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Lumpectomy Lounge....let's talk!

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Comments

  • Molly50
    Molly50 Member Posts: 3,008

    Happy anniversary , Michelle . Heart

  • tatatootsie62
    tatatootsie62 Member Posts: 75

    Hi Leslie, tatatootsie here...I can understand your frustration and I am about to experience the same scenario. My BC is

    ILC and not IDC and I am finding out that they are both "horses of different colors". I worked in pathology for a few years, but

    it was "eons" ago but I do know that if a surgeon has resected a tumor and it has clear margins, that is a good thing; if nodes are

    negative, that is a good thing too. But I have been away from that area of medicine for quite a while and so it is like a completely

    new learning curve for me because the surgical approach and treatment of ductal and lobular carcinmomas has changed so much.

    I am glad that you received an appointment so quickly because waiting is torture. I see by the synopsis at the bottom of your post

    that the recommended treatment is chemo with future targeted therapy in January 2017. I have a close friend who had ductal and she opted

    for a bilateral w/ reconstruction.....and she did it because she was given a 60 per cent chance of recurrence in the same breast via

    the nipple and she was 38 at the time.She will be by my side every step of the way in my journey; and I am trying to re-educate myself in this field of medicine and I am blown away by the

    great strides they have made in medicine; breast cancer is not necessarily a death sentence for women anymore. I am standing

    right by your side in this. I have finished my pre-ops, labs, EKG and chest x-ray and am going in on 11/01/2016 for a bilateral

    with reconstruction; a lumpectomy would have been futile for me and despite the fact that I have been in medicine since 1980, when

    you are the patient on the receiving end of the deal, it's a different ball game. But I am hopeful and confident for both of us!

    Big HUGS to you.

  • tatatootsie62
    tatatootsie62 Member Posts: 75

    Leslie and Michelle, I am watching the game as well. The Cubs deserve to win being that it has been that they have not been

    to a World Series event in 108 years .....AND THE CUBS WIN IT TONIGHT !!!!!!!!!!!!!1

  • tatatootsie62
    tatatootsie62 Member Posts: 75

    Michelle, when you don't want that little baby anymore ( although I cannot imagine that ) can I have that baby ?

    Your dog is adorable !!!!

  • Molly50
    Molly50 Member Posts: 3,008

    tatatootsie , I am relieved you chose bilateral mx . ILC is very sneaky .

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,233

    Toots, I will be thinking of you on November 1st, just 48 hours from now. I am sure that you will do just fine. As I said before, if anything comes back in my breasts, I will be getting some new ones. Even being in the medical field, nothing prepares you for bc when it is happening to you. I think I am going to get some therapy after all this is done. It is quite traumatizing. BTW my dog's name is Sylvester and he is amazing. :)

  • tatatootsie62
    tatatootsie62 Member Posts: 75

    EXACTLY ! Molly....and that is why I chose bilateral. I refuse to be a sitting duck if you know what I mean and

    my both my surgeons agree.

    Michelle, Sylvester is so adorable !!!! I'll bet he is a godsend in more ways than one.

    I am relieved that my surgery is very close and yet it is still very fearful. My doctors know everything

    that I know ( and then some ), but I don't know everything that they know, but then again, that's probably why I

    trust them.

  • chisandy
    chisandy Member Posts: 11,408

    Happy Anniversary, Michelle!

    GO CUBS GO!!! (Steve Goodman is doubtless smiling down from Heaven, with two bags of peanuts and a Frosty Malt—he wrote “Go Cubs GO” shortly before he died, to partially atone for “The Dying Cub Fan’s Last Request,” a Chicago folk music classic). This was their first World Series game win at Wrigley since Oct. 8, 1945. (No NLDS or even NLCS back then, so baseball was over by the second week in Oct.). Got home from my folk music conference (and gig opening for Anne Hills) in Iowa City just in time to see Chapman take over in the top of the 7th, and then Eddie Vedder lead the 7th inning stretch, harmonizing with Harry Caray’s recording of “Take Me Out to the Ballgame”). Had a little champagne left in the fridge (opened it when they won the pennant), and popped some rainbow corn in the microwave with truffle oil & truffle salt to go with it.

  • tatatootsie62
    tatatootsie62 Member Posts: 75

    Michelle, Happy Belated Anniversary and I am so sorry that you are having such

    a conflict between you hormonal therapy and the Zoloft. I am hoping not to have to

    come off Wellbutrin because if I do, I might choke someone. There are times....and

    THERE ARE TIMES !!!!! which I am sure you can relate to.

    I will be thinking of ALL of my bc sisters on this website tonight, tomorrow and the

    next day and of how everyone has reached out to me, consoled and advised me in

    my plight. Words cannot express the degree of gratitude I owe to everyone.

  • tatatootsie62
    tatatootsie62 Member Posts: 75

    Amen Sandy....the Cubs are in the much and very long anticipated limelight of the 2016

    World Series. As I watched this evening, I saw my cousin, Joe Torre on camera with other

    baseball celebrities. He was in baseball for many years, conquered prostate cancer, and still

    continued to be "Mr. Steinbrenner's" manager. He's still my hero along with Mickey Mantle and

    Jackie Robinson.There have been so many baseball heroes, we will never be able to name them

    all.

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,233

    I love to laugh and I think it keeps me balanced. One of my favorite characters is Tyler Perry's Madea. If I am ever in down mood, I will turn on a Madea movie and laugh my serotonin levels through the roof. I like the little vignette that Madea does with the faux Donald Trump that is circulating on facebook. I actually know a women that looks and sounds like Madea. She is Richard Pryor's relative and lives in my city.

  • Molly50
    Molly50 Member Posts: 3,008

    tatatootsie , while you are preparing for BMX order some pink pockets for the drain management . They are truly amazing and stick through multiple washing to the inside of your clothing . Get some comfortable button front shirts and easy to pull on pants . If you don't have a recliner consider renting one . If you haven't already , join a surgery thread for the month of your surgery .

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Michelle, a belated Happy Anniversary. It sounds like you celebrated in a wonderful way.

    TTTT, I'll be dancing in your pocket tomorrow. You'll know it's me because I have no talent.

    Cubs fans - way to go Cubbies!!

    HUGS!

  • chisandy
    chisandy Member Posts: 11,408

    Tatatootsie, you can use terrycloth mitts as drain pockets (as one of my friends did) by poking some holes at the top and tying grosgrain ribbon or thick cords to make over-the-shoulder straps. And you can use them in the shower!

    The Cubs have another connection to cancer--two of their star players beat it: Anthony Rizzo had Hodgkin’s as a kid, and Jon Lester had large-cell lymphoma at the start of his pro career. And last night, the team honored a suburban teen superfan who fought leukemia last year—and StubHub donated a pair of tickets to him & his dad, so they could see the game and meet Rizzo & Lester.

  • Leslie2016
    Leslie2016 Member Posts: 121

    Geez. Realized I haven't posted some info for a few days...they have been busy. First chemo scheduled for Wed. I've had an echo and a CT scan. My gene testing and port placement are scheduled. I have homecare set up for hydration, and a dozen appointments for a bunch of things. It's wild to have so much happen so quickly! I'm almost looking forward to my first chemo so I can sit still and figure out what the heck is going on!!

  • Leslie2016
    Leslie2016 Member Posts: 121

    Oh...forgot...a bilateral isn't off the table...I go for genetic testing next week, and based on the results may also be getting a bilateral and ovary removal may happen. Nothing like going from nothing to 10,000. I've always said, go big or go home.

  • tbalding
    tbalding Member Posts: 383

    Tootsie, in your pocket tomorrow.

    Leslie, good luck with chemo Wednesday.

    Michelle, Happy belated anniversary

  • tatatootsie62
    tatatootsie62 Member Posts: 75

    Peggy, Molly, Sandy and tbalding....thank you for the support, prayers and friendship.

    Leslie, best of luck with your first treatment with chemo; I am hoping I do not have to

    have it. I bought a few button front shirts and have several pairs of soft pants that have an

    elastic waistband. I believe I am ready.

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,233

    Tootsie, you are ready. You've got this.......

  • Dizzybee
    Dizzybee Member Posts: 115

    Toots, hope all goes well for you, today, thinking of you.

  • celand
    celand Member Posts: 223

    Just diagnosed Oct 17 (although I noticed on Pathology report that they had results Oct 13, the day after biopsy on Oct 12, why they waited four days to communicate this to me makes me wonder). Radiologist and Oncology Nurse who told me results kept stressing how small my mass was - 0.4 cm and that I would be ideal candidate for lumpectomy and radiation.

    Just had lumpectomy last week, will go for post-op appointment with surgeon early next week. Surgeon told my husband that my surgery went well, he was able to get all of it out and he thought it was early stage 1.

    That is all that I know thus far. I have been reading many posts on this board for the past couple of weeks, so learning as I go. Will post more about my dx as I learn more, following next weeks post op consultation.


  • Dizzybee
    Dizzybee Member Posts: 115

    hello Celand, welcome!

    I think waiting for all the appointments is one of the worst parts of all this, and it doesn't get any easier as you go along!

  • weneke6
    weneke6 Member Posts: 20

    I had my Lumpectomy yesterday. Even wore my batgirl onsie to the hospital. My thoughts are if you lose your sense of humor nothing else matters. Plus it made everything more normal for my 6 year old daughter. I was at the Mayo, and boy did everything run very smoothly. I was checked in by 9, surgery by 11 and home by 3. Handed out candy while grandpa and daddy took the demon spawn around.

    Surgeon checked as he did surgery so he says he thinks they have very good margins and I will know by Wednesday. So far looking like only DCIS. I had a MRI before surgery that did't find anything else.

    Hope everyone has wonderful first day of November or All Saints day.

  • darab
    darab Member Posts: 894

    Welcome Celand. It sounds like you were very fortunate to find the mass so early! Hope you're recovering from the lumpectomy and not having too much discomfort.

    Good luck Tootsie. I invested in several pairs of yoga pants and find they are the most comfortable to wear whenever I've had treatments.

    Well, Halloween was last night. We had just one darling little 3 1/2 yr old boy who came to our door. His mom had sent out an email asking who might like to have Nicholas trick or treat as we have no other kids in our neighborhood. We said definitely and he was so adorable. After we gave him a treat, he sang a darling Halloween song for us! Then my DH ate most os the remaining candy!! LoL.

    I have my CT this morning to start radiation. I'll also find out my schedule. My MO combines the sim and 1st treatment so I'm hoping it can still be scheduled this week. Still having a little trouble with fatigue after chemo. I think I need to exercise more to build up stamina. It's just so counterintuitive though because when your'e so tired, it's hard to be motivated to walk etc.

    Molly, still hoping you're doing well and that your DS is doing ok.

    Michelle. belated Happy Anniversary!

  • Goincrzy8
    Goincrzy8 Member Posts: 79

    Well today I meet the Surgeon. I hate the hurry up and wait. Lets get moving. I will probably have to call my mom and sister and tell the news. I have not told anyone yet just a few select.

    Dara I went trick or treating last nite with my grandkids, got some good steps in. I need to get the motivation to walk and get that exercise in. So hard with a sit down job. I want to be healthy and watch those 2 grow to adults.


    Good wishes and hugs for all everyone is going thru

    Sherry

  • IHGJAnn49
    IHGJAnn49 Member Posts: 408

    Dara, I have my sim tomorrow and start the real rads on thursday...hope my neck holds out ok, got rear ended friday and still coming up with different aches and pains... my van was totaled

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Celand and Weneke6, welcome to the best forum on BCO. You will find the warmest, most informative, and welcoming people here. We are sorry you had to find us but you'll be glad you did. Please fill out your profiles and make them public (Weneke6) - that helps us immensely. Also we love to know where you are because we have BCO sisters EVERYWHERE! And getting together is fantastic.

    Celend, You certainly had your surgery in speedy fashion! Make sure you allow time for rest so your body can heal. Waiting for your path report is awful. I was lucky that my surgeon called me 2 days later with the results. Fingers crossed that nothing changes.

    Weneke6, That's wonderful that you feel so good. Please remember you have had MAJOR surgery and your body needs to rest so it can heal. Please don't overdo it!!

    Dara, good luck with your rads. Fatigue is awful but no matter the treatments, it is part of breast cancer.

    Judy, damn! Like you need more aches and pains. That's awful about the loss of your van. Good luck with your rads Thursday.

    HUGS!

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    GoinCrzy8, Welcome. I know you deleted your post but know that we are here to help you in any way we can.

    HUGS!

  • celand
    celand Member Posts: 223

    Dizzybee, Yes, waiting for appointments is the worst - also for final pathology report, I do hope that nothing changes drastically between diagnosis and surgery - I wondered is this monster inside my breast would grow tremendously between diagnosis and surgery. My husband says that he wished that we would have researched our options prior to surgery, meaning that if it would have been possible for me to receive radiation via beads at tumor site, but would these have to have been put in during surgery? A friend of mine told me that is what a friend of hers did - she was OK after that until BC showed up in her other breast about 2-1/2 years later. At that point she chose to have a bi-lateral mastectomy and reconstruction w/implants - said that she didn't want to take any chances of cancer returning. By the way, I am diagnosed at age 51. I notice a variety of ages of ladies diagnosed in this forum. My mother died of BC in 1976 at the age of 51.

  • celand
    celand Member Posts: 223

    PontiacPeggy, I wanted the surgeon to get it out of me and that is what I told him at my pre-op appointment. He said that he understood. I am on pins and needles waiting for post-op appointment. I hope that there are no changes as well. Post-surgery, my underarm still hurts and is numb (is this normal and for how long), I find myself getting tired, feeling drained if I try to do too much. However, I drove for the 1st time today since my surgery (the surgeon didn't put any driving restrictions on me). I will go back to work tomorrow but will work a reduced schedule for the rest of week and next week. I do have over a year of sick leave so that will be a blessing (I have worked at a government facility for 20+ years and have filled in plenty of times for other sick co-workers, hopefully all will be understanding).