Can we have a forum for "older" people with bc?

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  • anneb1149
    anneb1149 Posts: 821
    edited May 2015

    Hi all

    Getting ready to go to surgeon to see if infection is cleared up. My DD doesn't think so.

    Rita, I live in what used to be the southwest tip of Ft Lauderdale, in a little town called Cooper City. I say used to, because even though we haven't moved since we moved in in 1978, civilization has moved westward. We would probably be considered more south central at this point. Up until a few years ago, you had to drive through miles of cow fields to get to Cooper City. They have recently been sold and housing complexes have been built.

    Anne

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    Your worth is not measured by what you do.  Nor can you calculate the degree of your worthiness by what you possess.  Your worth is a function of your being.  Your being is colorless, genderless, and believe it or not, ageless.  Your being is worthy of honor, admiration, and respect.  It is a vessel of love and light.  It is a beacon of inspiration.  -Iyanla Vanzant

  • puffin2014
    puffin2014 Posts: 979
    edited May 2015

    Got a hair cut today, first one in 10 months, with last chemo Sep 18. Here's my pre and post hair photos.

    image

    image


  • MomMom
    MomMom Posts: 334
    edited May 2015


    Lookin good Puffin!  I do think trims or cuts are necessary to give our new hair some shape & style.

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    Applause-Applause ThumbsUpThumbsUp You look wonderful.  Won't be much longer and you can start having bad hair days again.  I thought after going several months without hair that I would never have another "bad" day, and was a little surprised when I did.  Still it is more of a joke to me than anything.  I've never been too vain, though I do have to admit......I didn't carry off bald nearly as well as some do.

    I was though VERY glad to have my hair back.  I did all my chemo in the middle of winter and it was a really cold one that yr.  So, I laugh about the bad hair days that are still wonderful compared to no hair.   Good for you Puff, you're on the way in a great way and it really is fantastic.

    Jackie

  • anneb1149
    anneb1149 Posts: 821
    edited May 2015

    Very nice Puffin - wish I could get my hair to look half that good. My hair is so thin and fine, I cannot do anything with it. BC I used to wear a wig because it was so bad. Like Jackie said, after being bald I said I would never complain again - but I do. I hate my hair and always have. I suppose I could load it up with "product" and use a curling iron, but don't want to do that just to go to the grocery store or Walmart. I have always colored my hair, too, and now it is pure white, which everyone says they like, but it is so thin, you can see my scalp at times. Yuck!

    I was right about my infection. It is not cleared up. He put me on a different antibiotic that is a huge capsule, and I have to take it 4x a day for two weeks. I was hoping to fly back to Fl Tues to be at my DGS's band concert Tues night, but that isn't going to happen. To do that, I would have to see the Dr Mon, at his downtown Atlanta office and I am just not comfortable driving myself into the middle of Atlanta. Nancy missed three days of work last week, and Scott isn't off till Tues, so neither one can take me (not that Nancy would drive there either!). I booked the ticket for Thurs and will see the Dr at the usual place next Wed.

    Anne

  • bonnets
    bonnets Posts: 737
    edited May 2015

    Puffin, your hair cut looks great!

  • Luvmaui
    Luvmaui Posts: 57
    edited May 2015

    Blondie....We have a Maya Rose too! Ours is 3 yrs old but it seems like yesterday she was the size of your baby. Your little Maya is adorable!

    Mom march.......I've been catching up on all of the posts and am so sorry to see you're fighting the beast again. It sounds like your Dr. Is on top of it, though, and hopefully you'll quickly be on the mend.

    Bonnets......I used to suffer from IBS so I feel your pain. Always having to know where the nearest bathroom is.....is no way to live.. Don't know why it went away but I have a feeling it has something to do with the constipating drugs I take now.

    We have been on the island of Maui for over a week and thoroughly enjoying 80 degree weather, the warm Pacific ocean, and waay too much good food. We'll be coming home Sat where it's back to the real world for another year.

    Hope everyone is having a good evening.





  • wren44
    wren44 Posts: 8,075
    edited May 2015

    Luvmaui, Have a shave ice for me. Enjoy.

  • carolehalston
    carolehalston Posts: 9,018
    edited May 2015

    Looking good, Puffin! 

    Yesterday I bought a little pattern book of hats and scarves to crochet.  I plan to get out all my crochet supplies and have them handy for the week I'll be on crutches.  If I create some nice things, I'll use them for gifts to nieces who live in snow country.  Chevy, I saw a pattern book with those fancy ruffled scarves you make.

    Vacationing in Maui sounds wonderful.

    Off to the gym with dh this morning. 

  • puffin2014
    puffin2014 Posts: 979
    edited May 2015

    Thanks everyone, it really is fun to have my hair back.

    Anne, sorry about the infection. Goes to show how well we get to know our own bodies and when things are right and when they're not.

    Maui sounds heavenly, I loved our birding vacation there.

    I went to our monthly support group meeting last night, took my wig stand and all my scarves and gave them to a gal who's in the middle of chemo. Someone might as well get some use out of them this summer.

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    “The soul is your innermost being. The presence that you are beyond form. The consciousness that you are beyond form, that is the soul. That is who you are in essence.”
    Eckhart Tolle

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    Puff, you ( like all of us having lost hair ) just did your metamorphous cycle -- up to being able to give away the things that got you through it.  That is such a good part.  Just little ceremonies to help attain and maintain the distance of moving beyond into wellness again.  It takes quite some time --- to totally get healthy cells going -- along with that full head of hair.  Some of the 5 yr. pills have a tendency to keep your hair thinner than it might be otherwise, but  as long as you get it back --- the rest should be workable. 

    Our rain storms will move in some time today.  I feel so for the people in Kansas, Oklahoma and Nebraska, maybe Texas or anywhere in that general area.  They have had bad weather will be hanging around for them and have already had tornados with it.  Prayers for all there and hoping no more tornados.  It is the time of yr. when many have to worry thru the season. 

    Back later on -- I'm going to work and then the gym afterwards --- since our storms/rain is predicted for late afternoon.

    Blessings,

    Jackie

  • mommarch
    mommarch Posts: 534
    edited May 2015

    I took my first dose of 1000 mg at 8:15 this morning, DH stayed around for awhile to make sure I was going to be ok, so far so good. It will take a few days to build up in my system. I take another 1000 mg tonight after dinner. The cost for 14 days is $4,556. Thank God for Medicare Part B. DH got up at 4:00 AM and I heard furniture being moved, I rolled over, did not even want to know what he was up to. When I got up at 7 he had rearranged the living room, vacuumed, washed dishes and pots and pans. He bought me a rattan and wood rocker for Mothers Day and my Birthday. Its great. Love him.

    Hugs hope all are doing as well as they can.

  • MomMom
    MomMom Posts: 334
    edited May 2015


    Wonderful news Mommarch!  What a sweet husband.  Yes, I agree, thank God for Medicare!  May you continue to do well on the new meds.  Prayers for you.

    Paula

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    We all have choices to make about the quality of our presence and how we will affect those around us.  The quality of our presence is dependent not on what we can or cannot “do” but on the essence of who we are and how we relate to others.  Becoming the presence we would like to be is an intentional work.  It grows while we make peace with ourselves and with life.  -Sallirae Henderson

  • carolehalston
    carolehalston Posts: 9,018
    edited May 2015

    Mommarch, your dh sounds like such a good and lovable man.  If the price of a med indicates how good it is, you're taking a good med!  Sure do hope it does the trick.  Get some use out of that new chair and pamper yourself.  Hugs.

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    Well what a day so far.  The usual morning chores that help me to wake up good and start appreciating my day.  Lots of storm clouds, but they were hanging back and allowing a fair amt. of sun -- so ok

    Got my bills done, some food down and then into town to go to the gym.  I got started exercising  and looking out the window decided I'd run out to my car and get my umbrella.  Oh, am I glad I did.  We got major pour-down two or three times with normal rain in-between.  It is so nice and warm, I didn't care a whit if I got wet, but I hate getting my glasses wet.  Slows me down trying to find and get into my locked car. 

    Then when done, I drove around town and dropped off all the bills I paid before I left.  It is great that we have very few bills that actually need mailed.  Some people just have the company collect the payment directly from their bank account.  I have to use almost all the money each month that is in mine -- so I don't dare have it done that way.  If I had to buy extra at the store or cash an extra check for gas --- I'd be bouncing checks all the time and I can't afford that.  So, since I have so much that can be turned into my bank or the cable company local office, or the propane office, or the water company office -- it makes as much sense for me to hand carry the checks around.  Also, I get to "see" lots of people I like in the individual offices ( always a little pleasant conversation )  so I'm happy.

    I think our rain will carry though until sometime on Sunday.  Carole -- are you in line for anything.  I know some of this is originating in the Texas area. 

    Hope you are all having a really good day.  I'm going to work about 5:30 p.m. tonight.  I sort of like getting my week-end day in  on Friday.  See you all later.

    Blessings,

    Jackie

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    There comes a time when you have to stand up and shout:  This
     is me damn it!  I look the way I look, think the way I think, feel
     the way I feel, love the way I love!  I am a whole complex package.
     Take me. . . or leave me.  Accept me--or walk away!  Do not try
     to make me feel like less of a person, just because I don't fit your
     idea of who I should be and don't try to change me to fit your mold.
     If I need to change, I alone will make that decision.  When you are
     strong enough to love yourself 100%, good and bad--you will be
     amazed at the opportunities that life presents you.

     Stacey Charter


  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    Good Morning,

    Hope your morning is fine.  We had a magnificent amt. of rain yesterday/last night and are awaiting more.  Those west of us --- Ne, Ok, parts of Texas, and now into some of the even closer states, like La, and Ark, are having to watch closely for tornados' and flooding and I am so hoping that all will be ok.  You know it will come every yr. but all the living you have to do beforehand buffers it --- then all of a sudden Spring is here with all those storms.  Hope and prayers for anyone who lives in any storm paths and for any of your families. 

    Will be a quiet day here -- I'm sure more rain and it will continue on and off through tomorrow.  It is a bit sultry here, but I'm used to it and feel very little with the fans circulating air.  Worked last night so the rest of the week-end is mine.  I like getting my work week over a bit early and having not to plan according to a work schedule.  Not that I actually work that much -- but this time was thinking more of dodging lighting, thunder, and downpours -- so all is behind me after getting it done last night. 

    I hope everyone's day goes all right. 

    Blessings,

    Jackie

  • NCDi
    NCDi Posts: 61
    edited May 2015

    here in Eastern NC we are waiting for Ana to show up and surfers are eagerly awaiting some decent waves....the downside being serious beach erosion. Wind is picking up a bit and squirrels hanging on to the "squirrel proof "(ha! not) bird feeders as they swing like acrobats in the Cirque du Soleil. Wild bunny and squirrel faced off over seed on the ground.....squirrel won and bunny skedaddled.

    Watched the Weather Channel this morning and saw the possible tornado breakouts areas. When Jim Cantore shows up, well..... I hope all who are in the affected areas stay safe from harm.


  • minustwo
    minustwo Posts: 13,799
    edited May 2015

    Jackie - I particularly like your thought for today. It would work for overbearing parents or controlling spouses or even friends who try to make us over.

    Happy Mother's Day to everyone whether you're celebrating your own Mother or w/your kiddos.

  • mommarch
    mommarch Posts: 534
    edited May 2015

    Had a restless night last night. Do not feel sick, just fatigued, but I am used to that. My legs were jumpy last night and I must have got up 3 or 4 times to go to the bathroom. When I finally got settled down I rested fairly well.. Have take 5000 mg as of this morning.

    Hope everyone has a great mothers day. Hugs

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    Mommarch, sure glad you are tolerating the chemo ok, other that the fatigue.  Do you think it might get a bit better as time goes on?  I sure hope so.   Hoping that you are not getting the wet, wet weather we have here though it does sound like the eastern side of Texas is getting some. 

    Maybe you can find a spot during the day where you can nap just a bit.  I have never been able to sleep too well during the day, but the last few months ( 3 or 4 ) if I sit long enough I am able.  Dh says ten minutes and he can feel almost good as new.  That used to be the case anyway.  His ten minutes have become a half an hour now, but he is so used to saying ten minutes --- and I know he believes what he says too......

    Jackie

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2015

    Something you all probably ought to know:

    Did you ever notice?

    When you put the two words
    "The" and "IRS" together
    it spells "THEIRS"?

    Grrrr,

    Jackie


  • termite
    termite Posts: 238
    edited May 2015

    Mommarch,,,your husband is so sweet and caring. Glad medicare covers your medicine. Prayers are with you.

    Blondie, ....your Maya is beautiful. She will be fun to spoil.

    Puffin.....your hairdo looks great.

    Anne...sorry about the infection. Hope you are feeling better soon.

    We lived in Wahiawa on Oahu for 2 years thanks to the military. We visited Maui and I loved it.

    Babysat for dgds today. They are so much fun. One was not feeling too well due to allergies. The baby is crawling everywhere so I am a little tired from chasing her but worth it all to spend time with them.

    Happy Mother's Day to everyone. Enjoy your weekend!

  • Chevyboy
    Chevyboy Posts: 10,258
    edited May 2015

    image

  • bonnets
    bonnets Posts: 737
    edited May 2015

    Chevy, Where have you been? Saw your name this morning, but no post! Hoping you are O.K.!

    Happy Mothers Day to everyone.

  • Chevyboy
    Chevyboy Posts: 10,258
    edited May 2015

    Morning Bonnets! Sorry.... Just fooling around, reading all the threads, but always thinking I'll get back to here... Ha!

    Just a busy week.... Some good things, and then some not so good... Visited my gal-friend who is in a Care-center... Her stroke left her unable to speak, or move her right side... She IS improving a little I guess, but it's going to be a long road ahead... It happened a month ago.

    Guess she was outdoors with the hose, either watering her garden or washing her car... When she didn't show up for her Fiance's dinner later on, he called her Son who lives close, and he went to see what was wrong... Found her out by the faucet... Hospital, then Care-rehab center.... He saw one of my emails to her and wrote me last week... Man, I was just shocked...

    We went to see her twice... She TRYS to talk.... but only a word or two will come out... And she can scoot around with her wheel-chair, because her left leg works... I just feel helpless around her.... but try and make her laugh, encourage her, and pretend everything is going to be just fine! She cried so hard when she saw me and my Husband the first time.....

    So yesterday her Son emailed and said they might release her this Friday! I just hope she has someone to help her out... She needs a LOT of help ....

    Then a funeral for Eddie Wednesday... His wife Theresa is doing okay... She really adjusted to the Assisted Living... He was 94... WW2 Veteran, and at Pearl Harbor when it was attacked.... Military Service at Ft. Logan, and a local TV station was there...

    And now SNOW last night, and only 30 degrees out! Still snowing... My gardens were mostly covered as much as I could, but I'm afraid to look.....

    Our Daughter sent me home with lots of potted flowers to plant.... She has to work today.... But I left them in the car, IN the garage, because I KNEW they would not make it outdoors in THIS lovely weather... Ha!

    I'll send a link about Eddie.... Hardly any of those guys left....