Can we have a forum for "older" people with bc?
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Sandy, do you have deer ticks in your area. My husbands tick born disease, Anaplasmosis, strted out with severe bouts of vertigo. They had no diagnosis for his symptoms, these diseases do not test positive tfor a week or 2 afeter being bitten, and many , as with my DH do not know they have been bitten. Can be extremely serious if not treated with the appropriate antibiotics. Just a wild guess.
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There are deer ticks in the suburbs, and in the forest preserves. But not in the heavily urbanized Austin neighborhood on the W. Side. And he doesn’t spend time outdoors. Not sure if they run a Lyme titer as a matter of course.
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As I said The Titers can be negative in the first week or two, my hubby's wasl Later one was positive for Anaplasmosis. We dont have pets or spend time out doors, yet both of us have been bitten and were unaware of it! I had Lyme! They kept telling us he was dehydrated or had vertigo, but treated him for tick vectored disease, which it was! Took us 3 ER visits and a hospitalization to get a tentative diagnosis!
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Good mornin' all,
Ducky, so sorry Kaileen is still experiencing these problems. You said she is a NICU nurse- this is probably one time when that doesn't help the situation. I fear she knows all to well what is going on and focusing on all worst case scenarios. Sometimes ignorance is truly bliss. 🙏🙏
Sandy - sorry your housekeeper and husband are having a rough time. I don't know if the shots she got are the same as the ones I got for my back, but if they are, she should feel relief soon. My husband was a type 2 diabetic, and he passed out a few times, either from low sugar levels or low blood pressure. Very scary.
Jean, my 8 yr old nephew in Monroe has Lyme disease. I asked my sister what kind, remembering your advice a year ago, but as usual, my sister got totally defensive and dismissed what I was saying before the words even got out of my mouth. She did the same thing when I called her to tell her about our Aunt's memorial service being in Fl in Oct. She immediately said "Well, I'm not going to Fl" She again was so nasty, I said" I am not telling you you have to go. I am just passing on info." I had said to my brother that once the weather cools down some in Fl, wouldn't it be fun to get Margie down and we could hang out together, going to beaches, etc, making sure she knew there was no hidden agenda, we wouldn't say a word about what she did or did not eat, etc but guess that's not gonna happen.
My DGS is LOVING his first week at college. First night there, after dinner with us, they ended up in Nicole's dorm, watching movies till 2am. The RA came to Nicole's room because another room on their floor had called to complain about excessive noise. Nicole wisely invited the RA in, to show him they were all quietly watching a movie. The noise was two rooms away. They were then rudely woken up the next morning when the smoke alarm went off in the room next door to them. There's some question about why the alarm went off. But they were awake, so decided to go have breakfast, then to explore the campus. My brother and I are going over to have lunch with him tomorrow before we leave on Sat.
Hats all from here so far today
Anne
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anna, yes she knows nothing about adult problems just very sick babies......only stuff she remembers is from clinicals..lol.
some news..her and the little man are on their way home.....apparently they discharged her with bp meds...will keep,you all posted....thank you so much for all your prayers and concern....I told her about all of you and she says thank you and was so touched....
There is power in numbers and you all are the best...love and hugs''''...I'm headed home
Kieran says "Hi and and thank you for praying for my Mommy"
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That's good news, ducky - home is the best place to recover! And that Kieran - what a cutie! Being with him will do your granddaughter world of good.
MJ
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Goodness is the only investment that never fails. -Henry David Thoreau
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Wow, I'm here after once again some computer woes. I can't imagine what it would be like if we had not bought the 'Assure' service from Microsoft. We bought it several yrs. in a row, but they forgot to notify us this last time. Sssh, that may have been a ploy to get us past the date so that we would have to pay full price again. If you re-sign there is a discount. Since I got the new Windows 10 computer -- we felt like we needed the service. It has been a god-send but I can't seem to shake needing them to adjust things. Hope this darn thing gets my act together soon.
Also all are in my prayers and hopes that good medical answers are found for all the current dilemma's that are taking place. Big surprise to hear Mom and baby are home-bound, but I do think it could be of benefit. Hopefully Kaileen will be able to relax and enjoy her baby -- and 'break' the cycle of spiking blood pressure. I also think there is wisdom in checking for tick-born disease. It can't hurt and if the first test is neg. I'd wait a short spell and retest. Here's hoping because life can be frustrating enough and not getting answers on top of that just makes it difficult to keep your spirits positive.
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A big “whew!" for Kaileen & Kieran—hope the meds do the trick. I had pre-eclampsia between my premature and actual labor (courtesy of a salty Italian beef sandwich), but can't imagine how scary it might be post-natally. (I had postnatal endometritis due to laboring too long after breaking water, and had to stay on the surgical floor—once I spiked a fever on day 2, I wasn't allowed to nurse or even see Gordy until my fever broke and they brought me down to a separate area in the nursery. He was ready to go home 2 days after he was born—but because I had to spend the week in the hospital, so did he).
Asked (via patient portal) my MO about whether hops are estrogenic and if so, I needed to avoid even non-alcoholic beer; and whether grapefruit essence, flavoring or extract counts as the “grapefruit & grapefruit juice" one needs to avoid if on letrozole and/or an ARB (for BP). Instead of answering me, she sic'ed the cancer center's Nutrition Dept. on me (got a form letter today that my MO had referred me). In all fairness, might also have been about the weight.
But I've found that “registered dieticians" are about 10-20 years behind the times when it comes to nutritional advice (especially for Type 2 diabetes): they're still advising low-fat and grain-based diets for most and “controlled carbohydrate" (allowing white breads, potatoes & cereals) diets for diabetics. My PCP keeps up with the latest studies and believes that processed foods, sugars and starches are the real culprits in obesity—and that red meat is ok (especially for anemics), dairy (if tolerated) ought to be full-fat and organic, and it is preferable to saute with olive or coconut oils or butter—not margarines or seed oils. Increasing Omega-3s and decreasing -6s are key to avoiding inflammation too. His advice (and my MO's) is “don't eat any white stuff except cauliflower, chicken breast, fish & plain yogurt."
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ChiSandy,
As a Type 2 diabetic and also anemic, your advice is right on target. I have been reading a lot and gave up on the ADA recommendations. My last HA1C was 5.8 since I changed to this new way of eating. It has never been below 7 in last eight years following the ADA recommendations.
J
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thanks ladies for you love....your all so caring...hugs from my family....
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There are six principles of abundant living which, when woven together,
produce a tapestry of contentment that wraps us in inner peace,
well-being, happiness, and a sense of security. First there is gratitude.
When we do a mental and spiritual inventory of all that we have, we realize
that we are very rich indeed. Gratitude gives way to simplicity--the desire
to clear out, pare down, and realize the essentials of what we need to live
truly well. Simplicity brings with it order, both internally and externally.
A sense of order in our life brings us harmony. Harmony provides us with
the inner peace we need to appreciate the beauty that surrounds us each
day, and beauty opens us to joy. But just as with any beautiful needlepoint
tapestry, it is difficult to see where one stitch ends and another begins.0 -
A belated Happy Birthday to Chevy!!! So sorry to hear about Theresa.
Ducky, glad that mother and child are home together.
I caught up on all the unread pages and responded in my thoughts. Anne, I was once a student at U of GA but working on a graduate degree. Athens was such a small pretty southern town way back then. I didn't have a car and walked everywhere. There were no fast food restaurants. When I returned for my niece's graduation a few years back, I couldn't believe how much had changed. It had developed that modern generic appearance and lost its charm.
Jackie, the balloon fest sounds like an event I would enjoy.
We're going to Legends and Logging tomorrow at nearby Park Rapids. The highlight for us is seeing the creations of the chainsaw artists who participate and attending the auction of those creations.
Our weather has been very nice with temperatures in the 50's or 60's at night and up to 70's during the day. Low humidity. Today is grass cutting day for dh and me.
Happy Friday.
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Thanks Carole..0
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Whatever is hateful to you, do not do to your neighbor. That is the whole Torah. The rest is commentary.
Hillel, in the Talmud. Shabbat 31A
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What a pretty morning here. Had to rewash my car yesterday. City came out with the extra white chat ( I've no idea why ) and of course there are many ( like most ) people who just put the petal to the medal. Anyone wishing to attempt to keep at least some of it off their cars won't stand a chance. I'm trying to look kindly anyway because there are some things that you can't influence.
Otherwise I intend to have a gorgeous day -- not sure what I will do but I'm sure I can dig up something to occupy my time. I hope you will have a fantastic day too.
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Lovely here today. Marine air has pushed the smoke away, it's 62 at 11am with a high predicted of 71. So nice after all the 80+ degree days. We may even have showers. After 56 days of no rain that will make the roads slick as ice until more rain gets rid of the oil that builds up. I'm even happy to see gray clouds in the sky.
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Sunny, mild, mid-70s today. Probably resign myself to waiting in line at the hand car-wash (the drive-thru ones set my collision-avoidance system off, and I can’t deactivate it). Maybe walk the lakefront trail, either around here or drive to Dempster Beach & walk to the lighthouse (used to be my X-C ski route back in the day).
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I've been picking my grapes all week, steaming the juice out of them and freezing it in qt bags. Finished up today with 19 qts after 16 hours of work. I'll dilute each qt with water to make 2 qts of juice to drink. I used to add sugar but have learned to enjoy the juice without it. Nice to have that done for the year.
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Hello, I fit into this category and would like to keep this discussion going, please. I'm 67 and my diagnosis is below. I'm de novo with mets to the bones, was diagnosed in October 2016, had a bilateral mastectomy and highly hormone receptor positive, thank goodness, so I'm being treated with Letrozole (Femara) and Palbociclib. So far my tumour marker is still high, at 480. I live in Australia.
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Welcome Leapfrog! I've always wanted to go to Aus, Perth included. This thread is my coffee hour with friends. Glad you'd like to join us. You may also be interested in the bone mets thread under Stage IV. I haven't read it, just know that it's there. I hope the letrozole is treating you well and does it's job.
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Sometimes you cannot believe what you see.
You have to believe what you feel.
Morrie Schwartz0 -
Welcome Leapfrog. We are happy to have you come to our little corner of BC. Org. I hope you will enjoy being a part of us. Wren is quite correct about the Stage IV mets thread -- you could come to both places -- that way you get double the information and double the friends. We do now and then talk about our diagnosis here. I, in fact, just returned from having a biopsy this a.m. My original dx. and tx. was begun in 2007. Won't know for about a week about any result.
We generally keep it light here, but most of us have been through tx. and don't have many questions -- we just enjoy keeping in touch with each other. I almost always am here daily, while some others ( we are not too large a group ) are here a wee bit less. I leave a quote every day which gives me a reason for coming as well as providing daily joy for me. You will fit right in for sure.
Beauty of a day here -- not too hot. Our temps will go up for a day or two, and hopefully, more rain will bring them down a bit again. Hope you all have a fantastic day. I have an excuse for taking it a little easy for a day or two. See you later.
Jackie
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Jackie, Hope you get good news! Hate that waiting. Welcome to Leapfrog!
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(((Jackie))). Hoping for benign results. Welcome, Leapfrog!
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Hope all comes back benign Jackie. Hugs!
J
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Welcome, Leapfrog. Adding my best wishes for your results, Jackie.
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This just in from the Boston Globe: for the second time this summer, the New England Holocaust Memorial in Boston has been vandalized. Tonight, windows and part of the glass door were shattered.
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Hello, Leapfrog. Welcome.
Had great plans to workout this morning, but I spent three hours at the Toyota dealership getting a new radio installed. Ordinarily I would have let the radio go, but I like my CDs and audiobooks and that part of the system stopped working. The system was still under warranty so I decided to get it replaced. I got there at 7am & was told 1 1/2 hours.... By the time it was all finished and my phone & contact list had been synched, it was after 10am. I wasn't in the mood for the gym anymore. Will have to double up a little Wednesday to make up for missing today.
It is so hot here. Upper 90s with heat index 105-109. I feel like I am going to melt. How I miss Michigan. The weather was near perfect when H & I were there two weeks ago. I didn't appreciate it when I was growing up there, but I understand why my mother wanted "to go home". I struggled with what to do when she died, but I am glad I made the decision to take her back. I think she is at peace now that she is with her mother.
We spent a wonderful weekend with friends we have known for more than 20 years. We spent a lot of time together when our boys were growing up and going to school. They moved to the family homestead to help care for an aging parent after their son married ten years ago and we only kept in touch through FB and email. One day, H & I were in their area & decided to look them up. After a long visit, we decided we needed to stay in touch physically. So they hosted this first weekend. We want to do this again in about 6-9 months.
Busy week ahead...birthday lunch with a friend tomorrow, workout Wed. & Fri., groceries with H on Thurs. (always a lot of fun...he puts unhealthy snacks in the basket & I take them out! I allow him one no-no sweet a week. He shouldn't have any because he is pre-diabetic, but he is stubborn.), and book club Sat. Have to squeeze laundry & housework in there, too.
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A friend is one to whom we may pour out the contents of our hearts, chaff and grain together, knowing that the gentlest of hands will sift it, keep what is worth keeping, and with a breath of kindness blow the rest away. -Arabian saying
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