Can we have a forum for "older" people with bc?
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Gorgeous beautiful day here. My work for this week is done and I will not go back to the much abbreviated one that has become normal to me. I got home at 1:20 a.m. in the morning and slept until about 8:15 --- wow - un-heard of for me. But it felt good and though I likely will still feel a bit of that hang-over jet lag feeling --- I already am feeling the normalcy of doing everything I always do.
A little late, but Blondie -- we are here to hold each other up. Sometimes just having the freedom to give voice to deep or harsh concerns can lift a little off our shoulders. Often too, when I am able to write things out to someone else -- it helps me with how I feel about a situation or deepens my resolve that I'm taking the correct attitude and stance about it all.
We do care and though all of us likely wish we could do so much more to help -- we can listen and know we are not alone. I have a son who lives on the street/river bottoms. For years we had him in a residential school hoping to help him find the inspiration to be the best he could be. Sadly, that turned out to be doing what he does not which is mainly nothing but traveling through life living on the street and often being a critical person. His latest gig is being an Atheist and he has alienated his Dad after a far too long time of making remarks about the wisdom his Dad has by believing in some nebulous person in the "sky".
Kids are who they are -- and even though we wanted different and better for them -- until they want it to, we often have to stand back, hand it to God knowing we did our best -- and try not to feel unduly responsible got the poor choices and self destructive behaviors. Some days all I can do for my kids is sent out lots of loving energies while praying that they be blessed with the good Lord's care.
Joan, love those pictures -- what beautiful country where you were. Hope you do have a safe trip home and no delays either.
Chevy is I bet having the time of her life too. In good ole Florida. Well, maybe one day Dh and I will just have to get in the car and drive there and see some Florida sand.
Hope you all have a beautiful, beautiful Sunday.
Blessings
Jackie
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Sandra- just sent you a Facebook friend request
Anne
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Val- I have added you to the birthday list. You have the same birthday as Sandra4611.
Anne
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I am also agreeable to Facebook friends- Anne Bourne, Cooper City, Fl
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Love the aspens. Seeing them is on my bucket list.
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hi Am at the airport...
Wren try not to miss a fall day in the west if you ever get a chance.
Jackie thanks for the quote today. I seeking peace in a crazed world and you reminded me of what I can do.
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Beautiful scenery picture, Joan. AND you look too young to be among us oldies!!!
Blondie, I completely sympathize with your frustration and concern for babies being born into bad family environments. I have shared stories about my niece who has mental problems and her three children. My niece is 32 and is currently "hanging out" with a 26-yr-old boyfriend who isn't employed. Hanging out means he's living in the house with her and the kids. It will be a miracle if these children grow up and make something of themselves.
Sandra, YAY on the re-scheduled surgery! You have such a good attitude.
DH and I travelled three straight days. Holland, MI, to Casey, IL. Next day to West Memphis, where we stayed overnight at the Tom Sawyer Mississippi River Campground, located right on the big river. Then yesterday we made it home about 3:30 pm.
Jackie, I thought about you when we were driving in IL and saw a sign for Centralia.
Everything seems ok with the house. We had left the a/c on and set at 82 degrees, but the batteries in the thermostat went dead. Fortunately the walls aren't mildewed. We have no idea when the thermostat stopped working. The good news is that the a/c is working now. The temperature isn't brutal but it's very humid outside.
As always, it's overwhelming to think of all the work that needs to be done. Clean the camper, do the laundry, clean the house, tend to the yard. One step at a time!
Hugs to all, but a special hug for Blondie.
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Thanks peeps, she is upset cause I am not excited 4 her, he keeps saying I deserve a boy, does notthing barely works, spends no time with the girls n andrew my grandson who is 8 is being mean to me and my daughter, told her cause he is watching thw the way he treats u, she knows, enough, hate that I just have to watch from afar.
Thanks 4 caring. Anyway sleeping still a problem, taking ativian It workd but still not going to sleep til 330ish.
Going to get milk n entemanns cake n then lay doen, back n arms are hurting, thaank goodness 4 percs. Coughing n sweating all day wth it is always somrthing, sorry 4 all the complaining
Ok positive it was 80 today and now 71, love the weather
Bbbl
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Carole,
Welcome home! That was a fast trip back. I am so glad you didn't find damage from the humidity. You made me laugh--I will collect SS in December (and I am waiting for 66).
Blondie (Sandy) it seems the stress is affecting many family members. I know your grandson knows he is loved by you ... It os too bad innocent children have to witness such questionable role models.
Rember your job is to take care of YOU to the best of your ability so you can be your best and take advantage of the good days. And a little cake may even help
Hang in there. We are driving home from the airport in NYC -- the NY airports are in terrible shape and must be shocking to anyone who arrives from a beautiful clean airport like Denver.
DH left my favorite quilted coat in the Denver airport - will try to get it back but small chance. I will survive without it.
We looked at houses near our friends who live at 9,000 feet. Just dreaming...
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To get the most out of life, we must take the time to live as well as to
make a living. We must practice the art
of filling our moments with enriching experiences that will give new meaning and
depth to our lives. We should take time
for good books; time to absorb the thoughts of poets and philosophers, seers
and prophets. . . . Time for nature; time for flower gardens, trees, birds and
sunsets. Time to love and be loved, for
love is the greatest thing in the world.Wilfred A. Peterson
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A gorgeous morning here again -- just about the right temp. Early fall here is usually nice and relaxed. I really don't like some of the changes like the grass growing brown and a whole lot thinner. The slow growth is fine since the nuts, acorns and other assorted debris has to be blown down into the ravines on either side of us --- with two acres this can be quite a chores with the 60 to 70 trees that surround our property. Still, I am thankful --- there is lots of time to plan some final times outside -- later having some hot chocolate on the deck and other little rituals to help us accept the coming winter.
Blondie--Sandra -- sweet lady, don't be sorry for complaining -- it is the very reason we lend our shoulders. All of us have some sort of struggle going on and when we all stand together --- why it just makes a broad base for holding us all up when the going is harder than we wish it was. We are all FREE to avail ourselves so do not feel one ounce of regret for giving us the privilege of sharing our love and care for you. I know we all wished our magic wands worked better though. In lieu of that -- just imagine we all have our arms out holding you up a bit.
Joan -- drat about that coat staying at the airport. They must have one heck of a lost and found room, don't you think? It would be just the greatest thing if it found its way home to you, but I have to say as well that chances don't seem too high. Just glad that you made it home safe and sound and didn't experience much for delay. I think the Chicago airport is still a mess, but the repercussions to other areas and airports seemed to have settled well.
Forgot to say -- this time of year, with all the nuts and acorns falling from our trees is always a bit exciting. We have a metal roof and it gets a bit noisy at times. Went out a couple of days ago and it sounded like automatic shooting going on as nut after nut hit the roof in quick succession. We have good insulation so though we hear it when inside, it is dull and doesn't get your attention like it does out of doors.
See you all later.
Blessings
Jackie
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Back to work...it's not getting easier. I am down to 8 students in my evening class. It sounds easy, but with so few, it is hard to get a discussion going. I had better start making it fun. At least grading papers goes quickly.
I agree with Jackie - this is the place to be able to vent about life and the things we can't control. It's all part of recovery and coping in spite of what BC throws our way.Off to try to get sleep....
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U all r so lovely, I treasure u. Thanks u, I am trying to focus on me, this stress is too much. Unfortunately I wm staying I my room not bothering with anybody, I need to go down the shore, thanks 4 helping me refocus
Xoxoxoxoxo
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having a "poor me" morning and although I have posted on the Stage IV site, I did not know this thread was here. I tried to get an "older women group " started on stage IV site but it didn't last long.
I am feeling as if so many friends and family have pulled back after my recurrence. My life seemed so full before with Quilting ( gave that up because I couldn't stand long enough to do all the cutting) and with gardening but we downsized and I have three shrubs in the small yard that need no attention. We will move to a retirement community when the building is finished in a year so no reason to add gardens here. Have any of you found friends pulling away?
What I notice most is that my email used to be filled with mail from friends and family and now all I get is political adds and adds from retailers.. No request for lunch dates unless I initiate. I hear things like I don't want to bother you but I would rather be bothered then ignored.
This sadness may just be the last day of this round of Xeloda and the hours spent on the phone yesterday with insurance companies but if I share with my DH he will try to "fix it" by suggesting we go to see an action movie or go out to eat. Nothing wrong with that but I do miss the interaction with friends.
I chose Crone as my online name as a Crone is a wise woman and I was always the advice giver now I need the advice.
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Crone, welcome to this site. The people here have been big helps to me.
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You lose the very life you seek when you wallow in stupid luxuries. You don’t need nine-tenths of the things you scramble for. Don’t be afraid to have
nothing. Happiness is not what you have, but who you are. You are already who you need to be.
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Crone -- welcome, welcome. I will be back later to talk but have to go to work right now. Used up lots of savings ( translation -- everything ) doing a bout of cancer so I'm working....good thing I like it. Anyway great women here so I'm sure glad you found us. I'll be back later.
Blessings
Jackie
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HAPPY BIRTHDAY TEACHER- hope you have a great day.

Anne
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Hi Crone
Welcome to your new "best friends". You may not have a garden of your own, but you will find lots of gardeners here who will be happy to share their experiences, good and bad, with their gardens. Some even post pictures so we can all share the fun.
We will also join you for lunch, or a cup of something warm, or a glass of wine while you read our stories and reply with your own.
Although our situations are different, I can relate to your feeling of having lost your life as you knew it. Their is no question that BC changes your life, but going through it without your BFF's makes it that much harder.
I have lived in Ft Lauderdale since 1973. I raised my family there, was very active at church, worked in a middle school for 15 years, where I made some close friends. In other words, I have a life there. About 4years ago, my oldest daughter and her family moved to the Atlanta area. I visited often for a couple of weeks here and there until my husband passed away two years ago. Then I started coming to Ga and staying for longer periods of time. While here a year ago, I realized I was overdue for all my medical check ups and decided to get them done while I was here. You can guess what happened, I am sure. I was diagnosed with stage 3 breast cancer, and started chemo within 2 weeks.
I was here in Atlanta for nine straight months, with one 1 week trip back home, shortly after the last chemo. I was so weak, I needed a wheelchair at the airport. And didn't see anyone but family that week. I was okay here while I was so sick, during chemo, after surgery and during radiation. My oldest daughter pampers me and her husband is wonderful. My two grandsons come to my room every night to watch TV with me. But, when I am feeling good (between phases of treatment), or like now- I am finished with all treatment unless I decide to do reconstruction, I feel totally alone. Both my daughter and her husband work full time, and of course both boys are in school.
I grocery shop, and prepare dinner most days, but I have no friends or life here at all. I tried going to a church here, but met one couple in 8 or more visits. I went back to Ft Lauderdale for two months this summer and finally felt like I was home. I met friends for lunch, dinner or dessert. One of my daughters and her son, as well as my youngest son still live in the family home. My oldest son, who lives in South Carolina comes home each summer to run a local camp was there. Plus my other daughter lives in the area, and was over often with her 2 children. It was crazy, chaotic and wonderful.
But, like you, when in Ga, I only hear from my friends if I initiate the call. I think I've made it clear that I have no life here and welcome calls whenever they have a few minutes, but I guess it's like the old saying- " out of sight, out of mind".
Take the initiative if you need to. Send them emails filled with as much normal news as possible. Let them know that you are still you, that while cancer may have invaded your body, it hasn't stolen you. You are still you, still someone who loves to garden, and quilt, and go out for lunch. Find a way to participate in quilting without having to be on your feet so much - maybe preparing snacks and drinks, rather than actually quilting. Ask friends if you can help with their gardens.
And when you have free time, make new friends with us. Tell us who you are, what you are doing, or have done. Bragging and /or sharing problems with our children is a common topic here, as are traveling, cooking, exercising.Good news is always welcome, but bad news is greeted with empathy and hugs of support. Celebrations are shared, but we are also here for the "down" days.
Looking forward to hearing from you,
Anne
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Here's a list of the birthdays I have. If I don't have your first name, and you are comfortable sharing it, please let me know:
Sept 30- Teacher64
Oct 12- Puffin2014
Oct 25- Wren
Nov 2- Anne
Nov 25- Joan811
Dec 4- Sandra4611
Dec 4- Valsa 123
Jan 31- Luvmaw
Mar 2- Termite -Emma
Mar 3- MomMom - Paula
Mar 8- Carole Halston
Mar 25- GardenGumby
Mar 31- Mininiemi - Mimi
May 13- Cammilegal -Cammi
Jul 23- SallyS70
Jul 31- Chevyboy- Chevy
Aug 10- Blondie- Sandy
Aug 13- Barbarella
Aug 25- MinusTwo
Aug 30- RitaJean
Sept 13- IllinoisLady-Jackie
Sept 23- OhioFan -Bonnie
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Crone - I usually read this thread but rarely comment. I understand your pity party. I have them frequently, too. Several have sent good suggestions above. I noticed you would like to quilt but the cutting is too problematic. Have you tried pre-cut fabrics? There are those packs of 2 1/2 inch wide strips. You can make many beautiful designs with just the strips. Also, several mail order quilt shops have pre-cut quilt kits. Good luck with finding meaningful activities. I know I'd be sitting on a cliff if I couldn't quilt. My best, Jan
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Happy Birthday Teacher ... I hope your day is filled with joy.
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Happy Birthday, Teacher!! Have a wonderful day!!!!
ohio - - - Bonnie
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Happy, happy birthday Teacher -- have lots and lots of them:
Blessings
Jackie
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Crone,
I think Anne has touched on all the strong points here. I am sorry that the people around you don't seem to get that you need the normalcy of their caring. No matter what may be wrong with us -- we all need to find some assurance that we are cared for and appreciated. Perhaps they see you as very, very strong -- as many in my family saw me. Maybe as well you have always ( your letter sounds like it ) been competent about handling things.
As Anne said -- we are always here and always willing to share your day with you. My final thought is that many of those around you now that you are Stage IV just don't know how to handle things. It is different this time -- and maybe they have some fears about the situation -- many may not realize that Stage IV people have so many, many treatment options now.
In any case -- the door is always open here and we share almost anything at any time. As well, we have our resident jokesters here ( Chevy & Cammie ) who should be able to bring lots of smiles to your face. We even have a real clown here Mimi -- and we have Carole too who travels ( two here just met up on an Alaskan cruise ) , and so we take adventures with whomever is out and about somewhere.
We have Joan who is from NY and so we get to hear what is happening in that part of the world -- along with our Texas ladies ( Ft. Davis & San Antonio ) so we have a nice range going of people and places. We try to be good company.
Hope you will come often and hang out with us.
Blessings
Jackie
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Happy Birthday, Teacher! What a great idea to have someone keep a list.
Anne, that was a wonderful post you wrote to Crone.
Welcome, Crone. Feel free to share your complaints with us. You'll probably get some good suggestions, like the one Jan made about quilting. Sometimes it just feels good to vent.
DH and I went to the gym this morning. I had to force myself to go with him. It has been 3 1/2 months since we went north for the summer and we didn't go to a gym in MN. As predictable, I felt good that I had gone. Exercise always seems like a good idea AFTER it is over!
We came home and dh changed clothes and went to the driving range to hit golf balls. I stayed home and continued doing laundry and other chores. He came home and said the heat and humidity had made him feel dizzy. It is brutally humid outside. I hope the weather improves this weekend as forecast. We're getting a taste of what we went north to avoid.
Tonight we're going to a play at the high school. The boy next door is in the play and that's the only reason we're going. The play is Midsummer Night's Dream by Shakespeare. I'm hoping I enjoy it more than I expect to enjoy it! And I was an English major in college.
Hi to everyone. Hope you're all having a good day.
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Well said, Jackie!
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What an amazingly warm welcome. Thank you so much, I have not posted much on the Stage IV thread because I feel so bad for the very young ones facing this challeng that my issues are really insignificant. I am so thankful that I stumbled upon this thread. What a gift.
I have had a very good and blessed life. We hope to celebrate our 50 th anniversary next May but with a family gathering on the Outer Banks in July. My DH is a retired critical care/ pulmonary physician who worked - at least 80 hours a week until he slowed down and only did office practice 2 years before he retired so he has had no time to develop hobbies or close friends. He will have a heart cath next Tuesday and hopefullyif all is ok maybe he can find some old interests to fill his time other than worry about me. He has had to learn (actually is still learning) to pay bills on line, do laundry, clean a toilet etc. One of his remarks which I keep threatening to put on a t shirt is " this housework can be strenuous.)
We have four adult children ( two boys, two girls all born within five years) all married and six grandchildren ages 3 - 20. They live in Idaho, Wisconsin and D C with one daughter and grandson here in Indiana.
We have lived in Ohio, Alaska and Indiana
I once was a nurse ( eons ago) and as kids got older volunteered at our church ( temporarily) and ended up becoming the Parish Administrator of the church with a congregation of 10,000, many of them college students.
I was diagnosed with Stage 3c BC six months after I retired and with Stage IV, two months after my husband retired. Should have kept working. Since my recurrence I have been on Aromasin for three months, Femara for three months, Femara and Faslodex for eight months, Afinitor for one month and Now Xeloda and Xgeva since July. Anyone need any Afinitor, I have a two week supply that can't be returned and the MO can,t give to a patient.
The Xeloda has shrunk all but one liver tumor, most lymph nosed and bone mets. Love this drug except for the fatigue and Hand and Foot Syndrome.
I miss feeling productive now that I gave up quilting and gardening. Most of my quilts went to charity and my veggies to the food pantry. I know I am still important to my family and friends but feel like I am not helping those who are in need. I grew up knowing it was important to do for others but now that is harder to do. One of the Pastors I worked with used to say. It's just a feeling, it will pass.
We downsized so much that there is no room for all the quilts so I gave most of the quilt stuff to my daughter In Laws mother knowing she will use it. Our kids were great in taking so much of what we couldn't keep and it is good to see them use it. I still enjoy knitting and when my sore finger will allow, I knit. I am currently taking a year long knitting class where we learn a new technique a month and use the technique to make a square which will end up as an afghan. I thought it was positive thinking to sign up for anything for a year. The other thing I am knitting ( when I am brain Dead and can't focus) is tree scarves. Outer local tree planting groups have problems with the college students damaging the newly planted trees that they plant near campus so they wrap the tree with scarves to try to protect them.
In the last six weeks, we have driven to visits my sisters both who are physically inactive due to back pain, my husbands cousin who is 89 and is in a nursing home ( we're her only relatives), my college room mate and our daughter in DC to deliver the items she wanted from downsizing. I think it helps my DH to get away from our little home and have a change of scenery but oh traveling can be tiring.
This is lots of info about me, I would love to hear about those of you who post on this site.
Again thank you for the warm welcome and the interest in who I am as a person not just a cancer patient.
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Welcome Crone glad you found us.
Carol glad you are home safe and sound. Can't post for long have a cake in the oven. We went to the Broom Shop today, but DH was not having a good day, so we came home, he needs some down time.
We are in the process of making Gepeto's broom for a gentleman in NY, NY. It is real neat will post a pic.
Hope all are doing well.
Hugs
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Welcome crone
Love the broom
Am ok not feeking well
Hope everyone is ok
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