Lumpectomy Lounge....let's talk!
Comments
-
Sloan - That was so much information, it really was amazing what you posted, I sat and read right through it all, you don't realize how involved it is. Tamoxifen is absolutely effective has a high success rate...thats why my BS was shocked I had a recurrence after 4yrs on it and rads. He still doesnt believe how incredibly unlucky I was. I was pulled off Tamoxifen at Lumpectomy pending results and well rest is history.
I now have an appt with my Oncologist 25th January, to put me on another hormone pill, I am nervous eventhough Ive done Chemo and a pending new pill, because of the recurrence I admit its scary, but like everyone this will not define me, and so Im focusing on recovery and step at a time. Im feeling better and better its wonderful! I just bought a spin bike to use in the home, can't wait!
This is a shout out to anyone who can advise...I was pre menopausal pre Chemo...now Ive been thrown into Menopause. They did say symptoms are more severe because of this. I'm struggling with sudden onset of flush and chronic night sweats. Can anyone tell me what would be effective in managing this??? THANKS!!!!
0 -
Melclarity - did you have a breast MRI when you were first dx with DCIS? I'm curious because my IDC and DCIS was found via mammogram and then u/s, but the subsequent MRI found LCIS, which they tell me would have become invasive breast cancer down the road. I hated the MRI-guided biopsy, but am thankful that I had it and my BS was able to remove both the active cancer, and the pre-cancer. I'm wondering if you had one and if it was clear.
Amy
0 -
They took 4 lymph nodes out. I am pre menopause although my periods the last 2 years have definately changed. I went 8 months without one which at the time we were putting the house up for sale and moving. I have 2 boys that are 13 and 14 that are developmentally delayed and have autism so it's been hard telling them. My husband and I have always been honest with them but we are not sure how much they really understand. We have talked to a social worker and she recommends always being honest with them and keeping the lines of communication open.
My husband got packaged off in sept from his job and is getting a reg paycheck til sept 2016. It has been nice having him home but he has a job interview on Thursday. I hope he gets the job but in a selfish way I hope he doesn't.
How many of you continued to work while doing chemo or radiation? I'm not sure what I am going to do. I'm going to wait and see how I feel I think.
0 -
Good Morning from CA! I'm on my way to see a play in LA and meet Molly50. So excited to meet a bc sister!
Still on 40mg of Tamoxifen, but no SE yet. I'm still walking everyday, and I think my full energy is back after radiation and the holiday. I think 2016 will be a much better year. THIS is more like how retirement should be!
Melclarity - I hope it wasn't too much info! When you're the unlucky one, you look around and go, "Seriously? Me? What the heck!?" I'm glad your doc is being aggressive.
0 -
Sloan, be sure to post photos from your get together! I've sure enjoyed the ones I've had. It's so nice to talk to someone who "gets", whom you don't have to explain anything to. Plus really nice people!
HUGS!
0 -
Peggy - Ok! Look for a pic on Tuesday!
0 -
Melclarity some women have posted that they seem to have less night sweats by taking magnesium, so that might be something to investigate
0 -
Oh, what will I do with my hair! Haha
0 -
Sloan, whatever you do with it, I guarantee you'll look cute!
HUGS!
0 -
blamoms,
I am just on my first cycle now, so I don't know how things will work, but my plan is to take off my chemo weeks and then work two weeks. I am feeling confident about going back to work tomorrow. When I had my infusion I met somebody who did the same regimen asme, and worked on the same schedule, she found it quite doable. She also was able to work through radiation.
Good luck with your husband's job interview, I hope that if he does get the job he is still able to be home a lot and help a lot. I am thankful that my husband has employed, but works close to home and not a lot of crazy hours or traveling. It is certainly helping a lot because we have two kids, age 7 and 12.
0 -
I removed my air bag packing yesterday. All looks good from what I can tell so far. No infection just glue and red marks from where the tape pulled the skin a bit. I hope a long shower will get the last of the glue off. I kept the pad packing which was helpful to use when sleeping under my sport bra
0 -
Blamoms - I am working full time (although able to work some from home) as of now. Surgery is behind me - I have completed 5 of my 12 Taxol with radiation to follow. My kids are 10 & 13 and very active. I definitely don't have my normal level of energy and have been more vocal about asking for help with rides etc. My ex has the kids 1/2 the time so I do get a break but financially there is nobody to pick up the slack if I don't work so my plan is to continue all the way thru (plus like many of us the cancer has brought a ton of unanticipated medical bills). My employer has been very flexible and supportive - for that I am very grateful!!
Cyndi
0 -
Boy, I don't know how you all cope with young children while doing chemo and everything else. I found it hard enough caring for DH who could do very little for himself. I had about 5 weeks where I was alone with him after my surgery, during my rads, before he went into the hospital for surgery. He got pneumonia and degraded even more so I just couldn't care for him at home like I had been doing for 4 years. He went into a nursing home. Nothing is easy when you throw in BC.
HUGS!
0 -
Peggy- Taking care of an ill DH, coping with children and all of their needs....I admire all of you who have done that during treatment. BC makes it all more complicated!
0 -
LTF... The pixie is adorable on you!Brit- Here's to recovering quickly😊
Blamoms- I'm in the throes of testing and waiting and it's like holding your breath. Sucks.
I have my breast MRI tomorrow... I know it's face down, but do you enter head first? Feet first? I've had an mri before for my neck and even though the top of my head was out a bit, I still had to tell myself to stop any anxieties that I started to feel. Maybe I should take something? Any natural remedies out there? Glass of red wine in the parking lot maybe...;
0 -
Has anyone had Mammosite 5 day radiation therapy after lumpectomy? If so would you recommend it over 33 treatments of whole breast therapy?
0 -
Rlm I am doing chemo first, but when I do get a radiation oncologist, I do intend to ask about it.
0 -
Thanks LovesToFly
Greetings from the US, hope you are feeling better.
0 -
I checked it out....
Am I a candidate for MammoSite 5-Day Targeted Radiation Therapy?
Four medical societies have created guidelines to help doctors select patients who can benefit from MammoSite 5-Day Targeted Radiation Therapy.
http://www.mammosite.com/breast-mastectomy/mammosite-right-me.cfmProfessional Medical Society Consensus Guidelines:
Patient Selection Criteria for Accelerated Partial Breast IrradiationABS1 ASBS2 ACRO3 ASTRO4 Suitable Cautionary Age ≥50 ≥45 ≥45 ≥60 50-59 Diagnosis Unifocal, invasive ductal carcinoma Invasive ductal carcinoma or ductal carcinoma in situ (DCIS) Invasive ductal carcinoma or DCIS Invasive ductal or other favorable subtypes (ie: mucinous, tubular, colloid) Pure DCIS ≤3cm EIC ≤3cm Tumor Size ≤3cm ≤3cm ≤3cm ≤2cm 2.1-3.0cm Surgical Margins Negative microscopic margins of excision Negative microscopic surgical margins of excision Negative microscopic surgical margins of excision Negative by at least 2mm Close (<2mm) Nodal Status NØ NØ NØ NØ (i-,i+) 0 -
Ok, so this is my little friend, Flossie Mae Jones- "Flossie". She decided to get comfy on my lap.. So funny, she is usually very standoff-ish. Not today.
0 -
MLP3, NO! No wine! You can't move for 45 minutes! You're face is down in a holder. Make sure your back is comfortable. Take a couple Tylenol or Advil. Valium if you're not driving. You can almost move a teeny bit for the first 30 minutes. The last 15 after they inject the dye - NO MOVEMENT AT ALL! Or they have to quit and re-schedule. By then I'm so ready to pee. It's doable. They played music for me. Have fun (she says sarcastically).
HUGS!
0 -
HappyHammer - nothing more soothing than a furbaby - especially a kitty one. Enjoy her comfort.
HUGS!
0 -
MLP3 - I was face down, feet first for my MRI.
Cyndi
0 -
Thanks Marijen. I noticed you are on Femara, how is that going?
0 -
MLP3- No drinking in the parking lot, haha. Maybe ask for something for anxiety if you aren't driving? I have done that for several tests and it really helped! Hugs to you!
0 -
Letrozole is going pretty good, I had a good response, it shrunk my lymph node and DCIS before surgery. My IDC primary is not found.
0 -
Marijen- that is wonderful!
0 -
I love flossy!!
0 -
What a talkative bunch! Sloan, I am so excited!! Brit, I am sorry you are back in the hospital. I have a friend who reacted so badly to chemo they decided she will be inpatient for all of her infusions. Poodles, sorry about your camper. It sounds like you have wonderful memories to hold onto. Blasmom, welcome to the best group on BCO in my opinion. Once you have more information and a plan in place it does get easier. Mlp, my MRI was in an open MRI machine. Head first, face down and the contrast just felt warm. Pipped in music and very good staff. I was post lumpectomy so I was worried about pain but I didn't have any problems. You will be fine. My MO appointment is tomorrow. I have been Journaling my SE's so let's see what he says. Hopefully my blood work is back in time. He ordered cbc with differential, metabolic panel and estradiol level.
0 -
Oh and LTFly what a great look for you and your DD is adorable.
0
