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High number of positive lymph nodes
Can lymph node survivors please chime in here. I had 11 positive nodes,some broken open with cancer and grade 3. After 3.5 years this still really worries me every day. Would love to hear stories of long term survival.
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Question about ned and recurrence
Wasn't sure where to post this. I know (or rather I've heard) that in general, recurrence rates run about 30%. I was wondering if you were ned with stage 4, would your chances be the same as if you were ned with other stages? I call myself stage 3, but my doctors refuse to pin it down and just say advanced cancer. Can't…
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Chemo-induced cardiomyopathy, anyone out there
I am looking for other survivors that have this disease now. Adriamycin
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Any long term survivors with more than 10 positive lymph nodes
I was diagnosed last February at Stage 3, with 13 positive lymph nodes and lymphovascular invasion, er pr+, her 2-, ki 40. Had a mastectomy, just finished TAC chemo, and will be on to rads in 2 weeks, breast recon+ hysterectomy scheduled in February 2020. Time has made me less anxious and depressed over my diagnosis but…
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Aromasin - is the generic as effective as the brand name?
I’ve been prescribed Exemestane after having gone through radiation. I got my prescription from cvs and noticed it is a generic. Should I be concerned that it will not be as effective as the brand name? Thanks
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Still peachy-keen at Sweet Sixteen
Chemo brain, yes. Cardiomyopathy, yes. Artificial hips, yes. But I'll take it over the alternative! I just keep on taking my Arimidex and doing my workouts and eating my frozen dinners (not to mention my Ben & Jerry's) and trying to avoid the virus. Hoping maybe I'll get lucky and be able to post another cancerversary next…
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Stage III and Ibrance
I started Ibrance 125 mg because of PIK3CA mutation even if I'm still stage III. Long story short : I was grafted with cancer cells during a reconstruction surgery in 2017 (lipofilling). This is the reason why my MO prefers to give me Ibrance instead Verzenio (to let open my options of treatments for the future, there will…
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Continuing AI for more than 10 years
I think this topic is being discussed here in another thread, but please excuse me for starting a new thread because I can't find the one I'm thinking of. I've also posted in the forum for hormonal treatments. I've been absent from the boards for a while, living my life. I am now living in Europe. I am at the 10-year mark…
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Md Anderson
Anyone been treated at MD Anderson? Can you pls provide reviews and insight? Been reading online opinions and they are being trashed constantly. Yet they are supposed to be the preeminent cancer hospital. What gives? im thinking of transferring my care there and have just started the paperwork for initial consultations…
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Why can't I see scans?
I was diagnosed with IDC breast cancer last April. A mastectomy scheduled for later that month was cancelled by the surgeon after an MRI showed it had spread to my chest wall. Stage 4, I was told. I live in podunk, so I transferred my care to a major teaching hospital. Stage 3b, they say. I've had two more MRI's and the…
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Stage 3c - cervical lymph nodes treatment
I have two nodes that lit up in the PET/CT scan in the cervical VB area which threw me to 3C. The oncologist suggested I start on Act chemo first but we did not biopsy the neck beforehand. Now, we are almost done with chemo, they are telling me they will not try to take out theselymph nodes in the neck but will do a…
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Would you get Covid vaccine?
My warrior sisters... If you have had bilateral suckers or more than stage 1 (hormone status is not relevant) and done w the usual treatments including optional hysterectomy or ovary removal, would you get the vaccine? Simple yes or no is appreciated. No additional info or explanation is requested. P.S. this survey is…
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Any Metastases to the Internal Mammary Nodes Survivors?
I want to connect with anyone who has gone through what I have. I am almost a year out from ACT chemo and 8 wks of radiation. Having my first PET scan since all of that and facing the dreaded Fear coming up once again...
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Reprieve! 15 years and staying on Arimidex
I was dreading this week's onc appointment because he had warned me he wasn't going to renew my prescription...but he has now unexpectedly reversed course. Maybe it was my mournful face! Anyway, he told me I'm OK to continue since I've been made aware of the risks and accept that the benefit is unknown at this point. I…
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1-month delay in any form of treatment a cause for concern?
Hi everyone, My mom was diagnosed with HER2 positive, Stage 3 breast cancer (6+ cm mass in breast as well as cancer in the axillary and possibly cervical nodes) almost a month ago. I am really worried that this is too long of a wait. For reasons I won't go into, we switched her insurance at the start of this month and she…
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I made it to my 15th year...so who knows where I go from here!
When I was diagnosed, I didn't even expect to get 15 MONTHS. How perspective can change! This latest period in my life has brought new challenges and decisions to be made: my oncologist has finally broached the dreaded subject of stopping my Arimidex, since the data suggests it may be doing me more harm than good at age…
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Anyone Seeing Oncologist After 10 Years NED?
Thought of this a lot, since I'm now 11 years out. Do any of you still see your oncologist and do bloodwork and/or tumor marker testing? Do you base it on being on or off of an AI? I plan on staying with Femara as long as insurance will cover it --barring no ill effects other than bone loss. Also I had been getting yearly…
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Estrogen Blockers ??? Take it or dont take it ?????
I'm looking for women who have dicided not to take the estrogen blocking pills!!!! I need some input . My Dr. is telling me that I really don't have a choice, that I must take it. I have all the side effects that you can have and I can not deal with some of them. I really would like some info on how it has or hasn't…
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Any Stage 3 taking Zometa with their AI meds?
reading about Zometa (a bisphosphonate) and how studies are showing that taking it with your AI helps prevent bone mets. Anyone already taking Zometa as a mets prohibitor??
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Internal mammary node involvement.... anyone??!!
Ahhh! I have been driving myself crazy thinking and worrying about this the last week and not finding much information. I’m looking for someone that has or had internal mammary node involvement. The radiologist said the only way to treat it is with radiation. This scares me. I feel like anything cancer has touched should…
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Anyone have a lumpectomy?
I am closing in on the end of my chemo treatments and will be meeting with the surgeon next month. I have Stage 3a DCIS. My tumor was 14 cm and I had at least 3 lympnodes with cancer. Has anyone had a lumpectomy with such a large tumor at the beginning? I know that it's shrunk because I can tell a huge difference. Most of…
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MO take on Verzenio
Saw my MO (at a research hospital).We had talked about Verzenio some months ago, and he was considering it in my case. The plan was by the time chemo and rads were done, there would be more data from Monarch trial and we’d discuss it and decide then. He was, back then, hopeful about the initial results. He brought it up at…
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Family Is Very Disappointing
This is my first post but would like words of encouragement from anyone who's had major difficulty in getting along with family after cancer. I'm the single one of three girls,middle child, no children and a breast cancer survivor. My two sisters have really bonded since my diagnosis but then again, both are married and…
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OMG......15 Frickin' Years with Stage IIIC
If someone told me back in 2004 that I would be out 15 years….I honestly wouldn't have believed them. Most of you know my story…..but just in case someone missed it;) I found a lump myself after just having a clear exam at my doctor's office five weeks earlier. I had a rushed mammogram followed by a sonogram and was told…
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What percentage ER+ and how many years NED?
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Large tumour survivors
Hey ladies, Just wondering how many BC survivors have had large tumours (5cm+) and how they are doing years out of diagnosis? I was diagnosed with an 8cm tumour last sept at 34 years old. The size freaked me out, I couldn't believe how big it was. It's always been a worry, so it would be really nice to hear from others.
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PET scans after treatment
Hi, I have stage 2 or 3 depending on the year-guidelines lobular invasive breast cancer. I thought after radiation, chemo, and surgeries (bilateral mastectomies with 2/19 lymph nodes positive) that I would have some sort of final imaging study. Instead, my doctor said, "our intent was to cure you; consider yourself cured.…
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Highest risk of cancer recurrence?
Dear all, I was wondering if you know something about when the highest risk of cancer recurrence is when you are highly ER positive? Is the risk of recurrence just as high after two years? My oncologist was not too clear on this and therefore I hope that you can help me with this. Kind regards Mette
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Cancer in supraclavicular lymph nodes
I'm a (to-be-determined) Stage IIIC newbie. Diagnosed in June via biopsies but still waiting to see an oncologist to confirm staging, prognosis and treatment. I've had several tests (left breast, 6 cm, cancer in left supraclavical nodes but no detectable metstases in body/head/bones, ER+,PR+,HER2+). I've been told it is…
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Red Devil
Has anyone heard of the chemo drug called the Red Devil? That is what the nurses call it and I read this online. It is supposed to be very strong. I lost my hair with second treatment. I was washing it and it got all bunched up and tried to untangle it, and it fell to the bathroom floor. My nails may turn black. Sores in…