much less than 1%...everyone on AC loses their hair. But it Day 21 from first infusion and I'm not losing anywhere on my body yet. Did I jump the gun cutting my hair?



    The hardest adjustment for me has been the sleepless nights. If I get 4 hours I'm lucky, so just got a prescription for Restoril, which has some crazy side effects, but I'll use it if I need too.



    Hope you all have a beautiful restful day.

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2012

    Sounds like we are definitely going into tripe digit temps.  Not until tomorrow....but won't be too nice today either.  Glad though that it hasn't rained yet ( no matter how bad I think we really need it ) as the humidity would be so bad with the high temps. 

    I've filled up wading pools for the dog yard.  Plenty of shade there.  Sure glad of that.  If I wasn't working I'd just bring them in.....despite the pandemonium, but dh is gone to S. Dakota this week......so no one here to chaperon. 

    Karen....a grand finale tomorrow.....yay.  Rads should be a real piece of cake. 

    Hi to Corinne.....nice to see you popping up again.

    Hope you all have a wonderful Wednesday.

    Hugs, Jackie

  • camillegal
    camillegal Posts: 15,710
    edited June 2012

    Grace I had about 3 treatments and I still had a full head of hair---so one night I went to scratch my head and a handful came out and a couple of days later another hndful--so I called my dgtr and had her cut and shave my head. I didn't really care tho. LOL

  • kjiberty
    kjiberty Posts: 687
    edited June 2012

    Jackie:  Thank you so much.  PS-- Love the chocolate.  Can't decide which one I like the best, though......Got the sampler pack of 4!  

  • joan888
    joan888 Posts: 711
    edited June 2012

    Jackie, I need info on the chocolate also. You can PM me, please. I have been looking for cold pressed and can't find it anywhere.



    Stay cool, everyone. Except for a trip to my LE PT tomorrow, I am staying home by the A/C. Going to get all my potted plants watered down this evening. Poor things are baking.

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