-
Your Voice Can Shape Clinical Trials | Participate for $100 gift card!
Researchers at Mass General Brigham, Dana-Farber, and Harvard Medical School are exploring how AI chatbots can make clinical trial consent easier to understand. They’re inviting adult cancer patients across the U.S. to join a virtual focus group and share their ideas. Participants will receive a $100 gift card. Spots are…
-
Can we have a forum for "older" people with bc?
I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66). I notice that most of the posts seem to be from people younger than I am (often by quite a bit...). I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc. I see that there is a forum for young…
-
Who's starting Radiation in November 2025? Let's gather here to share!
Are you scheduled to start radiation soon? Let's make a space where we can encourage each other who are traveling radiation road together — share experiences, get tips, ask questions and get answers from those who've "been there." We encourage you to share your diagnosis, any previous treatment you've had, and your…
-
Lets Post our Daily Exercise
I'm doing the Firm Cardio Step mix and will walk the dog for a mile later today. Lorrie
-
So...whats for dinner?
I thought it might be fun to start a thread on what we are having, making or had for dinner. Sometimes it is the best tuna steak you ever had, sometimes it's a can of soup. But we all do it every night in some form or another. Maybe we can give each other ideas on what to make, or bitch about what we had, or the fact that…
-
New Protocols
I am a 10 year survivor of breast cancer (stage 1a, ER/PR+, HER2+). Now my 75 year old sister has been diagnosed with stage 1a, ER+,HER2- breast cancer. She Iives in a distant state, so I cannot go with her to all of her doctor's appointments. She saw her oncologist today for the first time and was told she is most likely…
-
Middle Aged Memories
Let's see, so far we've reminisced about dittos, drive in theaters, lick-a-stick candy, five-and-dime stores, Donny Osmond, Dark Shadows, what have I missed?
-
Question about Sentinel biopsy results
Hi I had my lumpectomy with Sentinel node biopsy on Nov 14 and reviewed the pathology report with my doctor today. He said 5 nodes were removed during biopsy and 2 are confirmed to have cancer >2mm. Based on this, he advised chemo is required and ALND is on the table but he is going to review with the cancer board at the…
-
Need help deciphering what my QT results mean.
recently I had an MRI done and there was a mass observed on my right breast, They scored it at a BIRAD 4 and it was very concerning. Not wanting to get a mammogram, due to fear of causing trauma to the affected tissue, I elected to get a QT scan done, can anyone read this and tell me what they think this means,…
-
Surgery scheduled for December 2025? Join the surgery waiting room for support!
Are you scheduled to have a lumpectomy or mastectomy in the month of November? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
-
Side effects from aromatase inhibitor other than joint pain.
I started on Anastozole (Arimidex) a little over a month ago. I know there are two others that are often given to post-menopausal HR+ women, Aromasin (exemestane) and Famara (letrozole). The joint pain and menopause like symptoms are what are mentioned most in articles. Although I've had some wrist pain, which I understand…
-
Long term success stories of stage 1 triple positive with THP chemo regimen
I was diagnosed with stage 1B triple positive. Just had my BMX three weeks ago. Now about to start chemo. My MO recommended THP chemo regime because it has less side effects and she said it has similar efficacy as TCHP. I know that TCHP has been the gold standard for many years with proven long term record. Just looking…
-
Tamoxifen side effects
Hi, I am a 69-year-old woman and and I was diagnosed with stage Ia invasive ductal carcinoma in April of this year. I had a wide surgical excision , 19 treatments of whole breast radiation, and now I have been taking Tamoxifen , 10 mg every other day for two months. I am in a Low Tam research study, that us why the dose us…
-
Any horseback riders have experience to share on implant reconstruction?
Bilateral mastectomy in October 2024 (IDC Stage 2A – grade 2). No radiation/no chemo. I live in a rural underserved area so delayed reconstruction was the only option. Surgeon performed an aesthetic flat closure. I am waiting to meet with a PS who is 3 hours away. I am normally slight in stature, but a very strict…
-
Back after years - lymphedema surgical resources?
Hi everyone. I was diagnosed with lymphedema I think in early 2011, so it’s been a while. I used to be on this board a lot back then. I’ve stayed active and used compression and not had much trouble with flares of swelling. My swelling never goes away completely, but it’s still soft and it’s honestly quite subtle to the…
-
Fenbendazole, Ivermectin, Mebendazole, Methylene blue for Breast Cancer
I’m curious if anyone here has tried any of these. I’ve read some success stories but would love to hear firsthand experiences. It seems like the medical community has been hesitant to share much information about how these options might benefit people with cancer, whether it’s breast, colon, or other types.…
-
How has normal, day-to-day life changed for you after diagnosis? Share your “different normal.”
We're using the phrase "different normal" instead of "new normal" here. A person's transition out of active treatment into this "different normal" varies. All people and situations are unique. There are no right or wrong answers or timeframes. Share your experiences here!
-
Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
-
Community Recommendations for EXTERNAL RESOURCES (Non-Book)
ALL EXTERNAL RESOURCES (Non-Book)Below is the consolidated list, and we invite you to please add in the discussion!! 🧠 Mental Health, Coping, Wellness Calm Meditation App — https://www.calm.com/ua-homepage Project Life (Virtual Wellness House) — https://www.projectlifembc.com/ Moving with Milly (YouTube)…
-
Member Recommended Books and Readings for Living with MBC!
Metastatic Breast Cancer / Treatment The Complete Guide to Breast Cancer — Trisha Greenhalgh & Liz O’Riordan Not the Breast Year of My Life — Frankie Leigh Stand By Me: A Guide to Navigating Breast Cancer as a Couple — Claudia Gilmore Living With Illness / Mental Health Radical Acceptance — Tara Brach Full Catastrophe…
-
Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI