Can we have a forum for "older" people with bc?

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  • anneb1149
    anneb1149 Posts: 821
    edited November 2014

    Hi all

    Hope your day is going better than mine. Mine started with a phone call from my sister. When I saw her name on caller ID, I thought she was calling with an update on my cousin's daughter. Nope- my brother is in the hospital. He had been having severe headaches, and I guess, a few brief moments of disorientation. But when he went to leave the house to meet some fellow retired NYC firemen for coffee in his PJ's, his wife took him to local ER. They did CAT scan, told them it was a cancerous tumor in the front of his brain and air- lifted him to a larger hospital. Since Bill has had a rough time with skin cancers and melanomas, Noreen called his Onc at Sloan-Kettering in NYC.  They said they cannot make a cancer diagnosis without a biopsy, and since he had a checkup with them, less than 2weeks ago, they think it more likely is a stroke. He is currently on medication for a severe sinus infection. As far as my sister knows, his speech and mobility are fine. Here I am, sitting in pins and needles waiting for news...

    Then DD#1 emails from Atlanta. Her best friend's mom, Barbara, is in ICU in Indiana- kidney failure and heart is working at 10% capability. I emailed my other kids, and my church to have her put on the prayer chain. Less than 20 minutes later, Nancy calls to say Barbara passed. Called Michelle ( who is part of our family) and talked to her for about 15 minutes.. She is hysterical, because she was in the middle of packing to go to her Mom when her sister called. 

    What a day! 

    Anne

  • SallyS70
    SallyS70 Posts: 816
    edited November 2014

    Anne ... Thinking of you and your family.

  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    Anne, I'm so sorry for your day.  Prayers for strength for everyone through the next rocky weeks ahead.  Sometimes it doesn't rain, it just pours. 

    Jackie

  • puffin2014
    puffin2014 Posts: 979
    edited November 2014

    Anne, so very sorry, prayers for you and your family.

  • carolehalston
    carolehalston Posts: 9,026
    edited November 2014

    Hugs for Anne.  That's the kind of day we all dread.

  • Teacher64
    Teacher64 Posts: 402
    edited November 2014

    Anne - thoughts and prayers for your family

  • Miminiemi
    Miminiemi Posts: 260
    edited November 2014

    Hello Anne  oh so sorry for this terrible day. Sounds like your sister did right to call the ER but also the oncologist.  My husband had a very large brain tumor in front in his brain removeed.  It turned out not to be cancer.  After that we found many people that had non cancerous tumors removed.  While it could be stroke, I wanted to offer the hope that my husband did ok.  Hope you are sleepingoing riget now and can meet tomorrow refreshed and strong.

  • blondiex46
    blondiex46 Posts: 2,726
    edited November 2014

    Anne so sorry, glad u just visited with u r brother. 

    I love when people come 2 visit, it tells me that i might.

    GROUP HUG

  • Miminiemi
    Miminiemi Posts: 260
    edited November 2014

    Sandra  I just read back and saw the great information about PNC avoidance.  They did say during the appointment no gas anesthesia for her.  Lucky for her she has a son that is an ansthesiologist.  And the doc suggested the son could call if he wanted.  She is scheduled for surgery next Friday  I trust her kids can reorganize schedules with that notice.  

    Chevy, I can almost hear the music box playing that great hymn now.  I have had similar experiences that bring comfort.  A sort of amusing one goes like this.  My husband always untangled fine gold cha in necklaces for me.  He was just good at that.  While dressing for his funeral on a hot July day I was sweating and angry at a tangled chain. I literally said dammit BI'll where are you nowaiting when I need you.  The chain just simply untangled in my hands. So now I must stop typing because the tiny tears of a sweet memory make it hard to type.  Nighat all.

  • MomMom
    MomMom Posts: 334
    edited November 2014

    Anne, So very sorry.  Prayers for strength for you and your family.  

    Mimi, such a sweet story.  I do believe our loved ones  reach out to us.

  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    Holy moments come to us daily if we will ask for eyes to see.  It may be the sun streaming through the window as you fold laundry.  Or maybe it’s lifting your friends to God while you drive to work.  We can’t always withdraw to quiet hillsides to pray, but God will meet with us in the quiet places of our hearts.
     
    Sheila Walsh

  • anneb1149
    anneb1149 Posts: 821
    edited November 2014

    Hi everyone, 

    Once again, thank you so much for your kinds words of comfort and support. 

    My brother definitely has a tumor, no stroke. They have been telling him since Tues they would be taking him to surgery shortly to release the blood surrounding the tumor and biopsy the tumor. But he has been on Coumidin since his knee replacements years ago. I know from my husband's situation, they do everything possible to delay any surgical procedure until your blood thickens to an acceptable level- usually 3-5 days. Once when Bob couldn't wait that long, the transfused several bags of fresh frozen platelets to speed up the process. Bill is stable at the moment, so they were able to wait. He is supposed to have the surgery at noon today, to remove as much of the blood around the tumor as possible, and to biopsy the tumor itself. The Dr's have said that he has the best case scenario for a bad situation. The tumor is right in the front of the brain, not behind or under anything which makes the removal of it much simpler. I have asked my cousin to keep me updated, because I am not sure if my sister is not understanding what she is told or if she is trying to censor it so as not to upset me. I was very confused after talking not her yesterday afternoon. She said they were draining  the blood from the tumor. I had never heard of that being done, plus she said they were "testing" the blood and it would take up to 5 days to get the results. She never used the word biopsy. 

    As you can imagine, I did not sleep well last night even with my Ativan and Ambien. I ended up taking an extra Ambien at 5:30am and slept till 10.  It all seems so unreal because I was with him less than two weeks ago and other than being a little quieter than usual, he was fine.

    Anne

  • Miminiemi
    Miminiemi Posts: 260
    edited November 2014

    Teka  I love the umbrella picture  and love that  you thought of me.  Thanks  

  • carolehalston
    carolehalston Posts: 9,026
    edited November 2014

    Anne, sending very positive vibes to your brother.  How wonderful that you just enjoyed good times with him before this happened.

    We're having a beautiful fall day, though it was a little breezy for golf when I played this morning.  It's sunny and in the 60's now.  I'm about to go to Sam's Club to see about a prescription re-fill and will go to the supermarket, too.  DH and I finished up the potato/leek soup for lunch and he suggested we have some lentil soup next.  So, Jackie, I'll google "lentil soup"!  I'm sure I have recipes in my collection of cookbooks and looseleaf notebooks of recipes.

    Nova and Logan, my niece's two older children (10 and 8, or 11 and 9--I forget which) will be spending the night with us tomorrow night.  Their father is bringing them to this area to attend a Renaissance festival.  He's supposed to drop them off about 5pm.  I think we will probably go out for pizza tomorrow night for dinner, to a restaurant where we can each order our own small individual pizza.  I like vegetarian pizzas like spinach and feta cheese.  DH always wants Italian sausage on his, and the kids like salty meat like pepperoni. 

    The kids' mother is at her mobile home but she doesn't want them to come there and stay with her.  The place is a horrible mess and she has been smoking inside, since her foot is broken.  Cigarettes and marijuana.  Since she can't drink (her liver has already been damaged by alcohol), she smokes weed to relax.  Or escape reality.  My sister has been keeping the 5-yr-old girl, who has a different father.  She is making it clear to my niece and to the child's father that she cannot commit the rest of her life to raising a small child.  If one of them can't take their daughter by the new year, she will have to go to a foster home, where she will be fine if the foster family is a good family.  This little girl has been shifted around enough that she is very adaptable.  She's an adorable child and still very adoptable, in my opinion.  She's extremely bright, too.  She knows her mother is there, half a mile from her grandmother's house, but she is perfectly content being with her grandma.  A very sad situation. 

    Sorry to blabber on.  Hope everyone is doing well today.

  • Chevyboy
    Chevyboy Posts: 10,258
    edited November 2014

    Hello Anne..... just so sorry about all that is going on..... I'm saying a prayer for him.... and your family!  Sheesh....  Let us know.... okay?

  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    Carole, I'd imagine that it bothers you a bit to think of the little one with her Grandma.  She has weathered so many storms  in her young life and will have to face another right after the new yr. possibly. 

    The fact that she is really bright helps.  In fact, her young age would likely be a good thing too.  Makes me wish I "knew" someone who would be more than thrilled to have a little one around, but I'm afraid I don't. 

    I hope things will work out for her. 

    Blessings,

    Jackie

  • sandra4611
    sandra4611 Posts: 1,750
    edited November 2014
  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    Sandra -- what a supper idea.  Thinking of the Styrofoam cooler inside the tote.  Also, I get hay for the little dog houses that I have for a couple of the feral cats I care for.  I wish I could put houses out for all, but I know at the one area I'm not allowed ( they are already not thrilled the cats are there at all )  to put anything out to help the animals in the rough weather we have so often. 

    I hope back beyond the tall fence they come through that something is there that offers some shelter to them.  The people who owned the store before were very amiable about little cat houses and other little things to make life a bit better.  There are new owners although the building is still owned by the original people and leased to the people who now run the store.  They asked me to remove these cats and I told them I would see but the cats had been there for a long, long time because the "former" store owners totally encouraged the presence of the felines.  I told him if I couldn't find another option maybe I would get a hold of the former owners.  I haven't had any removal discussions since then and knock on wood, I won't.  I intended this new person to 'understand' that this area has been home to this cat group for some time and it could be seen in a negative light if big changes were made. 

    Jackie

    p.s. I'm certainly going to remember this way to make cat shelters.  Not only is it great, its very economical too.

  • sandra4611
    sandra4611 Posts: 1,750
    edited November 2014

    Reading through the last two days of posts I've had shivers over the stories of loved ones who've passed and tears over some heartbreaking stories. What a shame that the little 5 year old can't be with her siblings. Hoping to hear some good news from you Anne.

  • carolehalston
    carolehalston Posts: 9,026
    edited November 2014

    Happy Saturday to everyone!

  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    Blessings on this day, may I make it special in some way.  Blessings on my life, may I treat it with love and care. Blessings on all people, may I see the goodness in everyone. Blessings on nature, may I notice its beauty and wonder. Blessings on the truth, may it be my constant companion.
    Charlottte Davis-Kasl

  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    We are starting out with no sun, but it will be ok.  We don't as yet have our Artic blast -- I think that is actually a few days ahead, but it won't be too warm anyway.  Well, knew it was coming but a couple of yrs. we made it into December with really very moderately coolish days -- I think not this time.

    Not a lot planned for the day.  I helped my friend out yesterday -- and will have to do double-duty around the house today as well as get my bills written out.  Oh, what fun for me.  Bur it is all in a day's work.  My friend was such a support for me during my initial txs. and was so great in cheering me on -- there is no question for me -- if I'm home I will drop everything to help her out if I can.

    Hope you all have a great Saturday and saying hi to those who aren't posting much.  Hugs, to Chevy, Cammie, Sally, Blondie, Wren, GG, and anyone I may have missed. 

    Blessings

    Jackie

  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    TEKA-- I love it, love it, love it.

    Love,

    Jackie

  • sandra4611
    sandra4611 Posts: 1,750
    edited November 2014

    Adorable, Teka. Speaking of cats, I thought I'd give you all an update on my daughter Stephanie's new kitten, Franklin. You may recall that she lost one (Maxwell) of her beloved pair of one year old brother kitties after a long, protracted effort over months to keep him alive. The remaining black beauty, Kelvin, was mourning for his brother and Stephanie decided to get him a new brother. She didn't want to get very attached and claimed the new kitten would not have found his way into her house in the first place if Kelvin hadn't been spending hours a day looking all over the house while he called for his brother. Well, of course, who can resist a baby cat? Stephanie has had him a month now and is hopelessly in love. Franklin is 3 months old now and he and Kelvin are best pals.

    image

    P.S. Apparently I knew Franklin was coming into our lives...look at my avatar.
     

  • anneb1149
    anneb1149 Posts: 821
    edited November 2014

    Hi everyone

    Sorry I didn't get a chance to update you yesterday. I picked my GC up after school and their mom got here about 5 and stayed till almost 10 because her computer is broke and she needed to use ours.

    Really good news to report on my brother. They were supposed to drain the blood and do a biopsy of the tumor. They were able to remove the whole tumor and not only drain the blood, but completely stop the bleeding. I am a little confused because they have already said that the tumor is a melanoma, but they are biopsying it anyway. I thought melanoma was a diagnosis in and of itself. Of course, we don't know what, if any, follow-up treatment there will be but the Dr is confident that they did get it all. Luckily. Bill is already attached to Sloan-Kettering in NYC because of some major skin cancers, so I am sure he will go to them re follow-up.

    I was so relieved, and so tired from not sleeping the night before, and Jamie staying so long, that I fell asleep about 11, without turning my noise machine on, and slept like a log until 10:45 this morning. I feel like a new person.

    Hoping you all have a great weekend

    Anne

  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    So happy that things seem to be going well in your brother's favor.  Such a frightening event in total.  I think you are right about the diagnosis, but I think the Dr.'s are hoping for some sort of certainty.  Also, I thought melanoma was "usually" cancer often found on the outside first.  Now where I got the idea -- who knows, but thinking that would be part of the basis for wanting to test the tumor to be totally certain.

    All's well that ends well and with your brother -- it does seem so far, so good.  He will stay in my prayers just for an extra boost.

    Sandra -- Franklin is quite photogenic and I am so, so thrilled that things for your daughter and her feline family members are working out so well too.  Kelvin needed your daughter but someone of his own kind too -- I think the perfect match for all concerned has been accomplished. 

    I hope you will tell your daughter how happy this old car rescuer is to hear that news.

    Speaking of which -- there won't be a rescue, but I have wondered why their was only one batch of kittens born this season.  Well apparently there was at least one more.  Today where I feed, two very small black kitties and one black and white ( I think the Dad of that one was not far away ) came out to eat where I leave food.  They were quite skittish as they always are when they first become "brave" enough to venture out to the food pile.   They usually run back into cover four to six times as I busy myself placing the food.  Some of the older cats can be a little testy ( especially a couple of the un-neutered males ) and so I have to make separate piles. 

    The little guys/gals are really, really cute.  Soon, like the other two slightly bigger ( definitely from the first litter of the yr. ) kitties, they will not run and hide at the slightest movement I make -- but it will be likely the first week of Dec. at least.  I love seeing them, but I also worry about what will eventually happen to them.  It is hard for male kittens to survive as the alpha's already there seek the babies out and do away with them -- but if that does not happen -- in spring when they are likely old enough to be full of hormones -- they could go for miles seeking females and never find their way back.  Sigh !!!  Just have to wait and see. 

    Jackie


     

  • sandra4611
    sandra4611 Posts: 1,750
    edited November 2014

    I just started a new thread called What's the matter with me? I don't want to read!. I used to think I was the only one who couldn't seem to focus enough to read more than a Facebook post for weeks after surgery. Now that I know I'm not alone, I'm fascinated to read more stories from everyone else and hear your theories. https://community.breastcancer.org/forum/91/topic/826105?page=1#idx_2  Please share YOUR observations.

    image


  • Teacher64
    Teacher64 Posts: 402
    edited November 2014

    I, too, couldn't read for so long after each surgery the past year. I kept adding to my book list and am now getting to them. It's perfect timing because it's getting cooler and I will be able to snuggle with the dog and a good book.

  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    I too struggle to read.  I used to be able to fit it neatly between the hundred and one or more things I use to do everyday, but for some reason -- I start a book and can no longer seem to find those "odd" moments that allowed me to read one or two ( in a good week ) almost three books a week.  Oh well !!!  I keep thinking one of these days I'll be caught up better -- and then.

    Jackie

  • illinoislady
    illinoislady Posts: 46,506
    edited November 2014

    Don't choose. Accept life as it is in its totality.
    - Osho