Can we have a forum for "older" people with bc?
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Well it is late as usual, have not been able to read all the posts yet.
We have been on the go with Kimber since school started. She is doing well and happy, has a great group of friends. Last Thursday there was a court hearing in FL. Her Father gave up his parental rights, and her Mother left the court room before she was called, so she forfitied hers. Her Father told the judge that he wanted what was best for Kimber. The pathway is open now for us to adopt her. The judge will have another hearing on Nov. 13th and sign the paperwork and then we will be contacted by the adoption worker. We will have to have yet another home study, etc, etc.
She finally said hello to her Mother on the phone last night, her Mom said I really screwed up and Kimber said yes you did. I hope down the road they can have a relationship.
DGD and DH went for eye exams today and DH has cataracts, so we will be having that done in Jan., when things at the shop slow down. DGD just had to have a new script. We have to go to El Paso on Nov. 18th for DH to see Colon Dr. for the other end. Guess we will take DGD out of school and get her script that day.
On Wed. I go for my 6 month check up with my ONC. I am going to talk to him about my cough, it is better with the singular, I am horse, I can barley sing anymore.
Everyone Take Care
Hugs
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Mommarch, glad to hear that things are going well with your DGD.
DH is off to the gym this morning. I am taking my mother to a dr. apptment and helping her with grocery shopping the first part of the day. Then I intend to vote and go to the supermarket to buy some items for us. IF I have some energy left, I had wanted to go to the driving range and try to improve my golf swing. I'm pretty discouraged about my golf game these days.
I am really tired of political ads on tv and endless phone calls from Unavailable. I don't answer them. Or sometime I press the Talk button and then the Off button. It is not looking good for my candidate, Mary Landrieu, who has worked very hard for Louisiana during her years as Senator.
Wishing everyone a good day!
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We’ve been invited to participate in this life, to be present, one to another, and that’s all that’s expected of us. Our successes may bring us personal joy, but our value as persons lies only in our being. But living fully is more than just making an appearance, here, today. It’s celebrating our oneness—our ties to one another—our need for one another’s presence to complete our own. And we can be celebrants only when we’re involved and fully focused on the experience. We capture life’s gifts, its riches, when we are intent on the moment’s fullness. We miss what we most need when our hearts and minds are distracted.
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I had my angiogram yesterday and they embolized my kidney glob of vessels. Long day, they were running 2 1/2 hours behind, so it was 8 last night before I got home. Taking it easy today, not allowed to drive. No lifting over 25 pounds for a week. Groin is a little tender where they went in with the catheter but no signs of any bleeding.
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Momarch, what a difference a few months make. The situation looked so bleak not long ago but you and your husband hung in there and now you have your granddaughter with you, she's made friends and has a happy life now, and before too long you can adopt her. That's such good news.
Don't like the cough...keep us posted.
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Carole, I think everyone is tired of all the political infighting this year. Seems so much worse than it used to be. I was always interested in politics and a major news junkie. Growing up, my family talked about current events and my husband and I carried that tradition over to our own dinner table with the children. We've had some heated political arguments, but ever since they've become adults, we tend to agree. I've volunteered for a number of candidates, block walked, and stuffed a million envelopes. I was Precinct Chairman for a long time and was even on the Executive Committee of "one of the political parties" in our large county. What a shock to see what it was REALLY like on the inside! Talk about dirty politics! It wasn't just on a county level, but went all the way up to the state senatorial level and back down into my own precinct. I escaped once I realized I was in over my head. Since then, I vote if I have a reason to. I don't believe in voting party lines or voting against a candidate. If I don't have a reason to vote FOR a particular candidate, I don't vote at all. This year I'm staying away. Next year might be different and I could be singing the praises of someone. I have a local office holder I'm keeping my eye on for the future. She would make a great mayor. The one we have now is incredibly unqualified and only has the job because our former mayor was snatched up for a national cabinet position two months ago. Good for the country...not so good for my city.
Puffin, I hope you continue taking it easy today. How cool that they can perform a procedure with minimal invasion.
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I'm a few days late, but HURRAH PUFFIN. Hope by today you are feeling great and still jumping for joy. The posts the past few days have been lots about food, and makes me want some cilantro right now. We have a Thai restaurant that is nice in our tiny town.
I'm feeling lots better and just finishing off the last of the coughing. Thanks for all the good wishes. I'm glad you enjoyed the story about hunting licenses. I'm still giggling about the weather where Blondie lives. I know it was a typo, but weather in the sexies sounded interesting. Thanks Blondie for the smile today. Hope you are smiling too.
I'm headed for a long ride caravanning behind a friend who needs to go to Mayo clinic today. (Two cars so I can go do childcare for grands Thurs and Fri.) She has an early morning appointment Wednesday to discuss results of a pathology report that suggests all kinds of possible cancer types in her salivary gland. She always says she can do this alone, but she was right along side me insisting on helping when I had appointments. If they tell her she should stay a few days I will have to leave her there alone, but I hope that just going this first appointment will make her feel loved when she is alone and worrying the next couple days. She says she's not worried, but I find her pouring over salivary gland cancer stuff on her computer lots. We all worry about different things - she is most concerned about nausea after surgery. And possible nausea from treatments later.
Sandra I'm still heading to Texas early December. I'll be in touch again at the end of the week. Maybe some Vietnamese food in Rochester MN
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Mimi, what a good friend you are! It's no wonder your friend is worried about post op nausea and vomiting. (PONV) It can make an already bad situation SO much worse. That was my big worry as well, so I understand her fear. Just in case she is open to suggestions, below is a copy of what I've posted on the September and October Surgery Sisters threads as well as the Exchange thread. What works for me came after way too much trial and error, but it has freed me from worry for the future and has worked for many others. Here it is:
"After extensive research on my part as well as two anesthesiologists who were willing to go the extra mile to research and put together a plan, I have cracked the code on a nausea-free recovery. What a blessing! Post op nausea & vomiting (PONV) has plagued me my whole life and is the thing I most fear about surgeries. I can deal with pain if I'm not ready to throw up for three solid days.
1. Before surgery, get a transdermal scopolamine patch. It goes behind your ear. By itself it might not be enough to prevent nausea after surgery but in conjunction with the other things, it's essential to the total plan.
2. Take an Emend capsule before surgery. It might make you feel a little light headed for a few minutes (did twice for me but not this last time) when it first takes effect, but that quickly straightens out. (For those who will be getting chemo, Emend is being prescribed more and more to eliminate nausea.)
3. Make sure to request TIVA - Total IV Anesthesia. It is the most import part of the plan. No gasses are used. Most general anesthesia includes several different gasses, but they are well known to cause PONV. TIVA drugs have such a short half-life, they wear off quickly, reduce post-operative nausea and vomiting (PONV), allowing shorter recovery room times, and an overall smoother and better experience (as compared to inhalation anesthetics).
4. Ask your surgeon to inject Exparel into your incisions at the end of surgery. It foams up and bathes the area in blessed pain relief for up to 96 hours and reduces the need for narcotics, which are known to cause nausea in many patients.
5. Get IV Zofran at the end of surgery and during your hospital stay on regular intervals. It does a good job of counteracting nausea. You can get tablets as well. Decadron is another drug that can help nausea.
These 5 steps are the key to success. Some hospitals use gas for general anesthesia because it is cheaper for them. Too bad...get TIVA instead and make sure your anesthesiologist is familiar with it. I will absolutely NEVER have another surgery without it. Not only did I wake up in recovery after the last two surgeries, which I never did before, but I was completely alert and didn't feel groggy at all. The nurse and I were chatting and cracking jokes. Normally I would be desperately sick and feeling drugged up for days. Another massive benefit of TIVA is that it has a short half-life, meaning it leaves your body pretty fast. I used to feel odd for 3 weeks after a surgery. Not anymore.
Some insurance companies say Exparel is too expensive. Balderdash! It costs about $300 for one vial. I would gladly pay out of pocket twice that much to get Exparel. It's just that good.
Here's a link to learn more about TIVA http://www.realself.com/article/tiva-total-iv-anesthesia-general-anesthesia-safer
Here's a brand new one about Exparel and how it reduces the need for opiate pain relief by 45%. http://www.heraldonline.com/2014/10/27/6462524/new-study-correlates-use-of-exparel.html?sp=/100/773/385/
For more on Emend http://www.emend.com/aprepitant/emend/consumer/index.xhtml
Transdermal Scopolomine Patch http://www.transdermscop.com/prescribing-information.htm"
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Puff, so glad to hear you are home and not feeling so much the worse for wear. Hoping that will continue on for you.
Mimi -- how wonderful that you are going to get to shower your friend with the encouragement of your presence. It is such a great feeling to know you are cared about. Most of us know we have people who care about us -- but it is a completely different ( treasured so much by me ) feeling when there is reason to actually display that care. It means so much and I'm sure it will to your friend. Hopefully, if any nagging doubts show up for her ( and they easily could ) she will have the thought of you and your love and care to hang onto.
Sandra -- what a wonderful thing to do -- to put that great list of steps to paper for all who could benefit. I actually identified with several things you mentioned -- but all of it was for operations I had several years before. The drugged up feeling, the not being able to get awake for weeks afterwards, some hallucinations even. Though I did not have issues with actual paid meds etc. I still dreaded that interlude of lost time while I went through an almost drugged up coma of a sorts. Very un-pleasant and I didn't even have to deal with nausea. You are a doll to write this all out.
Election day here is a gray and quite wet day. It started raining early this morning some time and for the most part hasn't quit. Sounds like it will just continue to the rest of the day. Not much for political talk here, but I will say that most of the politicians are a huge discouragement. I don't what to hear how bad the "other guy" is as I probably already know it, but I would like to hear a lot more of what you ( no matter what political persuasion you are ) intend to do to make sure we go forward in a bi-partisan way to continue creating a country we all can be proud of and that works across the boards for EVERYONE taking care of and implementing programs that will keep us all healthy, fed, with work and money in our pockets.
Sigh !!!!
Jackie
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Thanks for the birthday wishes everyone. I am not crazy, and usually kind of wary of these kinds of things, so I won't have a problem if you don't believe me, but my husband called me on the phone yesterday to wish me a Happy Birthday. I was home alone, about 11am and the house phone rang. Caller ID said Robert Bourne and the phone number listed was our house phone. Have you ever heard of a situation where a house phone could call itself?? The thing that confirmed it was him to me was the fact that the call came on the 3rd- which through all 42+ years together he thought was my birthday. FREEEAKKKYYYY!! But fun, to believe it could have been him.
Puffin- glad to hear your procedure went well
MomMom- so glad things are going well with your DGD.
Also wanted to clarify something about my cousin's daughter. She is divorced and her ex is remarried. He has been with them thru this whole process, and his new wife is 100% behind him. He told my cousin that she can put any worries she might have concerning her relationship with the 2 boys in the future to rest. He told her he believes they will need their grandparents even more than they do now, and he intends to make sure their ties stay strong. He also said whatever caused the divorce is no longer relevant. Anything he can do to help them in any way, he is ready and willing to do. His new wife has been great about bringing the boys to see Patti as often as she feels up to seeing them, but has also stepped in to keep their lives as normal as possible- keeping them involved in sports, etc. I met Patti's ex several times over the years, and thought he was a really nice guy. I have no details regarding the divorce, but it sounds like he is stepping up to the plate now and walking thru this with both Patti and her family.
I was glad to read that some of you know of people who have survived pancreatic cancer. I know the odds are not in her favor, but maybe there is a glimmer of hope? Didn't sound like it when my cousin responded to my email, but it could happen. Thank you to all of you for your compassion and understanding.
Anne
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This is so beautiful.... we have so much to be thankful for..... !
http://extras.denverpost.com/archive/captured.asp
I'll be back tomorrow!
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Anne, don't be silly, of course it was him. But then, I think you could have expected you would get my full agreement on that. Our loved ones do let us know that they are not so very far away from us. You have to know too --- that if you have ever had doubt about what happens when we have to give up our body and go to eternity -- what better way to feel comforted about the answer if someone you love is letting you know ( yes, they now have somewhat limited ways, but the ability to use those limited ways is quite strong ) that they are just fine -- and more alive in fact than they ever were while here. I was told to think of it this way --- being on Earth is a giant school for us and those who leave us have completed what they had too and gone on ahead. It brings a great deal of comfort to me to know that.
Ok -- tons more things I could say but I think I cause enough head shaking for my very deep beliefs. No one else has to see things my way and that is ok.
Heartened to hear that Patti's ex is being kind, comforting, supportive and understanding. His filling some of the gaps right now is a beautiful thing I made up my mind when I divorced that it would be a civil parting of the ways. I had no wish to get even ( for what -- something he and I did together ) nor try to demean and degrade my ex. Now that was in '74, but I've never changed my mind. If you are adult enough to marry -- I've always hoped you'd be adult enough to divorce properly too -- you were in love, and now you've fallen out of love -- over-simplification to a degree, but all can learn to ditch the regrets and bitterness and get on with life. I'm glad Patti and her ex as well as the new wife can see that none of it is so much about them as such -- it is rather about being adults and doing the right thing -- especially in view of the fact that there are little kids.
Jackie
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Lurking, had anxiety attack, never went to the shore, will next week hopefully, gd lala aka jen broke her arm wrestling with sibs, she is 2..
Mom good thing for u clapping
Anne it can happen, i believe
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My father-in-law had a couple of odd experiences after my mother-in-law died. One day he was sitting in his chair in the living room, alone in the house. He heard a noise in the tiny foyer. He got up and walked to the foyer. A book lay on the floor. It was one of my mother-in-law's favorite books. Apparently it had fallen from the bookcase in the foyer. He felt like it was a communication from his deceased wife.
I can't remember a second incident that was the same kind of thing.
We've had a gorgeous election day. The polls just closed. I had to stand in a short line when I went to vote a little past 2 pm.
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Cardiologist said I need a nuclear stress test. I told him I'm retired and don't do stress! Test is next week.
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Patience will see us through a troubled time, but how much easier it is to savor patience when it’s accompanied by faith. We can know and fully trust that all is well—that our lives are on course—that individual experiences are exactly what we need at this moment. However, faith makes the knowing easier and the softness of the patient heart eases us through the times of challenge and uncertainty.
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Teacher -- loved how you talked about stress. Not surprised that the test comes next week. I always think of myself as laughing too much to be stressed -- yeah, right !!! Do well, ok.
Blessings
Jackie
Blondie -- forget to tell you, what a neat avatar -- and now I know who I'm talking too.
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Lol thanks jackie
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Teacher, are they talking about the regular kind of stress test where you are on a tread mill? That one isn't so hard but I've also had a Adenosine stress test where you get a drug to cause your heart to beat fast. Maybe they have invented another kind by now cause the Adenosine one was very not fun. It wasn't painful but I had a hard time trying to gulp breaths while my heart was trying to jump out of my chest That was about 15 years ago so I hope there's an easier test now.
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Sandra, the nuclear stress test uses a radioactive isotope to show the heart. It is exercise, imaging, and then some more. I had been wondering what to do on the 11th (diagnosis day) and now it will mean 3 hours at cardio. It doesn't involve speeding up my heart, which it does on its own.
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Oh good. I was wondering. I have only been getting cardiac CT's and echocardiograms for the past several years and always worry the cardiologist might say the word Adenosine again.
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My cardio doc has never said that and I hope he never does.
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Of course it is late. Went to Odessa today for my ONC Apt, and DH orthopedic Apt. Then got back to Fort Davis at about 7PM and waited at the shop until DGD got out of band.
My blood work was good, ONC concerned about me losing 10 lbs in 6 months, I have the weight to loose, not dieting, just appetite is small. He is also concerned about my cough. He ordered marker tests from my blood work, should know something by Monday at the latest.
DH had cocks comb injected in his knee again, Dr. says he need both knees replaced.
I guess we are just rotting on the hoof.
Sandra after my 16 year old step son who I had cared for since he was 4 was killed in an auto accident
I had a similar experience. My Grandfather died 30 days later, who I still love and miss to this day. Ronnie came to me, I thought it was a dream and I said you can not be hear you have no kidneys as we donated them. He said to me Grandpa is OK he is with me. I have never forgotten it and it has been 34 years ago.
Hope all had a good day.
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Morning gals.... Are you all talking about irregular heart-beats? Or feeling like your heart is racing, and you feel like passing out?
Years ago, after my Mom died, and I was visiting my Dad in San Francisco, and picking my GS up from the airport, I felt like I was going to pass-out while driving over the SFOBB 5 times!
I just KNEW my 11 year old GS could not take the wheel, nor my DAD who was 3 sheets to the wind! I got through it, but my heart was pounding, besides feeling like I was going to faint!
Later on, when I got back to Denver, I was really worried about my heart! I had that tread-mill test... a cardiogram... And of course no symptoms at those times! I then wore the 24 hour Holter monitor... nothing!
Then they had me wear the "event" monitor, which recorded a weeks worth of heart issues! Yes, I still had the dizzy spells, and palpitations, but they could NOT find anything wrong.
I finally quit drinking coffee, too much sugar, and by then, the stress from my Dad, always being drunk..... the trip, and everything else was over with, and my heart got back to normal...
So I'm just saying this, so maybe it could be as simple as "Stress?"
Anyway, my Dad drinking was nothing new. I grew up with it.... my Mom lived with it.... and we all hated it. But with my Dad, it wasn't until after Mom passed away, that I finally got to "know" my Dad.... Yes, I always hated being around him when he was drunk, but after Mom passed, he started to slow it down.... and when I visited him, I saw how much he loved her... how he missed her... They were married 62 years, and he lost the ONE woman he loved, more than all the rest. We learned to talk, and we just became close. He would call me long distance, and just talk about Mom.... about how he missed her.... How he would put his arm over her pillow, thinking she was still there....
So I learned to love this man, who I couldn't STAND ever since I was a little girl. When I would visit him, I could see HIM going downhill.... he didn't care anymore... and he just ate snacks and nuts... All the years of smoking and drinking, finally got to my Dad.... but I had about a year of learning how to love this man all over again.... and he treated me like a Daughter he loved. My Brother just didn't get the chance.....
I don't know WHY I talked about this.... but stress will hurt your body more than anything else you can do.... almost.
And Forgiveness and feeling at peace will heal your heart....
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I had forgotten this...! You know, my folks favorite hymn was How Great Thou Art... Mom had saved this little wooden music box, that must have come out of a ceramic holder, and the song was "How Great Thou Art." I remember them singing this in Church when I was little
And about a year after I lost them both, I had set it on my vanity....along with their 50th Anniversary picture. One day, I walked past it, out of the bedroom, and I stopped to listen. That little music box was playing How Great Thou Art! I turned around, and just started crying.... I just knew they were both "with" me somehow.
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This morning dh and I are off to the gym. I always feel good when I'm finished my workout! Then I treat myself to a cup of coffee to drink on the drive home.
It was warm and muggy yesterday afternoon so I turned on the a/c. Today we're supposed to get some cooler air.
Today I need to schedule a kidney ultrasound for my mother and a bone density scan. Both were ordered by the kidney dr. we saw on Tues. My mother has stage 4 kidney disease. Sure hope this dr. can help her improve that function. Stage 5 is dialysis.
Happy Thurs. to all.
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This morning I enjoyed the sunrise, a cup of decaf tea, and my lazy dog who was snoring in a sunbeam. Chevy, I haven't had caffeine in years. It would probably make me an energizer bunny now.
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Remember that the right temperature in a home is maintained by warm hearts, not by icy glares, lukewarm enthusiasm, or hotheads! Your attitude can set the tone for your whole family. So use whatever scraps you can find—even if, in the beginning, it’s just the scrap of a smile—and make a gift of whatever you have. Then watch the gifts come back to you.
Barbara Johnson0 -
I think I picked the right quote to put here this morning. ( And Forgiveness and feeling at peace will heal your heart....)
Sometimes letting go -- and giving in --- is not giving up. It is forgiving so you can have that passageway to peace and serenity for yourself. The person or people who cause you the most distress are likely in worse shape than you and erasing bitterness and pain is not forgetting -- it is learning to live with a very imperfect situation so it no longer has a hold on you. As long as it has a foothold, you can be tortured, feel misgivings and far too much un-rest in your soul. We can't always do much about other parties, but we can always do something with ourselves -- forgiveness is not because the other person necessarily deserves it, but because you do.
I also enjoy hearing about loved ones who have transitioned coming back to reassure us -- that they are fine and are still very much aware of us. It has always been interesting to me ( we take such pride in our aliveness ) that they are actually far more alive then we are. To be here and in life -- we have to forget all that we have known since the very beginning of life.
If we retained the knowledge we actually have -- we could not be here -- this is a special journey to define and refine the soul -- we are growing our soul, learning and discovering, things we need about ourselves and about life and spirituality. So the beautiful lives we have experienced and loved are indeed much more alive than we are while we are here on this Earth. Another interesting thing which was ( maybe not for anyone else ) a discovery for me -- we all ( those who have gone on and those still here ) agreed beforehand to be a part of each other's existence to further those things we needed to learn about and experience.
By the way -- many of these concepts were things I fought with myself about and sometimes wanted to deny as " not right " -- too vague, iffy, other world like, but once I learned to quit fighting -- like forgiveness -- life settled down and I ended up with such comfort in my soul. So that is my disclaimer. Some people can't make that reach and that is fine. Each soul is exactly where they need to be, and each one needs ( for whatever personal to them reason ) to believe what it is they do believe. No one is wrong -- we are all on slightly different levels of experience and understanding and you are just where you need to be at this time.
So -- it is just that way. An easy leap for some, a much more obscure and more difficult one for others -- but whatever it is -- it is just the one that is needed for right now and for this life.
See you all later.
Blessings,
Jackie
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Love that Teka !!!!
Jackie
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