Can we have a forum for "older" people with bc?
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Welcome MoJim, I just turned 63 and had my lumpectomy in June. If you aren't on the Lumpectomy Forum I'd recommend following that one for awhile too, the ladies there had lots of good suggestions for me after surgery.
Teacher: congrats on passing your stress test!
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Oh sweet Blondie, there you are. Well, sorry that you did not get out on the beach, but hey -- walking in sand is the pits sometimes. I lived about a mile from the beach when I lived in California and can't tell you how many times I came home with sand chiggers. Hundreds of red bumps all over the tummy. Use to drive me crazy -- for a while it was worse than poison ivy for itching.
I did love the smell of the salty sea-weed though and at times there was really a lot of it on the beach. It was probably full of chiggers. Well, even if you don't see the water, envision a wave and set all your cares on it -- and then mentally watch it drift way, way out to the horizon with all your un-wanted and un-needed baggage of upsets and didn't go right's, and always wish for these things to be so far away that they can't bother you or anyone else.
Hope you are able to rest and relax a bit. You know....just thinking about it almost makes me smell the ocean's salty air.
Ok -- it's dark out and I need to go take some pills. You take care Blondie.
Sandra ( 4611) my avatar is a rose I sometimes put on when it is cold as it has snow under it. Funny -- I'm slipping as I thought I remembered it as bigger. Maybe in a day or two I'll find the avatar pic of me that sort of fits ( good size pretty much ) and put it on. I usually put it on now and then so people get to see who they are talking too -- and then I take it down and hunt for a rose of some sort ( in honor of my Mom who loved roses ) or now and then a cat or dog which I love. Oh heck -- maybe I'll just go now and find my pic of me avatar. That way Blondie and the new ladies and anyone else who hasn't see it, can.
Jackie
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Thanks going to the water tomorrow, thanks
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Puffin - How would I find the Lumpectomy Forum? This website is a bit "busy" & since I'm new, I'm trying to figure out how tonavigate it. I love you ladies already
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Ok, I got the picture/avatar in -- wow, I must be losing it. That picture was smaller than I remember. Maybe I need new glasses. Sigh !!! This old gray mare seems to be coming up a little bit short lately. Oh well, that's ok. I'll be x-ing this avatar out in a day or two and find one of my GIANT animal pictures or something.
Maureen, when you find the forums you'd like to read and post in for a short or long time -- I put them all in a favorites list ( to do that you just go up to the top of each page -- like the very top of the one you are reading in -- and click on the box there that says to save in favorites or something like that -- and every time you open Breast Cancer Org. Discussion Group, you will see a list of your favorites and how many of them have been posted too since the last time you came.
Also at the left top of this page is a box with all the parts pretty much of BC. Org and you can use it to jump around and find places that might interest you. You can also put something in your favorites ( to make sure you can easily and quickly get back ) and if you find in a day or two, it may not be something you'd care to keep going too....you can just go to it and hit the part that says you can remove it from your favorite topics. I seldom if ever have to look for Breast Cancer. Org. Everything I use ( which is a fairly small list ) always opens right up to the list of favorites.
On the far left of my computer is a big list of favorites that lists numerous places all over the Internet and BC.Org is one of them -- and that is my link to go directly into MY FAVORITES on the BC. Org. Just a little playing around and you will have it down pat.
See you all later.
Jackie
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MoJim....just type Lumpectomy Lounge in the search section.....see you over there!
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Hi MoJim-
First off, we wanted to welcome you to Breastcancer.org. We're so glad you've joined our community, and hope you find it to be a place of support in your journey.
You can find our Lumpectomy forum here. Like Jackie said, you can add that forum to your favorites so it's easy to locate the next time you log on.
Let us know if there's anything we can help you with, that's what we're here for!
The Mods
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Awesome pux
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Oh yes! It's a MoJim! I forgot! Welcome here gal! Now Jackie says we "cut-up"..... Well, that's kind of an understatement, but Cammi and I have this "thing" where-as we tease each other un-mercifully.
I'm always trying to act like her Mom, and straighten her out... well, her spelling anyway... but just don't pay no attention... it is what it is.... All that schoolin' I did for her... and it just went out the door. But I love her, because someone has to.
Jackie, you've been here since 2007? I had forgotten that! I thought I had been here awhile.... since 2009.... You beat me kid! Hah!
And Carole! A little longer than me!
Hah Sandra! As soon as we loved Jackie's new avatar, she CHANGED it! She keeps us on our toes... don't get toooo used to this one, because she is doing this to trick us.... She wants us to think she is someone new. Watch! NOW she will also change her name..... to like Ruby or Sarah or something!
Sandra!!!! OMD.... !!! That's Oh My Dog, instead of OMG! We like that better.... You can't find your glasses? Okay, do this.... Look on Google Images, for this photo.... It says "St. Anthony, St. Anthony, please take a look around. Something has been lost and cannot be found." And print it off, and set it someplace conspicuous, and HE will help you find them!
It took awhile, but it worked...! Also found my cute little polyester PJ bottoms, with the lace. THEY were in DH's underwear drawer! Can you imagine??? I must have done it, putting away his stuff!
It's been so cold here, that I've been cleaning and organizing EVERYthing, besides looking for my watch! So I found them too!
Now I'm not Catholic, but St. Anthony works for everybody, so just try it.
Morning Teacher! And yes MoJim, we're glad you found us too! I think I found out my stage and grade after the biopsy? Or was it after the "final pathology report"? Then you can post it here... Keep all of your records, and just write everything down.... You are probably used to that with your DH? What cancer did he have?
Oh! Your name is Maureen? I kind of like MoJim.... I'll just BET that is your Husbands name.... Jim? Hah! I'm smarter than I look.
Blondie.... I love the beach too...Last time was when we went to Melbourne Beach in Florida......and watched the turtles lay their eggs at midnight... It was magical! Seeing these huge Mama turtles, lumbering up from the water, and slowly crawling along the sand up to find a "safe" place. Then digging with her "legs" a big hole, to drop her eggs in... You didn't want to get too close, but you could "hear" her breathing, and like "grunting" until she was finished digging that special place.
If any of you are ever in an area where the turtles lay their eggs, it is something you will always remember....
Morning to you Puffin!
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Welcome, Maureen. As Jackie mentioned, I'm also a newcomer.
In this short time and speaking from personal experience, I've come into this forum terrified, with the weight of the world on my shoulders and one by one each member has defused my fears. Somehow they manage, through their nurturing words to ground you, organize your thoughts and send you out to handle the journey. They are ahead of you and me, so they know. They know how we feel. They've been there.
You and I are very fortunate to have found this forum. This is where I bring my doubts and fears knowing it's my safe place.
Catherine/Nancy
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Brrrr. It's winter here this morning. Light rain. Windy. Temp in the 40's.
Happy Thurs. to all.
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Overcast....have the pellet stoves on. Still waiting for word on the HER2 reading.I read my pathology report and got depressed, as it seems so far it indicates a high incidence of recurrence, so I decided it's best to burry my head in the sand for a while and concentrate on the positive readings of the analysis.
They weren't so upfront with information 23 years ago when I had my first cancer. For all I know, maybe the indications were similar.
It's a rollercoaster of emotions.
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ChevyBoy: I'm glad you all have "fun" on here ... joking & kidding, etc. Heaven knows we need some laughter as it's the best medicine ever! Yes, my husband's name is Jim & I'm Maureen. "Mo" is a nickname only a few friends use for me. MoJim came about as an email address & I use it on other forums too. OH -- my hubby is anything but "Darling" - ha!!! He's kind of a "crusty old man" but I still love him despite his grumpiness - lol! Jim's 4 cancers in order of dx are: prostate cancer, CLL (Chronic Lymphatic Leukemia), Bladder Cancer & Kidney Cancer. He lost a kidney last Jan. due to the bladder cancer traveling up the ureter into the kidney. BC (bladder cancer) is a BEAST to have. We travel 6 hours every 3 mos. for his routine scopes & scans for it. I'm VERY WORN OUT from all the medical stuff between him & myself! I have many other health issues I will talk about in the future. I have an extremely rare disease I was born with (K-T Syndrome) that only affects 1 in every 150,000 people. Mine is extensive vascular malformations from my left foot, up the leg, into my groin & pelvic cavity. I live in pain everyday & there is nothing they can offer for this as far as treatment. So, for me, the K-T trumps the BC. I have a Dr. appt. to get to soon, so will catch ya'll later!!! Have a GREAT & Blessed Day!!!
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MoJim:
on the left side of the page click Active Topics
scroll down until you see "Surgery - Before, During and After" in the Forum column and click on it
then scroll down until you see "Lumpectomy Lounge...let's talk" and click on it, click on add to My Favorite Topics and you won't have to look for it again, it'll show up under your Favorite Topicsthen I'd jump to the end and starting reading backwards in time as it's been going on for quite awhile
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"Forgive yourself for the mistakes of the past and smile at past struggles. They are what have made you the stronger person that you are today. Keep on pushing on, positively. Persevere on what is important to you. You are getting closer -- and better -- and stronger -- everyday."
-- Craig Ballantyne0 -
OMD's&C's --- well, that is " oh my dogs and cats ". It is freezing here and along with other chores, I had to run to the storage shed on far side of property and get the heated bucket for the dog pen. Their dog house heater has been on for a few days already --- but we got to the frozen water this a.m. My cat room is still ok -- it is the last to need heated water container.
Dh couldn't help much. He headed early for Mt. Vernon eye clinic. He has some eye thing ( sounds like a retina that is coming un-done/detached ) so needs to deal with it. He has very little sight ( mainly a very slight bit straight ahead ) in the other eye. I have to go to work so --- and he just insisted that he would drive himself. Made him promise to go the back way -- almost no traffic and no road construction and huge trucks to worry about. I have my fingers crossed.
Despite the small picture that was some time back -- I look pretty much just that way now. My hair at 69 has only a little ( very little gray ) gray and with a perm is almost un-noticeable in the front -- which is why my hair is neat in front but always with a tossed around look in back -- I just comb it w/o staring into the mirror you know.
Anyway glad you are all here, each and every one. MoJim/Maureen, you shound like you have learned strength and perseverance from the get-go with the K T issue - and then everything that now rests on top.
Nancy Catherine -- you too have lots of struggles and you are just stepping up to the plate and getting on with it. My little saying here -- "amazing what you can do when you have no choice " along the line of one of my others -- which I've seen other places lately but I've used it for years " old too soon, smart too late ". Some weeks that is just how it goes.
Can I ask a question -- what is a pellet stove???
I'm off to work but I'll be back afterwards to pester everyone. See you then.
Blessings,
Jackie
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Ah Hah!!! I'm so excited....! I had to SCAN my picture, then upload it to Picassa, THEN move from IE after I copied it, and then open AOL and go to our Blog, THEN I could paste it here! For You Sandra! I couldn't find it online, so I copied my own picture.... which will help you find your glasses!
Okay Mo&Jim.... I'll get back to you two later!
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Mornin, all
Chevy- glad you found you glasses. I don't have that problem because my glasses are always either on my eyes or the top of my head (when I am reading), so they don't have a chance to get very far. I am blind as a bat without them.
Sandra- I have not had cataract surgery but by DH did. His first eye surgery was for diabetic retinopathy. They never told us about not lifting, bending, etc. So that very night we went to a friends house for dinner. Tom works for the government and has to stay in shape. When we got there, he was finishing his workout in the garage. My macho man, who hadn't done any kind of weight lifting, push-ups etc since he left the Army in 1967, decided he had to prove he was in as good a shape as Tom. Anyone with eyes could see he was not. Anyway, that 10 minutes of macho man destroyed the vision in that eye forever. He could only see vague shapes from that point on. He always said the Dr screwed up, not him, and in a way he did. Unless they told Bob about the precautions when I wasn't with him, they hadn't said a word. So, yes, follow those guidelines. Bob went on to have the same surgery in the right eye, then needed cataract surgery in both eyes. He was amazed immediately and the change of vision in his right eye.
MoJim- glad to meet you and very glad you have joined our family. I empathize with you re dealing with your husband's medical issues. My DH was diagnosed with diabetes when he was in his late 30's. For years it wasn't much of a problem, even when he started needing insulin shots every day. Unfortunately, he chose to play with the amount of insulin in his shots rather than eat properly. For the final 10 years or so of his life, we were at the Drs and hospitals more than we were home it seemed like. Luckily, someone told us that diabetes was connected to the use of Agent Orange in VietNam. So we got hooked up with the VA and all his care was free. He ended up with diabetes, end stage renal failure, congestive heart failure, A fibs, diabetic retinopathy, and an extremelylarge thyroid goiter. He was on dialysis 3x a week for the last 2 1/2 years of his life. Eventually he caught a virus in his blood stream that destroyed the atrium valve in his heart. They were afraid to do the heart surgery needed because they didn't think they would be able to get the breathing tube past the goiter, and with his heart being so damaged, they couldn't do the thyroid surgrery, so they basically decided to do nothing. He passed about 3 mos later.
Catherine- so glad you have a diagnosis and the beginnings of a plan. I had a dbl mastectomy last Jan and still believe it was the right choice. I have not heard of anyone being both ER+, PR+ and also being HER+, so I think you will be okay there.
Just one more quick update- I talked to my brother for the first time last night and he sounded tired but ok. I was imagining a small incision, maybe 3 in wide or so. Nope- it goes ear to ear across his forehead. (Catherine and MoJim- he was diagnosed with a brain tumor about 10 days ago) He said he saw itfor the first time yesterday morning and scared himself in the mirror, he also has 2major black eyes from the excess blood draining downward. Right now it sounds like he'll need radiation, not chemo, but they will know more when the go back next Mon. He is so happy to be home and in his own bed.
Anne
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Jackie, ours is a 210 year old farmhouse. Up until 8 years ago we burned wood. We had a stove in the livingroom and one in the family room. The house also has forced hot water oil for those almost zero days.
DH had a system where he would cut, split and rotate and we figured by the time we stuck that wood in the stove it had been handled at least 6 times. As we got on in years, it became difficult for him to keep up the pace, especially with a bad leg, so we just burn wood in the fireplaces now.
A pellet stove uses wood pellets that we order in 40lb. bags and these stoves have replaced our wood stoves. It does a good job, but it's a different kind of heat - not as cozy as wood heat, but a lot cleaner for the environment. If the wind blew a certain way, it would come right down the chimney and blow that spoke into the room. Sometimes it was awful.
Here's what pellet stoves look like:
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Chevy, I've been looking for my hair dryer for 3-4 days. I use it sometimes to dry paint when I'm painting and had seen it recently, but nowhere to be found. This morning I turned around and looked at a plug that said "if dryer stops" and sure enough the dryer was on the other end. On top of my desk. Granted my desk is a catch-all, but really.
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Has this ever happened to any of you? Yesterday, I was very encouraged after the consult with the BS and learning that I was ER/PR +. However, last night all of a sudden I burst into tears sobbing my fool head off. Poor Lizzie, my little Dachshund, woke up and started kissing my face. I'm glad DH and I have separate bedrooms, otherwise he would have woken up.Same thing happened today. Walking out of the grocery store, I started crying. I think it was the realization that last week when I did the shopping, I was carefree and cancer free, at least as far as I knew.
I still haven't heard back about HER2, so stewing over that. Heart is palpitating again.
Good grief. I wish I cold just take my whole self and exchange it for a better model. Heh!
Catherine
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NancyCatherine.... It's alright.... Doesn't have to be our situation, sometimes I just cry when I think of our little dog we had to put to sleep.... something will remind me of her, and my heart just breaks....
You can cry, but then remember WHO you are, and what you are here for! Dry those tears, and know that you will do this once in awhile, but more and more, you will be STRONG..... just like we all are... You've been through a lot.... but you have a plan, so just remember to stick to it.
Hugs....... xoxoxoxo
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Thank you, Chevy. I know it will pass.
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Friends, I am back from work. Nancy Catherine -- you are just having your little " my whole life is out the window and I have no idea how I'll ever be me ( that is the REAL me again " melt-downs. Why this ( often we are not truly even thinking about our diagnosis then ) pops up -- and it has done so for so very, very many of us -- I'm just not sure. I think in my case it was having come so far in my life -- only to have the BIG BLACK CLOUD of cancer show up just when I was looking for life to even out for me. I was looking toward retirement and doing many of the things I wanted too -- and enjoying life on a far, far more relaxed level. I did not have cancer in my plans at all and it was a major intrusion and for some reason -- scared and upset me like nothing else that had happened to me before.
I had a huge thyroid blow-out that nearly killed me -- but it did not leave the dark cloud. Not even close. Then I had a brain stem stroke and again no cloud anywhere around. Now having said that with they thyroid, I had four yrs. of therapy -- had to learn how to walk, had to re-develop all my wasted muscles, had to get over transitory amnesia, learn to cook again etc. Then, after the stroke -- it was three yrs. I had to re-learn a lot that time too -- though I did not have the wasted muscles so much nor did I forget as much.
Cancer -- that is a different cloud altogether. The other two things while very un-pleasant, did not weigh me down and cause me to think in terms of maybe I'm going to die and not get to FINISH my life. I didn't feel that I deserved that awful fate either. So, in the beginning -- without warning, I would suddenly wonder if I was doing some things for the last time. I wondered a lot of things -- if I could face up the very, very un-invited fate. If I would gain a little confidence only to have the rug ripped out from under me again.
Now, I just think those tears were meant to clean me out -- give me a fresh start, and help me deal with the fact that this life is not forever -- at least not here anyway. I can never be thrilled that I have undergone cancer. It was a wild ride at times, but I do feel I came away with a very expanded viewpoint of life. There is a new and better meaning -- and there is a lot more love and sunshine. It was my wake-up and very much my do-over. I have a very different appreciation level for people, for animals, for caring about other people and for accepting that we need very little in life except for each other. I now attempt to experience all of the things that were a part of me before on a different level. When I get around things now -- I try to feel the energy, the aliveness. I'm not really passing through life and passing time anymore.
So, don't be alarmed that you are not in control because you've lost control a couple or more times with your diagnosis -- it seems to be a part of one of the few diagnosis that wakes us up to a different reality -- that permeates on a level that we don't seem to have experienced with other things. Just allow yourself to give in and go with it. I do not think it is lasting, but an interlude that most of us seem to go through. It will get better with time and maybe a lot more when you start to feel a bit more in control of things.
Blessings,
Jackie
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Jackie, I read your post and say to myself - "how dare I". I am not, nor have I ever been a spoiled, self-indulgent woman, always worked hard and kept things moving along smoothly along with job losses for DH, running a business, raising our son, etc.
On top of feeling sorry for myself with this diagnosis, I castigate myself, as well, and somehow fear that God will punish me for not being grateful.
I have always asked God for help during tough times and looking back he has always answered my prayers, but I've also given appreciation and gratitude for all the bountiful blessings he has given me; our son, a gift, my husband, my wonderful little critters, all five of them, my dear women friends who have rallied around me. During the past couple of years I've readily admitted that "I live a charmed life". Plain and simple: I feel guilty for feeling this way.
But, you always manage to pull me up and out of dark places. Thank you.
Catherine
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Ah, Nancy Catherine -- each moment of your life, whether your up or down, busy or loafing, actually smiling or crying, able to care, or unable to empathize is a moment in your life for learning something, or experiencing. It is just my humble opinion ( in fact, so much of what I have to say is ) but I do feel that our whole life has great purpose -- and all of those purposes are encapsulated within all the events, large and small that we encounter our whole life long. Sinners we may be or saints, but we have to know both sides -- my truth as always been ( though I'm inclined to be a worrier so I've had some questioning times ) that our great and loving Creator could never punish us more than we punish ourselves.
The only fish that swim up-stream are those trying to spawn -- I think we are too old -- so it is better to just go with the flow -- look at everything as something you need to know, whether positive or negative. God is with you -- very much so, but it is just harder to feel and sense it while you don't have your bearings working well just now. You will find yourself - and probably in a wonderful way.
Your ok Nancy Catherine, you are really OK.
Hugs and blessings
Jackie
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Just thought I'd tell everyone ( since for some strange reason) that in my avatar, which used to be bigger than it is now --- I am holding a little miniature rat terrier. She was/is an absolute sweetheart. My friend had to find her a new home though. The breeder sent her home with Gloria too soon and Gloria became her Mother. Ratley felt she should be with Gloria every minute -- and oh my, the hysterics when Gloria would leave to go somewhere.
After months of soul-searching and absolute pain to Gloria, Gloria decided that she needed to re-home Ratley with a household that had a rat terrier as well. She was fully prepared to bring Ratley back if need be, but it turned out to be the best solution ever.
So, the black blob ( that is how it looks to me ) that I'm hugging in the picture is a fantastic little love-bug of a dog.
Jackie
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Teka -- that is so spot on.
Chevy, you were right -- I just had "issues" with what seemed such a small picture. I just can't figure how it got so small. So, I figure now that everyone can't possibly know what I look like from such a small picture...I'll get one of my roses.
Jackie
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Jackie, I twisted your words to "finding your bearings" which is just the twist I needed to help put my life in perspective ... I am trying to find my bearings after a year of BC plus some other changes. The phrase is calming. Thank you!
Teka, I need to adjust my sails ... it's hard work.
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