Faslodex Girls Thread
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GoingToBeatThis and Brutersomom - Thank you both very much for your thoughts. They are very helpful and sure enough, broaden my perspective in a meaningful way. Many do get both together and are happy to, and don't seem to have issues. Each time I've done both together, I have much stronger side effects and can't tell which does what. I will take your advice and make sure the schedulers make separate appointments like they used to. It is real convenient to have to do it all at one appointment, as it saves time, and I feel like I have a much longer stretch between appointments, but if getting them both together is causing this, it's not worth it.
The thing about the possibility of them using a different brand is something I hadn't considered at all , but sounds very plausible. A friend comes and picks me up and accompanies me to these appointments just for some moral support and to be another pair of eyes and ears. She used to warm the vials back some months ago, because when I started getting them 2 years ago, they came out of the refrigerator. For about 6 months now though, they've kept them at room temperature, so the warming is no longer necessary. If they now have a new brand, that could throw things off for sure. I had read about many encountering that problem with the AI tablets, but I hadn't given it a thought re the injectables, but I would think the same thing would hold. I did Letrozole for awhile, but didn't think switching brands would guarantee anything better. I became metastatic with it anyway. I still don't know if the others like Anastrozole would work. I might bring that up with my onc next month.
There's been no issue with the injection technique or anything like that. The shots hurt and I don't like it, but they aren't doing a bad job; just as good as most all of them do any time they give them. Intolight did mention a couple of months ago that she has gotten delayed side effects before (she gets them at the same time), but part of this issue for me is that they don't just come later or last longer, they are simply more intense and debilitating. I have read where some have to use ice packs and have difficulty walking, lose their appetites, and more, but my side effects have never been that bad; just a lot of aches and fatigue for a few days. They seem to be approaching that sort of thing now though. The stomach trouble is new and pretty bad too. My scans in March were stable, and my labs have been too, so I don't think it's progression at this point. Just real increasingly bad and intense side effects. Thanks again, so much!
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Threetree, I've only been on 3 rounds of Faslodex, but I am also wiped out pretty much the next day and limp around massaging my back side. I take Evenity and they gave me both shots at the same time once. I don't think I could feel any difference, but it's a different medication. I agree with splitting it up again, although that's not convenient.
Just wanted you to know I'm thinking about you and hoping that will resolve the problem.Sounds like you have a very good friend!
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Hippmark - Thank you for your description of what you experience. Mine settled down after I got into the once a month routine and pretty much just made me tired and mildly sore, and that would get better after a few days. These last few times have been something different and I've been much achier for longer, and more tired. Some have said they think the Faslodex side effects are cumulative and that that can explain the getting worse thing. I'm going to try splitting out those appointments again though, and see if that doesn't help, before I go thinking this might just be the "new normal" (I really dislike that term). I'm sorry that you are having as rough a time as you are. I'm not familiar with Evenity. Hopefully, your situation will smooth out. Those initial loading doses that come so close together can really do a number on you for sure!
Thank you so much for thinking of me and for helping me try and tackle this problem. I really appreciate it. Yes, my friend is a very long term and good one. I've known her since I was in the 6th grade. She's one of the old neighborhood gang. I originally knew her sister first and much better, but over the years I got to know this sister better. A group of us old neighbors from those days are still in touch, but some have moved farther away and we don't physically see each other as much. This one friend and I both wound up in the same part of town as adults and have stayed here, so that too has contributed to our staying in touch more all these years.
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