Anyone had reoccurance aftering opting out of taking tamoxofin?
I was diagnosed April 2015 at age 27 after having an excisional biop, from mammogram and ultrasound doctors were confident it was a benign fibroadneoma, turns out it was not. I had ~2.5cm DCIS tumor and <1.0mm invasive tumors scattered throughout, Stage 1. I had a unilateral mastectomy June 2015. Due to the the small nature of my invasive component and the fortunate event that it has not spread to my lymph nodes I was told Chemo was not suggested nor radiation. My ONC did really recommend tamoxofin. I have not started taking it, and I really don't want to. My doctors have strongly suggested that my long use of birth control was the contributing factor to my cancer, due to having a higher hormonal receptive cancer. I am never allowed to take it again and that is fine by me.
I am looking to see if anyone out there has a similar situation( or knows anyone) and decided not to take the tamoxofin and had a re-occurrence in the other breast or anywhere else. I am very stuck on what to do, my ONC gave me all the stats and there is just such a small % that it will help me, lowers my chances of re-occurrence <4%, which is still 4% but as what compromise to my quality of life. I am so young and to take tamx for 5-10 years and then stop......I am terrified of what this will do to my body. I feel like the tamx will just suppress the cancer and once I stop taking it I am going to be at risk for occurrence again.
Anyone out there know what I am feeling and talking about?