Lumpectomy Lounge....let's talk!
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Judy, That IS beautiful!
HUGS!
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I'm still waiting for my MO Dr. to call with an appt... they had me canceled and scheduled to start rads on the 14th... they just forgot to tell me... I won't be doing anything til I see the MO and get healed more
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Judy, nice that they let you know when you were scheduled for rads. The 14th wouldn't have been bad. As long as you can stretch and hold your arms above your head without dying for 10 minutes or so, you'd be good. But definitely should not start until you and the MO talk.
HUGS!
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Well, you ladies will be proud of me. I finally got off the dime and sent my nekkid-y pictures, insurance card, demographics, and health history off to NOLA. Hopefully, I hear something in the next week. I'm worried that they may turn me down for the DIEP, due to my body shape and BMI. I'm pretty round. Oh, well. If I need to lose weight, I will find a way to do that.
Tomorrow DH has his incisional hernia repair surgery. It's even bigger than before, about the size of a large pancake. Luckily, it doesn't hurt but I can easily see it through his shirts. This is planned to be an outpatient surgery. Not expecting any drama.
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Dizzy, you have the right attitude. I have always wanted to visit England. Maybe someday.
KDTheater, so glad you're comfortable with your new MO & you have a plan to get through next round
Poodles, hope all goes well tomorrow.
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Starting rads tomorrow, tomorrow, starting rads tomorrow, it's only a day away!
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Michelle, woo hoo, you've got this! Sending lots of positive energy your way
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Michelle good luck tomorrow! I hope your rads are uneventful! I finished the end of June and have been on Tamoxifen for almost 3 months and feel like I'm getting back to normal.
I have been lurking and not posting much lately but have been keeping up with everyone. This is a pic of DH and DD with our new "granddog " at the lake.
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That's good news Michelle... I'm still waiting for my MO to call with an appt... feel like i'm back to square one...
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Thanks girls. I appreciate the support. Judy, you are going to be fine, no matter what path you take. If you end up with chemo, let it be chemo light - 4 rounds. I bet you will do rads and drugs, since you were not Her2 positive. I have known several gals who did mastectomy and chemo. They are absolutely fine today. One was a single gal, 53ish, and did everything by herself. Ten years later she is doing fantastic. The other one was in her 40s and now in her mid 50 and has more energy than I have ever seen. Most of us are so fortunate that our abnormal cells were found on a mammogram, that we have no node involvement, and that our lumpectomy took small amounts of tissue. Our bc sister's that came before us pioneered our treatments and provided a much easier path for us to follow. They paid it forward with their lives, so we would have a better quality of life.
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I just got diagnosed. Not entirely sure wether I will have a lumpectomy with radiation or mastectomy with
reconstruction...only have it in one breast but am having an MRI on Monday to be sure there are no
"surprises" and can make a decision after such. I hate not knowing. You never think you'll get
cancer....it is a rude awakening especially when you have no family history of such. Ladies,
girls and all women....PLEASE PLEASE GET A MAMMOGRAM. We are all in this together.
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tatatootsie - toots, how was your abnormal area found? I am sure we all preach to others to get their mammograms. One million women are undiagnosed and 50% of women with insurance do not get mammograms.
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Hello everyone:
There is no way that I can possibly catch up. I have been working 12 hour days every day plus walking 10,000 steps, 5 miles, and at least 1 hour of walking each day after work. Thank God that I love my job! I really miss all of you. I have not been able to go back and read 50 pages of posts. Sorry. I am out of the loop.
The latest for me is that I broke up with my boyfriend of 3 years so I have been a basket case for the past 3 weeks. I have been crying a lot. We get along great but the relationship is going no where. I need to find someone who wants a permanent future with me, not just dating forever and no commitment. He says that he, "doesn't do love, but does like very well." I have been through too much to settle.
Miraculously, I reconnected with my x-boyfriend. Timing is everything and I feel so lucky. I broke my x-boycfriend years ago because he had no sex drive and I had an extraordinarily high libido. (We only had sex 15 times in 3 years.) Now that my ovaries have been removed, my sex drive has greatly diminished. Sex is no longer an issue for me. I am really hoping that he will give me a second chance because he is a great guy. Wish me luck.
Right now, I am waiting for Hurricane Matthew to hit south Florida tomorrow. Hopefully, we will all be safe and our houses will remain sound.
I hope that everyone is well and good luck with all of your tx and recovery.
I am hoping that I can find the time to read all of your posts and post a response. I love this site and I want to continue on this thread.
Otherwise, my son is applying to colleges. Very stressful for me. He is doing phenomenally well so I am very proud of him. My daughter is doing great too.
I forgot to mention that today is my birthday.0 -
Thanks Michele, It's been a long day.. waited since yesterday and the only call was from the financial counselor.. but that was good. I just want to get this over, like Now
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Poodles, good luck to DH tomorrow. And good for you for sending all your stuff off to NOLA. Fingers crossed.
Michelle, YIPPEE!!
PlanB, your DH and DD are keepers! Granddog, too
Glad you're doing well.TaTaTootsie, Welcome! Whatever path your treatment takes, please consider staying here in the lumpy lounge. I think you'll find it the best place to be: warm, comforting, knowledgeable, funny. It's so hard at the beginning, especially when you don't know what you don't know. I hope you've found Dr Susan Love's Breast Book, it is loaded with information. Let us know what we can do to help you after you get the information from the MRI. I will say that given a choice, most of us recommend a lumpectomy. You still have your breast. A mastectomy means it is gone forever. If things change, you can get a mastectomy down the road if necessary. In other words, don't rush to have a mastectomy. Often a lumpectomy and radiation will do the trick (that sounds trite, but it isn't). End lecture
. 614, What a crappy time you've had. You've made the right decisions for you but that doesn't make them easy. Don't rush into your new-old relationship with the ex-. Give yourself time to grieve the necessary end of the previous one. Figure out your priorities and then try to stick to them. All of this is easier said than done. I seem to be lecturing tonight (it is so easy to tell someone else how to live their life, not so easy to do in one's own life).
Judy, wanting to get this over and done is a pretty universal feeling. And it's awful. It will get done but it will take awhile.
HUGS!!
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614, welcome back and please be so careful. I spoke with my brother in Palm Coast, and they are hunkered down. He got gas right before their stations closed up and said most everything else is closed now. He has shutters not he house and plenty of supplies so figured they'd stay put rather than get stuck on parking lot freeways. Hope you are safe and with people.
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TaTaTootsie, welcome. It is very overwhelming. Take it can step at a time, there is a lot of waiting for tests to get your tx plan. But what I've learned from the girls here is that it is all doable. Glad you found us.
PlanB, nice picture. Glad you're doing well.
614, you have to do what's best for you. Peggy gives good advice. Don't rush in to anything.
Judy, hope you get a call soon.
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614, I know what you mean by this thread moving so quickly, it's impossible to comment on everybody's posts when you only stop in now and then to say hi, but it's been a soft landing pad for me over the year! You have been through a lot. Sorry about the end of your relationship, but now you have another chance at happiness (and it sounds as if you're possibly working toward that already). Be safe during the storm - hopefully it takes a turn and you all are spared the brunt of it. Happy (belated now) birthday from one Libra to another!
Dara, will be thinking about your brother during the storm as well. Glad you're nearing the end of chemo! You'll have lots to celebrate during the holidays later this year.
PlanB - one of my rads comrades! - I'm so glad you finally got that lake property!! Your leap was so inspiring
What a sweet picture of your DH, DD and "grand-dog".Hi Tbalding!!
Good luck to everyone else awaiting results, news and starting treatment.
I'm off to my older daughter's university town later today to pick her up for a few days - it's Thanksgiving in Canada this weekend - picking up daughter #2 from her school on the way back. Our Thanksgiving is "to celebrate the completion and bounty of the harvest..." which is why it's held in October each year. It's usually such a wonderful time of year - the leaves turning colour, still some warmth in the air, just starting to break out the sweaters, no snow storms to contend with. Looking forward to turkey and pumpkin pie.... and since we are also US residents (although right now I spend most of my time in Canada), we get to do it all again in November. Best of both worlds (countries).
Good day, everyone!
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Grazy, It will be wonderful having your daughters with you to celebrate Thanksgiving on Monday. October does make more sense than here in November when the chance of snow is greater. But lucky you to celebrate both. Have a marvelous time.
HUGS!
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To all of our sisters in Hurricane Matthew's path - please take all necessary precautions to stay safe!
HUGS!
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Peggy, Thanks... I know it will get done, lost patience yesterday... hope they will call with an appt today
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Toots, well done for finding this place so soon after being diagnosed, I just wish I had!
Good luck with the MRI on Monday.
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Judy, you're entitled to lose patience with medical offices who have no concept of how stressful this time of waiting is. So many questions need answers. It's damned hard. They seem to forget that you are a real person with real feelings, not just a name to enter into the computer. I hope you get that call today and can get in soon.
HUGS!
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Peggy, I just got my appt. with the new MO.. for Monday! I told them i was thinking of just waiting til next year.. and guess they didn't want me to wait.. couldn't anyway.. it would give my sister a heart attack.. but now i can relax.. going forward again
My sister said to tell you the leaves are turning.. they went out for a drive to see them
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Judy, good! No, don't wait until next year. You really don't want to postpone your treatment that long if it is not medically necessary. Just get on with it for whatever needs to be done. Funny about your sister! Fall has definitely arrived.
HUGS!
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I asked for the result of my re excision today, just got an email from my breast care nurse to say all the new tissue they took is clean, no invasion and good margins. I don't have an appointment with the BS until next Monday, which is almost three weeks since I had it done. But I decided it was time to get out there and ask instead of waiting.
So now we're looking at starting radiotherapy and Tamoxifen instead of mx and reconstruction. More than three months to get to this point, and the first time any good news didn't come with a sting in the tail.
I think there might be a glass of wine tonight...
I've asked for copies of all my pathology reports since I haven't seen any, I don't get the impression they get asked for them very often. I only know I must be ER+ because they told me I'd be having Tamoxifen. So now the challenge will be to understand them, but there's some good information on BCO so I'll get there.
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You can also deduce that you’re HER2 negative, because HER2+ calls for “targeted” therapy such as Herceptin or Perjeta, which in turn require chemo first. And chemo is done before rads. So from what they told you to expect next (hormone therapy & rads), you are likely ER+/PR+/HER2-.
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I remember being told they didn't do a HER2 test for DCIS, that if anything came back invasive they would advise a mx because of the size and the grade 3, but up to now I haven't had a SNB either. I think they were expecting at least microinvasion.
I still wonder what this would have been if the mammogram had been six months later. In the UK the standard screening interval is every three years between 50 and 70.
My sister was diagnosed with DCIS last December at 48, she was only screened because they ran a pilot programme to start screening at 47 and she lives in the area where they're trialling it. And now I'm waiting to hear about my other sister who goes for her mammogram next week. If you have two first degree relatives with BS your risk is tripled.
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I thought most DCIS is Her2 positive, but they don't treat the her2 for only DCIS. Herceptin and chemo is only recommended for invasive cancer, but not for DCIS. You might want to check with doctor.
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Had my first rads today, and I am tired. Got there at 2:30 for 3pm appt. Both machines were down and I chose to wait for the to get fixed. At after 4pm,I was fine going into the room, and tired coming out. I am getting 16 whole breast treatments and 4 boosts.
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