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Lumpectomy Lounge....let's talk!

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  • Just gotta call from DHs doctor--its high grade prostate cancer, very aggressive. I am devastated. He needs a bone scan to look for mets. We have an apot to see the doctor in Fri to discuss treatment.

    I'm all theses years of multiple crises--severely disabled child, severely disabled DH, my own trials with bipolar and cancer, I have never asked "why me?" I always felt like "why not me?" But this time feels different. It just seems like we've been dealt such a difficult hand. It doesn't seem fair.

    Oh well. I suppose it could be worse. We could live in a third world country with no insurance and poor healthcare. In that respect, we are very fortunate.

    I'll let y'all know how the Dr visit goes on fri.

  • molly50
    molly50 Posts: 3,008

    I am in your pocket, Brandford

  • Grazy
    Grazy Posts: 231

    mustlovepoodles - sending you very warm and best wishes to deal with the hand you and your husband have been dealt. Life just keeps delivering blows, doesn't it.

    brandford - good luck today

  • LovesToFly
    LovesToFly Posts: 705

    good luck today Brandford.


    Poodles I'm so sorry to hear about your DH. (((Hugs))

  • pontiacpeggy
    pontiacpeggy Posts: 6,343

    Ozpoppet, Welcome. You certainly at the right place for information. We have several Aussies hanging around here. I can't speak to your radiation question but I can on Tamoxifen. Here in the States, anyway, Tamoxifen would not be the first choice for someone your age (or mine 70). Usually it is an Aromatase Inhibitor such as Arimidex since you are most likely postmenopausal. However, there are always exceptions give your particular circumstances.

    Please help us help you by filling out your profile and making it PUBLIC, then it appears after each post. I know that I have a hard time remembering each person's particular Dx etc. And that also helps those who may have similar Dx's and treatment paths answer your questions.

    HUGS!

  • pontiacpeggy
    pontiacpeggy Posts: 6,343

    Poodles, DAMN! Double DAMN! I can't begin to imagine how devastating DH's diagnosis is. As if life weren't hard enough for you. I think you're entitled to ask "Why me?" You must be feeling overwhelmed right now. Is there anyone who can help you? Or at least be with you in real life? I'm glad that DH is getting the tests and appointments needed very quickly. I'm sending you tons of positive thoughts and loads of virtual hugs. If there is anything I can do to help, please PM me. I'll be in your pocket with my arms wrapped around you on Friday.

    HUGS!!!

  • pontiacpeggy
    pontiacpeggy Posts: 6,343

    Brandford, good luck! I'm in your pocket jumping around (that's called dancing :) )

    HUGS!

  • pontiacpeggy
    pontiacpeggy Posts: 6,343

    Grazy, I can imagine you are very excited about your upcoming empty nest! When do you think you'll start spending all your time in Boston? This fall? I didn't find it depressing but it certainly was different once both boys were out of the house. Since you have something so positive to look forward to, I suspect you'll do just fine with it, too!

    HUGS!

  • Sloan15
    Sloan15 Posts: 845

    brandfird and tbalding - I'm in your pocket when you go in for surgery!

    Peachy - great picture. I'm glad you had a fun time. As an old rocker myself, I'd love that trip to the Rock and Roll Hall of Fame! My son said to me there other day, "How come I know so many old songs and my friends only know pop music?" I had to explain the type of music we listened to as we did chores or took family drives. Haha

    614 - Oh, my. To see your family history of cancer is heartbreaking. So much cancer. Does it ever freak out the young people in your family?

  • Sloan15
    Sloan15 Posts: 845

    Poodles - Dang it. Okay, time to re-group for a new treatment plan. My dad's score was a 6 or 7, and he's good now. His doc told me that prostate cancer is like a rabbit in a box. There's the kind that stays in the box and the out of the box kind. When they get out of the box, you chase them, catch them, and put them in a cage to control them. This is where we count on all that research they've been doing to help out these docs.

  • mairew
    mairew Posts: 56

    Poodles, Damn.

  • Brandford good luck, your in my prayers.


  • HappyHammer
    HappyHammer Posts: 985

    brandfird and tbalding- in your pockets for the surgery.

    Can't remember who asked about when you can do more than walking type exercise after a lx but, I did a yoga class about 3 weeks out- gentle stretching and the very next day started developing a seroma. I do not think it was coincidence. My BS had said it was ok and everything. Had to give it up for another 6 weeks.

    Poodles- I am so sorry about your DH. Am glad you are getting in to the doc so quickly. Sounds so overwhelming- am hoping getting a plan and some deep breathing will help calm you some. Am sending big hugs your way!

  • Poodles I am sorry about your DH.

  • Peachy2
    Peachy2 Posts: 319

    Poodles - Well, shit. Not for nothing, your own experience has prepared you to deal with this and understand what's going on. Also, you'll be the best support your husband could ever have. Sending you good vibes and saying a prayer for strength as you head on this new journey with him.

    PolkaDotPurse - So sorry that you need to be here, but glad we can help you get through this. It's been almost a year now, but I can remember not being able to articulate that I had cancer. Telling people is so hard. But, you move on, and I promise that you will feel better and stronger once you've had surgery and have a treatment plan.

    Ozpoppet - Welcome! Hooray for clear margins! Your Medical Oncologist can best advise on hormone treatment. Usually post-menopausal treatment is an Aromatase Inhibitor.

    Brandford - Hope all goes well! You've got this.

    Sandy and Molly, glad there are more Cheap Trick fans here. :) Sloan, we have raised our sons right. When mine names a Police song in the first 10 seconds it's on the radio he makes me proud!

    If anyone would like to chant "We're all all right" it starts at around 3:20 on this video of Friday night's performance:




  • njnancy
    njnancy Posts: 32

    OK ladies -- tomorrow is 3 weeks post surgury. feeling good. doing three mile walks each day and feel strong. breast and underarm still very sore but not sore enough to take anything, just annoying. So i ask the important question -- how long did you wait for intercourse and how did you handle your sore breasts during it?

  • So many posts... I can never keep up!

    Peachy2 I LOVE CHEAP TRICK! It sounded like a blast! What a treat, you work with some very very special people.

    I just went and saw Chic and Duran Duran last week, it was so fun! Here's a story,... between songs Nile Rodgers brought up his prostate cancer diagnosis, and when he heard that he was asked to make "preparations" he decided to write as much music as he could, and ended up producing this:


    The place went nuts. And now he's NED. I was bawling for joy.


  • Peachy2
    Peachy2 Posts: 319

    Fightergirl - Great, great, GREAT story! I didn't know that Nile Rogers had prostate cancer, and how terrific that he has beaten it! That must have been a phenomenal concert. And Daft Punk is just plain awesome.

  • Peachy, so wonderful for you co-workers to do that for you. How fun!

    Brandford, Good luck with your surgery!

    Poodles, so sorry about your DH's cancer. Sending hugs to you both.


  • LovesToFly
    LovesToFly Posts: 705

    Nancy I think we waited about 2-3 weeks and then were just careful with positions. Probably I was on my "good" side...which is typical for us anyways (sorry tmi).

    My breasts were off limits for a while. I've recently started direvting DH to the good one. Still not ready for the cancer side to be touched.

  • HappyHammer
    HappyHammer Posts: 985

    Nancy- I second what LTFly said- I'm 6 mos out and still the bad girl is sore and off limits.

  • MaeveK
    MaeveK Posts: 4

    Greetings from Ireland. Last night I googled "seroma management" and landed on this brilliant discussion forum. You are all so very helpful and reassuring. It's great to know that you're not alone on this journey and I have really benefited from advice I've read here. I'm 3 and a half months post surgery for DCIS, 3 weeks on from radiation and struggling with 2 seromas. My RO, a lovely Indian lady, said "It's just a seroma, nothing to worry about". She didn't give me any advice on how to treat it :(. I've started massaging the bumps, which helps. I read here from various posters that it takes time, possibly 6 months. Good to know.

    Ozpoppet My radiation plan was also 3 weeks. It's a doddle - the most relaxing 15 minutes of your day:

  • Grazy
    Grazy Posts: 231

    Hi Maeve - I'm fairly new to this site as well and do find it so helpful. There is nothing more encouraging than hearing the experiences of those who have gone before you.

  • moondust
    moondust Posts: 207

    Poodles, I'm so sorry about your bad news :( Hopefully there will be no mets and there will be an effective treatment!

    Brandford, I hope you are out of surgery by now and on the road to a trouble-free recovery.

    MLP, how is your knee doing?

    Grazy, I know you are wrestling with that chemo decision. I had it in my mind that if I had anything lower than 22 I would skip. I got a 26. But my MO ran some other calculators and I made the snap decision to skip even with a 26. When I had a chance to really mull it over, I changed my decision and I still feel very "good" about my current decision. I hope your doctors and advisors will help you decide which choice is right for you.

    Maeve, welcome! I hope you stop by often for a chat!

  • pontiacpeggy
    pontiacpeggy Posts: 6,343

    MaeveK, Welcome! We're glad to have you here. There are quite a few of us who have had seromas. I'm not one. Nice that your RO is likable. However, brushing off your concerns is not good. Perhaps you should contact your surgeon. That seems to be the person who is most likely to take seromas seriously. Good luck!

    HUGS!

  • MaeveK
    MaeveK Posts: 4

    Hi Peggy, thanks for the warm welcome. My 6 week post-radiotherapy appointment is coming up soon. Will voice my concerns then. Hugs to you too :)

  • iamnancy
    iamnancy Posts: 641

    MaeveK - I had a seroma for quite a while - .. my incision burst and it drained for a few years... This January I had the incision closed and now I still have a seroma - its pretty big but the breast surgeon said it will go away but could take a year.. I do have to get an ultrasound now and again to make sure it is getting smaller but no one is worried about it.

  • MaeveK
    MaeveK Posts: 4

    That's the thing Nancy. The surgeons just pass it off as par for the course. Guess we just have to live with it :)

  • chisandy
    chisandy Posts: 11,646

    I have a large seroma in the tumor cavity, which was enlarged further and encapsulated by the radiation treatments. I expect to have it another year or more. I had an orange-sized one in my SNB site, and its incision burst three weeks post-op, gushing about a half-cup of fluid. The other surgeon in the group expressed the rest of the fluid and sutured it closed. The stitches held and were removed after another couple of weeks. What’s left of that seroma is about the size of a grape.

  • Thank you ladies I appreciate the love from y'all I'm finish with surgery and I'm home now, I went into the operating room at 12:30 didn't know when I knocked out only to find my self in the recovery room at 3:15 the tumor is 3cm waiting. Tomorrow gonna call and make and appointment for next week with the sergeon to remove the drain and get the result.. I'm now hoping for the best